Strategies to Promote the Inclusion of Young Adults With Developmental Disabilities in Community-Based Health Studies

2018 ◽  
Vol 29 (7) ◽  
pp. 958-971 ◽  
Author(s):  
Luz Maria Vazquez ◽  
Nazilla Khanlou ◽  
Deborah Davidson ◽  
Fatma Aidarus
Keyword(s):  
Young Adults ◽  
Developmental Disabilities ◽  
Service Providers ◽  
Community Based ◽  
Advisory Committees ◽  
Community Based Research ◽  
Underlying Principle ◽  
Health Studies ◽  
Children And Young Adults ◽  
Adults With Developmental Disabilities

We discuss strategies to promote the inclusion of people with developmental disabilities (DDs) in qualitative community-based research studies. Strategies were applied in three projects conducted between 2012 and 2017 that addressed issues of socioeconomic challenges, discrimination, and exclusion of children and young adults with developmental disabilities (YADD). Strategies included partnership with community organizations; inclusion of YADD, family caregivers (FCs), and service providers in advisory committees (ACs); and strategies to accommodate YADD. As part of our contribution, we discuss issues of invisibility and exclusion of individuals with DDs who have “low” functioning capacities. There is a need to review studies sampling inclusion criteria as they may constitute a barrier for participation. Preference for sampling “high” functioning individuals may reinforce exclusion in research, and replicate broader patterns of socioeconomic exclusion of individuals with disabilities. Our discussion of inclusive research is informed by critical disability studies and the underlying principle “nothing about us without us.”

scholarly journals Epilepsy at a Summer Camp for Children and Young Adults With Developmental Disabilities: A 3-Year Experience

2014 ◽  
Vol 179 (1) ◽  
pp. 105-110 ◽  
Author(s):  
Michelle L. Bandino ◽  
Rebecca A. Garfinkle ◽  
Betty A. Zickefoose ◽  
David T. Hsieh
Keyword(s):  
Young Adults ◽  
Developmental Disabilities ◽  
Summer Camp ◽  
Children And Young Adults ◽  
Adults With Developmental Disabilities

scholarly journals Shifting the evaluative gaze: Community-based program evaluation in the homeless sector

2015 ◽  
Vol 8 (1) ◽  
pp. 43-58 ◽  
Author(s):  
Bruce Wallace ◽  
Bernadette Pauly ◽  
Kathleen Perkin ◽  
Mike Ranfft
Keyword(s):  
Program Evaluation ◽  
Service Providers ◽  
Research Strategy ◽  
Transitional Housing ◽  
Lessons Learned ◽  
Urban Centre ◽  
Community Based ◽  
Community Based Research ◽  
Evaluation Community ◽  
Structural Inequities

Homelessness is a growing social issue that is a consequence of structural inequities and contributor to the development of health inequities. Community-based research (CBR) has been proposed as an effective research strategy for addressing health equities and promoting social justice through participatory processes. The purpose of this article is to examine the application of CBR principles and practices in the homeless sector and the implications for the production of knowledge and social change to address homelessness. Drawing on our experiences as researchers and service providers, we reflect on the significant successes and challenges associated with using CBR in the homelessness sector. In our discussion we emphasise insights, challenges and lessons learned from a community-university partnership that focused on an evaluation of a transitional shelter program in a large urban centre where housing is expensive and often unavailable.Keywords: Homelessness, housing, transitional housing, transitional shelter, program evaluation, community-based research

Parents' Perceptions of Postschool Years for Young Adults With Developmental Disabilities

2009 ◽  
Vol 47 (3) ◽  
pp. 186-196 ◽  
Author(s):  
Margarita Bianco ◽  
Dorothy F. Garrison-Wade ◽  
Romie Tobin ◽  
Jean P. Lehmann
Keyword(s):  
Young Adults ◽  
Developmental Disabilities ◽  
Role Models ◽  
Change Agents ◽  
Adult Life ◽  
Safety Net ◽  
Decision Makers ◽  
Face To Face ◽  
Service Agencies ◽  
Adults With Developmental Disabilities

Abstract This qualitative study investigated parents' perceptions of the various roles they played in their adult children's lives during the post–high school years. Individual face-to-face interviews were conducted with 9 families of young adults with developmental disabilities. Findings indicated that families perceived the complexity of their roles as balancing between advocating for their adult children's needs while promoting independence and self-determination. The roles parents assumed as their children entered into adult life were those of collaborators, decision makers, and program evaluators, role models, trainers, mentors and instructors, and systems change agents. Parents often felt they were the safety net for their children and the back-up plan for service agencies. Parents' quotes illustrated the complexity of the roles they played as their young adult children with developmental disabilities entered adulthood.

Updated Understanding of the Experiences and Perceptions of Alcohol Use in Later Life

2020 ◽  
pp. 1-12
Author(s):  
Sarah L. Canham ◽  
Joe Humphries ◽  
Anthony L. Kupferschmidt ◽  
Emily Lonsdale
Keyword(s):  
Older Adults ◽  
Alcohol Use ◽  
Service Providers ◽  
Later Life ◽  
Research Approach ◽  
Community Based ◽  
Community Based Research ◽  
Personal Experiences ◽  
Physical Effects ◽  
The Cost

ABSTRACT The purpose of this study was to update our understandings of older adults’ experiences and perceptions of alcohol use. Taking a community-based research approach, three Knowledge Café workshops hosted 66 older adults and service providers in Vancouver, BC. Thematic analysis identified three overarching categories: (a) reasons older adults use alcohol, including out of habit, social expectations, or to self-medicate; (b) personal experiences of alcohol use, including reduced consumption over time as a result of the cost of alcohol, the physical effects, and increased knowledge about the effects of alcohol; and (c) older adults’ perceptions of alcohol use outcomes, including positive outcomes from drinking in moderation and negative outcomes that can worsen one’s health, lead to tolerance, and harm others. Developing and promoting healthy drinking behaviours in later life is needed as the general population continues to age.

Teaching Children and Young Adults with Mental Retardation in School Programs: Current Research

1997 ◽  
Vol 14 (2) ◽  
pp. 73-105 ◽  
Author(s):  
Martha E. Snell
Keyword(s):  
Young Adults ◽  
Mental Retardation ◽  
Health And Safety ◽  
Research Integrity ◽  
Safety Skills ◽  
Community Based ◽  
Choice Making ◽  
School Programs ◽  
Children And Young Adults ◽  
Instructional Research

This paper reviews the recent behavioural research on instruction of children and young adults with mental retardation in schools settings and community-based school programs. Instructional research in 12 skill areas (motor, self-care, communication, social skills, choice making, school behaviours, health and safety skills, home management, leisure skills, community use, vocational skills, and academics) meeting specified criteria on population (age and disability), location of instruction, functionality of skill, and research integrity was identified in 11 journals from 1990 through 1996. The pool of identified research is discussed by skill category and by intervention method, with critical comments made regarding strengths and weaknesses. Conclusions are drawn for practitioners and future researchers.

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