scholarly journals Burden of migraine and unmet needs from the patients’ perspective: a survey across 11 specialized headache clinics in Korea

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Byung-Kun Kim ◽  
Min Kyung Chu ◽  
Soo Jin Yu ◽  
Grazia Dell’Agnello ◽  
Jeong Hee Han ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Unmet Needs ◽  
Primary Headache ◽  
Headache Disorder ◽  
Poor Quality ◽  
Life Questionnaire ◽  
Korean Patients ◽  
Primary Headache Disorder ◽  
Preventive Medication

Abstract Background Migraine is a neurological, primary headache disorder affecting more than 1 billion people worldwide, with a multi-faceted burden that can significantly impact the everyday life of a patient, both during and between attacks. However, studies on patient awareness, burden, and clinical management of migraine in Korea are limited and outdated. The aim of this study was to comprehensively investigate the current difficulties and unmet needs that Korean patients with migraine encounter from their perspective. Methods A total of 207 patients with episodic or chronic migraine aged between 15 and 76 years, completed a survey designed to cover the following topics: diagnosis, understanding of the disease, treatment experience, disability, and quality of life. Patients were recruited by their neurologists from 11 specialized headache clinics in Korea and completed the survey between 22 July and 19 August 2019. Validated scales such as the Migraine Disability Assessment (MIDAS) questionnaire and Migraine-Specific Quality of Life Questionnaire version 2.1 (MSQv2.1) were used to assess levels of disability and quality of life, respectively, in patients. Results On average, it took 10.1 years from onset of symptoms to diagnosis and a mean of 3.9 hospitals were visited for treatment prior to the patient’s current hospital. There was a lack of understanding among respondents about migraine, with 55.6% believing that unilateral headache is a unique feature of migraine compared with other headache disorders. On average, high levels of disability and poor quality of life were reported by patients, as assessed by MIDAS and MSQv2.1, respectively, but only 23.7% had regularly taken preventive medication in the past. Overall satisfaction with previous doctor-patient relationships was reported by 29.5% of respondents, and satisfaction with preventive and acute medications by only 40.8% and 27.1% of the respondents, respectively. Conclusion Korean patients with migraine experience significant disability and reduced quality of life as a result of the disease and have clear unmet needs in terms of diagnosis, understanding of the disease, and disease management including treatment.

scholarly journals Impact of primary headache disorder on quality of life among school students in Kuwait

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Jasem Y. Al-Hashel ◽  
R. Alroughani ◽  
S. Shauibi ◽  
A. AlAshqar ◽  
F. AlHamdan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Primary Headache ◽  
Headache Disorder ◽  
School Students ◽  
Primary Headache Disorder

scholarly journals Correction to: Impact of primary headache disorder on quality of life among school students in Kuwait

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Jasem Y. Al-Hashel ◽  
R. Alroughani ◽  
S. Shuaibi ◽  
A. AlAshqar ◽  
F. AlHamdan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Primary Headache ◽  
Headache Disorder ◽  
School Students ◽  
Primary Headache Disorder

An amendment to this paper has been published and can be accessed via the original article.

scholarly journals Impact of Primary Headache Disorder on Quality of Life Among School students in Kuwait

2020 ◽  
Author(s):  
Jasem Yousef Al-Hashel ◽  
Raed Alroughani ◽  
Sameera Shuaibi ◽  
Abdelrahman AlAshqar ◽  
Fajer AlHamdan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Middle School Students ◽  
Primary Headache ◽  
Headache Disorder ◽  
Primary Headaches ◽  
Headache Disorders ◽  
School Students ◽  
Primary Headache Disorder ◽  
Primary Headache Disorders

Abstract Background Primary headache disorders have being increasingly reported in younger populations. They can have significant effects on their quality of life and academic achievement and may cause significant distress to their families. Aims and Objectives To assess the burden of primary headache disorder and its impact on the quality of life on school student in Kuwait. Methods A cross-sectional study was conducted among Kuwaiti primary and middle school students of both genders in randomly selected schools located in two governorates in 2018/2019 academic year. Headache-Attributed Restriction, Disability, Social Handicap and Impaired Participation (HARDSHIP) questionnaire for children and adolescents was used to assess the impact of primary headaches on the quality of life. Results 1091 questionnaires were completed by primary and middle school students of both genders; of whom 466 students (girls 321 (68.88%) were diagnosed with primary headache disorders with mean age 11.98 + 2.03 years. In the month prior to the survey, the effect of the headache was variable. The students lost a mean of 1.99 + 2.015 days of school while they could not perform their usual activities for a mean of 2.84 + 4.28 days. Their parents lost a mean of 2 + 2.03 days of work because of headaches of their children and parents prohibited 5.7% of the students to engage in any activity due to their headaches. Difficulties in concentrations were reported as never sometimes (39.1%), often (24.8%), and always (26%). Majority of the students (?%) experienced a feeling of sadness ranging from sometimes to always. Most of the students (?%) struggled to cope with the headache and 22.4% were never able to cope. Additionally, 19.4% of students reported they did not want others noticing their headache. Conclusion Primary headache disorder can have a significant impact on the quality of life in children. It can affect their engagement in activities and academic achievement. Implementing strategies to properly manage schoolchildren with primary headaches can have profound effects on their quality of life.

A Modern Review of the Operative Management of Chronic Pancreatitis

2010 ◽  
Vol 76 (10) ◽  
pp. 1071-1074 ◽  
Author(s):  
Jonathan C. King ◽  
Shannon Abeywardina ◽  
James J. Farrell ◽  
Howard A. Reber ◽  
O. Joe Hines
Keyword(s):  
Quality Of Life ◽  
Chronic Pancreatitis ◽  
Short Form ◽  
Operative Management ◽  
Poor Quality ◽  
Whipple Procedure ◽  
Life Questionnaire ◽  
Historical Controls

Chronic pancreatitis is a debilitating disease resulting in pain, intestinal malabsorption, endocrine dysfunction, and poor quality of life (QoL). Our aim was to analyze surgical outcomes for patients with chronic pancreatitis. Data for patients undergoing operations for chronic pancreatitis between 1990 and 2009 were reviewed. Demographics, operative and perioperative data, and survival were catalogued. QoL was determined (Short Form 36 and European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire + PAN-26) and compared with historical controls. The mean age was 51 ± 2 years, 38 patients were male (53%), the most common indication was pain (71%), the etiology of pancreatitis often was alcohol, and most patients underwent a Whipple procedure (56%). Operative time was 316 ± 17 minutes and blood loss was 363 ± 75 mL. There were 34 complications in 30 patients (42%) and one death. QoL surveys were administered for 25 of 55 (45%) surviving patients at a mean follow-up of 72 ± 16 months. Mean survival was 99 ± 9 months, whereas 5- and 10-year survival were 86 and 75 per cent. QoL scores were uniformly better than historical controls. Our data demonstrate that operations for chronic pancreatitis can be performed with acceptable morbidity and mortality. Patients have excellent survival and improved QoL compared with historical controls. Surgery is an effective and durable treatment option for patients with chronic pancreatitis.

scholarly journals Comparing the quality of life of women suffering from breast cancer receiving palliative care and ordinary care

2020 ◽  
Vol 6 (2) ◽  
pp. e22-e22
Author(s):  
Seyedeh Maryam Khalili ◽  
Padideh Janati Ataei ◽  
Abdolrahim Hazini ◽  
Malihe Nasiri ◽  
Nourossadat Kariman ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Physical Activity ◽  
Palliative Care ◽  
Poor Quality ◽  
Future Perspective ◽  
Care Group ◽  
Life Questionnaire ◽  
European Organization

Introduction: Breast cancer is the most prevalent cancer and leading cause of women’s mortality due to malignancy. Treatment increases the survival however it is associated with poor quality of life and bringing the patients toward palliative care. Objectives: This study was conducted to compare the quality of life in patients with breast cancer receiving palliative care and ordinary care. Patients and Methods: This descriptive-analytical study was carried out in Tehran hospitals (February to August 2017). The sample consisted of 220 breast cancer women who had completed the therapy four weeks prior to the study. The European Organization for Research and Treatment of Cancer quality of life Questionnaire (EORTC QLQ-C30), its supplementary breast cancer questionnaire (QLQ-BR23) and International Physical Activity Questionnaire (IPAQ) were applied to assess the quality of life of patients who received palliative care (n=110) and ordinary care (n=110). Descriptive and inferential statistics (t test and Mann-Whitney U test) were applied to analyze the data through SPSS 21. Results: The palliative care group demonstrated higher quality of life compared to the ordinary care group. Scores in functioning and global health were higher in the palliative care group than the ordinary care group. The palliative care group also had higher scores in sexual functioning, body image, future perspective, physical activity and lower scores in symptom scales, arm symptoms and hair loss than the ordinary care group (P<0.001). Conclusion: Palliative care provides more desired quality of life than ordinary care in breast cancer women and can be effective to improve the quality of life in these patients.

scholarly journals Depressive symptoms and perception of quality of life in Parkinson's disease

2009 ◽  
Vol 67 (2a) ◽  
pp. 203-208 ◽  
Author(s):  
Paula Scalzo ◽  
Arthur Kummer ◽  
Francisco Cardoso ◽  
Antonio Lucio Teixeira
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Depressive Symptoms ◽  
Well Being ◽  
Poor Quality ◽  
Life Questionnaire ◽  
Perception Of Quality ◽  
The Relationship

BACKGROUND: Depression has been proposed as a major contributor to poor quality of life (QoL) in Parkinson's disease (PD). OBJECTIVE: To evaluate the relationship between depressive symptoms and QoL in subjects with PD. METHOD: Beck Depression Inventary (BDI) was used to evaluate depressive symptoms and Parkinson's Disease Quality of Life Questionnaire (PDQ-39) to assess the perception of the QoL. RESULTS: Thirty seven patients (19 male/ 18 female) with a typical onset PD and mean disease duration of 7.7 years were studied. Higher scores on BDI correlated with poorer perception of the QoL. This association occurred at the expense of the following PDQ39 domains: mobility, activities of daily living, social support, cognition and emotional well-being dimensions. PD severity also correlated with QoL. CONCLUSION: Our study corroborates the assumption that depressive symptoms contributed significantly to QoL in PD.

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