scholarly journals The World Database for Pediatric and Congenital Heart Surgery: Update

2018 ◽  
Vol 9 (3) ◽  
pp. 273-275 ◽  
Author(s):  
James St Louis ◽  
James Kirklin
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Congenital Heart Surgery ◽  
World Society ◽  
Planning And Design ◽  
The World ◽  
Broad Overview

Following several years of planning and design, the World Database for Pediatric and Congenital Heart Surgery (WDPCHS) went live on January 1, 2017. The first operational year of this valuable database has proven very successful. As of February 28, 2018, more than 4,500 patients have been submitted from 39 centers; participation currently spans 19 countries over 6 continents, with 120 more centers in the enrollment pipeline. This update, the first in a series, is intended to provide World Society for Pediatric and Congenital Heart Surgery members and others who care for children with congenital heart disease with a broad overview of current progress and ongoing activities surrounding the WDPCHS.

The World Database for Pediatric and Congenital Heart Surgery: The Dawn of a New Era of Global Communication and Quality Improvement in Congenital Heart Disease

2017 ◽  
Vol 8 (5) ◽  
pp. 597-599 ◽  
Author(s):  
James D. St. Louis ◽  
Hiromi Kurosawa ◽  
Richard A. Jonas ◽  
Nestor Sandoval ◽  
Jorge Cervantes ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Quality Improvement ◽  
Heart Disease ◽  
Information Exchange ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Congenital Heart Surgery ◽  
Improvement Program ◽  
Global Improvement ◽  
The World

The World Society for Pediatric and Congenital Heart Surgery was founded with the mission to “promote the highest quality comprehensive cardiac care to all patients with congenital heart disease, from the fetus to the adult, regardless of the patient’s economic means, with an emphasis on excellence in teaching, research, and community service.” Early on, the Society’s members realized that a crucial step in meeting this goal was to establish a global database that would collect vital information, allowing cardiac surgical centers worldwide to benchmark their outcomes and improve the quality of congenital heart disease care. With tireless efforts from all corners of the globe and utilizing the vast experience and invaluable input of multiple international experts, such a platform of global information exchange was created: The World Database for Pediatric and Congenital Heart Disease went live on January 1, 2017. This database has been thoughtfully designed to produce meaningful performance and quality analyses of surgical outcomes extending beyond immediate hospital survival, allowing capture of important morbidities and mortalities for up to 1 year postoperatively. In order to advance the societal mission, this quality improvement program is available free of charge to WSPCHS members. In establishing the World Database, the Society has taken an essential step to further the process of global improvement in care for children with congenital heart disease.

Proceedings From the 3rd Symposium of the World Database for Pediatric and Congenital Heart Surgery

2019 ◽  
Vol 10 (4) ◽  
pp. 492-498
Author(s):  
James D. St. Louis ◽  
Christo I. Tchervenkov ◽  
Richard A. Jonas ◽  
Nestor Sandoval ◽  
Hao Zhang ◽  
...  
Keyword(s):  
Congenital Heart Defect ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Congenital Heart Surgery ◽  
Scientific Meeting ◽  
World Society ◽  
Outcomes Analysis ◽  
Heart Defect ◽  
The World ◽  
International Experts

The World Database for Pediatric and Congenital Heart Surgery was created to provide a resource for centers to be able to perform complex outcomes analyses of children undergoing repair of a congenital heart defect. In just under two years, the World Society for Pediatric and Congenital Heart Surgery (WSPCHS) has amassed over 13,000 procedures from 55 centers into the database. This Proceedings of the 3rd World Database Symposium held at the 6th Scientific Meeting of the WSPCHS summarizes the presentations of international experts in the fields of outcomes analysis and care of children with congenital heart surgery.

The elephant in the room: ethical issues associated with rare and expensive medical conditions

2015 ◽  
Vol 25 (8) ◽  
pp. 1621-1625 ◽  
Author(s):  
Constantine D. Mavroudis ◽  
Constantine Mavroudis ◽  
Jeffrey P. Jacobs
Keyword(s):  
Resource Allocation ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Ethical Issues ◽  
Healthcare Resource ◽  
Congenital Heart Surgery ◽  
Medical Conditions ◽  
Economic Perspectives

AbstractThe treatment of rare and expensive medical conditions is one of the defining qualities of paediatric cardiology and congenital heart surgery. Increasing concerns over healthcare resource allocation are challenging the merits of treating more expensive forms of congenital heart disease, and this trend will almost certainly continue. In this manuscript, the problems of resource allocation for rare and expensive medical conditions are described from philosophical and economic perspectives. The argument is made that current economic models are limited in the ability to assess the value of treating expensive and rare forms of congenital heart disease. Further, multi-disciplinary approaches are necessary to best determine the merits of treating a patient population such as those with significant congenital heart disease that sometimes requires enormous healthcare resources.

scholarly journals Evaluation of Complications of Heart Surgery in Children With Congenital Heart Disease at Dena Hospital of Shiraz

2015 ◽  
Vol 8 (5) ◽  
pp. 33 ◽  
Author(s):  
Maryam Mirzaei ◽  
Samaneh Mirzaei ◽  
Elham Sepahvand ◽  
Afifeh Rahmanian Koshkaki ◽  
Marzieh Kargar Jahromi
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Open Heart Surgery ◽  
Vascular Complications ◽  
Congenital Heart Surgery ◽  
Morbidity And Mortality ◽  
High Morbidity ◽  
Cross Sectional

<p><strong>INTRODUCTION:</strong> Today, with progress in the field of congenital heart surgery, different complicated actions are done in children. These actions may be associated with several complications, especially open heart surgery in which the cardiopulmonary bypass (CPB) is used. Serious complications can be caused high morbidity and mortality rates. Present study has been performed to determine the incidence of morbidity and mortality in cardiac surgery in children.</p> <p><strong>METHOD:</strong> In a cross-sectional retrospective, records of 203 patients undergoing surgery for congenital heart disease in Dena hospital during 2013-2015 were reviewed for incidence of complications. Data was analyzed by using descriptive and analytical statistics and using SPSS version 18.</p> <p><strong>RESULTS:</strong> The mean age of samples was 3/65±4/47 years. The majority of samples (73/8%) were undergoing open surgery. The overall adverse cardiovascular complications were respectively, renal complications (44/3%), lung (40/3%), anemia (35/9%), heart (34/4%), gastrointestinal (17/2%), brain (14/2%), need for re-intubation of the trachea 11/3%), infection (7/8%) required reoperation (5/9%) and vascular complications (1/4%).</p> <p><strong>CONCLUSION:</strong> High incidence of complications after congenital heart surgery makes necessary attention to complications and their treatment after surgery. It is necessary to apply the measures and careful monitoring of patients to minimize these effects.</p>

History of the World Society for Pediatric and Congenital Heart Surgery: The First Decade

2018 ◽  
Vol 9 (4) ◽  
pp. 392-406 ◽  
Author(s):  
Jeffrey P. Jacobs ◽  
Christo I. Tchervenkov ◽  
Giovanni Stellin ◽  
Hiromi Kurosawa ◽  
Constantine Mavroudis ◽  
...  
Keyword(s):  
Congenital Heart ◽  
Heart Surgery ◽  
Surgical Care ◽  
Congenital Heart Surgery ◽  
World Society ◽  
Professional Organization ◽  
Current Status ◽  
Cardiac Care ◽  
The World ◽  
History Of

The World Society for Pediatric and Congenital Heart Surgery (WSPCHS) is the largest professional organization in the world dedicated to pediatric and congenital heart surgery. The purpose of this article is to document the first decade of the history of WSPCHS from its formation in 2006, to summarize the current status of WSPCHS, and to consider the future of WSPCHS. The WSPCHS was incorporated in Canada on April 7, 2011, with a head office in Montreal, Canada. The vision of the WSPCHS is that every child born anywhere in the world with a congenital heart defect should have access to appropriate medical and surgical care. The mission of the WSPCHS is to promote the highest quality comprehensive cardiac care to all patients with congenital heart disease, from the fetus to the adult, regardless of the patient’s economic means, with an emphasis on excellence in teaching, research, and community service.

Strengthening International Collaboration in Congenital Heart Surgery

2018 ◽  
Vol 9 (4) ◽  
pp. 383-391 ◽  
Author(s):  
Richard A. Jonas
Keyword(s):  
Congenital Heart ◽  
Heart Surgery ◽  
Mission Statement ◽  
Presidential Address ◽  
Congenital Heart Surgery ◽  
Scientific Meeting ◽  
World Society ◽  
International Exchange ◽  
The World ◽  
Scientific Meetings

This paper was presented by the author at the 2016 biannual scientific meeting in Abu dhabi of the World Society for Pediatric and Congenital Heart Surgery as his incoming presidential address. In addition to listing the accomplishments of the World Society including several successful international scientific meetings and regional meetings, the Society has established the only journal devoted to congenital heart surgery and is in the process of establishing the new World Society database. The mission statement of the World Society emphasizes equitable global management of patients with congenital heart disease and includes an emphasis on excellence in education, research and community service. The Society will promote international exchange of trainees in congenital heart surgery, the facilitation of international teaching and treatment missions as well as a system for global certification of congenital heart surgeons to facilitate international movement of surgeons to areas of greatest need.

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