Trajectories of Rehabilitation across Complex Environments (TRaCE): design and baseline characteristics for a prospective cohort study on spinal cord injury and acquired brain injury

Abstract Purpose Trajectories of Rehabilitation across Complex Environments (TRaCE), a consented prospective cohort study, addresses a critical need to better understand access to the healthcare system after acute treatment and specialist inpatient rehabilitation for acquired disability. It is expected that this study will produce new knowledge on access to healthcare through the linkage of administrative, survey, and spatial datasets on the one cohort. This paper outlines the study design and baseline characteristics of the cohort. Methods The TRaCE cohort is comprised of 165 inpatients who are currently being followed up for 12 months after discharge from specialist rehabilitation for acquired brain injury (ABI) and spinal cord injury (SCI). This project combines a data linkage framework on health service use with a prospective survey on psychosocial wellbeing, geographical information systems to examine spatial accessibility to services, and qualitative interviews with a sub-cohort on experiences of service access. Conclusion Ultimately, TRaCE will have strong translational impact on strategies for more targeted interventions to improve the healthcare system and support individuals with acquired disabilities in the long-term.

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Employment Trajectories After Spinal Cord Injury: Results From a 5-Year Prospective Cohort Study

Archives of Physical Medicine and Rehabilitation ◽

10.1016/j.apmr.2014.04.021 ◽

2014 ◽

Vol 95 (11) ◽

pp. 2040-2046 ◽

Cited By ~ 13

Author(s):

Astri Ferdiana ◽

Marcel W. Post ◽

Trynke Hoekstra ◽

Luccas H. van der Woude ◽

Jac J. van der Klink ◽

...

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Cohort Study ◽

Prospective Cohort Study ◽

Prospective Cohort ◽

Employment Trajectories ◽

Cord Injury

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Treatment patterns of in-patient spasticity medication use after traumatic spinal cord injury: a prospective cohort study

Spinal Cord ◽

10.1038/s41393-018-0165-0 ◽

2018 ◽

Vol 56 (12) ◽

pp. 1176-1183 ◽

Cited By ~ 4

Author(s):

Kaila A. Holtz ◽

Elena Szefer ◽

Vanessa K Noonan ◽

Brian K. Kwon ◽

Patricia B. Mills

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Cohort Study ◽

Prospective Cohort Study ◽

Prospective Cohort ◽

Medication Use ◽

Treatment Patterns ◽

Traumatic Spinal Cord Injury ◽

Cord Injury

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Appraisals and coping mediate the relationship between resilience and distress among significant others of persons with spinal cord injury or acquired brain injury: a cross-sectional study

BMC Psychology ◽

10.1186/s40359-020-00419-z ◽

2020 ◽

Vol 8 (1) ◽

Author(s):

Eline W. M. Scholten ◽

◽

Julia D. H. P. Simon ◽

Tijn van Diemen ◽

Chantal F. Hillebregt ◽

...

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Brain Injury ◽

Acquired Brain Injury ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Cord Injury ◽

And Coping ◽

The Relationship

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Early predictors of developing problematic spasticity following traumatic spinal cord injury: A prospective cohort study

Journal of Spinal Cord Medicine ◽

10.1080/10790268.2018.1527082 ◽

2018 ◽

Vol 43 (3) ◽

pp. 315-330 ◽

Cited By ~ 3

Author(s):

Patricia B. Mills ◽

Kaila A. Holtz ◽

Elena Szefer ◽

Vanessa K. Noonan ◽

Brian K. Kwon

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Cohort Study ◽

Prospective Cohort Study ◽

Prospective Cohort ◽

Traumatic Spinal Cord Injury ◽

Early Predictors ◽

Cord Injury

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Prediction of Psychological Distress Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others

Archives of Physical Medicine and Rehabilitation ◽

10.1016/j.apmr.2020.05.023 ◽

2020 ◽

Vol 101 (12) ◽

pp. 2093-2102

Author(s):

Eline W.M. Scholten ◽

Marjolijn Ketelaar ◽

Johanna M.A. Visser-Meily ◽

Ellen H. Roels ◽

Mirjam Kouwenhoven ◽

...

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Psychological Distress ◽

Brain Injury ◽

Acquired Brain Injury ◽

Significant Others ◽

Cord Injury

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A therapeutic songwriting intervention to promote reconstruction of self-concept and enhance well-being following brain or spinal cord injury: pilot randomized controlled trial

Clinical Rehabilitation ◽

10.1177/0269215519831417 ◽

2019 ◽

Vol 33 (6) ◽

pp. 1045-1055 ◽

Cited By ~ 2

Author(s):

Felicity A Baker ◽

Jeanette Tamplin ◽

Nikki Rickard ◽

Jennie Ponsford ◽

Peter W New ◽

...

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Brain Injury ◽

Controlled Trial ◽

Intervention Group ◽

Acquired Brain Injury ◽

Well Being ◽

Community Dwelling ◽

Retention Rates ◽

Cord Injury

Objective: To determine the size of the effects and feasibility (recruitment and retention rates) of a therapeutic songwriting protocol for in-patients and community-dwelling people with acquired brain injury or spinal cord injury. Design: Randomized controlled trial with songwriting intervention and care-as-usual control groups, in a mixed measures design assessed at three time points. Participants: A total of 47 participants (3 in-patients with acquired brain injury, 20 community participants with acquired brain injury, 12 in-patients with spinal cord injury, and 12 community participants with spinal cord injury: 23 1208 days post injury). Interventions: The intervention group received a 12-session identity-targeted songwriting programme, where participants created three songs reflecting on perceptions of past, present, and future self. Control participants received care as usual. Measures: Baseline, postintervention, and follow-up measures comprised the Head Injury Semantic Differential Scale (primary outcome measure), Patient Health Questionnaire-9, Emotion Regulation Questionnaire, and Satisfaction with Life Scale. Results: No significant between group pre–post intervention differences were found on the primary self-concept measure, the Head Injury Semantic Differential Scale ( p = 0.38, d = 0.44). Significant and large effect sizes from baseline to post between groups in favour of the songwriting group for Satisfaction with Life ( p = 0.04, n2 p = 0.14). There were no significant between group pre-post interaction effects for the Emotion Regulation Suppression subscale ( p = 0.12, n2 p = –0.08) although scores decreased in the songwriting group over time while increasing for the standard care group. There were no significant differences in baseline to follow-up between groups in any other outcome measures. Recruitment was challenging due to the small number of people eligible to participate combined with poor uptake by eligible participants, particularly the in-patient group. Retention rates were higher for the community-dwelling cohorts. Conclusion: This study demonstrates the challenges in recruitment and retention of participants invited to participate in a music therapy study. Findings suggest this identity-focused therapeutic songwriting protocols may be more beneficial for people who have transitioned from in-patient to community-contexts given the greater proportion of participants who consent and complete the intervention. Preliminary effects in favour of the intervention group were detected in a range of well-being measures suggesting that a larger study is warranted.

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