Factors Associated With Knowledge and Comfort Providing Palliative Care: A Survey of Pediatricians in Mexico

2019 ◽  
Vol 34 (2) ◽  
pp. 132-138 ◽  
Author(s):  
Gregorio Zuniga-Villanueva ◽  
Jose Luis Ramirez-GarciaLuna ◽  
Kevin Weingarten
Keyword(s):  
Palliative Care ◽  
Basic Knowledge ◽  
Pediatric Palliative Care ◽  
Care Needs ◽  
Care Education ◽  
Palliative Care Education ◽  
Oncologic Patients ◽  
Main Barrier ◽  
Palliative Care Needs ◽  
And Training

Background: Lack of education and training in palliative care has been described to be one of the most important barriers to pediatric palliative care implementation. Objective: To examine what factors determine the degree of knowledge and level of comfort Mexican pediatricians have providing pediatric palliative care. Methods: A questionnaire that assessed palliative care concepts was developed and applied online to Mexican pediatricians, both generalists and specialists. Results: A total of 242 pediatricians responded. The majority had not received palliative care education (92.6%) and felt uncomfortable discussing palliative needs with patients and families (92.1%). The mean score of the questionnaire was 6.8 (±1.4) of 10 correct answers. Knowledge in palliative care was associated with exposure to oncologic patients ( P = .01) and previous palliative care education ( P = .02) but inversely related to the pediatrician’s age ( P = .01). Comfort addressing patient’s palliative care needs was associated with knowledge in palliative care ( P < .01), exposure to oncologic patients ( P = .03), and previous education in palliative care ( P = .02). Conclusions: Although Mexican pediatricians have basic knowledge of palliative care concepts, they do not feel comfortable addressing palliative care needs, suggesting that the main barrier for implementing palliative care is not the lack of knowledge but rather feeling uncomfortable when addressing these issues with patients and families. Educational programs should incorporate strategies that could help physicians develop comfort in approaching palliative care patients.

Experience of nurses who work with children with palliative care needs: A mixed-method systematic review

2019 ◽  
Vol 18 (4) ◽  
pp. 473-485 ◽  
Author(s):  
Maha Atout
Keyword(s):  
Palliative Care ◽  
Nursing Education ◽  
Pediatric Palliative Care ◽  
Staffing Level ◽  
Invasive Treatment ◽  
Care Needs ◽  
Care Education ◽  
Palliative Care Education ◽  
Palliative Care Needs ◽  
Online Web

AbstractObjectiveThe importance of palliative care education for nurses has been recognized worldwide. The study aims to explore the experiences of nurses working with children with palliative care needs and to identify any related educational needs.MethodsThe electronic databases of CINAHL, Cochrane, PubMed, OVID, Social Care Online, Web of Science, Scopus, and ProQuest were searched for the period 2000–2015.ResultsFinding revealed that working with children with palliative care needs is an emotionally struggling job for nurses, especially when they try to manage the transition of pediatric patients from curative to palliative care. Staffing level and time constraints comprise a major obstacle in pediatric palliative care. Focusing on invasive treatment and technology in spite of the feelings that it will not improve patients' health status intensifies the feeling of guilt and helplessness for nurses. Finally, nurses asserted the importance of receiving pediatric palliative care education, especially how to communicate with children with palliative care needs and their families.Significance of resultsFurther research is recommended with regard to nurses' experience in communication with children with palliative care needs. Nursing education in pediatric palliative care is significantly important, especially how to communicate with children with palliative care needs and their families.

scholarly journals Paediatric palliative screening scale as a useful tool for clinicians’ assessment of palliative care needs of pediatric patients: a retrospective cohort study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
In Gyu Song ◽  
Seung Yeon Kwon ◽  
Yoon Jung Chang ◽  
Min Sun Kim ◽  
Sung Hoon Jeong ◽  
...  
Keyword(s):  
Palliative Care ◽  
Retrospective Cohort ◽  
Pediatric Patients ◽  
Palliative Care Team ◽  
Pediatric Palliative Care ◽  
Care Needs ◽  
Palliative Care Teams ◽  
Primary Care Clinicians ◽  
Palliative Care Needs ◽  
Screening Scale

Abstract Background Although the importance of palliative care in pediatric patients has been emphasized, many health care providers have difficulty determining when patients should be referred to the palliative care team. The Paediatric Palliative Screening Scale (PaPaS) was developed as a tool for screening pediatric patients for palliative care needs. The study aimed to evaluate the PaPaS as a reliable tool for primary care clinicians unfamiliar with palliative care. Methods This was a retrospective cohort study of patients referred to the pediatric palliative care teams in two tertiary hospitals in the Republic of Korea between July 2018 and October 2019. Results The primary clinical and pediatric palliative care teams assessed the PaPaS scores of 109 patients, and both teams reported a good agreement for the sum of the PaPaS score. Furthermore, the PaPaS scores correlated with those obtained using the Lansky performance scale. Although the mean PaPaS score was higher in the pediatric palliative care team, the scores were higher than the cut-off score for referral in both groups. Conclusion The PaPaS can be a useful tool for primary care clinicians to assess the palliative care needs of patients and their families.

The Need of Pediatric Palliative Care Education Among Pediatric Postgraduates in South India

2014 ◽  
Vol 81 (5) ◽  
pp. 455-459 ◽  
Author(s):  
Magatha Sneha Latha ◽  
Ram Prakash Thirugnanasambandam ◽  
Narayanan Balakrishnan ◽  
Haree Shankar Meghanathan ◽  
Aravind Moorthy ◽  
...  
Keyword(s):  
Palliative Care ◽  
South India ◽  
Pediatric Palliative Care ◽  
Care Education ◽  
Palliative Care Education

scholarly journals Children’s palliative care education and training: developing an education standard framework and audit

2021 ◽  
Author(s):  
Susan Neilson ◽  
Duncan Randall ◽  
Katrina McNamara ◽  
Julia Downing
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
Learning Outcomes ◽  
Education And Training ◽  
Audit Tool ◽  
Knowledge And Skills ◽  
Care Education ◽  
Action Group ◽  
Palliative Care Education ◽  
And Training

Abstract BackgroundThe need to align the range of guidance and competencies concerning children's palliative care and develop an education framework have been recommended by a UK All-Party Parliament Group and others. In response to these recommendations the need for a revised children’s palliative care competency framework was recognized. A Children’s Palliative Care Education and Training Action Group was formed across UK and Ireland in 2019 to take this work forward. Their aim was to agree core principles of practice in order to standardize children’s palliative care education and training.MethodsThe Action Group reviewed sources of evidence and guidance including palliative care competency documents and UK and Ireland quality and qualification frameworks. Expected levels of developing knowledge and skills were agreed and identified competencies mapped to each level. The mapping process led to the development of learning outcomes, local indicative programme content and assessment exemplars. Results Four sections depicting developing levels of knowledge and skills were identified: Public Health, Universal, Core, Specialist. Each level has four learning outcomes: Communicating effectively, Working with others in and across various settings, Identifying and managing symptoms, Sustaining self-care and supporting the well-being of others. An audit tool template was developed to facilitate quality assurance of programme delivery. The framework and audit tool repository is on the International Children’s Palliative Care Network website for ease of international access. ConclusionsThe framework has received interest at UK, Ireland and International launches. While there are education programmes in children’s palliative care this is the first international attempt to coordinate education, to address lay carer education and to include public health.

Pediatric Palliative Care Education for Medical Students: Development and evaluation of A Pilot Program

2012 ◽  
Vol 28 (4) ◽  
pp. 252-258 ◽  
Author(s):  
Aleksandra Korzeniewska-Eksterowicz ◽  
Bogna Kȩdzierska ◽  
MƗSgorzata Cynker-McCarthy ◽  
Łukasz Przysło ◽  
MƗSgorzata Stolarska ◽  
...  
Keyword(s):  
Palliative Care ◽  
Medical Students ◽  
Pediatric Palliative Care ◽  
Pilot Program ◽  
Care Education ◽  
Palliative Care Education
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