Chronic Disease Self-Management Program in American Sign Language: Evaluation and Recommendations

2018 ◽  
Vol 21 (2) ◽  
pp. 259-267 ◽  
Author(s):  
Susan M. Havercamp ◽  
Rosalind Gjessing ◽  
Cara N. Whalen Smith
Keyword(s):  
Chronic Disease ◽  
American Sign Language ◽  
Management Program ◽  
Lay Leaders ◽  
Self Management ◽  
Deaf Community ◽  
American Sign ◽  
Participant Satisfaction ◽  
Program Fidelity ◽  
Qualitative Feedback

The Chronic Disease Self-Management Program (CDSMP) is an evidence-based program that is affective in managing chronic conditions and improving health outcomes in diverse populations; however, the program may not effectively reach the Deaf community. Deafness is associated with chronic health conditions and low health literacy, making a health education program such as CDSMP a good fit for this population. This study adapted and evaluated CDSMP in American Sign Language (ASL). The aims of this study were to (1) adapt the CDSMP curriculum for Deaf participants; (2) evaluate the program fidelity, participant satisfaction, and qualitative feedback; and (3) provide recommendations for improving the accessibility of CDSMP for the Deaf community. We evaluated the CDSMP program offered by lay leaders in ASL to Deaf participants. Program fidelity and participant satisfaction were high (93% and 88.9%, respectively). Qualitative feedback from participants and lay leaders informed implementation recommendations. Based on these findings, we offer 10 recommendations for offering CDSMP to the Deaf community. This study demonstrates that CDSMP can be successfully offered in ASL to Deaf participants with minimal adaptations. Offering CDSMP in ASL to accommodate Deaf learners promises to improve health outcomes in this vulnerable population.

Implementation and evaluation of the chronic-disease self-management program among Chinese immigrant older adults in the U.S.

2014 ◽  
Vol 35 (6) ◽  
pp. 448-450 ◽  
Author(s):  
XiaoRong Wang ◽  
Heather K. Hardin ◽  
Lei Zhou ◽  
Lei Fang ◽  
Pan Shi ◽  
...  
Keyword(s):  
Older Adults ◽  
Chronic Disease ◽  
Management Program ◽  
Self Management ◽  
Chinese Immigrant ◽  
The U.S

scholarly journals Standardising the Lay: Logics of Change in Programs of Disease Self-management

2012 ◽  
Vol 4 (3) ◽  
pp. 425-442 ◽  
Author(s):  
Annegrete Juul Nielsen ◽  
Lone Grøn
Keyword(s):  
Chronic Disease ◽  
Role Models ◽  
Chronic Condition ◽  
Expert Knowledge ◽  
Management Program ◽  
The Self ◽  
Self Management ◽  
Social Settings ◽  
Patient Centric ◽  
Forms Of Knowledge

The health political discourse on self-care is dominated by the view that the selfmanaging patient represents a more democratic and patient-centric perspective, as he or she is believed to renegotiate the terms on which patient participation in health care has hitherto taken place. The self-managing patient is intended as a challenge to traditional medical authority by introducing lay methods of knowing disease. Rather than a meeting between authoritative professionals and vulnerable patients, the self-managing patient seeks to open up new spaces for a meeting between experts. The present paper questions these assumptions through an ethnographic exploration of a patient-led self-management program called the Chronic Disease Self-Management Program. The program is concerned with what its developers call the social and mental aspects of living with a chronic disease and uses trained patients as role models and program leaders. Drawing inspiration from Annemarie Mol’s term ’logic’, we explore the rationale of ’situations of selfmanagement’ and identify what we call a ’logic of change’, which involves very specific ideas on how life with a chronic condition should be dealt with and directs attention towards particular manageable aspects of life with a chronic condition. This logic of change entails, we argue, a clash not between ’medical’ and ’lay’ forms of knowledge but between different logics or perceptions of how transformation can be achieved: through open-ended and ongoing reflection and experimentation in social settings or through standardised trajectories of change. Returning to the literature on lay forms of knowledge and illness perspectives, we question whether programs such as the Chronic Disease Self-Management Program – despite its apparent patient-centric perspective – reproduces classical hierarchical relations between lay and expert knowledge, albeit in new forms.

Chronic Disease Self-Management Program Interview

2006 ◽  
Author(s):  
Dongbo Fu ◽  
Yongming Ding ◽  
Patrick McGowan ◽  
Hua Fu
Keyword(s):  
Chronic Disease ◽  
Management Program ◽  
Self Management

Identity, Ethics, and the Deaf Community

2019 ◽  
pp. 53-71
Author(s):  
Teresa Blankmeyer Burke
Keyword(s):  
American Sign Language ◽  
Sign Language ◽  
Vantage Point ◽  
Deaf Community ◽  
American Sign ◽  
Philosophical Approach ◽  
Deaf Identity ◽  
Language Representation ◽  
Per Se

From the vantage point of philosophy, this chapter discusses identities using a philosophical stance with specific focus on the ethics dimension of what deaf identity means. The author, a deaf philosopher, explores the American Sign Language representation of the word philosophy and briefly describes the role of philosophy per se in exploring the roles of metaphysics and epistemology. She introduces an analytical philosophical approach to the topic of ethics and deaf identities that involves concept clarification, analysis of brief examples, and posing specific kinds of questions that are typical of this discipline. The chapter ends with a plea for academics and community participants to continue exploring explicit identification of beliefs about the nature and meaning of deaf identity.

scholarly journals Benefits for elders with vulnerable health from the Chronic Disease Self-management Program (CDSMP) at short and longer term

2015 ◽  
Vol 15 (1) ◽  
Author(s):  
Angèle A. G. C. Jonker ◽  
Hannie C. Comijs ◽  
Kees C. P. M. Knipscheer ◽  
Dorly J. H. Deeg
Keyword(s):  
Chronic Disease ◽  
Management Program ◽  
Self Management
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