scholarly journals Development of a supportive care measure for economic evaluation of end-of-life care using qualitative methods

2013 ◽  
Vol 28 (2) ◽  
pp. 151-157 ◽  
Author(s):  
Eileen J Sutton ◽  
Joanna Coast
Keyword(s):  
Economic Evaluation ◽  
Supportive Care ◽  
Qualitative Methods ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Care Measure

scholarly journals Valuing end-of-life care: translation and content validation of the ICECAP-SCM measure

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Uta Gühne ◽  
Marie Dorow ◽  
Jessica Grothe ◽  
Janine Stein ◽  
Margrit Löbner ◽  
...  
Keyword(s):  
Supportive Care ◽  
End Of Life ◽  
Content Validity ◽  
End Of Life Care ◽  
Economic Evaluations ◽  
Life Care ◽  
Content Validation ◽  
The Uk ◽  
Care Measure

Abstract Background The evaluation of care strategies at the end of life is particularly important due to the globally increasing proportion of very old people in need of care. The ICECAP-Supportive Care Measure is a self-complete questionnaire developed in the UK to evaluate palliative and supportive care by measuring patient’s wellbeing in terms of ‘capability’. It is a new measure with high potential for broad and international use. The aims of this study were the translation of the ICECAP-Supportive Care Measure from English into German and the content validation of this version. Methods A multi-step and team-based translation process based on the TRAPD model was performed. An expert survey was carried out to assess content validity. The expert panel (n = 20) consisted of four expert groups: representative seniors aged 65+, patients aged 65+ living in residential care, patients aged 65+ receiving end-of-life care, and professionals in end-of-life care. Results The German version of the ICECAP-Supportive Care Measure showed an excellent content validity on both item- and scale-level. In addition, a high agreement regarding the length of the single items and the total length of the questionnaire as well as the number of answer categories was reached. Conclusions The German ICECAP-SCM is a valid tool to assess the quality of life at the end of life that is suitable for use in different settings. The questionnaire may be utilized in multinational clinical and economic evaluations of end-of-life care.

The Supportive Care Plan: a tool to improve communication in end-of-life care

2009 ◽  
Vol 15 (5) ◽  
pp. 250-255 ◽  
Author(s):  
Jane Thompson-Hill ◽  
Claire Hookey ◽  
Emily Salt ◽  
Trish O’Neill
Keyword(s):  
Supportive Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Care Plan ◽  
Life Care

scholarly journals Development of a measure (ICECAP-Close Person Measure) through qualitative methods to capture the benefits of end-of-life care to those close to the dying for use in economic evaluation

2016 ◽  
Vol 31 (1) ◽  
pp. 53-62 ◽  
Author(s):  
Alastair Canaway ◽  
Hareth Al-Janabi ◽  
Philip Kinghorn ◽  
Cara Bailey ◽  
Joanna Coast
Keyword(s):  
Economic Evaluation ◽  
End Of Life ◽  
End Of Life Care ◽  
Outcome Measure ◽  
Qualitative Interviews ◽  
Life Care ◽  
Snowball Sampling ◽  
Loved One ◽  
Good Communication ◽  
Descriptive System

Background: End-of-life care affects both the patient and those close to them. Typically, those close to the patient are not considered within economic evaluation, which may lead to the omission of important benefits resulting from end-of-life care. Aim: To develop an outcome measure suitable for use in economic evaluation that captures the benefits of end-of-life care to those close to the dying. Design: To develop the descriptive system for the outcome measure, in-depth qualitative interviews were conducted with the participants and constant comparative analysis methods were used to develop a descriptive system for the measure. Participants: Twenty-seven individuals bereaved within the last 2 years or with a close-person currently receiving end-of-life care were purposively recruited into the study. Participants were recruited through newsletters, adverts, snowball sampling and a local hospice. Results: Twenty-seven individuals were recruited. A measure of capability with six attributes, each with five levels, was developed based on themes arising from the analysis. Attributes comprise the following: good communication with services, privacy and space to be with the loved one, emotional support, practical support, being able to prepare and cope and being free from emotional distress related to the condition of the decedent. Conclusion: This measure is designed to capture the benefits of end-of-life care to close-persons for use in economic evaluation. Further research should value the measure and develop methods for incorporating outcomes for close-persons into economic evaluation.

Impact of mortality reviews on supportive care utilization, end-of-life care, and inpatient mortality.

2019 ◽  
Vol 37 (31_suppl) ◽  
pp. 45-45
Author(s):  
Yasmin Karimi ◽  
Vasu Divi ◽  
Sandy Srinivas ◽  
Andrea Segura Smith ◽  
Jennifer Hansen ◽  
...  
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Health Workers ◽  
Hospital Setting ◽  
Care Plan ◽  
Care Utilization ◽  
Life Care ◽  
Chi Square Analysis

45 Background: 22% of US patients with cancer die in a hospital setting. As part of an effort to reduce unexpected inpatient (inpt) mortality, we reviewed records of all inpt cancer deaths at Stanford Hospital and reported findings to the treatment teams. Methods: Deaths with a cancer related ICD 9/10 code between 5/2017 and 6/2019 were reviewed by a multidisciplinary team. Findings and potential opportunities for improvement were communicated to the pt’s primary outpt oncologist, inpt oncologists and other involved providers. Observed to expected (O:E) mortality for the year prior to the intervention (5/2016–4/2017), Year 1 (5/2017–4/2018) and Year 2 (5/2018–4/2019) of the intervention were compared with two sided t test, α=0.05 (Vizient Inc, Irving TX). Changes in supportive care utilization and end of life care between cases reviewed in Year 1 and Year 2 were compared with chi square analysis. Results: There were 236 inpatient deaths reviewed. The median age was 64 years; 76% had solid tumors; 68% had metastatic disease; 33% had a previous inpt admission; 34% received chemotherapy in the last 2 weeks of life. Median length of stay was 7 days and 37% were admitted to the intensive care unit (ICU). The O:E mortality ratio significantly decreased between the year prior to intervention and Year 2 (0.95 vs. 0.69; p = .019), and Years 1 and 2 (0.90 vs. 0.69; p = .003). There was no noted difference in number of palliative care consults or resuscitation status at the time of death between Years 1 and 2. There was an increased frequency of advance care plan documentation on admission in Year 2 (p = .007). Conclusions: Cancer pts who die in the hospital have high rates of recent hospitalizations, chemotherapy/radiation use in the last 2 weeks of life and ICU admissions. Decrease in O:E is likely multifactorial. Potential factors are improved documentation of comorbidities, increased access to palliative care services, and facilitation of hospice referrals which were partially driven by results of our reviews and resulting awareness around end of life care. Work is ongoing to standardize documentation of goals of care conversations in the electronic medical record and employ lay health workers for earlier end of life discussions.

Sign in / Sign up

Export Citation Format

Share Document