scholarly journals Pain, disease severity and associations with individual quality of life in patients with motor neuron diseases

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Ylva Åkerblom ◽  
Lena Zetterberg ◽  
Birgitta Jakobsson Larsson ◽  
Dag Nyholm ◽  
Ingela Nygren ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Motor Neuron ◽  
Disease Severity ◽  
Short Form ◽  
Pain Severity ◽  
Multidisciplinary Teams ◽  
Individual Quality ◽  
Pain Prevalence ◽  
Individual Quality Of Life

Abstract Background Up to 85% of people with motor neuron disease (MND) report pain, but whether pain has negative impact on quality of life is unclear. The aim was to study associations between pain, disease severity and individual quality of life (IQOL) in patients with MND. Methods In this cross sectional study, 61 patients were recruited from four multidisciplinary teams in Sweden, whereof 55 responded to the pain measure (The Brief Pain Inventory – Short form) and were included in the main analyses. Disease severity was measured with the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised Version, and individual quality of life was measured with a study-specific version of the Schedule for the Evaluation of Individual Quality of Life - Direct Weighting. Results Forty-one (74%) of the participants who answered BPI-SF (n = 55) reported pain. Thirty-nine (71%) of those reported pain during the past 24 h. The severity of pain was on average moderate, with eight participants (14%) reporting severe pain (PSI ≥ 7). Satisfaction with IQOL for the entire sample was good (scale 1-7, where 1 equals poor quality of life): median 5, interquartile range (IQR) 2.75 and there was no difference in satisfaction with IQOL between those reporting pain/not reporting pain (median 5, IQR 2/median 5, IQR 3.5, Mann-Whitney U = 249, p = 0.452). There was neither any correlation between pain severity and satisfaction with IQOL, nor between disease severity and satisfaction with IQOL. Conclusions The results add to the hypothesis that associations between non-motor symptoms such as pain prevalence and pain severity and IQOL in MND are weak. Pain prevalence was high and the results pointed to that some participants experienced high pain severity, which indicate that pain assessments and pain treatments tailored to the specific needs of the MND population should be developed and scientifically evaluated.

scholarly journals A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS

BMJ ◽  
1996 ◽  
Vol 313 (7048) ◽  
pp. 29-33 ◽  
Author(s):  
A. M Hickey ◽  
G. Bury ◽  
C. A O'Boyle ◽  
F. Bradley ◽  
F. D O'Kelly ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Individual Quality ◽  
Life Measure ◽  
Individual Quality Of Life ◽  
Hiv Aids

Schedule for the Evaluation of Individual Quality of Life--Direct Weight

1997 ◽  
Author(s):  
John Browne ◽  
Ciaran A. O'Boyle ◽  
Hannah M. McGee ◽  
Nicholas J. McDonald ◽  
C. R. B. Joyce
Keyword(s):  
Quality Of Life ◽  
Individual Quality ◽  
Individual Quality Of Life

scholarly journals Assessment of individual quality of life using the SEIQoL-DW in older medical patients

QJM ◽  
2004 ◽  
Vol 97 (8) ◽  
pp. 519-524 ◽  
Author(s):  
L.A. Mountain ◽  
S.E. Campbell ◽  
D.G. Seymour ◽  
W.R. Primrose ◽  
M.I. Whyte
Keyword(s):  
Quality Of Life ◽  
Individual Quality ◽  
Medical Patients ◽  
Individual Quality Of Life

Psychological factors influencing motivation, cooperation, participation, satisfaction, self appraisal, and individual quality of life in adolescents and adults undergoing Orthodontic treatment

2021 ◽  
Vol 11 (1) ◽  
pp. 34-39
Author(s):  
Oshin Pawar ◽  
Purva Joneja ◽  
Deepak Singh Choudhary
Keyword(s):  
Quality Of Life ◽  
Psychological Factors ◽  
Orthodontic Treatment ◽  
The Self ◽  
Main Concern ◽  
Individual Quality ◽  
Patients Satisfaction ◽  
Before And After ◽  
Individual Quality Of Life

Introduction: To bring the best outcome from both the sides i.e. the orthodontist and the patient , it is of prime importance to understand certain psychological factors, and to treat every patient with an individualistic approach. The need was to study all such psychological factors and to find a method to deal with the same; to evaluate the psychological factors that influences the self appraisal and individual Quality of life. To compare psychological factor affecting the self appraisal and individual quality of life before treatment and after treatment, to study psychological factors of patients which influences the treatment outcome and to find a method to manage them. Materials and Method: This In-vivo study, includes case study and survey. Two separate sets of questionnaires (before and after undergoing orthodontic treatment) were given to patients. The study also included psychological test scales like OHIP-14 and 12-CSES. The sample size of patient was 150. Result: The study revealed that esthetics (95%) is the main concern for getting treatment especially for female (56%). There is improvement in OHIP and CSES (interval of 12.63, 14.66) score of patients before and after treatment. Patients’ satisfaction (94.7%) increases on having healthy orthodontist-patient relationship. Conclusion: Esthetics is the main concern. Most patients wants improvement in smile. Lack of awareness and lack of financial supports is the main reason for delay in getting treatment. The main discomfort about the treatment reported by participants was pain after activation appointments, ulcers and change in food eating habit. The orthodontic therapy improves confidence, satisfaction, individuals’ appraisal and quality of life. There were no variations in response for patients’ satisfaction by gender, age, education or by treatment duration.

scholarly journals Levodopa infusion in Parkinson's disease: Individual quality of life

2020 ◽  
Vol 142 (3) ◽  
pp. 248-254
Author(s):  
Claas Ehlers ◽  
Jonathan Timpka ◽  
Per Odin ◽  
Holger Honig
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Individual Quality ◽  
Individual Quality Of Life

scholarly journals Individual quality of life in spousal ALS patient-caregiver dyads

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Miriam Galvin ◽  
Tommy Gavin ◽  
Iain Mays ◽  
Mark Heverin ◽  
Orla Hardiman
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Psychological Distress ◽  
Caregiver Burden ◽  
Life Quality ◽  
Individual Quality ◽  
Care Providers ◽  
Individual Quality Of Life ◽  
Over Time

Abstract Background Quality of life is a basic goal of health and social care. The majority of people with Amyotrophic Lateral Sclerosis (ALS) are cared for at home by family caregivers. It is important to recognize the factors that contribute to quality of life for individuals to better understand the lived experiences in a condition for which there is currently no curative treatment. Aim To explore individual quality of life of people with ALS and their informal caregivers over time. Methods Over three semi-structured home interviews, 28 patient-caregiver dyads provided information on a range of demographic and clinical features, psychological distress, caregiver burden, and individual quality of life. Quality of life data were analysed using quantitative and qualitative methods with integration at the analysis and interpretation phases. Results Individual Quality of Life was high for patients and caregivers across the interviews series, and higher among patients than their care partners at each time point. Family, hobbies and social activities were the main self-defined contributors to quality of life. The importance of health declined relative to other areas over time. Friends and finances became less important for patients, but were assigned greater importance by caregivers across the illness trajectory. Psychological distress was higher among caregivers. Caregiver burden consistently increased. Conclusion The findings from this study point to the importance of exploring and monitoring quality of life at an individual level. Self-defined contributory factors are relevant to the individual within his/her context. As an integrated outcome measure individual quality of life should be assessed and monitored as part of routine clinical care during the clinical encounter. This can facilitate conversations between health care providers, patients and families, and inform interventions and contribute to decision support mechanisms. The ascertainment of self-defined life quality, especially in progressive neurodegenerative conditions, mean health care professionals are in a better position to provide person-centred care.

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