Pediatric Palliative Care: A Literature Review of Best Practices in Oncology Nursing Education Programs

2019 ◽  
Vol 23 (6) ◽  
pp. 565-568
Author(s):  
Tabitha Negrete ◽  
Joseph Tariman
2020 ◽  
Vol 6 ◽  
pp. 237796082093729
Author(s):  
Renae S. Authement ◽  
Sharon L. Dormire

Introduction As online nursing education programs continue to increase to meet the demands of the growing market, nursing faculty are challenged to develop and deliver courses based on best practice principles. The Online Nursing Education Best Practices Guide (ONE Guide) builds on and extends the nationally recognized Quality Matters® program and serves as a roadmap guiding course development and delivery. The fundamental principle for success in online teaching is instructor presence; the teacher as a facilitator of learning is illustrated throughout the guide. An Online Instructor Checklist facilitates systematic implementation of best practice principles. Methods This article is based on a focused literature review and concept analysis resulting in a comprehensive guide for delivery of effective, quality nursing education through best practices in the online learning environment. A broad search of databases focused on articles during 2014 to 2019 was completed. The literature review included articles that examined over 1200 student perceptions of instructor presence in the online setting. Conclusion Nurses carry a direct responsibility for the health and well-being of patients. Nursing quality education proves fundamental to the profession’s long-term outcomes. The ONE Guide and Online Instructor Checklist apply comprehensive, evidence-based teaching strategies to give a roadmap for success in the online teaching environment.


2019 ◽  
Vol 18 (4) ◽  
pp. 473-485 ◽  
Author(s):  
Maha Atout

AbstractObjectiveThe importance of palliative care education for nurses has been recognized worldwide. The study aims to explore the experiences of nurses working with children with palliative care needs and to identify any related educational needs.MethodsThe electronic databases of CINAHL, Cochrane, PubMed, OVID, Social Care Online, Web of Science, Scopus, and ProQuest were searched for the period 2000–2015.ResultsFinding revealed that working with children with palliative care needs is an emotionally struggling job for nurses, especially when they try to manage the transition of pediatric patients from curative to palliative care. Staffing level and time constraints comprise a major obstacle in pediatric palliative care. Focusing on invasive treatment and technology in spite of the feelings that it will not improve patients' health status intensifies the feeling of guilt and helplessness for nurses. Finally, nurses asserted the importance of receiving pediatric palliative care education, especially how to communicate with children with palliative care needs and their families.Significance of resultsFurther research is recommended with regard to nurses' experience in communication with children with palliative care needs. Nursing education in pediatric palliative care is significantly important, especially how to communicate with children with palliative care needs and their families.


2017 ◽  
Vol 15 (4) ◽  
pp. 474-489 ◽  
Author(s):  
Eva De Clercq ◽  
Michael Rost ◽  
Nadia Pacurari ◽  
Bernice S. Elger ◽  
Tenzin Wangmo

ABSTRACTObjective:Palliative care for children is becoming an important subspecialty of healthcare. Although concurrent administration of curative and palliative care is recommended, timely referral to pediatric palliative care (PPC) services remains problematic. This literature review aims to identify barriers and recommendations for proper implementation of palliative care for children through the looking glass of PPC guidelines.Method:To identify studies on PPC guidelines, five databases were searched systematically between 1960 and 2015: Scopus, PubMed, PsycINFO, the Web of Science, and CINAHL. No restrictions were placed on the type of methodology employed in the studies.Results:Concerning barriers, most of the papers focused on gaps within medical practice and the lack of evidence-based research. Common recommendations therefore included: training and education of healthcare staff, formation of a multidisciplinary PPC team, research on the benefits of PPC, and raising awareness about PPC. A small number of publications reported on the absence of clear guidance in PPC documents regarding bereavement care, as well as on the difficulties and challenges involved in multidisciplinary care teams.Significance of results:Our results indicate that a critical assessment of both the research guidelines and medical practice is required in order to promote timely implementation of PPC for pediatric patients.


2010 ◽  
Vol 39 (2) ◽  
pp. 411 ◽  
Author(s):  
Hollye Harrington Jacobs ◽  
Betty Ferrell ◽  
Lizabeth Sumner ◽  
Pam Malloy

Author(s):  
Gusgus Ghraha Ramdhanie

<span class="fontstyle0">Kematian anak akibat penyakit terkait HIV/AIDS sebagai korban transmisi vertikal atau disebut<br /></span><span class="fontstyle0">Mother To Child Transmission </span><span class="fontstyle0">(MTCT) mencapai 110.000 setiap tahun. Dalam hitungan rinci terjadi<br />sekitar 400 anak terinfeksi HIV dan sekitar 290 kematian karena AIDS terjadi setiap harinya. Sebagai<br />korban transmisi infeksi vertikal, banyak anak yang kurang mendapat dukungan dari keluarga. Orang<br />tua dengan HIV/AIDS selain mempunyai masalah kesehatannya sendiri, juga dapat menjadikan anak<br />seorang “yatim piatu” sehingga anak tidak mendapatkan asuhan orang tua. Perlu kajian manajemen<br />pengelolaan asuhan, salah satunya adalah dengan penerapan perawatan paliatif pada anak. Tujuan dari<br />penulisan </span><span class="fontstyle0">literature review </span><span class="fontstyle0">ini yaitu untuk mengetahui perawatan paliatif pada anak dengan<br />HIV/AIDS sebagai korban infeksi vertikal berdasarkan pada sumber literatur jurnal penelitian ilmiah<br />terkait.<br />Metode yang digunakan dalam penulisan </span><span class="fontstyle0">literature review </span><span class="fontstyle0">ini adalah penelusuran internet dari<br />database </span><span class="fontstyle0">Google Scholar, PubMed, Proquest, Medscape</span><span class="fontstyle0">, dan EBSCO dengan menggunakan kata kunci<br /></span><span class="fontstyle0">pediatric palliative care</span><span class="fontstyle0">, </span><span class="fontstyle0">palliative care</span><span class="fontstyle0">, dan </span><span class="fontstyle0">pediatric </span><span class="fontstyle0">HIV/AIDS. Perawatan paliatif pada anak adalah<br />model terintegrasi dimana komponen layanan paliatif dilakukan setelah pasien mulai terdianosis.<br />Sebagian besar pasien anak dengan HIV/AIDS ditemukan dalam stadium klinis berat pada usia yang<br />sangat dini. Manajemen terapi farmakologis, non-farmakologis dan dukungan psikososial serta<br />spiritual diberikan dalam perawatan. Selain itu, manajemen tanda gejala dalam perawatan paliatif harus<br />dilakukan dengan tepat. Perawatan paliatif merupakan pelayanan tenaga profesional dengan<br />mengimplementasikan </span><span class="fontstyle0">interprofesional collaborative practice </span><span class="fontstyle0">yang dapat diintegrasikan dengan<br />pelayanan berbasis rumah. Perawatan paliatif pada anak dengan HIV/AIDS dapat meningkatkan<br />kualitas hidup anak.</span> <br /><br />


2012 ◽  
Vol 30 (15_suppl) ◽  
pp. e19515-e19515
Author(s):  
Lisa Kennedy Sheldon ◽  
Julie R. Carlson ◽  
Jose Angel Sanchez

e19515 Background: Developing countries face a heavy cancer burden. Nurses in oncology care are challenged by lack of resources and training to care for these patients. Volunteer nurses from other nations have been used as clinician/educators on service trips organized by ASCO’s International Cancer Corps and Health Volunteers Overseas. In 2011, a team of four oncology providers, two gynecologic oncologists and two oncology nurses, traveled to Tegucigalpa, Honduras, to improve cancer care through education/training and professional development. Methods: The team explored cancer care and oncology nursing in outpatient and inpatient settings, provided training to residents and medical students, and presented the first ever cancer nursing conference in this country. The two-day conference, with over 100 participants from different cities and insitutions, included cancer registry data, treatments such as chemotherapy, radiotherapy and surgery, symptom management, palliative care and psychosocial concerns. It concluded with a roundtable discussion for future directions. A survey was piloted with conference participants to assess needs for continuing education and professional development. Data were collected from 61 nurses (age, gender, education/training, years in oncology, work settings, access to educational resources, and educational needs). Results: The majority of the nurses (59.7%) learned about cancer care during patient care with <4% having formal training/coursework. The most common cancers were leukemias, breast, cervical, and stomach. The nurses wanted more education about chemotherapy (medications, administration, management of side effects), pain management, palliative care and emotional support. Conclusions: Volunteer oncology providers can improve cancer care in developing countries. Meeting the educational needs requires site-specific exploration of training and resources, and the goals of providers, hospitals, and healthcare organizations in the host country. The survey could be replicated prior to travel to assess the needs of oncology nurses in other developing countries and plan appropriate training programs.


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