From Ecologyto Base Pairs: Nursing and Genetic Science

2001 ◽  
Vol 3 (1) ◽  
pp. 4-12 ◽  
Author(s):  
Janet K. Williams ◽  
Toni Tripp-Reimer
Keyword(s):  
Health Care ◽  
Human Genome ◽  
Ethical Issues ◽  
Genetic Research ◽  
Phenotypic Expression ◽  
Gene Mutations ◽  
Care Practice ◽  
Nursing Research ◽  
Research Programs ◽  
Apply Genetic

With the mapping of the human genome has come the opportunity for nursing research to explore topics of concern to the maintenance, restoration, and attainment of genetic-related health. Initially, nursing research on genetic topics originated primarily from physical anthropology and froma clinical, diseasefocused perspective. Nursing research subsequently focused on psychosocial aspects of genetic conditions for individuals and their family members. As findings emerge from current human genome discovery, new programs of genetic nursing research are originating froma biobehavioral interface, ranging fromthe investigations of the influence of specific molecular changes on gene function to social/ethical issues of human health and disease. These initiatives reflect nursing’s response to discoveries of gene mutations related to phenotypic expression in both clinical and community-based populations. Genetic research programs are needed that integrate or adapt theoretical and methodological advances in epidemiology, family systems, anthropology, and ethics with those from nursing. Research programs must address not only populations with a specific disease but also communitybased genetic health care issues. As genetic health care practice evolves, so will opportunities for research by nurses who can apply genetic concepts and interventions to improve the health of the public. This article presents an analysis of the evolution of genetic nursing research and challenges for the future.

Ethical Issues in Genetic Research with Infants

2018 ◽  
pp. 155-171
Author(s):  
Erin Rothwell ◽  
Jeffrey R. Botkin
Keyword(s):  
Health Care ◽  
Genetic Testing ◽  
Ethical Issues ◽  
Genetic Research ◽  
Newborn Health ◽  
Research Use ◽  
Whole Genome ◽  
Use Of Data ◽  
The Impact ◽  
Genetic Results

There are a number of ethical issues raised when newborns participate in research. Two examples include genetic testing, and the storage and research use of biospecimens collected from newborns. This chapter highlights a range of ethical, legal, and social implications with these practices. Examples from retention of residual newborn screening bloodspots, use of biospecimens collected from infants in biomedical research, concerns with the use of whole genome sequencing, and challenges of consent during the newborn period are discussed. These issues are explored within the context of newborns who are healthy or newborns faced with an undiagnosed condition. At this time, more research is needed to understand the impact of genomics on newborn health care, the storage and use of data generated from biospecimens, and how genetic results from newborns impact families. Further challenges around consent and parental permission are also discussed.

scholarly journals Genomic-based nursing care for women with Turner Syndrome: genomic-based nursing care

2006 ◽  
Vol 14 (5) ◽  
pp. 645-650
Author(s):  
Milena Flória-Santos ◽  
Ester Silveira Ramos
Keyword(s):  
Health Care ◽  
Turner Syndrome ◽  
Nursing Care ◽  
Genetic Research ◽  
Interdisciplinary Approach ◽  
Genome Project ◽  
Care Practice ◽  
Clinical Genetic ◽  
Nursing Diagnosis ◽  
The Human Genome Project

Biologic and technologic advances generated from The Human Genome Project are having a dramatic impact on the expanding role of nurses in current health care practice. New genetic research needs to be transformed rapidly into clinical protocols with recommendations for delivering care to targeted populations. Nurses can contribute significantly, as part of an interdisciplinary approach, to translate genome-based knowledge into benefits for health care and society. In this context, we describe a clinical-genetic investigation protocol, as well nursing diagnosis, interventions and outcomes for clients with Turner Syndrome (TS) at risk for develop gonadal tumors, due the presence of a normal or abnormal Y chromosome.

Enhancing Ethical Thinking: the Role of a National Nurses' Association

1995 ◽  
Vol 2 (3) ◽  
pp. 243-246
Author(s):  
Catherine Panchaud
Keyword(s):  
Health Care ◽  
Ethical Issues ◽  
National Level ◽  
High Technology ◽  
Red Cross ◽  
Care Practice ◽  
Nurse Training ◽  
Training Scheme ◽  
Premature Deaths ◽  
Dependent Relation

In democratic Switzerland, each of its 26 cantons (states) has its own government and its own laws. Thus there are 26 ministries of health and as many different laws regulating medical and health care practice. The Swiss Nurses' Association likewise has 13 regional chapters and a central organization that works on the national level. Medicine is private and practically all of the Swiss population is privately insured. High technology has led to high specialization with, among other results, a reduced number of premature deaths, longer life span but also rising costs of health. Health professionals are also becoming much more aware of ethical issues such as cost versus quality, high technology versus compassionate care, etc. A multilingual (four national languages) and multicultural country, Switzerland's health care system relies heavily on foreign nurses, many of whom come from neighbouring France and Germany but also from England, Yugoslavia, Canada and other countries. Regulation of nursing practice is still poor. Nursing or nurses are hardly mentioned in the state laws and, when mentioned, are often put in a dependent relation to the physician. Basic nurse training is regulated nationally by cantonal delegations to the Swiss Red Cross. Although there is a good postbasic training scheme, nurses are still striving for access to the university. Meanwhile, they go abroad to acquire degrees. Research in nursing is being developed mainly by the efforts of individuals and the Swiss Nurses' Association.

Implications for Nursing of the Human Genome Project

1999 ◽  
Vol 18 (3) ◽  
pp. 7-12 ◽  
Author(s):  
Cindy Munro
Keyword(s):  
Health Care ◽  
Human Genome ◽  
Human Genome Project ◽  
Disease Susceptibility ◽  
Nursing Practice ◽  
Genome Project ◽  
Nursing Research ◽  
Genetic Tests ◽  
Gene Therapies ◽  
The Human Genome Project

Information obtained from the Human Genome Project, initiated in 1990 and targeted for completion in 2005, will influence both health care and nursing practice. It will substantially revise our understanding of disease susceptibility and causation. Additional genetic tests will be developed and gene therapies explored. The project has implications for both nursing research and nursing practice. This article reviews the establishment of the Human Genome Project, reports on current progress of the project, and identifies some implications of the project for health care generally and nursing specifically.

Health care and global justice

2011 ◽  
Vol 7 (3) ◽  
pp. 273-284 ◽  
Author(s):  
Michael Kirby
Keyword(s):  
Health Care ◽  
Human Rights ◽  
Global Justice ◽  
Ethical Issues ◽  
Care Practice ◽  
Human Rights Law ◽  
Health Care Practice ◽  
The World ◽  
Universal Human Rights ◽  
Cast Doubt

AbstractAfter outlining his experience in the world of bioethics, the author draws on his role in the UNESCO International Bioethics Committee to explain the new Universal Declaration of Bioethics, adopted by UNESCO in 2005. He describes it as the first global attempt to reconcile the differing sources of bioethical principles: health-care practice and experience and universal human rights. Whilst collecting, and accepting, some criticism of the text of the Declaration, the author sees its chief values as lying in the wider ethical issues that it reflected of concern to the community, the world and biosphere as well as in the adjustment of health-care approaches for consistency with the growing impact of universal human rights law. Whilst acknowledging the differing social experiences of people in different regions of the world, he invokes Amartya Sen to cast doubt on the notion of specific ‘Asian values’, whether in bioethics or human rights.

A Measure of Family Functioning for Health Care Practice and Research in Israel

1984 ◽  
Vol 15 (2) ◽  
pp. 211-230 ◽  
Author(s):  
S. Linder-Pelz ◽  
S. Levy ◽  
A. Tamir ◽  
T. Spenser ◽  
L. M. Epstein
Keyword(s):  
Health Care ◽  
Family Functioning ◽  
Care Practice ◽  
Health Care Practice

Ethical Visions for the Development of Patient Care in the Health Care Practice

2019 ◽  
Vol 2 (1) ◽  
pp. 27-34
Author(s):  
Richard Moreno ◽  
◽  
Cristinel Ștefănescu ◽  
Beatrice Gabriela Ioan ◽  
Mariana Cuceu ◽  
...  
Keyword(s):  
Health Care ◽  
Patient Care ◽  
Care Practice ◽  
Health Care Practice
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