Conservative bladder management in advanced multiple sclerosis

Anticholinergics and intermittent catheterization are the cornerstones of bladder management in early multiple sclerosis (MS). In advanced MS however, bladder management is based more on tradition than on evidence. Nurses seem to deal with catheter problems and chronic incontinence. Despite the abundant use of indwelling catheters, there is a lack for guidelines on catheter-induced problems. The psychosexual and social impact of bladder problems in advanced MS is often neglected. The international multidisciplinary special interest group on sexual, urological and bowel dysfunction in MS (SUBDIMS) as a special interest group of the Rehabilitation in Multiple Sclerosis (RIMS) was confronted with a high variability in practice and a lack of guidelines. A literature review was prepared during three multidisciplinary expert meetings. This review will be the basis of further initiatives to improve the urological treatment of patients with advanced MS.

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A Systematic Literature Review of Psychosocial and Behavioral Factors Associated with Initial Medication Adherence: A Report of the ISPOR Medication Adherence & Persistence Special Interest Group

Value in Health ◽

10.1016/j.jval.2013.04.014 ◽

2013 ◽

Vol 16 (5) ◽

pp. 891-900 ◽

Cited By ~ 44

Author(s):

John E. Zeber ◽

Elizabeth Manias ◽

Allison F. Williams ◽

David Hutchins ◽

Waka A. Udezi ◽

...

Keyword(s):

Medication Adherence ◽

Literature Review ◽

Interest Group ◽

Systematic Literature Review ◽

Special Interest ◽

Special Interest Group ◽

Behavioral Factors ◽

Factors Associated ◽

Initial Medication

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Evidence for Updating the Core Domain Set of Outcome Measures for Juvenile Idiopathic Arthritis: Report from a Special Interest Group at OMERACT 2016

The Journal of Rheumatology ◽

10.3899/jrheum.161389 ◽

2017 ◽

Vol 44 (12) ◽

pp. 1884-1888 ◽

Cited By ~ 3

Author(s):

Esi M. Morgan ◽

Meredith P. Riebschleger ◽

Jennifer Horonjeff ◽

Alessandro Consolaro ◽

Jane E. Munro ◽

...

Keyword(s):

Juvenile Idiopathic Arthritis ◽

Literature Review ◽

Outcome Measures ◽

Interest Group ◽

Special Interest ◽

Working Group ◽

Qualitative Studies ◽

Special Interest Group ◽

The Core ◽

Core Set

Objective.The current Juvenile Idiopathic Arthritis (JIA) Core Set was developed in 1997 to identify the outcome measures to be used in JIA clinical trials using statistical and consensus-based techniques, but without patient involvement. The importance of patient/parent input into the research process has increasingly been recognized over the years. An Outcome Measures in Rheumatology (OMERACT) JIA Core Set Working Group was formed to determine whether the outcome domains of the current core set are relevant to those involved or whether the core set domains should be revised.Methods.Twenty-four people from the United States, Canada, Australia, and Europe, including patient partners, formed the working group. Guided by the OMERACT Filter 2.0 process, we performed (1) a systematic literature review of outcome domains, (2) a Web-based survey (142 patients, 343 parents), (3) an idea-generation study (120 parents), (4) 4 online discussion boards (24 patients, 20 parents), and (5) a Special Interest Group (SIG) activity at the OMERACT 13 (2016) meeting.Results.A MEDLINE search of outcome domains used in studies of JIA yielded 5956 citations, of which 729 citations underwent full-text review, and identified additional domains to those included in the current JIA Core Set. Qualitative studies on the effect of JIA identified multiple additional domains, including pain and participation. Twenty-one participants in the SIG achieved consensus on the need to revise the entire JIA Core Set.Conclusion.The results of qualitative studies and literature review support the need to expand the JIA Core Set, considering, among other things, additional patient/parent-centered outcomes, clinical data, and imaging data.

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Stiffness Is the Cardinal Symptom of Inflammatory Musculoskeletal Diseases, Yet Still Variably Measured: Report from the OMERACT 2016 Stiffness Special Interest Group

The Journal of Rheumatology ◽

10.3899/jrheum.161073 ◽

2016 ◽

Vol 44 (12) ◽

pp. 1904-1910 ◽

Cited By ~ 7

Author(s):

Serena Halls ◽

Premarani Sinnathurai ◽

Sarah Hewlett ◽

Sarah L. Mackie ◽

Lyn March ◽

...

Keyword(s):

Literature Review ◽

Conceptual Model ◽

Interest Group ◽

Special Interest ◽

Musculoskeletal Diseases ◽

Model Development ◽

Early Morning ◽

Special Interest Group ◽

Patient Reported ◽

Cardinal Symptom

Objective.The objectives of the Outcome Measures in Rheumatology (OMERACT) Stiffness special interest group (SIG) are to characterize stiffness as an outcome in rheumatic disease and to identify and validate a stiffness patient-reported outcome (PRO) in rheumatology.Methods.At OMERACT 2016, international groups presented and discussed results of several concurrent research projects on stiffness: a literature review of rheumatoid arthritis (RA) stiffness PRO measures, a qualitative investigation into the RA and polymyalgia rheumatica patient perspective of stiffness, data-driven stiffness conceptual model development, development and testing of an RA stiffness PRO measure, and a quantitative work testing stiffness items in patients with RA and psoriatic arthritis.Results.The literature review identified 52 individual stiffness PRO measures assessing morning or early morning stiffness severity/intensity or duration. Items were heterogeneous, had little or inconsistent psychometric property evidence, and did not appear to have been developed according to the PRO development guidelines. A poor match between current stiffness PRO and the conceptual model identifying the RA patient experience of stiffness was identified, highlighting a major flaw in PRO selection according to the OMERACT filter 2.0.Conclusion.Discussions within the Stiffness SIG highlighted the importance of further research on stiffness and defined a research agenda.

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