P410 Could the disease become ‘a friend’? The mediating role of illness acceptance on self-efficacy and quality of life of gastroenterological patients

Abstract Background Irritable bowel syndrome (IBS) and inflammatory bowel diseases (IBD), such as ulcerative colitis (UC) and Crohn’s disease (CD) are chronic conditions characterised by severe intestinal symptoms and other general symptoms, which impede daily functioning and affect the quality of life of patients. Understanding the significance of psychological factors in the disease development and therapy can improve the satisfaction with life of gastroenterological patients. The aim of the study was to analyse the impact of accepting the disease on the relation between an important personal resource, which is one’s self-efficacy and both satisfaction with life and components of the quality of life. Methods The study group consisted of 104 patients (N = 104), 58 women and 46 men suffering from IBS (35), UC (33) or CD (36). The average age equalled 32.56 years (SD = 11.04). The average duration of the disease was 8.5 years (SD = 6.9). The following research methods were used: the Generalised Self Efficacy Scale GSES (Schwarzer, Jerusalem, Juczynski), the Acceptance of Illness Scale AIS (Felton, Revenson, Hinrichsen, Polish adapt. by Juczynski), the Quality of Life SF-36v2 Questionnaire—the Polish version, the Satisfaction with Life Scale SWLS (Diener, Emmons, Larson, Griffin, Polish adapt. by Juczynski) and the author’s own questionnaire to collect the demographic data. Results The data were analysed using the independent sample t-test, chi-square test, Pearson correlation, regression analysis and mediation analysis. The study did not prove that the disease diagnosis (IBS, UC or CD) differed the level of satisfaction with life or the level of quality of life. Participants with IBS demonstrated a higher level of illness acceptance in comparison to IBD patients (p = 0.028). A strong positive correlation (p < 0.01) was observed between generalised self-efficacy and satisfaction with life—SWL (r = 0.37) and components of quality of life: lower perceived bodily pain—BP (r = 0.20), social role functioning—SF (r = 0.29) and mental health—MH (r = 0.35). Results pointed out that acceptance of illness mediated the relationship between generalised self-efficacy and SWL, BP, SF, and MH (β = 0.38 95% CI: 0.16–0.59; β = 0.25 95% CI: 0.004–0.73; β = 1.23 95% CI: 0.20–2.25; β = 1.18 95% CI: 0.46–1.90). Conclusion Psychological factor as acceptance of illness can be considered to be a resource which helps to cope with challenges posed by gastrointestinal disorders. Therefore, it is so significant to increase its level by applying psychotherapeutic methods tailored to the age and the needs of a patient.

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The impact of brief lifestyle self-management education for the control of seizures

British Journal of Nursing ◽

10.12968/bjon.2019.28.6.348 ◽

2019 ◽

Vol 28 (6) ◽

pp. 348-354 ◽

Cited By ~ 3

Author(s):

Karen-leigh Edward ◽

Mark Cook ◽

John Stephenson ◽

Jo-Ann Giandinoto

Keyword(s):

Quality Of Life ◽

Medication Adherence ◽

Self Efficacy ◽

Satisfaction With Life ◽

Self Management ◽

Control Group ◽

Management Intervention ◽

The Impact ◽

Psychological Quality Of Life

Aim: this study examined a brief lifestyle self-management intervention, based on self-determination theory, to manage seizure frequency, and its effects on health-related quality of life and resilience in people with epilepsy aged over 18 years. Background: most people with epilepsy can identify factors that may trigger seizures and may try to avoid these; however, education from clinicians on this varies. Design: a cohort study with control design. Method: sixty participants were purposively sampled and allocated to an intervention or a control group. Results: moderate correlations were found, particularly between: resilience and satisfaction with life; medication adherence and psychological quality of life; and psychological quality of life and satisfaction with life. The mean seizure occurrences between the control and intervention groups were 12.71 (SD 24.55) and 6.76 (SD 13.40) respectively after the intervention. While the study was not powered to assess this, the intervention may be most effective regarding medication adherence and physical health quality of life. Conclusion: the relationship between self-efficacy and seizure management appeared to be strengthened by the programme. This study is the first known to measure resilience in relation to lifestyle self-management for seizure control in people with epilepsy. Relevance to practice: nurses are well placed to work with patients' strengths towards self-efficacy and potentially resilient coping.

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The Impact Of Malocclusion On Quality Of Life And Life Satisfaction

International Archives of Medicine ◽

10.3823/2492 ◽

2017 ◽

Vol 10 ◽

Author(s):

Antonio Franklin Cordeiro Neto ◽

Roberto Carlos Mourão Pinho ◽

Raulison Vieira de Sousa ◽

Bruna De Carvalho Farias Vajgel ◽

Renata Cimões

Keyword(s):

Quality Of Life ◽

Satisfaction With Life ◽

Negative Impact ◽

Class Ii ◽

Class I ◽

Satisfaction With Life Scale ◽

Class Iii ◽

Level Of Satisfaction ◽

The Impact

Objective: The aim of this study was to evaluate whether the type of malocclusion affects the perception of quality and satisfaction with people's lives. Material and Methods: Three questionnaires were applied: the first one assessed the social and economic factors and the diagnosis of malocclusion through Angle´s classification, the second was the OHIP-14, and the third was the Satisfaction With Life Scale (SWLS). Results: This study involved 444 patients aged 18 to 72 years. According to the classification of malocclusion 48.65% was Class I, 22.75% was Class II division 1, 12.16% was Class II division 2 and Class III 16.44%. The malocclusion did not have negative impact on the level of satisfaction with life, but in all dimensions analyzed by OHIP-14, malocclusion had negative impact on quality of life and was statistically significant. The most severe malocclusions such as Class II and Class III represent a more negative impact when compared to Class I malocclusion. Moreover, for the dimensions assessed by the OHIP-14, physical pain and psychological discomfort were those who showed a greater negative impact on quality of life. Conclusions: Malocclusions do not interfere with the judgment of the level of satisfaction with life, but they produce a negative impact on quality of life.

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Effect of Instructing Care Program Through Group Discussion on the Quality of Life of the Parents of the Children Afflicted With Leukemia

Global Journal of Health Science ◽

10.5539/gjhs.v8n5p197 ◽

2015 ◽

Vol 8 (5) ◽

pp. 197 ◽

Cited By ~ 3

Author(s):

Fariba Asadi Noughabi ◽

Daryoush Iranpoor ◽

Hadi Yousefi ◽

Hakimeh Abrakht ◽

Fatemeh Ghani Dehkordi

Keyword(s):

Quality Of Life ◽

Negative Impact ◽

Emotional Health ◽

Group Discussion ◽

Bodily Pain ◽

Care Program ◽

Role Of Parents ◽

The Impact ◽

Taking Care

PURPOSE: Children long-term involvement with cancer may have a negative impact on the quality of life their parents. Design and implementation of training programs for parents whose children have been diagnosed with leukemia, as the primary caregivers of children, will have a special significance and can contribute to better taking care of such children. The main purpose of the present study was to examine the impact of conducting group discussion, as care program training, on the quality of life parents whose children were suffering from leukemia.METHODS: This quasi-experimental before-after intervention study encompassed two groups of parents (in total 41) of leukemia children. To collect data, a demographic questionnaire and the shortened version of SF-36 questionnaire were used to determine the quality of life of parents. Both groups completed the quality of life questionnaires before and two months after the intervention.RESULTS: Comparison of the parents’ quality of life mean scores, obtained before and two months after training, showed that promotion in 6 domains of bodily pain, general health, emotional health, role limitation due to emotional problems, social functioning, and vitality were occurred. (P <0.05)CONCLUSIONS: Considering the important role of parents in taking care of children suffering from leukemia, introduction of care program training can be a positive step to help these parents and empower them to manage their children’s problems more systematically and will ultimately lead to improved quality of life of parents.

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Quality of life during the first 6 months of interferon-b treatment in patients with MS

Multiple Sclerosis Journal ◽

10.1177/135245850000600508 ◽

2000 ◽

Vol 6 (5) ◽

pp. 338-342

Author(s):

J HA Arnoldus ◽

J Killestein ◽

L EMA Pfennings ◽

B Jelles ◽

B MJ Uitdehaag ◽

...

Keyword(s):

Quality Of Life ◽

Depressive Symptoms ◽

Side Effects ◽

Physical Functioning ◽

Bodily Pain ◽

Significant Linear Trend ◽

Role Physical ◽

Sf 36 ◽

The Impact

Objectives: To determine the quality of life (QoL) of MS patients during the initial 6 months of treatment with interferon-b (IFN-b). Furthermore, to determine whether changes in QoL relate to disability, emotional state, therapeutic expectations or side effect profile. Background: IFN-b has been shown to have beneficial effects on the course of MS. Since the aim of IFN-b treatment is not to cure but to slow down the disease it is important to know how this treatment affects QoL. Surprisingly, the impact of treatment with IFN-b on QoL measures has not been extensively studied so far. Methods: Case report documentation, including EDSS, SF-36 and MADRAS scores, of 51 relapsing-remitting MS patients treated with IFN-b was obtained at baseline and at months 1, 3 and 6. Patients also filled in a form about their expectations of therapy and a questionnaire on side effects. Results: During treatment there was a significant linear trend indicating improvement in the role-physical functioning (RPF) scale of the SF-36 (F1,50=4.9, P=0.032). A transient decrease at month 1 was found in the scale for bodily pain, indicating more experienced pain (F1,50=19.8, P50.001). Subgroup analysis showed that patients with most depressive symptoms on the MADRAS at baseline contributed most to the increase in RPF scores over time (F1,24=5,6 P=0.026). Furthermore, we found associations between adverse event scores and several domains of QoL. Conclusions: Our findings suggest that IFN-b therapy has an impact on QoL of MS patients in that it improves role-physical functioning and transiently worsens experienced bodily pain. QoL during treatment with IFN-b is influenced by depressive symptoms at baseline as well as by treatment-associated side-effects.

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Validation of the English Version of the Scale for Psychosocial Factors in Food Allergy and the Relationship with Mental Health, Quality of Life, and Self-Efficacy

Journal of Allergy ◽

10.1155/2016/4850940 ◽

2016 ◽

Vol 2016 ◽

pp. 1-7 ◽

Cited By ~ 3

Author(s):

Rebecca C. Knibb ◽

Aaron Cortes ◽

Christopher Barnes ◽

Carol Stalker

Keyword(s):

Quality Of Life ◽

Mental Health ◽

Food Allergy ◽

Psychosocial Factors ◽

Self Efficacy ◽

Holistic View ◽

Parental Quality ◽

The Uk ◽

The Impact

Background. The Scale for Psychosocial Factors in Food Allergy (SPS-FA) is based on the biopsychosocial model of health and was developed and validated in Chile to measure the interaction between psychological variables and allergy symptoms in the child. We sought to validate this scale in an English speaking population and explore its relationship with parental quality of life, self-efficacy, and mental health. Methods. Parents (n=434) from the general population in the UK, who had a child with a clinical diagnosis of food allergy, completed the SPS-FA and validated scales on food allergy specific parental quality of life (QoL), parental self-efficacy, and general mental health. Findings. The SPS-FA had good internal consistency (alphas = .61–.86). Higher scores on the SPS-FA significantly correlated with poorer parental QoL, self-efficacy, and mental health. All predictors explained 57% of the variance in SPS-FA scores with QoL as the biggest predictor (β=.52). Discussion. The SPS-FA is a valid scale for use in the UK and provides a holistic view of the impact of food allergy on the family. In conjunction with health-related QoL measures, it can be used by health care practitioners to target care for patients and evaluate psychological interventions for improvement of food allergy management.

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Impact of Comorbidities on Quality Of Life in Breast Cancer Patients

Indian Journal of Cardiovascular Disease in Women WINCARS ◽

10.1055/s-0038-1656491 ◽

2016 ◽

Vol 01 (04) ◽

pp. 025-028

Author(s):

Monica Irukulla ◽

Rama Vaghmare ◽

Deepa Joseph ◽

Syed Ahmed ◽

Jyothi Jonnadula ◽

...

Keyword(s):

Breast Cancer ◽

Quality Of Life ◽

Cancer Patients ◽

Physical Functioning ◽

Bodily Pain ◽

Evidence Base ◽

Breast Cancer Patients ◽

Co Morbidity ◽

The Impact

AbstractIntroduction: Comorbidities are common among cancer patients and with an aging population are becoming more prevalent. These can potentially affect the stage at diagnosis, treatment and outcomes of people with cancer. Despite the intimate relationship between comorbidity and cancer, there is limited consensus on how to record, interpret or manage comorbidities in the context of cancer. Addressing the impact of comorbid conditions in cancer patients warrants improvement in the evidence base from which to make treatment decisions for those with comorbidities.Methods: In this prospective study, 64 patients with breast cancer, underwent QOL assessment using FACT –B questionnaire at three time points- pre-radiation and three and six months post radiation.Results: 29(46%) patients had comorbidities of which 23 (35%) had cardiovascular comorbidities and 6 had other comorbidities. The co-morbidities were negatively associated with multiple domains of quality of life, including physical functioning, general health, bodily pain. Patients with diabetes and hypertension had significantly lower scores in physical functioning in comparison to patients without diabetes and hypertension, but improved after treatment. In majority of patients the overall scores were less in patients with co-morbidities compared to patients without any co-morbidity.Conclusion: Comorbidities can significantly affect the quality of life in patients with comorbidities. Hence greater research into the QOL issues for better patient care and symptom management especially during the transitioning phase from active care to follow up will help clinicians improve the quality of care and interdisciplinary co-ordination.

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Quality of Life, Social Support, Acceptance of Illness, and Self-Efficacy among Pregnant Women with Hyperglycemia

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph16203941 ◽

2019 ◽

Vol 16 (20) ◽

pp. 3941 ◽

Cited By ~ 3

Author(s):

Iwanowicz-Palus ◽

Zarajczyk ◽

Pięta ◽

Bień

Keyword(s):

Quality Of Life ◽

Social Support ◽

Pregnant Women ◽

Carbohydrate Metabolism ◽

Self Efficacy ◽

World Health ◽

World Health Organization Quality ◽

The Mean ◽

Acceptance Of Illness

Carbohydrate metabolism disorders resulting in hyperglycemia are among the most common metabolic complications of pregnancy. According to 2017 data from the International Diabetes Federation (IDF), 16.2% of pregnancies are complicated with hyperglycemia, of which gestational diabetes mellitus (GDM) accounts for 86.4% of cases. Carbohydrate metabolism disorders developing during pregnancy require the patient to change her lifestyle or, in some cases, to undergo pharmaceutical treatment, which may affect various aspects of the patient’s life, including her perceived quality of life (QoL). The purpose of the present study was to evaluate levels of QoL, social support, acceptance of illness, and self-efficacy among pregnant patients with hyperglycemia. The study was performed between July 2016 and September 2017 in a group of hyperglycemic pregnant women. The following instruments were used: the World Health Organization Quality of Life—BREF (WHOQOL-BREF), the Berlin Social Support Scales (BSSS), the Acceptance of Illness Scale (AIS), the Generalized Self-Efficacy Scale (GSES) and a standardized interview questionnaire. Participants rated their overall QoL (3.64 points) higher than their overall perceived health (3.43). In terms of social support, the highest scores were obtained in terms of actually received support (3.53) and perceived available instrumental support (3.52), while the lowest in terms of support seeking (2.99) and the need for support (2.95). The mean acceptance of illness score among the hyperglycemic pregnant women that were studied was 31.37, and the mean generalized self-efficacy score was 31.58. Participants’ reported QoL in the various WHOQOL-BREF domains was associated with specific social support scales, acceptance of illness, and generalized self-efficacy.

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Impact of a Postoperative Intervention Educational Program on the Quality of Life of Patients with Hip Fracture: A Randomized, Open-Label Controlled Trial

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph17249327 ◽

2020 ◽

Vol 17 (24) ◽

pp. 9327

Author(s):

Francisco Javier Amarilla-Donoso ◽

Raúl Roncero-Martín ◽

Jesus Lavado-García ◽

María de la Luz Canal-Macías ◽

María Pedrera-Canal ◽

...

Keyword(s):

Quality Of Life ◽

Hip Fracture ◽

Social Functioning ◽

Educational Program ◽

Bodily Pain ◽

Intervention Group ◽

Control Group ◽

Controlled Clinical Trial ◽

The Impact

The objective of this study was to determine the impact of a postoperative educational intervention program on the health-related quality of life (HRQoL) of patients with hip fracture using a controlled clinical trial in a randomized, multicenter study. In total, 102 patients (45.5%) from trauma units at the two University Hospitals of the province of Cáceres received the educational program, whereas 122 (54.5%) did not. Patients were consecutively included in either an intervention or a control group. Patients from the intervention group received an educational program during admission and the postoperative period. Patients from the control group did not receive any educational program. These patients were managed according to routine protocols. The patients were predominantly female (76.3%), aged 84.6 years (SD 6.1). All dimensions in both groups at 12 months showed a significant decrease with respect to baseline, except for bodily pain in both groups (p = 0.447; p = 0.827) and social functioning in the intervention group (p = 0.268). Patients receiving the educational program showed higher levels in the dimensions of the Mental Component Summary (MCS-12) (p = 0.043), vitality (p = 0.010), and social functioning (p < 0.001), as well as in the dimensions of the SF-12 health survey questionnaire of HRQoL 12 months after surgery. In conclusion, our study of the intervention group showed that there were significant improvements in MCS-12, vitality, and social function dimensions compared to the control group.

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P101: Quality of life in patients discharged from the emergency department with atrial fibrillation or flutter (AF/AFL): a prospective cohort study

CJEM ◽

10.1017/cem.2017.303 ◽

2017 ◽

Vol 19 (S1) ◽

pp. S112

Author(s):

S. Patrick ◽

P. Duke ◽

K. Lobay ◽

M. Haager ◽

B. Deane ◽

...

Keyword(s):

Quality Of Life ◽

Atrial Fibrillation ◽

Emergency Department ◽

Short Form ◽

Bodily Pain ◽

Emergency Physicians ◽

Health Related Qol ◽

Health Related ◽

The Impact

Introduction: Following an emergency department (ED) presentation for acute atrial fibrillation and/or flutter (AF/AFL), patients often experience anxiety, depression and impaired health-related quality of life (QoL). Emergency physicians may prescribe appropriate thrombo-embolic (TE) prophylaxis upon discharge; however, the QoL of these patients is unclear. This study measured the QoL of patients with AF/AFL following discharge to determine the factors associated with QoL. Methods: Patients ≥18 years of age identified by the attending physician as having a diagnosis of acute AF/AFL confirmed by ECG were prospectively enrolled from three Edmonton, AB EDs. Using standardized enrollment forms, trained research assistants collected data on patient demographics factors and management both in the ED and at discharge. Patients’ health-related QoL was assessed up to 20 days after their initial ED visit by a telephone interview based on six domains of the short-form 8 health survey. Results: From a total of 196 enrolled patients, 121 (62%) were male and the mean age was 63 years (standard deviation ±14). Most patients had previous history of AF/AFL (71%), and emergency physicians had the opportunity to treat or revise TE prevention therapy in 19% of the patients. The majority (89%) were discharged with prescriptions for antiplatelet or anticoagulant agents, and 188 (96%) were contacted by telephone at a median of 7 days. Most patients rated their overall health between good and excellent (70%); however, 30% assessed their health as fair or very poor. Many also reported having physical limitations (54%), difficulties completing their daily work (42%), bodily pain (32%) and limitations in social activities (32%). Finally, some patients reported having low energy (25%). At follow up, patients receiving adequate TE prevention rated their health to be similar to those without adequate TE prevention (30% vs 23%; p=0.534). Conclusion: Overall, patients with acute, symptomatic AF/AFL seen in the ED have impairments in health-related QoL following discharge from the ED. Many factors contribute to this impairment; however, providing patients with appropriate TE prophylaxis at discharge did not explain these findings. Further research is required to explore the impact of AF/AFL on patient’s health-related QoL after discharge from the ED.

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Impact of a structured, group-based running programme on clinical, cognitive and social function in youth and adults with complex mood disorders: a 12-week pilot study

BMJ Open Sport & Exercise Medicine ◽

10.1136/bmjsem-2019-000521 ◽

2019 ◽

Vol 5 (1) ◽

pp. e000521

Author(s):

Laura E Keating ◽

Suzanna Becker ◽

Katie McCabe ◽

Jeff Whattam ◽

Laura Garrick ◽

...

Keyword(s):

Quality Of Life ◽

Mood Disorders ◽

Exercise Intervention ◽

Bodily Pain ◽

Cognitive Outcomes ◽

Open Label ◽

Mood Symptoms ◽

Before And After ◽

The Impact

BackgroundIndividuals with mood disorders often report lingering health-related quality of life (HRQOL) and social and cognitive impairments even after mood symptoms have improved. Exercise programmes improve mood symptoms in patients, but whether exercise improves functional outcomes in patients with difficult-to-treat mood disorders remains unknown.DesignWe evaluated the impact of a 12-week structured running programme on cognitive, social and quality-of-life outcomes in participants with difficult-to-treat mood disorders.MethodsIn a prospective, open-label study, patients referred to the St Joseph’s Healthcare HamiltonTeam Unbreakablerunning programme for youth and adults with mood disorders completed a comprehensive assessment battery before and after the 12-week exercise intervention.ResultsWe collected preintervention and postintervention data from 18 participants who improved on the general health, vitality, role of emotions, social functioning and mental health (all p≤0.01) HRQOL subscales. Performance improved on cognitive tests that assessed working memory and processing speed (p≤0.04); there were no improvements in complex executive functioning tasks. Regression analyses indicated that younger age, shorter illness duration and reduced bodily pain predicted social and cognitive outcomes.ConclusionParticipation in a group-based, structured running programme was associated with improved HRQOL and social and cognitive function.

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