The tinkering m-patient: Co-constructing knowledge on how to live with type 1 diabetes through Facebook searching and sharing and offline tinkering with self-care

Danish adults with type 1 diabetes value peer-to-peer interaction through the social media platform Facebook as a way to quickly exchange knowledge on essential everyday self-care for chronic illness. In this praxiographic study, following informants into online and offline social dimensions, I explore how they use Facebook to exchange self-care knowledge based on practical experiments and negotiations between bodies, technologies and daily lives. When in doubt about how to self-care on a daily basis, Danish adults with type 1 diabetes look to Facebook for inspiration and peer support. A synergistic process of online searching and sharing and offline tinkering with self-care generates person-centred knowledge about how to live with illness that is situated to individual needs and unique daily lives. Facebook can be viewed as an emergent space for biosociality through which knowledge about how to self-care become co-constructed by peers based on their pragmatic experiences of self-care on a daily and ongoing basis.

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Noise as Dysappearance: Attuning to a Life with Type 1 Diabetes

Body & Society ◽

10.1177/1357034x19861671 ◽

2019 ◽

Vol 25 (4) ◽

pp. 55-75

Author(s):

Natasja Kingod ◽

Bryan Cleal

Keyword(s):

Type 1 Diabetes ◽

Self Care ◽

Blood Glucose Measurement ◽

The Body ◽

Glucose Measurement ◽

Daily Lives ◽

Care Information ◽

To Receive

In this article, we use noise as a metaphor for the overload of information – embodied, technological and online social – that characterizes life with type 1 diabetes. Noise illustrates embodied sensations of fluctuating blood glucose, measurement problems and alarms from digital self-care devices and irrelevant or emotionally disturbing posts on Facebook. Attunement is crucial to the quality of self-care achieved by individuals and comprises: (1) developing skills to receive clear signals from the body, (2) adjusting and individualizing self-care technologies to bodies and daily lives and (3) discerning appropriate distracting and unhelpful self-care information. Ideally, life with type 1 diabetes is harmonious, with clear messages from bodies, technologies and Facebook that enable better self-care.

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1375-P: Acquisition of Self-Care in Youth with Type 1 Diabetes (T1D) Varies by Age and Task

Diabetes ◽

10.2337/db19-1375-p ◽

2019 ◽

Vol 68 (Supplement 1) ◽

pp. 1375-P ◽

Cited By ~ 1

Author(s):

REBECCA O. LA BANCA ◽

LISA K. VOLKENING ◽

LORI M. LAFFEL

Keyword(s):

Type 1 Diabetes ◽

Self Care ◽

P Acquisition ◽

And Task

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Sex-related differences in determinants of self-care behaviors in adults with type 1 diabetes mellitus

Gazzetta Medica Italiana Archivio per le Scienze Mediche ◽

10.23736/s0393-3660.18.03966-9 ◽

2019 ◽

Vol 178 (10) ◽

Author(s):

Rosario Caruso ◽

Stefania Di Mauro ◽

Davide Ausili ◽

Anna M. Grugnetti ◽

Irene Baroni ◽

...

Keyword(s):

Diabetes Mellitus ◽

Type 1 Diabetes ◽

Type 1 Diabetes Mellitus ◽

Self Care

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Motivational Interviewing and Self-care in Type 1 Diabetes: Randomized Controlled Clinical Trial.

Case Medical Research ◽

10.31525/ct1-nct03906786 ◽

2019 ◽

Author(s):

Keyword(s):

Clinical Trial ◽

Type 1 Diabetes ◽

Motivational Interviewing ◽

Self Care ◽

Controlled Clinical Trial ◽

Randomized Controlled Clinical Trial ◽

Randomized Controlled

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Personality Prototypes in People with Type 1 Diabetes and Their Relationship with Adherence

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18094818 ◽

2021 ◽

Vol 18 (9) ◽

pp. 4818

Author(s):

Carmen Sánchez-Urbano ◽

María J. Pino ◽

Carlos Herruzo

Keyword(s):

Type 1 Diabetes ◽

Personality Traits ◽

Psychological Health ◽

Treatment Guidelines ◽

Control Sample ◽

Self Care ◽

Self Report ◽

Cross Sectional ◽

Care Guidelines

Type 1 diabetes (Dm1) is a chronic endocrine and metabolic disease that affects the whole person and requires active, decisive treatment. However, personality traits may influence a patient’s adherence to treatment guidelines. The objective of this work is firstly to identify the 3 Asendorpf personality prototypes (resilient, undercontrolled and overcontrolled) in a sample of Dm1 individuals and determine whether there are any differences in comparison with a control sample; and, secondly, to study their association with adherence to self-care guidelines using both physiological indicators (HbA1C) and self-report measures. To achieve these objectives, a descriptive cross-sectional study was carried out. The sample comprised 294 participants, of whom 104 were people with Dm1 and 190 were controls. The participants, aged between 14 and 34 years, were classified by their scores in NEO-FFI-R, according to the personality characteristics inherent to Asendorpf’s prototypes. Asendorpf’s 3 prototypical personality patterns were found both in the group of people with Dm1 and in the control sample. These patterns showed different degrees of association with adherence to self-care guidelines for this disease and with psychological health factors. Importance should therefore be attached to the personality traits and Asendorpf prototypes of people with Dm1 when proposing interventions to address medical, psychological, and behavioral aspects.

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