“So Glad to Be Home”: Money Follows the Person Participants’ Experiences After Transitioning Out of an Institution

2021 ◽  
pp. 104420732110435
Author(s):  
Kathy Kellett ◽  
Kaleigh Ligus ◽  
Julie Robison
Keyword(s):  
Qualitative Data ◽  
Unmet Need ◽  
Community Living ◽  
Constructive Feedback ◽  
Qualitative Feedback ◽  
High Satisfaction ◽  
Workforce Issues ◽  
Barriers And Challenges ◽  
Services And Supports

This study examined qualitative data from participants who transitioned from institutional to community living through the Money Follows the Person (MFP) Rebalancing Demonstration in Connecticut. As part of the MFP quality of life survey, 1,566 participants provided qualitative feedback about their experiences at 6-, 12-, and 24-month time points after transition. Maslow’s Hierarchy of Needs serves as a thematic framework to analyze the data. In their open-ended comments, many participants underscored the efficacy of the program and offered constructive feedback; some people also reported barriers and challenges to community living. While MFP participants generally report high satisfaction with the program, both in Connecticut and nationally, some participants identified areas of unmet need, including housing, transportation, and workforce issues. Findings have the potential to expand stakeholders’ understanding of participants’ needs and facilitate policies to improve services and supports for older adults and people living with disabilities who return to community living following institutionalization.

Gaming for stress: Application of a commercially available biofeedback system for at-risk young adolescents

2018 ◽  
Vol 17 (1) ◽  
pp. 37
Author(s):  
Matthew T. Fish, PhD
Keyword(s):  
Positive Impact ◽  
Educational Experiences ◽  
Young Adolescents ◽  
Behavioral Issues ◽  
Constructive Feedback ◽  
Qualitative Feedback ◽  
Biofeedback System ◽  
Stress Application ◽  
Future Program

This article provides a brief overview of a novel 4-week biofeedback program. The purpose of the Stress Suspension Program was to provide a community-engaged partnership to teach young adolescents with behavioral issues how to increase their stress resiliency through the prescription of a commercially available biofeedback system that recreational therapists can integrate into the clinical setting. Stress management programs that address areas of improvement are needed to ensure that young adolescents with behavioral issues have the necessary tools to improve their quality of life and educational experiences. Qualitative feedback gathered for the Stress Suspension Program indicated a positive impact on students’ resiliency and provided constructive feedback for future program improvements.

scholarly journals Allergy to Peanuts imPacting Emotions And Life (APPEAL): the impact of peanut allergy on children, adolescents, adults and caregivers in France

2020 ◽  
Vol 16 (1) ◽  
Author(s):  
Pascale Couratier ◽  
Romain Montagne ◽  
Sarah Acaster ◽  
Katy Gallop ◽  
Ram Patel ◽  
...  
Keyword(s):  
Peanut Allergy ◽  
Qualitative Data ◽  
Psychological Impact ◽  
Unmet Need ◽  
Developed Countries ◽  
Online Questionnaire ◽  
Life Study ◽  
The Impact ◽  
Depth Interviews

Abstract Background Peanut allergy (PA) has increased in developed countries and can have a dramatic effect on quality of life but data surrounding this is limited in France. Allergy to Peanuts imPacting Emotions And Life study (APPEAL) investigated the experience and impact of living with PA in France. Methods Respondents affected by PA directly (children aged 8–12 years, teenagers aged 13–17 years, or adults aged ≥ 18 years) or indirectly (caregiver) completed either an online questionnaire (APPEAL-1, N = 198), or provided in-depth interviews (APPEAL-2, N = 32). Quantitative data was evaluated using descriptive statistics. Qualitative data was analysed thematically, using MAXQDA software. Results Of 198 responders in APPEAL-1, 88% stated that PA affects their daily activities, and 74% felt isolated as a result of living with PA. Feelings of worry about exposure to peanuts on social occasions where food is involved was reported by 91%. A total of 44% reported some restrictions in their job options, 85% in socializing. Psychological impact of PA included responders feeling emotions of frustration (89%), uncertainty (87%), and stress (93%) and 93% reporting encountering instances of feeling different due to their PA. Main factors that drove PA impact included social activities and relationships; whereas main coping strategies to avoid peanuts included monitoring, communication and planning. Conclusion The analysis of French respondents from the APPEAL study demonstrates the impact and burden of PA on allergic children, teenagers, adults and their caregivers, and highlights the unmet need to be addressed.

scholarly journals EVALUATION OF A TELEPHONE-BASED PROGRAM DESIGNED TO REDUCE LONELINESS IN OLDER VETERANS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S315-S315
Author(s):  
Christine E Gould ◽  
Christine Juang ◽  
Terri Huh ◽  
Sowmya Iyer
Keyword(s):  
Quality Of Life ◽  
Hard Of Hearing ◽  
Qualitative Data ◽  
Perceived Benefits ◽  
Group Activities ◽  
Baseline Characteristics ◽  
Barriers And Challenges ◽  
Structured Program ◽  
Insight Into

Abstract We examined the benefits and challenges of implementing a program aiming to reduce older Veterans’ loneliness. The program helped connect older Veterans with others through telephone-based group activities. Thirty-four Veterans were enrolled in the program, of which 14 attendees called in to one or more activities. Data were collected at baseline, 3-months, and 6-months. Differences in baseline characteristics between attendees and non-attendees were calculated. Changes in Veterans’ perceived loneliness, depression, anxiety, and quality of life were evaluated. Client satisfaction were analyzed. Qualitative data analyses were conducted to identify perceived benefits and challenges of participating in this program. Attendees were more likely to be depressed and have limited environmental resources to promote quality of life than non-attendees. A significant decrease in loneliness was found among attendees from baseline to 3-months. Overall, Veterans were satisfied with this program and the services provided. Perceived benefits included a structured program with interesting topics to spend time on as well as the opportunity to socialize, exchange ideas, and connect with other Veterans. Perceived individual challenges (e.g., hard of hearing) and program-level challenges (e.g., complicated procedures) were observed. Results demonstrated that this telephone-based program is feasible and beneficial for older Veterans to reduce loneliness. Several barriers and challenges were noted, providing insight into ways to improve the implementation of this program.

scholarly journals Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention

2021 ◽  
Vol 18 (6) ◽  
pp. 3175
Author(s):  
Laura Esteban ◽  
Patricia Navas ◽  
Miguel Ángel Verdugo ◽  
Víctor B. Arias
Keyword(s):  
Intellectual Disability ◽  
Independent Living ◽  
Structural Equation ◽  
Equation Modeling ◽  
Community Living ◽  
Support Needs ◽  
Related Services ◽  
The Right To Privacy ◽  
The Right

People with intellectual disability (ID) and extensive support needs experience poorer quality of life than their peers whose disability is not as severe. Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work analyzes the extent to which professional practices are aimed at promoting the right to community living for people with ID and extensive support needs, as well as the rights that are particularly linked to it, such as the right to habilitation and rehabilitation and the right to privacy. A specific questionnaire was designed and administered to 729 adults with intellectual disability (M = 37.05; DT = 12.79) living in different settings (family home, residential facilities and group homes). Measurement and structural models were estimated using exploratory structural equation modeling. Results obtained reveal that people with extensive support needs receive less support in terms of guaranteeing their right to independent living and privacy, especially when they live in disability-related services. This study highlights the need to implement and monitor, using valid and reliable indicators, mesosystem strategies that guarantee the right to live and participate in the community, especially for individuals with ID and extensive support needs.

scholarly journals Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
R. Shah ◽  
F. M. Ali ◽  
A. Y. Finlay ◽  
M. S. Salek
Keyword(s):  
Quality Of Life ◽  
Family Members ◽  
Unmet Need ◽  
Reliability And Validity ◽  
Chronic Health Condition ◽  
Family Quality Of Life ◽  
Good Reliability ◽  
Huge Impact ◽  
The Impact

Abstract Background A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand the impact of patients' disease on family members across all medical specialities, and appraise existing generic and disease-specific family quality of life (QoL) measures. Methods The databases Medline, EMBASE, CINHAL, ASSIA, PsycINFO and Scopus were searched for original articles in English measuring the impact of health conditions on patients' family members/partner using a valid instrument. Results Of 114 articles screened, 86 met the inclusion criteria. They explored the impact of a relative's disease on 14,661 family members, mostly 'parents' or 'mothers', using 50 different instruments across 18 specialities including neurology, oncology and dermatology, in 33 countries including the USA, China and Australia. These studies revealed a huge impact of patients' illness on family members. An appraisal of family QoL instruments identified 48 instruments, 42 disease/speciality specific and six generic measures. Five of the six generics are aimed at carers of children, people with disability or restricted to chronic disease. The only generic instrument that measures the impact of any condition on family members across all specialities is the Family Reported Outcome Measure (FROM-16). Although most instruments demonstrated good reliability and validity, only 11 reported responsiveness and only one reported the minimal clinically important difference. Conclusions Family members' QoL is greatly impacted by a relative's condition. To support family members, there is a need for a generic tool that offers flexibility and brevity for use in clinical settings across all areas of medicine. FROM-16 could be the tool of choice, provided its robustness is demonstrated with further validation of its psychometric properties.

Economic returns of family planning and fertility decline in India, 1991–2061

2021 ◽  
pp. 1-33
Author(s):  
Srinivas Goli ◽  
K. S. James ◽  
Devender Singh ◽  
Venkatesh Srinivasan ◽  
Rakesh Mishra ◽  
...  
Keyword(s):  
Family Planning ◽  
Return On Investment ◽  
Unmet Need ◽  
Economic Returns ◽  
Reproductive Health Care ◽  
The World ◽  
Potential Benefits ◽  
Education And Employment ◽  
Global Evidence

Abstract Investment in family planning (FP) provides returns through a lifetime. Global evidence shows that FP is the second-best buy in terms of return on investment after liberalizing trade. In this study, we estimate the cumulative benefits of FP investments for India from 1991 to 2016 and project them up to 2061 with four scenarios of fertility levels. The findings suggest that India will have greater elasticity of FP investments to lifetime economic returns compared to the world average (cost–revenue ratio of 1:120). We have taken four scenarios for the goalpost, viz., 2.1, 1.8, 1.6, and 1.4. Although different scenarios of total fertility rate (TFR) levels at the goalpost (i.e., the year 2061) offer varied lifetime returns from FP, scenario TFR < 1.8 will be counterproductive and will reduce the potential benefits. With a comprehensive approach, if the country focuses more on improving the quality of FP services and on reducing the unmet need for FP to enhance reproductive health care and expand maximum opportunities for education and employment for both women and men, it can improve its potential to reap more benefits.

scholarly journals International Perspectives on Management of Inflammatory Bowel Disease: Opinion Differences and Similarities Between Patients and Physicians From the IBD GAPPS Survey

2021 ◽  
Author(s):  
David T Rubin ◽  
Charles Sninsky ◽  
Britta Siegmund ◽  
Miquel Sans ◽  
Ailsa Hart ◽  
...  
Keyword(s):  
Unmet Need ◽  
Patient Survey ◽  
Complex Disorders ◽  
International Perspectives ◽  
Bowel Diseases ◽  
Life Impact ◽  
Current Therapies ◽  
Inflammatory Bowel ◽  
Patient Advocacy Groups

Abstract Background Inflammatory bowel diseases (IBD), including Crohn disease (CD) and ulcerative colitis (UC), are complex disorders with multiple comorbidities. We conducted international patient and physician surveys to evaluate current experiences and perceptions of patients with CD or UC and physicians who treat IBD. Methods The IBD Global Assessment of Patient and Physician Unmet Need Surveys comprised a patient survey and a physician survey, fielded in North America and Europe between August 16, 2019, and November 10, 2019. Adults with CD or UC (targeted 1:1 ratio) were recruited from physicians, patient advocacy groups, and recruitment panels; physicians were recruited by recruitment agencies and panels. Results In total, 2398 patients with IBD (1368 CD, 1030 UC) and 654 physicians completed surveys. Anxiety and depression were the most common comorbidities among patients with IBD. Patients and physicians were generally aligned on treatment goals and patient-physician communication. Patients with IBD reported high quality-of-life impact by rectal urgency and need to use the toilet, which were rated as lower-impact by physicians. Patients defined remission based on symptoms; physicians defined remission based primarily on clinical tests. Patients expected current treatments to control their disease for a longer duration than did physicians. Patients expressed more concern about corticosteroid use compared with physicians; many physicians reported prescribing corticosteroids for more than 4 months per year in some patients. Conclusions Patients could benefit from education about disease remission and expectations for current therapies. High corticosteroid use is concerning to patients, and physicians should minimize the use of corticosteroids for extended periods of time.

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