Table in the corner: a qualitative study of life situation and perspectives of the everyday lives of oesophageal cancer patients in palliative care

AbstractMoney is a symbol. Beginning with this simple notion, we have completed a qualitative study of how money exists in people’s everyday lives and how it is used symbolically. A review of the financial, economic, psychological, and semiotic literature shows that even though money is written and talked about exhaustively, little symbol theory appears in economic writing, and we rarely found money mentioned in semiotic texts. We used a qualitative, phenomenological approach to identify critical thematic elements and underlying structures of participants’ experience. We also incorporated an accepted symbol-structure template in our analysis of the functions, emotions, actions, and reactions in the transactions our participants described. Participants refer to money both as wealth in the abstract and as concrete amounts about to be used. Our analysis of money in the abstract describes a structure of experience involving belonging, privacy and secrecy, unequal distribution, quantitative uncertainty, reflections of life history, and values. Our analysis of money in the concrete reveals a symbolic intention and a variety of “Others” engaged in the symbolic action.

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A Qualitative Study to Assess the Lived Experience of Cancer Patients and their Family Members in a View to Develop a Palliative Care Guideline for the Nursing Personnel at Selected Hospitals in Bangalore

International Journal of Nursing Education ◽

10.5958/j.0974-9357.5.2.055 ◽

2013 ◽

Vol 5 (2) ◽

pp. 7

Author(s):

Anu Savio Thelly ◽

Priyalatha

Keyword(s):

Palliative Care ◽

Qualitative Study ◽

Lived Experience ◽

Cancer Patients ◽

Family Members ◽

Nursing Personnel ◽

Care Guideline

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169 Acceptability and experience of a new integrated oncology and palliative care ‘triggers’ service for cancer patients: a qualitative study

10.1136/spcare-2020-pcc.189 ◽

2020 ◽

Author(s):

Laila A Kamal ◽

Joanne Droney ◽

Theresa Wiseman ◽

Yukie Kano ◽

Jayne Wood ◽

...

Keyword(s):

Palliative Care ◽

Qualitative Study ◽

Cancer Patients

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A qualitative study of bereaved family caregivers: feeling of security, facilitators and barriers for rural home care and death for persons with advanced cancer

BMC Palliative Care ◽

10.1186/s12904-020-00705-y ◽

2021 ◽

Vol 20 (1) ◽

Author(s):

Anne Sæle Barlund ◽

Beate André ◽

Kari Sand ◽

Anne-Tove Brenne

Keyword(s):

Palliative Care ◽

Qualitative Study ◽

End Of Life ◽

Cancer Patients ◽

Advanced Cancer ◽

Rural Areas ◽

Healthcare Professionals ◽

Healthcare Services ◽

Personal Factors ◽

At Home

Abstract Background For cancer patients and their family, an important factor that determines the choice to die at home is the caregivers’ feeling of security when caring for the patient at home. Support to caregivers from healthcare professionals is important for the feeling of security. In rural areas, long distances and variable infrastructure may influence on access to healthcare services. This study explored factors that determined the security of caregivers of patients with advanced cancer who cared for the patients at home at the end of life in the rural region of Sogn og Fjordane in Norway, and what factors that facilitated home death. Methods A qualitative study using semi-structured in-depth interviews with bereaved with experience from caring for cancer patients at home at the end of life was performed. Meaning units were extracted from the transcribed interviews and divided into categories and subcategories using Kvale and Brinkmann’s qualitative method for analysis. Results Ten bereaved caregivers from nine families where recruited. Five had lived together with the deceased. Three main categories of factors contributing to security emerged from the analysis: “Personal factors”, “Healthcare professionals” and “Organization” of healthcare. Healthcare professionals and the organization of healthcare services contributed most to the feeling of security. Conclusion Good competence in palliative care among healthcare professionals caring for patients with advanced cancer at home and well- organized palliative care services with defined responsibilities provided security to caregivers caring for advanced cancer patients at home in Sogn og Fjordane.

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Pacientes oncológicos com doença avançada: preocupações e expectativas vivenciadas na terminalidade da vida [Cancer patients with advanced disease: concerns and expectations experienced in the terminality of life] [Pacientes com câncer com enfermedad avanzada: preocupaciones y expectativas experimentadas em laterminación de la vida]

Revista Enfermagem UERJ ◽

10.12957/reuerj.2019.45650 ◽

2019 ◽

Vol 27 ◽

pp. e45650

Author(s):

Eleandro Do Prado ◽

Iven Giovanna Trindade Lino ◽

Patricia Chatalov Ferreira ◽

Vanessa Carla Batista ◽

Hellen Pollyanna Mantelo Cecilio ◽

...

Keyword(s):

Palliative Care ◽

Content Analysis ◽

Qualitative Study ◽

Research Ethics ◽

Cancer Patients ◽

Advanced Cancer ◽

Advanced Disease ◽

Well Being ◽

Positive Probability ◽

Life Process

Objetivo: evidenciar as preocupações vivenciadas por pacientes com câncer em estágio avançado. Metodologia: estudo qualitativo desenvolvido com 11 pacientes oncológicos em cuidados paliativos. Os dados foram coletados em Maringá – PR, no período de 2016 a 2017, mediante entrevistas abertas, abordando as experiências e enfrentamentos vivenciados durante o processo de terminalidade da vida, das quais foram extraídos os discursos e submetidos à análise de conteúdo após aprovação pelo Comitê de Ética em Pesquisa. Resultados: o medo de tornar-se um incômodo e asincertezas de como a vida continuará após sua partida foram questões hegemônicas dos pacientes, que encontraram na aceitação da morte um momento de reflexão sobre a vida, despontando como uma probabilidade positiva de resiliência e esperança. Conclusão: as principais preocupações manifestadas foram: viver melhor o agora, aproximar-se mais daqueles que lhes fazem bem, preocupando-se com o bem-estar de seus familiares e como eles ficarão após sua partida, transcendendo assim o seu próprio sofrimento.ABSTRACTObjective: to highlight the concerns experienced by patients with advanced cancer. Methodology: qualitative study developed with 11 cancer patients in palliative care. The data were collected in Maringá - PR, from 2016 to 2017, through open interviews, addressing the experiences and confrontations experienced during the terminal life process, from which the speeches were extracted and submitted to content analysis after approval by the Committee Research Ethics. Results: the fear of becoming a nuisance and the uncertainties of how life will continue after his departure, were hegemonic issues of the patients, who found in the acceptance of death a moment of reflection on life, emerging as a positive probability of resilience and hope. Conclusion: the main concerns expressed were: to live better now, to get closer to those who do them well, worrying about the well-being of their families and how they will be after their departure, thus transcending their own suffering.RESUMENObjetivo: resaltar las preocupaciones experimentadas por los pacientes con cáncer avanzado. Metodología: estudio cualitativo desarrollado con 11 pacientes con cáncer en cuidados paliativos. Los datos se recopilaron en Maringá - PR, de 2016 a 2017, a través de entrevistas abiertas, abordando las experiencias y confrontaciones experimentadas durante el proceso de vida terminal, de donde se extrajeron los discursos y se sometieron a análisis de contenido después de la aprobación del Comité Ética de Investigación. Resultados: el miedo a convertirse en una molestia y las incertidumbres de cómo continuará la vida después de su partida, fueron problemas hegemónicos de los pacientes, quienes encontraron en la aceptación de la muerte un momento de reflexión sobre la vida, emergiendo como una probabilidad positiva de resiliencia y Espero Conclusión: las principales preocupaciones expresadas fueron: vivir mejor ahora, acercarse a quienes son buenos para ellos, preocuparse por el bienestar de su familia y cómo estarán después de su partida, trascendiendo así su propio sufrimiento.

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