scholarly journals Engaging with care: ethical issues in Participatory Research

2020 ◽  
pp. 146879412090488
Author(s):  
Sonia Bussu ◽  
Mirza Lalani ◽  
Stephen Pattison ◽  
Martin Marshall
Keyword(s):  
Health Services Research ◽  
Participatory Research ◽  
Ethical Issues ◽  
Methodological Approach ◽  
Working Life ◽  
Ethics Committees ◽  
Services Research ◽  
Knowledge Mobilisation ◽  
Power Differentials ◽  
Different Types

This paper contributes to the literature on ethics in Participatory Research by looking at the Researcher-in-Residence model and its application within health services research in three East London boroughs. The Researcher-in-Residence is embedded in the organisation to enable knowledge mobilisation and knowledge coproduction. Whereas negotiation of different types of expertise to coproduce evidence might raise issues of power differentials, the embedded nature of the role also requires careful negotiating of relationships. As the researcher is immersed in the context under evaluation, the boundaries between the researcher and the participants’ everyday working life can become blurred. The paper explores these ethical issues and suggests that, whereas the requirements of ethics committees, based on an ethics of principle, at times fail to offer appropriate guidelines for this methodological approach, an ethics of care based on relationships can offer a complementary framework to address some of the thorny challenges that emerge from everyday practice in participatory research.

HMOs and Health Services Research: The Penalty of Taking the Lead

1996 ◽  
Vol 53 (1_suppl) ◽  
pp. 18-43 ◽  
Author(s):  
Amy B. Bernstein ◽  
Jill Bernstein
Keyword(s):  
Health Care ◽  
Health Policy ◽  
Health Services Research ◽  
Health Services ◽  
Information Needs ◽  
Health Maintenance Organization ◽  
Services Research ◽  
Health Maintenance ◽  
Future Evolution ◽  
Different Types

Although health maintenance organization (HMO) structures and databases are not uniform across plans, there are unique characteristics of HMO data in general that make them useful in examining health policy and delivery issues. The authors examine differences in data generated by different types of HMOs. After discussing why health services research using HMO data is needed by HMOs, other providers, practitioners, payers, and consumers of health care, the authors examine ways in which HMOs can provide sound answers to crucially important questions about the future of health care. They conclude that although the need for research on HMOs is compelling, researchers need to understand the information needs of HMOs and the incentives that are shaping the industry's approach to system delivery and clinical outcomes research. If HMOs do not take the lead in conducting health services research, they will diminish their role in shaping policies that will shape their future evolution.

scholarly journals Occurrence and nature of questionable research practices in the reporting of messages and conclusions in international scientific Health Services Research publications: a structured assessment of publications authored by researchers in the Netherlands

BMJ Open ◽  
2019 ◽  
Vol 9 (5) ◽  
pp. e027903 ◽  
Author(s):  
Reinie G Gerrits ◽  
Tessa Jansen ◽  
Joko Mulyanto ◽  
Michael J van den Berg ◽  
Niek S Klazinga ◽  
...  
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
The Netherlands ◽  
Study Design ◽  
Methodological Approach ◽  
Assessment Instrument ◽  
Services Research ◽  
Research Practices ◽  
Questionable Research Practices ◽  
The Impact

ObjectivesExplore the occurrence and nature of questionable research practices (QRPs) in the reporting of messages and conclusions in international scientific Health Services Research (HSR) publications authored by researchers from HSR institutions in the Netherlands.DesignIn a joint effort to assure the overall quality of HSR publications in the Netherlands, 13 HSR institutions in the Netherlands participated in this study. Together with these institutions, we constructed and validated an assessment instrument covering 35 possible QRPs in the reporting of messages and conclusions. Two reviewers independently assessed a random sample of 116 HSR articles authored by researchers from these institutions published in international peer-reviewed scientific journals in 2016.SettingNetherlands, 2016.Sample116 international peer-reviewed HSR publications.Main outcome measuresMedian number of QRPs per publication, the percentage of publications with observed QRP frequencies, occurrence of specific QRPs and difference in total number of QRPs by methodological approach, type of research and study design.ResultsWe identified a median of six QRPs per publication out of 35 possible QRPs. QRPs occurred most frequently in the reporting of implications for practice, recommendations for practice, contradictory evidence, study limitations and conclusions based on the results and in the context of the literature. We identified no differences in total number of QRPs in papers based on different methodological approach, type of research or study design.ConclusionsGiven the applied nature of HSR, both the severity of the identified QRPs, and the recommendations for policy and practice in HSR publications warrant discussion. We recommend that the HSR field further define and establish its own scientific norms in publication practices to improve scientific reporting and strengthen the impact of HSR. The results of our study can serve as an empirical basis for continuous critical reflection on the reporting of messages and conclusions.

scholarly journals Advancing discussion of ethics in mixed methods health services research

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Nicole A. Stadnick ◽  
Cheryl N. Poth ◽  
Timothy C. Guetterman ◽  
Joseph J. Gallo
Keyword(s):  
Mixed Methods ◽  
Health Services Research ◽  
Health Services ◽  
Research Ethics ◽  
Mixed Methods Research ◽  
Online Survey ◽  
Ethical Issues ◽  
Research Training ◽  
Services Research ◽  
Research Issues

Abstract Background To describe the ethical issues and experiences of scientists conducting mixed methods health services research and to advance empirical and conceptual discussion on ethical integrity in mixed methods health research. Methods The study was conducted with 64 scholars, faculty and consultants from the NIH-funded Mixed Methods Research Training Program (MMRTP) for the Health Sciences. This was a cross-sectional study. Survey results were analyzed using descriptive statistics to characterize responses and open coding to summarize strategies about eight ethical mixed methods research issues. Respondents completed an online survey to elicit experiences related to eight ethical issues (informed consent, confidentiality, data management, burden, safety, equitable recruitment, communication, and dissemination) and strategies for addressing them. Results Only about one-third of respondents thought their research ethics training helped them plan, conduct, or report mixed methods research. The most frequently occurring ethical issues were participant burden, dissemination and equitable recruitment (> 70% endorsement). Despite occurring frequently, < 50% of respondents rated each ethical issue as challenging. The most challenging ethical issues were related to managing participant burden, communication, and dissemination. Strategies reported to address ethical issues were largely not specific or unique to mixed methods with the exception of strategies to mitigate participant burden and, to a lesser degree, to facilitate equitable recruitment and promote dissemination of project results. Conclusions Mixed methods health researchers reported encountering ethical issues often yet varying levels of difficulty and effectiveness in the strategies used to mitigate ethical issues. This study highlights some of the unique challenges faced by mixed methods researchers to plan for and appropriately respond to arising ethical issues such as managing participant burden and confidentiality across data sources and utilizing effective communication and dissemination strategies particularly when working with a multidisciplinary research team. As one of the first empirical studies to examine mixed methods research ethics, our findings highlight the need for greater attention to ethics in health services mixed methods research and training.

Ethics committees and health services research

1990 ◽  
Vol 12 (3-4) ◽  
pp. 190-196 ◽  
Author(s):  
Maria Ginzler ◽  
Jane Davies ◽  
Klim McPherson ◽  
Nick Black
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
Ethics Committees ◽  
Services Research

scholarly journals Teaching Community-Based Participatory Research Principles to Physicians Enrolled in a Health Services Research Fellowship

2009 ◽  
Vol 84 (4) ◽  
pp. 478-484 ◽  
Author(s):  
Marjorie S. Rosenthal ◽  
Georgina I. Lucas ◽  
Barbara Tinney ◽  
Carol Mangione ◽  
Mark A. Schuster ◽  
...  
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Services Research ◽  
Community Based ◽  
Research Fellowship ◽  
Teaching Community

Guidelines for Ethical Review of Qualitative Research

2005 ◽  
Vol 1 (3) ◽  
pp. 90-96 ◽  
Author(s):  
J. Walker ◽  
I. Holloway ◽  
S. Wheeler
Keyword(s):  
Health Care ◽  
Qualitative Research ◽  
Research Ethics ◽  
Ethical Issues ◽  
Ethics Committees ◽  
Ethical Review ◽  
Research Ethics Committees ◽  
Different Types ◽  
Ethical Approval ◽  
Key Questions

In recognition of the important ethical issues posed by qualitative research in health care, the authors present key questions to aid ethical review. The purpose is to assist lay and professional members of research ethics committees in their assessment of applications involving qualitative research methods and to inform researchers intending to submit such applications for ethical approval. For the benefit of those less familiar with this type of research, the authors include an overview of different types of qualitative research, together with an explanation of terms commonly used by qualitative researchers.

scholarly journals Bridging the gap between the university and the NHS: health services research in psychiatry

2008 ◽  
Vol 32 (4) ◽  
pp. 146-149
Author(s):  
Sarah Sullivan ◽  
Andy Thompson
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
Clinical Experience ◽  
Real Life ◽  
Ethics Committees ◽  
Medical Specialty ◽  
Services Research ◽  
High Profile ◽  
Regulatory Bodies ◽  
The University

Health services research is vital in any medical specialty. In psychiatry, it has become more high-profile with the reconfiguration of different approaches to delivering care to patients. Research in this area often appeals to clinicians, who feel that the findings may be applicable to ‘real life’ clinical experience. However, many become disillusioned when faced with unexpected problems, not only with regulatory bodies such as ethics committees and funding organisations, but also by the practicalities of recruiting patients and involving fellow clinicians in their studies.

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