scholarly journals How is autistic identity in adolescence influenced by parental disclosure decisions and perceptions of autism?

Autism ◽  
2020 ◽  
pp. 136236132095821
Author(s):  
Ariana Riccio ◽  
Steven K Kapp ◽  
Allison Jordan ◽  
Anna Marie Dorelien ◽  
Kristen Gillespie-Lynch
Keyword(s):  
Identity Development ◽  
Voluntary Disclosure ◽  
Summer Camp ◽  
Large Body ◽  
Group Level ◽  
Autism Diagnosis ◽  
Parents And Children ◽  
Autistic People ◽  
Disclosure Decisions ◽  
Autistic Identity

A large body of literature examines parental interpretations of their child’s autism diagnosis. However, research examining intersections between parental disclosure of their child’s autism diagnosis to their child and their child’s identity development is lacking. The primary aim of this study was to analyze if parental decisions to disclose/withhold their child’s autism diagnosis influence adolescents’ perceptions of autism and identity development. Adolescent participants ( n = 19) and their mothers, recruited from an informal educational program, completed in-person interviews and online questionnaires, respectively. Adolescents were told about their autism diagnosis in varying ways. Adolescents whose parents voluntarily disclosed their autism diagnosis to them described autism and themselves more positively than adolescents who did not experience voluntary disclosure. Although parents and teens showed similarities on a group level when defining autism, parents and children expressed diverse themes in their definitions of autism. Findings suggest that parents can help their children develop neurodiversity-aligned perspectives about autism by mindfully discussing autism with them early in their development. Lay abstract There is a lot of research about how parents think about their child’s autism but we don’t know much about how parents talk with their kids about autism. How parents talk with their kids about autism may shape how kids see autism. A team of autistic and non-autistic people (including a mother of an autistic person) did a study. We wanted to know if how parents talk with their kids about autism shapes how their kids see autism. Nineteen teens from a summer camp did interviews and surveys. Their mothers did surveys. Teens learned about if they had autism in different ways. Some teens still didn’t know they were autistic. Teens whose moms chose to tell them about their autism talked about autism and themselves more positively than teens whose moms didn’t choose to talk with them about autism. Only teens whose moms chose to talk with them about autism described themselves as having social strengths. Teens had a harder time defining autism than moms. However, teens and moms talked about autism in similar ways. Our study shows that parents can help their kids see autism and themselves more positively by talking with their kids about autism early in development.

‘A way to be me’: Autobiographical reflections of autistic adults diagnosed in mid-to-late adulthood

Autism ◽  
2021 ◽  
pp. 136236132110506
Author(s):  
Rozanna Lilley ◽  
Wenn Lawson ◽  
Gabrielle Hall ◽  
Joanne Mahony ◽  
Hayley Clapham ◽  
...  
Keyword(s):  
Oral History ◽  
Positive Impact ◽  
Sense Of Self ◽  
Self Awareness ◽  
Autism Diagnosis ◽  
Late Adulthood ◽  
Autistic People ◽  
Autistic Adults ◽  
Autistic Identity ◽  
Over Time

In this article, we report on an oral history study documenting the lives of autistic adults in Australia. This qualitative study, co-produced with autistic researchers, offers insight into the lived experiences of autistic adults diagnosed in mid-to-late adulthood. Oral history methodology was utilised to understand the experiences of autistic adults who grew up in an era before autism was well-known. The 26 interviewees were born before 1975, receiving a clinical autism diagnosis after age 35 years. All interviews were conducted by autistic researchers, transcribed and thematically analysed by a team of autistic and non-autistic researchers using the six-step process outlined by Braun and Clarke. We identified four themes relating to perceptions of the self: being different, exploring identity, the suffering self and being Autistic. Some interviewees reported a direct relationship between trauma, negative self-conceptions and suffering. For most, formal diagnosis had positive impacts on sense of self, contributing to a greater focus on strengths. Contra research suggesting autistic impairments in self-awareness, these interviewees demonstrated a deep capacity for self-reflection, highlighting the variability of autistic lives and the socio-historical contexts that shape individual biographies, including experiences of stigma and discrimination as well as the empowering potential of identifying as autistic. Lay abstract Using oral history methods, we interviewed and recorded 26 autistic adults in Australia about their life history. We wanted to better understand interviewees’ self-reflections about their lives. The interviewers were autistic researchers and the interviews were analysed by autistic and non-autistic researchers. All of the adults we interviewed were born before 1975 and formally identified as autistic after age 35 years. This group of people is sometimes referred to as ‘late-diagnosed autistic adults’. In general, there is not much research done about autistic adults and even less is known about those diagnosed late in life. In this article, we explore what these adults said about their sense of self and how that changed over time. These autistic adults told us about many negative experiences, including trauma, which had shaped how they think about themselves. For most, autism diagnosis had a very positive impact on their sense of self, allowing them to understand more about their own past and to feel good about their autistic identity. Previously some researchers have said that autistic people have a limited or impaired sense of self. Instead, our results show some autistic people can actually reflect deeply on their lives and their changing sense of self-identity over time.

scholarly journals Autistic Identity Development and Postsecondary Education

2016 ◽  
Vol 36 (3) ◽  
Author(s):  
Ken Gobbo ◽  
Solvegi Shmulsky
Keyword(s):  
Identity Development ◽  
Postsecondary Education ◽  
Medical Model ◽  
Autism Spectrum ◽  
Educational Institutions ◽  
Disability Identity ◽  
Autistic People ◽  
Autistic Identity ◽  
Support Students ◽  
Postsecondary Program

<p>As the diagnosis of autism spectrum disorder (ASD) becomes more prevalent in society and an autistic culture develops and moves forward, colleges and universities are in the position of supporting students with similar differences but opposing views about how to address those differences. The autism acceptance movement emphasizes the need for change by educational institutions and society at large, while the medical model perspective seeks to understand cause and believes autistic people need treatment and even need to be cured of autism. This article uses a disability identity development model to explore the potential impact of autism acceptance and medical model perspectives at different stages of development. Postsecondary program elements that emphasize neurodiversity, understanding strengths, and the building of academic strategies for success that support students who are in the process of identity development are recommended.</p>

scholarly journals Less Illusion of a Just World in People with Formally Diagnosed Autism and Higher Autistic Traits

2020 ◽  
Author(s):  
Alex Bertrams
Keyword(s):  
Information Processing ◽  
Individual Differences ◽  
Locus Of Control ◽  
Autistic Traits ◽  
Well Being ◽  
Autism Diagnosis ◽  
Just World ◽  
External Locus ◽  
General Belief ◽  
Autistic People

AbstractPeople differ in how strongly they believe that, in general, one gets what (s)he deserves (i.e., individual differences in the general belief in a just world). In this study (N = 588; n = 60 with a formal autism diagnosis), whether or not autistic people and those with high autistic traits have a relatively low general belief in a just world is examined. The results revealed the expected relationship between autism/higher autistic traits and a lower general belief in a just world. In a subsample (n = 388), personal belief in a just world, external locus of control, and self-deception mediated this relationship. These findings are discussed in terms of autistic strengths (less biased information processing) and problems (lowered well-being).

The Meaning of Summer Camp Experiences to Youths with Disabilities

2005 ◽  
Vol 22 (2) ◽  
pp. 160-178 ◽  
Author(s):  
Donna L. Goodwin ◽  
Kerri Staples
Keyword(s):  
Identity Development ◽  
Thematic Analysis ◽  
Summer Camp ◽  
Behavioral Disabilities ◽  
Therapeutic Landscapes ◽  
Perceptions Of Disability ◽  
Self Reliance ◽  
Semistructured Interviews ◽  
Field Notes ◽  
Document Review

The purpose of the study was to capture the meaning of segregated summer camp experiences to youths with disabilities. The experiences of nine youths with physical, sensory, or behavioral disabilities between the ages of 14 and 19 were captured using the phenomenological methods of semistructured interviews, document review, and field notes. Mothers’ perceptions were also gathered. The thematic analysis revealed three themes: not alone, independence, and a chance to discover. Camp experiences provided a reprieve from perceptions of disability isolation often felt in their home communities. The campers experienced increased self-reliance, independence, and new understandings of their physical potential. The findings are discussed within the context of identity development and therapeutic landscapes.

scholarly journals CEO Career Concerns And Voluntary Disclosure

2016 ◽  
Vol 32 (6) ◽  
pp. 1603 ◽  
Author(s):  
Soo Yeon Park ◽  
Kwan Hee Yoo
Keyword(s):  
Labor Market ◽  
Chief Executive Officers ◽  
Voluntary Disclosure ◽  
Chief Executive ◽  
Career Concerns ◽  
Management Forecasts ◽  
Ceo Tenure ◽  
Disclosure Decisions ◽  
Executive Officers

This paper investigates the relation between Chief Executive Officers (CEO) career concerns and voluntary disclosures using listed firm (KOSPI) data in Korea. Prior research suggests that explicit incentives in the form of CEO stock-based compensation or CEO’s equity ownership mitigate the agency problems of reluctance to make voluntary disclosure. In addition, implicit incentives arising from CEO career concerns are as important as explicit incentives for mitigating agency problems.The labor market assesses CEOs ability and CEO reputation in the market is a valuable asset that is associated with many long-term benefits, such as better future compensation, reappointment in the position, and greater managerial autonomy. CEOs are concerned about such an assessment and these concerns are referred to as career concerns. However, the market has incomplete information about CEOs’ ability especially when the CEOs have short tenures as a CEO position. Hence, CEOs with short tenures have more strong incentives to signal their ability to the labor market so that they can build proper reputation.Implicit incentives arising from CEO career concerns are measured by CEO tenure. I assume that short-tenured CEOs are more career-concerned than long-tenured CEOs. I find that CEOs with short tenures tend to more likely disclose management forecasts. I interpret this result that more career-concerned CEOs have strong incentives to signal their ability to the labor market in order to build their reputations which affect their future payoffs such as compensations and reappointment. In addition, management forecasts, means of voluntary disclosure, are used as effective mechanism. I also find that CEOs with short tenures tend to disclose more accurate management forecasts. This result implies that CEOs with more career concerns have more pressure to provide accurate forecasts because of their reliability in the labor market. Based on these empirical results, I infer that CEOs’ implicit incentives affect their voluntary disclosure decision.This study will contribute to academics and disclosure-related practitioners by documenting about CEOs’ career concerns and their voluntary disclosure decisions.

Positive Bicultural Identity Development Curriculum: A Pilot Evaluation

2019 ◽  
Vol 41 (3) ◽  
pp. 131-139
Author(s):  
Margaret Bishop ◽  
Galina Melamed ◽  
Susan Stone
Keyword(s):  
Middle School Students ◽  
Identity Development ◽  
Psychosocial Functioning ◽  
Large Body ◽  
Bicultural Identity ◽  
Identity Integration ◽  
School Students ◽  
Rigorous Evaluation ◽  
Bicultural Identity Integration ◽  
Initial Support

Abstract Although a large body of research demonstrates a positive relationship between bicultural identity integration (BII) (that is, having a harmonious and blended bicultural identity) and psychosocial functioning, much less research focuses on approaches to promote this integration, particularly among early adolescents. This study describes the Positive Bicultural Identity Development Curriculum developed for middle school students ranging in age from 12 through 14 and presents results of a pilot evaluation. Between pre- and post-curriculum, the seven participants reported increased BII, and facilitator ratings showed increases in bicultural identity certainty. Post-curriculum facilitator ratings also indicated bicultural identity growth. Parents or guardians and teachers perceived similar changes in participants. This study provides initial support for the utility of the intervention and its promise for more rigorous evaluation.

Extensive individual differences of category information in ventral temporal cortex in the congenitally blind

2020 ◽  
Author(s):  
M. Rosenke ◽  
J. Van den Hurk ◽  
E. Margalit ◽  
H. P. Op de Beeck ◽  
K. Grill-Spector ◽  
...  
Keyword(s):  
Individual Differences ◽  
Visual Stimuli ◽  
Large Body ◽  
Temporal Cortex ◽  
Group Level ◽  
Homogeneous Population ◽  
Congenitally Blind ◽  
Functional Representations ◽  
Group Members ◽  
Ventral Temporal Cortex

AbstractHuman ventral temporal cortex (VTC) is a cortical expanse that performs different functions and computations, but is especially critical for visual categorization. Nevertheless, accumulating evidence shows that category-selective regions persist in VTC in the absence of visual experience – for example, in congenitally blind (CB) participants. Despite this evidence, a large body of previous work comparing functional representations in VTC between sighted and CB participants performed univariate analyses at the group level, which assume a homogeneous population – an assumption that has not been formally tested until the present study. Specifically, using fMRI in CB and sighted participants (male and female), we empirically show that at the group level, distributed category representations in VTC are more reliable in the sighted (when viewing visual stimuli) compared to the CB (when hearing auditorily-substituted visual stimuli). Despite these group differences, there is extensive heterogeneity in VTC category representations in the CB to the point that VTC category representations in a subset of CB participants (some who were born without eyes, but not all) are more similar to sighted individuals compared to other CB participants. Together, our findings support a novel idea that driving factors contributing to the formation of VTC category representations in the blind are subject-specific, which complements factors that may generalize across group members. More broadly, the present findings caution conclusions of homogeneity across subjects within a group when performing group neuroimaging analyses without explicitly quantifying individual differences.

The Factors Motivating Voluntary Disclosure of Carbon Information: Evidence Based on Italian Listed Companies

2017 ◽  
Vol 31 (2) ◽  
pp. 178-202 ◽  
Author(s):  
Bikki Jaggi ◽  
Alessandra Allini ◽  
Riccardo Macchioni ◽  
Claudia Zagaria
Keyword(s):  
Kyoto Protocol ◽  
Voluntary Disclosure ◽  
Common Law ◽  
Listed Companies ◽  
Board Independence ◽  
Evidence Based ◽  
Corporate Structure ◽  
Disclosure Decisions

The purpose of this research is to examine how environmental committees, institutional shareholdings, and board independence affect managerial carbon disclosure decisions, particularly those of firms belonging to highly polluting industries. We focus on Italian firms that operate in a code law environment but that have the option either to adopt the unitary corporate structure prevalent in common law countries or to retain the dual corporate structure used in code law countries. We use weighted and unweighted carbon disclosure indexes based on the Kyoto Protocol requirements. The findings show that all factors greatly affect voluntary carbon disclosure and that their impact is especially strong for firms in highly polluting industries. This study has important implications for managers and regulators.

scholarly journals Do Innovative Firms Communicate More? Evidence from the Relation between Patenting and Management Guidance

2020 ◽  
pp. 0000-0000
Author(s):  
Sterling Huang ◽  
Jeffrey Ng ◽  
Tharindra Ranasinghe ◽  
Mingyue Zhang
Keyword(s):  
Voluntary Disclosure ◽  
Regulation Fair Disclosure ◽  
Fair Disclosure ◽  
Information Demand ◽  
Disclosure Decisions ◽  
Management Guidance ◽  
Proprietary Cost ◽  
Role Of Information ◽  
Innovation Outcomes

Successful innovations could induce more disclosure if the information asymmetry between the firm and its investors about post-innovation outcomes leads investors to demand more information. However, such innovations also likely entail greater proprietary cost concerns, which deter disclosure. This paper uses patent grants to examine the effect of innovation success on management guidance behavior. We find that more management guidance follows patent grants, suggesting that despite disclosure cost concerns, firms with successful innovations do respond to information demand. This association is stronger after enactment of Regulation Fair Disclosure and for firms with greater institutional investor ownership, further highlighting the role of information demand. The association is weaker for firms with more competition, consistent with proprietary cost concerns having a moderating impact. Overall, our findings suggest that innovation creates demand for more voluntary disclosure and firms' disclosure decisions following innovation outcomes vary in ways that disclosure theory and economic intuition predict.

Sign in / Sign up

Export Citation Format

Share Document