The Acceptability of Biobehavioral Research With Latino Youth in the United States

2018 ◽  
Vol 34 (5) ◽  
pp. 597-618 ◽  
Author(s):  
Karen E. Johnson ◽  
Christopher P. Salas-Wright ◽  
David Córdova ◽  
Jenny Ugalde ◽  
Jelena Todic ◽  
...  
Keyword(s):  
United States ◽  
Human Subjects ◽  
Latino Youth ◽  
The United States ◽  
Health Risk Behaviors ◽  
Biological Data ◽  
Willingness To Participate ◽  
Research Findings ◽  
Protection Of Human Subjects ◽  
Latinx Adolescents

In this study, we explored Latinx adolescents’ knowledge and perceptions of biobehavioral research and their willingness to participate in such studies. We conducted four focus groups in the summer of 2014 with Latinx adolescents in Texas between the ages of 12 and 17 years ( n = 17; 53% male; M age = 14.6 years [ SD = 1.66]) who were recruited from a community-based clinic. Five themes emerged from our content analysis: (a) protection of human subjects is important to participants, (b) comfort with providing different types of biological data varies depending on different factors, (c) engagement in biobehavioral research should be grounded in a cultural lens, (d) providing bilingual research staff is essential, and (e) adolescents have various motivations for participating. Findings highlighted how various factors could serve as both barriers and facilitators to participation. Our study provides insight into strategies for conducting biobehavioral research with Latinxs, who are the fastest growing group of adolescents in the United States and experience disparities in health-risk behaviors that can be better understood through research approaches that integrate biological and psychological measures. Without considering the perspectives of historically marginalized or understudied populations, we jeopardize the quality and validity of research findings, and risk harming participants.

Research Ethics as Social Policy. Some Lessons from Experiences in Canada and in the United States

2003 ◽  
Vol 24 (2) ◽  
pp. 61-85
Author(s):  
Michael McDonald ◽  
Eric Meslin
Keyword(s):  
United States ◽  
Human Subjects ◽  
Ethics Committees ◽  
The United States ◽  
Prior Review ◽  
Emerging Trends ◽  
Policies And Procedures ◽  
Behavioural Research ◽  
Individual Informed Consent ◽  
Protection Of Human Subjects

For more than tlrree decades, Canada and the United States have used similar mechanisms for ensuring the protection of human subjects involved in biomedical and behavioural research: written guidelines that specify the substantive and procedural requirements of investigators and institutions; individual informed consent, and prior review and approval by interdisciplinary committees. Given the proximity of the countries to one another and the massive amount of trade and commerce that transpires between them, it is not surprising that these countries share a number of values in research. During the past fifteen years, however, both countries have experienced new challenges to their systems. Sorne of the challenges relate to new trends in research, such as genetics studies and massively increased private sector funding for pharmacological research. Other challenges relate to emerging trends in oversight policies and procedures, such as accreditation of ethics committees. Research reflects a country's particular social policies. The responses to emerging trends illustrate how such policies are evolving in sometimes quite different ways in both countries. This reflects the related but distinct political cultures and structures in the two countries. This paper will explore these trends and emerging responses, drawing lessons from each.

scholarly journals Barrios and Burbs: Residential Context and Health-Risk Behaviors among Angeleno Adolescents

2007 ◽  
Vol 48 (3) ◽  
pp. 283-300 ◽  
Author(s):  
Reanne Frank ◽  
Magdalena Cerdá ◽  
Maria Rendón
Keyword(s):  
United States ◽  
Los Angeles ◽  
Health Risk ◽  
Risk Behaviors ◽  
Latino Youth ◽  
The United States ◽  
Health Risk Behaviors ◽  
Latino Adolescents ◽  
Segmented Assimilation ◽  
Residential Context

The increasing size of the Latino immigrant population in the United States underscores the need for a more complete understanding of the role that social context plays in influencing the health of immigrants and their children. This analysis explores the possibility that residential location influences the health-risk behaviors of Latino youth in Los Angeles County, California. The data come from the Los Angeles Family and Neighborhood Survey. We apply multivariate, multilevel Rasch models to two scales of adolescent health-risk behaviors (substance use and delinquency). The findings suggest that residence in Census tracts characterized by above-county-average levels of Latinos and above-county-average levels of poverty is associated with increased odds of health-risk behaviors for Latino adolescents, particularly for those born in the United States. The findings lend support to the contention, put forth in the segmented assimilation literature, that disadvantaged urban contexts increase the risk that U.S.-born children of immigrants will experience downward assimilation.

Justice, Fairness, and Membership in a Class: Conceptual Confusions and Moral Puzzles in the Regulation of Human Subjects Research

2011 ◽  
Vol 39 (3) ◽  
pp. 488-501 ◽  
Author(s):  
Ana S. Iltis
Keyword(s):  
United States ◽  
Human Subjects ◽  
United States Public Health ◽  
The United States ◽  
National Commission ◽  
Human Research ◽  
Common Rule ◽  
Department Of Health ◽  
The Common ◽  
Protection Of Human Subjects

Much of the human research conducted in the United States or by U.S. researchers is regulated by the Common Rule. The Common Rule reflects the decision of 17 federal agencies, including the Department of Health and Human Services (whose regulations appear at 45CFR46), to require that investigators follow the same rules for conducting human research. (The Food and Drug Administration [FDA] has its own rules (at 21CFR50 and 21CFR56), though there is significant overlap with the Common Rule.) Many of the obligations delineated in the Common Rule can be traced back to the work of the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (hereafter the National Commission). The National Commission was appointed in 1974 as part of the National Research Act (P.L. 93-348) in response to revelations about serious abuses involving human subjects, most notably the Tuskegee/United States Public Health Service Syphilis Study.

scholarly journals “How Do We Actually Do Convergence” for Disaster Resilience? Cases from Australia and the United States

2021 ◽  
Author(s):  
Shefali Juneja Lakhina ◽  
Elaina J. Sutley ◽  
Jay Wilson
Keyword(s):  
United States ◽  
Research Policy ◽  
Well Being ◽  
The United States ◽  
First Century ◽  
Urban Resilience ◽  
South Wales ◽  
Systemic Risks ◽  
Work Community ◽  
Research Findings

AbstractIn recent years there has been an increasing emphasis on achieving convergence in disaster research, policy, and programs to reduce disaster losses and enhance social well-being. However, there remain considerable gaps in understanding “how do we actually do convergence?” In this article, we present three case studies from across geographies—New South Wales in Australia, and North Carolina and Oregon in the United States; and sectors of work—community, environmental, and urban resilience, to critically examine what convergence entails and how it can enable diverse disciplines, people, and institutions to reduce vulnerability to systemic risks in the twenty-first century. We identify key successes, challenges, and barriers to convergence. We build on current discussions around the need for convergence research to be problem-focused and solutions-based, by also considering the need to approach convergence as ethic, method, and outcome. We reflect on how convergence can be approached as an ethic that motivates a higher order alignment on “why” we come together; as a method that foregrounds “how” we come together in inclusive ways; and as an outcome that highlights “what” must be done to successfully translate research findings into the policy and public domains.

scholarly journals Is China Trying to Push the U.S. out of East Asia?

2015 ◽  
Vol 01 (01) ◽  
pp. 59-84 ◽  
Author(s):  
Dong Wang
Keyword(s):  
United States ◽  
East Asia ◽  
International System ◽  
The United States ◽  
Willingness To Participate ◽  
Monroe Doctrine ◽  
Western Discourse ◽  
The Future ◽  
Regional Order ◽  
The U.S

One of the key questions for understanding the future trajectory of regional order is whether or not China is trying to push the United States out of East Asia and build a China-dominated regional order. Some Western analysts accuse China of pursuing the Monroe Doctrine and excluding the United States from the region. This article argues that the Western discourse of China practicing the Monroe Doctrine is a misplaced characterization of China's behavior. Rather than having intention of pushing the United States out of East Asia and build a China-dominated regional order, China is pursuing a hedging strategy that aims at minimizing strategic risks, increasing freedom of action, diversifying strategic options, and shaping the U.S.' preferences and choices. This can be exemplified in five issue areas: China's ties with the Association of Southeast Asian Nations (ASEAN), the Shanghai Cooperation Organization (SCO) and China's foreign policy activism, China-Russia relations, the Conference on Interactions and Confidence-Building Measures in Asia (CICA) and the New Asian Security Concept, as well as China-U.S. relations. Beijing has explicitly acknowledged the U.S. predominance in the international system and reiterated its willingness to participate in and reform the existing system. It concludes by suggesting that, for a more peaceful future to emerge in East Asia, the United States and China, as an incumbent power and a rising power, will have to accommodate each other, and negotiate and renegotiate the boundaries of their relative power, as well as their respective roles in the future regional order where Beijing and Washington would learn to share responsibilities and leadership.

scholarly journals Culturally Relevant Human Subjects Protection Training: A Case Study in Community-Engaged Research in the United States

2017 ◽  
Vol 20 (1) ◽  
pp. 107-114 ◽  
Author(s):  
Jennifer Kue ◽  
Laura A. Szalacha ◽  
Mary Beth Happ ◽  
Abigail L. Crisp ◽  
Usha Menon
Keyword(s):  
United States ◽  
Culturally Relevant ◽  
Human Subjects ◽  
The United States ◽  
Community Engaged Research
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