Improving advance care planning for care home residents with dementia: Evaluation of simulation training for care home workers

Dementia ◽  
2018 ◽  
Vol 19 (3) ◽  
pp. 822-829
Author(s):  
Asha Pari Katwa ◽  
Chris Jenner ◽  
Karen MacDonald ◽  
Nina Barnett

The importance of effective advance care planning is often underestimated by professionals caring for care home residents. Using a simulated scenario, this model aimed to highlight the importance of timely advance care planning for care home residents. An adapted simulation effectiveness tool was used to evaluate a simulated scenario of a resident with advanced dementia. Feedback from this tool, N = 28 (response rate 82%), suggests this model was well received and that simulation training delivered by a multi-professional faculty, effectively demonstrates the benefits of early advance care planning for residents with dementia.

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Mun Kit Lim ◽  
Pauline Siew Mei Lai ◽  
Pei Se Wong ◽  
Sajaratulnisah Othman ◽  
Fadzilah Hanum Mohd Mydin

Abstract Background There is a growing interest among the developing countries on advance care planning (ACP) due to the reported benefits of planning ahead in the developed countries. Validated instruments in various languages have been developed to facilitate study on the views of public prior to its implementation. However, instrument to explore the views on ACP in Malay has not been developed and validated yet, even though Malay is spoken extensively by approximately 220 million people in the Malay Archipelago. There is also a need for instrument in Malay language to facilitate the assessment of knowledge, attitude and practice (KAP) of Malaysians regarding ACP. Therefore, the aim of this study was to validate the psychometric properties of the Malay Advance Care Planning Questionnaire (ACPQ-M). Methods The ACPQ was translated according to international guidelines. This validation study was conducted from January to June 2018. Participants who were ≥ 21 years old, and able to understand Malay were recruited from an urban primary care clinic and a tertiary education institution in Malaysia. A researcher administered the ACPQ-M to participants via a face-to-face interview at baseline and 2 weeks later. Each interview took approximately 10–20 min. Results A total of 222/232 participants agreed to participate (response rate = 96.0%). Exploratory factor analysis and confirmatory factor analysis found that the ACPQ-M was a 4-factor model. The Cronbach’s α values for the four domains ranged from 0.674–0.947. Only 157/222 participants completed the test-retest (response rate = 71%). At test-retest, quadratic weighted kappa values for all domains ranged from 0.340–0.674, except for two domains which ranged from − 0.200-0.467. Conclusions The ACPQ-M was found to be a 4-factor model, and a valid and reliable instrument to assess the KAP regarding ACP. This instrument can contribute to profound understanding of the KAP of Malaysians regarding ACP, and assist policy makers in determining the readiness for legislation of ACP in Malaysia.


Author(s):  
Maggie Stobbart-Rowlands ◽  
Mandy Thorn

This chapter describes the care home setting, aspects that have an impact on use of Advance care planning (ACP) in care homes, examples of challenges and best practice, use of ACP in the GSF Care Homes Training Programme, ACP with people with dementia, and culture change. Many people in care homes are in the last year/s of life, and ACP discussions are especially important for them to ensure that the care they receive is in line with what they want. Care homes lead the way in their extensive use of ACP discussions. ACP is more routinely used by care home staff than is often recognized, and can be easier to introduce in care homes than in other settings. Key challenges include poor means of communication due to dementia/cognitive impairment or physical deterioration, and how staff address the expectations of families, and ensure any interventions are in the best interests of the person.


Sign in / Sign up

Export Citation Format

Share Document