Justifying children and young people’s involvement in social research: Assessing harm and benefit

2017 ◽  
Vol 25 (3) ◽  
pp. 297-314 ◽  
Author(s):  
Danielle Kennan ◽  
Pat Dolan

At a time when children and young people’s involvement in research is increasingly the norm, this article reflects on the importance of a well-reasoned and transparent justification for their inclusion or exclusion. It explores the dilemma of a researcher’s ethical obligation to protect children and young people from harm and at the same time respect their autonomy as social actors and independent rights holders to participate in research of relevance to their lives. A researcher’s ethical obligation to conduct a rigorous but balanced assessment of harm and benefit is reiterated. The article takes the debate beyond a call for assessing harm and benefit to providing a strategy for conducting such an assessment at the point of research design. Reflecting on two research projects the authors were involved in, three critical considerations are identified. These are: the purpose and the theoretical context of the research; the preferences of the children and young people and their parents; and the available time and resources. The article draws on the research examples to illustrate the assessment process in practice.

2019 ◽  
Vol 8 (2) ◽  
pp. 44 ◽  
Author(s):  
Patricio Cuevas-Parra ◽  
E. Kay M. Tisdall

Over the last twenty years, childhood studies has challenged the schooled and developmental models of childhood. The children’s rights agenda has combined with academic childhood studies, to emphasise that children are and can be social actors and to seek ways to recognise and support their participation rights. For those who promote the participation of children and young people, there is considerable enthusiasm to involve them in all research stages—from research planning, fieldwork, and analysis to dissemination, leading to growth in what is often called ‘child-led research’. This article draws upon an empirical study of ‘child-led research’ projects, undertaken in Bangladesh, Jordan and Lebanon, for a critical examination of the meanings and implications of ‘child-led research’. In particular, this paper explores what counts as knowledge in social science research within contexts of generational difference and power.


2021 ◽  
pp. 026921632097603
Author(s):  
Anna Roach ◽  
Debbie Braybrook ◽  
Steve Marshall

Background: The importance of actively involving patient and public members throughout the different stages of palliative care and health research projects is widely acknowledged, however patient and public involvement work rarely considers insight from children and young people. Although this is becoming increasingly recognised in other areas of research, there is currently no structured guidance on how to best involve children and young people in palliative care research. Aim: To plan and deliver a Young People’s Advisory Group in palliative care and health research at a secondary school. Findings: Attending an after-school ‘Health and Social Research Methods Club’ for 11 weeks benefitted children and researchers. Children were taught about data collection methods, data analysis and ethics in health research and used these skills to provide valuable feedback which has been implemented in current palliative care research projects. Children took part in considered discussions around palliative care topics and enjoyed attending the group. Conclusion: This project has equipped researchers with skills and provided a structured template for future Young People’s Advisory Groups, ensuring the unique voices of children and young people are considered and valued in future palliative care research.


2017 ◽  
Vol 48 (2) ◽  
pp. 369-399
Author(s):  
Leeanne O’Hara ◽  
Kathryn Higgins

Participatory methods for engaging children and young people in research are becoming more popular and innovative in social research. One example of this is the inclusion of participant photography. Drawing on an ethnographic study conducted in Northern Ireland, this article explores the application of participant photography to research drug use and antisocial behavior among youth. Findings highlight issues surrounding implementation when in the field, building on the existing knowledge base and focusing on recruitment, continuous engagement, image presentation, and analysis. This is followed by an overview of ethical considerations including specific issues relating to researcher and participant safety.


2019 ◽  
Vol 14 (3) ◽  
pp. 174-185
Author(s):  
Geraldine Brady ◽  
Anita Franklin

Purpose In the UK, the Children and Families Act aims to create one assessment process for children with special educational needs or disability, through Education, Health and Care Plans. It also aims for greater participation from children and young people in decisions about their own lives. Current evidence suggests that children’s needs and desires across education, health and social care are not being fully met, partly because adult agendas drive policy, practice and standards of care. Furthermore, little attention is paid to the way in which disabled children and young people are included either within decisions about their own support or within research processes. The purpose of this paper is to present a research process designed to address these issues. Design/methodology/approach Six disabled young people co-led this participatory research project; for the first time, disabled young people had the opportunity to define a research agenda which spoke to what “quality” might look like in planning for their own future and that of other disabled children and young people. Findings This paper presents findings from this process, addressing important ethical issues relevant for policy, practice and research, identified through this rights based, collaborative way of working in partnership. Three key issues were identified and are explored here. They include first, tensions between young people becoming leaders and dominant ideas about safeguarding and child protection; second, being empowered through engagement within the project yet restricted in other areas of personal life and, finally, the emotional impact on new researchers of gathering evidence of a continuing lack of autonomy for disabled children and young people. We argue that challenging dominant notions concerning the participation and protection of disabled children is required in order to ensure that they access their right to be decision-makers in their own lives, and to being empowered within research processes. Originality/value This is the first disabled young people-led study to investigate quality and rights for disabled children and young people using this rights-based methodology.


2021 ◽  
Vol 41 (1) ◽  
pp. 47-61
Author(s):  
Üzeyir Tireli ◽  
Jens Christian Jacobsen

The escalating destruction of the climate has caused children and young people around the world to react. Greta Thunberg is a symbol of a rising activism for the climate. To support this process and especially the teachers’ work in the school, we explore how a reformulation of the critical-pedagogical tradition can mobilize students in the school so that they can implement realistic and responsible climate action. To this end, we have developed a model for analysis. The model is theoretical and normative and is designed with inspiration from national and international research projects in order to support a political formation process and the development of social competences across the school disciplines.


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