Quality of Life Using General Population Validated Questionnaires in Children With Cleft Lip and/or Palate in New Zealand

2020 ◽  
pp. 105566562096237 ◽  
Author(s):  
John M. D. Thompson ◽  
S. Louise Ayrey ◽  
Rebecca F. Slykerman ◽  
Peter R. Stone ◽  
Peter V. Fowler
Keyword(s):  
Quality Of Life ◽  
New Zealand ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Family Impact ◽  
Primary Surgery ◽  
Impact Scale ◽  
Pedsql 4.0 ◽  
The Impact

Objective: To determine the level of quality of life (QoL) in children with cleft lip and/or palate (CL/P) and whether this differs by cleft phenotype. Design: A cohort of children with CL/P born in New Zealand. Setting: A nationwide study of children born with CL/P and having primary surgery in New Zealand. Participants: Children with CL/P and their families (n = 397) who attended a cleft clinic between October 1, 2014, and September 30, 2017, and agreed to complete questionnaires on QoL. Main Outcomes: Primary outcomes were QoL from the PedsQL 4.0 core generic questionnaires and the PedsQL 2.0 Family impact scale. Results: Children with CL/P in New Zealand generally have a high QoL as assessed by the PedsQL. The impact of cleft phenotype had limited effects on the child, however there were significant impacts on parents and families. We found that the family impact scale differed by cleft phenotype with those with CL having the highest QoL and those with cleft palate the lowest, and this was consistent across QoL subscales. Quality of life improved as a whole by age, particularly in physical and cognitive functioning, as well as in the ability to undertake family activities. Conclusions: Children with CL/P have generally good levels of QoL in New Zealand, however cleft phenotype impacts on the level, with the lowest levels in those with cleft palate. Psychological support of children with cleft and their families should be an integral part of cleft care.

scholarly journals The impact of nonsyndromic cleft lip with or without cleft palate on oral health-related quality of life

2018 ◽  
Vol 26 (0) ◽  
Author(s):  
Maria Augusta Ramires da Silva ◽  
Isis de Fátima Balderrama ◽  
Ana Paula Wobeto ◽  
Renata Iani Werneck ◽  
Luciana Reis Azevedo-Alanis
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

scholarly journals Quality of Life Among Dutch Children With a Cleft Lip and/or Cleft Palate: A Follow-Up Study

2019 ◽  
Vol 56 (8) ◽  
pp. 1065-1071 ◽  
Author(s):  
Fleur M. Nolte ◽  
Annemieke Bos ◽  
Charlotte Prahl
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Well Being ◽  
Health Impact ◽  
Dutch Version ◽  
Oral Symptoms ◽  
The Impact

Objectives: The aims of the present study were to examine the impact of a cleft lip and/or palate on the oral health-related quality of life (OHRQoL) in children, to examine differences between the OHRQoL scores reported by children and their parents, and to examine differences between the scores over 4 years for a subgroup of children. Design: Prospective blinded questionnaires. Setting: All patients were recruited from a university clinic at Academisch Centrum Tandheelkunde Amsterdam. Participants: The sample consisted of 170 children (age between 8 and 18 years) and their parents. Interventions: All participants completed the validated Dutch version of the Child Oral Health Impact Profile (COHIP) questionnaire. Main Outcome Measures: The OHRQoL of children with a cleft lip and/or cleft palate (CL/P) was measured. Results: Parents scored significantly higher than children on the subscale “Oral Symptoms.” On the subscale “Functional Well-Being,” parents scored significantly lower than children. Females scored significantly higher with regard to the subscales “Functional Well-Being” and “School” in comparison to males. Children with a bilateral CL/P scored significantly lower on the subscale “Functional Well-Being” and “School” than other subgroups. Children reported a decrease in “Oral Symptoms” and “Emotional Well-Being” over time. Conclusions: Children and their parents both reported high OHRQoL overall with some areas of difference. Females reported a better OHRQoL on “Functional Well-Being” and “School.” Children with the more complex bilateral CL/P had a significantly lower OHRQoL score on “Functional Well-Being,” “School,” and overall COHIP.

Patients With a History of Oronasal Fistula Repair Exhibit Lower Oral Health Measured With Patient-Centric Outcomes Measures

2020 ◽  
pp. 105566562098133
Author(s):  
Alyssa Fritz ◽  
Diana S. Jodeh ◽  
Fatima Qamar ◽  
James J. Cray ◽  
S. Alex Rottgers
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cleft Palate ◽  
Fistula Repair ◽  
Old Patients ◽  
Oronasal Fistula ◽  
Patient Reported ◽  
History Of ◽  
The Impact

Introduction: Oronasal fistulae following palatoplasty may affect patients’ quality of life by impacting their ability to eat, speak, and maintain oral hygiene. We aimed to quantify the impact of previous oronasal fistula repair on patients’ quality of life using patient-reported outcome psychometric tools. Methods: A cross-sectional study of 8- to 9-year-old patients with cleft palate and/or lip was completed. Patients who had a cleft team clinic between September 2018 and August 2019 were recruited. Participants were divided into 2 groups (no fistula, prior fistula repair). Differences in the individual CLEFT-Q and Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19) Oral Health scores between the 2 groups were evaluated using a multivariate analysis controlling for Veau classification and syndromic diagnosis. Results: Sixty patients with a history of cleft palate were included. Forty-two (70%) patients had an associated cleft lip. Thirty-two (53.3%) patients had no history of fistula and 28 (46.7%) patients had undergone a fistula repair. CLEFT-Q Dental, Jaw, and Speech Function were all higher in patients without a history of a fistula repair; however, none of these differences were statistically significant. The COHIP-SF 19 Oral Health score demonstrated a significantly lower score in the fistula group, indicating poorer oral health ( P = .05). Conclusions: One would expect that successful repair of a fistula would result in improved function and patient satisfaction, but the consistent trend toward lower CLEFT-Q scores and significantly increased COHIP-SF 19 Oral Health scores in our study group suggests that residual effects linger and that the morbidity of a fistula may not be completely treated with a secondary correction.

scholarly journals LOWER URINARY TRACT DYSFUNCTION IN CHILDREN AND ADOLESCENTS: FAMILY IMPACT

2015 ◽  
Vol 3 (2) ◽  
Author(s):  
Martha Moreira Cavalcante Castro ◽  
Maíssa Andrade ◽  
Vanessa Xavier ◽  
Juliana Bonfim ◽  
Lilian Bastos ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Urinary Tract ◽  
Lower Urinary Tract ◽  
Lower Urinary Tract Dysfunction ◽  
Family Impact ◽  
Daily Lives ◽  
Abnormal Pattern ◽  
The Impact ◽  
Lower Urinary

The dysfunction of the lower urinary tract (DTUI) is an abnormal pattern of the urinary control with loss of coordinated capacity storage, stocking and elimination of urine. In order to assess the impact of lower urinary tract dysfunction in their child’s caregivers, this series was performed to evaluate 30 cases of caregivers of children with voiding disorders. Applied HAD scales and SF-36. Of these, 60% (n = 18) had anxiety symptoms and 43.3% (n = 13) depressive symptoms. Despite the scale items of quality of life was above average, the items pain, general health, vitality, emotional limitations and mental health measures were below the average. Thus, the effect of voiding dysfunction in parents of children affects the mood and quality of life in their daily lives.

scholarly journals The impact of dental caries and its treatment under general anaesthetic on children and their families

2020 ◽  
Author(s):  
R. Knapp ◽  
Z. Marshman ◽  
F. Gilchrist ◽  
H. Rodd
Keyword(s):  
Quality Of Life ◽  
Dental Caries ◽  
Health Utility ◽  
General Anaesthetic ◽  
Family Impact ◽  
Score Difference ◽  
The Family ◽  
Related Quality ◽  
The Impact

Abstract Objective To assess the impact of dental caries and treatment under general anaesthetic (GA) on the everyday lives of children and their families, using child-reported measures of quality of life (QoL) and oral health-related quality of life (OHRQoL). Method Participants, aged 5–16 years old having treatment for dental caries under GA, were recruited from new patient clinics at Charles Clifford Dental Hospital, Sheffield. OHRQoL was measured before and 3-months after treatment using the Caries Impacts and Experiences Questionnaire for Children (CARIES-QC). Overall QoL was measured using the Child Health Utility 9D (CHU9D). Parents/caregivers completed the Family Impact Scale (FIS). Results Eighty five parent–child dyads completed the study. There was statistically significant improvement in OHRQoL (mean interval score difference in CARIES-QC = 4.43, p < 0.001) and QoL (mean score difference in CHU9D = 2.48, p < 0.001) following treatment, with moderate to large effect sizes. There was statistically significant improvement in FIS scores (mean score difference = 5.48, p = 0.03). Conclusions Treatment under GA was associated with improvement in QoL and OHRQoL as reported by children, and reduced impacts on the family. This work highlights the importance of GA services in reducing the caries-related impacts experienced by children. Further work is needed investigate the impact of clinical, environmental and individual factors.

The impact of cleft lip and/or palate on parental quality of life: A pilot study

2019 ◽  
Vol 126 ◽  
pp. 109598 ◽  
Author(s):  
Elise De Cuyper ◽  
Frederick Dochy ◽  
Els De Leenheer ◽  
Helen Van Hoecke
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Cleft Lip ◽  
Parental Quality ◽  
The Impact

scholarly journals Quality of life of individuals with cleft lip and palate pre- and post-surgical correction of dentofacial deformity

2016 ◽  
Vol 50 (2) ◽  
pp. 217-223 ◽  
Author(s):  
Marli Luiz Beluci ◽  
Katia Flores Genaro
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Surgical Correction ◽  
Wilcoxon Test ◽  
World Health ◽  
Dentofacial Deformity ◽  
The Impact

Abstract OBJECTIVE To assesses the quality of life and the impact of oral health conditions in the pre- and post-surgical correction of dentofacial deformity of individuals with cleft lip and palate. METHOD Quantitative and prospective study in a referral hospital in the period from June 2011 to May 2013. A total of 50 participants responded the questionnaires World Health Organization Quality of Life - Bref (WHOQOL-Bref) and Oral Health Impact Profile - 14 (OHIP-14), approximately 3 days before and 3 to 12 months after surgery. The "t" test for paired samples and Wilcoxon test were used for statistical analysis with a significance level of 5%. RESULTS After surgery, differences were found in the domains: Physical, Psychological, Environmental and General Questions of the WHOQOL-Bref and domains: Psychological Discomfort, Psychological Disability, Social Disability, Handicap and Overall Score of OHIP-14. CONCLUSION Surgical correction of dentofacial deformity improved quality of life and had positive impact of oral health condition.

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