Services communautaires et qualité de la vie: une étude d'impact en région éloignée*

1992 ◽  
Vol 37 (8) ◽  
pp. 553-563 ◽  
Author(s):  
Céline Mercier ◽  
Raymond Tempier ◽  
Et Claude Renaud
Keyword(s):  
Quality Of Life ◽  
Support Services ◽  
Satisfaction With Life ◽  
Group Living ◽  
Community Support ◽  
Remote Area ◽  
Subjective Perception ◽  
Community Support Services ◽  
The Impact

This longitudinal study with a matched comparison group was conducted in Abitibi, an area in North-West Quebec. Its goal was to observe the impact of community support services on the quality of life of long term psychiatric patients living in a remote area. A cohort of 47 subjects, living in a small town with a comprehensive network of community support services, was compared with a similar group living in a neighbouring city with only outpatient services. The satisfaction with life domains scale developed by Andrews and Withey and adapted by Baker and Intagliata was used at four times during the study. According to the results, the subjective perception of the quality of life in the two groups is comparable, even though the objective conditions are less favorable for the group participating in the community support program. The highest ratings were given to the place of residence, the neighborhood and its commodities; the lowest ratings were given to their love life and financial situation. One can observe a stability of the measures of quality of life over time and for the two groups. The perceptions of the sample living in a remote area are much more favorable than the ones of a comparable group living in the Montreal area. These results are discussed in a double perspective: the role of community support services in the daily life of people who are having severe and persistant problems of mental health, and the interest of measures of quality of life.

Sensory Impairment, Use of Community Support Services, and Quality of Life in Aged Care Clients

2007 ◽  
Vol 19 (2) ◽  
pp. 229-241 ◽  
Author(s):  
Tien Tay ◽  
Jie Jin Wang ◽  
Richard Lindley ◽  
Ee-Munn Chia ◽  
Peter Landau ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Support Services ◽  
Community Support ◽  
Aged Care ◽  
Sensory Impairment ◽  
Community Support Services

scholarly journals Older People in Long-Term Care Institutions: A Case of Multidimensional Social Exclusion

2021 ◽  
pp. 297-309
Author(s):  
Feliciano Villar ◽  
Rodrigo Serrat ◽  
Annette Bilfeldt ◽  
Joe Larragy
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Social Relationships ◽  
Support Services ◽  
Long Term Care ◽  
Models Of Care ◽  
Term Care ◽  
The Impact

AbstractLiving in a long-term care (LTC) institution provides older people experiencing health and social problems with a comprehensive range of support services that address their quality of life. Despite access to such services, challenges arise in relation to their participation in key activities both within and outside the institution. This chapter examines such challenges, reviewing and describing ways to prevent exclusion along various domains, specifically social relationships, civic participation and socio-cultural life. Firstly, we discuss ways in which bio-medical models of care and the quality control systems, which are dominant in LTC services, standardise care, tending to put decisions exclusively in hands of staff, taking away residents’ autonomy, and ultimately curtailing rights and citizenship status. Secondly, we examine how LTC services might prevent such exclusion and promote older people’s participation in at least four respects: (1) prompting and supporting residents’ ability to take decisions on their own care, (2) favouring the maintenance and creation of social relationships, (3) enabling residents’ participation in the activities and management of the institution, and (4) guaranteeing residents’ rights and full access to citizenship. We discuss the impact and limitations of recent initiatives put into practice in these areas of practice.

scholarly journals The Impact of Tourism on the Quality of Life of Communities in Tourist Destination Areas: A Systematic Review

2021 ◽  
Vol 9 (F) ◽  
pp. 129-136
Author(s):  
Ni Made Sri Nopiyani ◽  
I Md Ady Wirawan
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Social Relations ◽  
Tourism Development ◽  
Community Support ◽  
Local Communities ◽  
Tourist Destination ◽  
Negative Impacts ◽  
The Impact

BACKGROUND: Tourism development can have a positive or negative impact on the lives of local communities. AIM: This systematic review aims to determine the impact of tourism on the quality of life (QoL) of people in tourist destination areas. METHODS: The search was conducted on the Science Direct database, Taylor Francis, EBSCO Host, Wiley Online Library, and Google Scholar. The keywords used were “residents’ QoL” AND impacts of tourism. Inclusion criteria were articles that focus on the QoL of people in tourist destination areas, published from 2015 to 2019 in peer-reviewed journals, in English. Articles were excluded if they were qualitative studies, literature reviews, and if full papers were unavailable. The review was conducted on 18 articles selected from 673 articles obtained in the initial search. RESULTS: Tourism has an impact on the QoL of local communities. In general, the domains that are perceived as being positively affected are the improvement of the economy, employment opportunities, community pride, cultural exchanges, and increased facilities availability. Meanwhile, the domains that are negatively affected in most of the studies are health, safety, quality of the physical environment, cost of living, accessibility to public facilities, and social relations. Apart from that, there is also dissatisfaction with the types of jobs available and the low level of community involvement in tourism development. CONCLUSIONS: Tourism can have both positive and negative impacts on the QoL of local communities. Efforts to minimize the negative impacts of tourism should be undertaken to improve community support for tourism development.

scholarly journals P410 Could the disease become ‘a friend’? The mediating role of illness acceptance on self-efficacy and quality of life of gastroenterological patients

2020 ◽  
Vol 14 (Supplement_1) ◽  
pp. S376-S377
Author(s):  
A Rudnik ◽  
G Piotrowicz ◽  
G Rydzewska ◽  
M Bidzan ◽  
E Ozgo
Keyword(s):  
Quality Of Life ◽  
Self Efficacy ◽  
Satisfaction With Life ◽  
Bodily Pain ◽  
Disease Diagnosis ◽  
Satisfaction With Life Scale ◽  
Strong Positive Correlation ◽  
Acceptance Of Illness ◽  
The Impact

Abstract Background Irritable bowel syndrome (IBS) and inflammatory bowel diseases (IBD), such as ulcerative colitis (UC) and Crohn’s disease (CD) are chronic conditions characterised by severe intestinal symptoms and other general symptoms, which impede daily functioning and affect the quality of life of patients. Understanding the significance of psychological factors in the disease development and therapy can improve the satisfaction with life of gastroenterological patients. The aim of the study was to analyse the impact of accepting the disease on the relation between an important personal resource, which is one’s self-efficacy and both satisfaction with life and components of the quality of life. Methods The study group consisted of 104 patients (N = 104), 58 women and 46 men suffering from IBS (35), UC (33) or CD (36). The average age equalled 32.56 years (SD = 11.04). The average duration of the disease was 8.5 years (SD = 6.9). The following research methods were used: the Generalised Self Efficacy Scale GSES (Schwarzer, Jerusalem, Juczynski), the Acceptance of Illness Scale AIS (Felton, Revenson, Hinrichsen, Polish adapt. by Juczynski), the Quality of Life SF-36v2 Questionnaire—the Polish version, the Satisfaction with Life Scale SWLS (Diener, Emmons, Larson, Griffin, Polish adapt. by Juczynski) and the author’s own questionnaire to collect the demographic data. Results The data were analysed using the independent sample t-test, chi-square test, Pearson correlation, regression analysis and mediation analysis. The study did not prove that the disease diagnosis (IBS, UC or CD) differed the level of satisfaction with life or the level of quality of life. Participants with IBS demonstrated a higher level of illness acceptance in comparison to IBD patients (p = 0.028). A strong positive correlation (p < 0.01) was observed between generalised self-efficacy and satisfaction with life—SWL (r = 0.37) and components of quality of life: lower perceived bodily pain—BP (r = 0.20), social role functioning—SF (r = 0.29) and mental health—MH (r = 0.35). Results pointed out that acceptance of illness mediated the relationship between generalised self-efficacy and SWL, BP, SF, and MH (β = 0.38 95% CI: 0.16–0.59; β = 0.25 95% CI: 0.004–0.73; β = 1.23 95% CI: 0.20–2.25; β = 1.18 95% CI: 0.46–1.90). Conclusion Psychological factor as acceptance of illness can be considered to be a resource which helps to cope with challenges posed by gastrointestinal disorders. Therefore, it is so significant to increase its level by applying psychotherapeutic methods tailored to the age and the needs of a patient.

scholarly journals The influence of activeness and independence on the quality of life of senior citizens

2016 ◽  
Vol 47 (3) ◽  
pp. 338-345
Author(s):  
Edyta Bonk
Keyword(s):  
Quality Of Life ◽  
Satisfaction With Life ◽  
Senior Citizens ◽  
Life Quality ◽  
Functional Independence ◽  
Successful Ageing ◽  
Full Control ◽  
Level Of Satisfaction ◽  
The Impact

Abstract In this study the author has focused on the impact of activeness and independence on the quality of life of seniors. Activeness is taken to mean the participation in regular everyday tasks. Functional independence is independence in everyday life. Quality of life in old age describes the level of satisfaction with life and indicators of successful ageing. The survey was conducted in October 2013 among four groups of seniors. Two variables determined the distribution of respondents: the level of activeness and the functional independence of the seniors. The study involved 99 seniors from Sopot and Gdansk. Functional independence has a much greater impact on the quality of life of seniors than activeness in as much as independence is influenced by our state of health over which we may always have full control, whereas activeness to a large extent depends on ourselves.

scholarly journals VALIDATION OF THE EQ-5D-5L VERSION IN RUSSIA

2018 ◽  
Vol 56 (3) ◽  
pp. 351-355 ◽  
Author(s):  
A. I Akulova ◽  
I. Z. Gaydukova ◽  
A. P. Rebrov
Keyword(s):  
Quality Of Life ◽  
Ankylosing Spondylitis ◽  
Disease Activity ◽  
Psychometric Properties ◽  
Russian Language ◽  
Subjective Perception ◽  
Asas Criteria ◽  
The Impact ◽  
The Russian Language

The paper discusses the process for validation of the Russian-language EQ-5D-5L version to assess quality of life. According to international and national guidelines, the primary goal of treating spondyloarthritis (SpA) is to preserve the quality of life (QOL) of a patient as long as possible, by achieving control of the main symptoms of the disease and inflammation, by preventing the development and progression of structural changes in the locomotor system, and by preserving/normalizing the patient's functional activity and social adaptation. QOL is the integral characteristic of the physical, psychological, social and emotional status of the patient, which is assessed on the basis of his subjective perception. At the moment, there are no generally accepted national tools for assessing QOL in Russia, so the problem of adaptation and validation of international questionnaires is very actual.Objective: to evaluate the psychometric properties of the Russian-language EQ-5D-5L version in patients with SpA.Subjects and methods. Examinations were made in 163 patients older than 18 years with axial or peripheral SpA, who met the Assessment of Spondyloarthritis International Society (ASAS) criteria. The disease activity was assessed using the Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) and the Ankylosing Spondylitis Disease Activity Score (ASDAS); their functional status was estimated by the Bath Ankylosing Spondylitis Functional Index (BASFI), and spinal mobility was evaluated by the Bath Ankylosing Spondylitis Metrology Index (BASMI). The ASAS Health Index (HI) was used to comprehensively analyze the impact of SpA on the patient's health. The EQ-5D-5L version was employed for the first time in Russia to assess the quality of life of patients. Its main psychometric properties, such as reproducibility, validity, sensitivity, were evaluated.Results and discussion. The median age of the patients was 39.50 [28.00; 48.00] years. Among them, there were 64.8% of men. The median value of EQ-5D (a 5L version) was 0.53 [0.29; 0.65]. There were statistically significant relationships between the EQ-5D-5L values and BASDAI, BASFI, ASDAS, BASMI, ASAS HI, and the SF-36 questionnaire for QOL assessment. The test-retest reliability study showed that the internal consistency (Cronbach's alpha) was 0.96. The median value of the EQ-5D-5L was 0.55 [0.37; 0.63] at the first visit and 0.60 [0.40; 0.69] at the second visit after prescribing therapy (p = 0.01).Conclusion. The validation has indicated that the EQ-5D-5L version is a reliable, change-sensitive, easy-to-use, and physician-patient-friendly tool to assess QOL. 

scholarly journals The efficacy of outpatient treatment of arterial hypertension through the prism of quality of life and the hemodynamic phenotype of patients

HYPERTENSION ◽  
2020 ◽  
Vol 13 (6) ◽  
pp. 15-27
Author(s):  
R.V. Khursa ◽  
I.L. Mesnikova ◽  
T.P. Pavlovich
Keyword(s):  
Quality Of Life ◽  
Blood Pressure ◽  
Drug Therapy ◽  
Outpatient Treatment ◽  
Subjective Perception ◽  
Significant Deterioration ◽  
Converting Enzyme Inhibitors ◽  
Comprehensive Rehabilitation ◽  
The Impact

Background. To investigate the efficacy of the outpatient treatment of hypertension as a cumulative result — the achievement of target blood pressure (BPt) level with an acceptable quality of life (QoL), as well as the impact on it of the hemodynamic phenotype of the patients, determined by the original method of quantitative analysis of relationships of blood pressure parameters (QARBPP), was the objective of this study. Materials and methods. A total of 175 hypertensive outpatients aged 60.0 (52.0–70.0) years receiving long-term (3–12 years) standard therapy with antihypertensives from the main recommended groups of drugs were examined. QoL was assessed on the Russian version of the RAND-36 questionnaire, validated and adapted to the Belarus; the hemodynamic phenotype by QARBPP was determined using individual series of BP values (25 and more) obtained with daily home measurements during 2–4 weeks; a statistical analysis of clinical and demographic features and their relationship with QoL and phenotypes was carried out. Results. A significant deterioration in QoL (the physical component and the overall level) was observed with an increase in age, degree and cardiovascular risk of hypertension, especially in the chronic forms of coronary heart disease. The QoL of patients who did not achieve BPt was significantly lower by most parameters than in those who achieved it. An increase in the number of drugs taken is associated with a decrease in QoL of people who have reached BPt. Patients with hemodynamic phenotype D significantly less often achieved BPt, regardless of the pharmacological group of drugs taken and their quantity, compared to those with phenotype H, and they had a lower QoL, which decreases yet more with intensification of drug therapy. Angiotensin converting enzyme inhibitors (ACEI) and calcium channel blockers (CCB) were effective for achieving BPt (mainly in patients with phenotype H), but they had negative affect on the QoL: ACEI — with phenotype H, CCB — with D one. Beta-blockers and diuretics did not significantly affect QoL. A statistical model based on 5 clinical and demographic factors has been proposed for predicting a low overall level of QoL in patients with achieved BPt, which helped identify individuals who need to improve the subjective perception of their health through comprehensive rehabilitation. Conclusions. The efficacy of antihypertensive therapy should be assessed based on the achievement of BPt and the overall QoL level of at least 60 points (according to RAND-36). When prescribing treatment, the hemodynamic phenotype should be taken into account: drug therapy for all patients with phenotype D, as well as for those with phenotype H with low QoL and unreached BPt must be supplemented with comprehensive rehabilitation using non-drug methods.

Industrial Infrastructure and Environmental Inequality in Monotowns

2019 ◽  
Vol 23 (8) ◽  
pp. 64-71
Author(s):  
V.Р. Vasiliev ◽  
V.A. Sushko ◽  
N.G. Dekhanova
Keyword(s):  
Quality Of Life ◽  
Satisfaction With Life ◽  
Healthy Lifestyle ◽  
Well Being ◽  
Environmental Problems ◽  
Poor Quality ◽  
Environmental Indicators ◽  
Environmental Inequality ◽  
The Impact

The article discusses current issues of environmental inequality in monotowns (single-industry cities), the industrial infrastructure associated with it, relating to the quality of life of the population. The nature and specificity of the impact of environmental indicators in monotowns on the socio-ecological well-being of the population, healthy lifestyle and longevity, as well as their well-being and satisfaction with life are discussed. As a research method, data from a sociological survey conducted by the authors in Norilsk in 2018 are presented. An important role in the study is assigned to such a component as the ecological situation in environmental problems. Among the most important environmental problems of the regions were identified health problems, air pollution, water bodies, poor quality food, an increase in landfills. The results showed a close relationship between environmental problems associated with industrial infrastructure and the quality of life of the population.

scholarly journals Improving the quality of life of patients with rheumatoid arthritis after rehabilitation irrespective of the level of disease activity

2020 ◽  
Author(s):  
Daniel Szewczyk ◽  
Teresa Sadura-Sieklucka ◽  
Beata Sokołowska ◽  
Krystyna Księżopolska-Orłowska
Keyword(s):  
Quality Of Life ◽  
Rheumatoid Arthritis ◽  
Disease Activity ◽  
Rehabilitation Program ◽  
Activity Level ◽  
Subjective Perception ◽  
Das28 Score ◽  
Comprehensive Rehabilitation ◽  
The Impact

Abstract Due to the exacerbation of the disease, the rehabilitation of patients with rheumatoid arthritis is often limited. The aim of the study was to analyze the impact of a comprehensive rehabilitation on a subjective perception of pain and quality of life in patients with rheumatoid arthritis depending on the level of disease activity. The study involved 58 women with rheumatoid arthritis aged 18–60, who underwent a 4-weeks comprehensive rehabilitation program. The assessment included the disease activity level on the DAS28 scale, pain intensity on the 10-point pain scale (VAS) and the value of the CRP protein. The HAQ-DI and KALU questionnaire were used to assess the quality of life. In both groups (group A—DAS28 < 4.2, group B—DAS28 ≥ 4.2) the statistically significant effects in decreasing the level of pain and improvement of quality of life were observed. This indicates the need and effectiveness of rehabilitation regardless of the level of activity of rheumatoid arthritis according to the DAS28 scale. There were no significant changes in the CRP protein level. In conclusion, the rehabilitation of patients with moderate to high disease activity is effective and the success of comprehensive rehabilitation is demonstrated by the decrease of the DAS28 score and the pain level reported by patients, as well as improving self-assessment of health and quality of life.

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