scholarly journals Financial Resources Digital Navigation Tool for Metastatic Breast Cancer Patients

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 172s-172s
Author(s):  
C. Ammendolea ◽  
J. Gordon ◽  
W. Hall ◽  
R. Armstrong ◽  
N. Chari ◽  
...  

Background and context: Although Canadians enjoy a universal health care system, there continues to be costs to patients that are not covered by the system. The economic impact of breast cancer is huge and, in many cases, devastating for patients and their families. As a result there is a need for educational and navigational resources that assist patients with the financial burden of facing a metastatic breast cancer diagnosis. Aim: The aim of this project is to develop an online navigation tool that will assist Canadians living with metastatic breast cancer source financial supports and resources to help lessen the financial impact of their diagnosis. Strategy/Tactics: An advisory board of people living with metastatic breast cancer was convened to help guide this project and provide input on the lived experience and financially challenges of Canadians living with this stage of the disease. The input from the advisory board along with the responses from a survey of over 150 Canadian metastatic breast cancer patients informed the type of information that should be included in the resource. Through an environmental scan and research of various financial supports, a comprehensive list of financial resources available locally, regionally and nationally was compiled. This data were integrated into a database that will be accessed through an intuitive online interface that will be integrated with CBCN´s Web site. The advisory board reviewed the draft content and framework to ensure that identified needs and priorities have been addressed. All content was translated into French as this tool will be offered in both French and English. The anticipated launch of this resource is November 2018. Outcomes: CBCN anticipates that over 1200 people living with metastatic breast cancer will access this resource in the first year and that over 50 institutions will be informed that this tool is available for their patients. Given that this will be a unique resource, CBCN expects that patients, health care professionals and support workers will access this resource to better support people living with metastatic breast cancer. What was learned: This resource has not launched, but based on CBCN´s research and the feedback of the patient advisory board, it is understood that there is a great need for this financial resources navigation tool.

2020 ◽  
Vol 10 (01) ◽  
pp. 136-140
Author(s):  
Furqan M. Abdulelah ◽  
Hassanien S. Taghi ◽  
Hayder R. Abdulbaqi ◽  
Mustafa R. Abdulbaqi

Metastatic breast cancer patients may acquire oral morbidity from therapeutic procedures. A common adverse event (AE) of the Mammalian target of rapamycin (mTOR) inhibitor is associated stomatitis (mIAS) secondary to mTOR inhibitor therapy, which have a negative impact on the quality of life, therapy adherence and health care expenses. A multidisciplinary team strategy is essential for reducing mIAS and capitalize on therapy advantages for breast cancer patients. We discuss the pathophysiology, diagnosis, and natural history of mIAS in this review. In the context of promoting a coordinated team care approach to optimizing patient care, current and new management policies are outlined for the prevention and treatment of mIAS. Types of Studies Reviewed: We piloted different research from 2007 through 2019 using the terms “stomatitis,” “mIAS,” “mTOR,” “everolimus,” “oral care.” and “metastatic breast cancer,” We have chosen papers from peer-reviewed journals reporting controlled trials and evidence-based guidance. Results: Cytototoxic chemical or radiation therapy causes, clinical presentation, and paradigms of therapy can distinguish mIAS from mucositis. The continuum of patient oral health care may include specific preventive and therapeutic leadership approaches. Practical consequences: Oral health providers are at the forefront of oral health care for patients who have metastatic breast cancer and are uniquely positioned to deliver patient education, to advocate precise reporting of mIAS, and to encourage early identification, monitoring and rapid intervention to reduce the serious and time-limiting dose of this manageable AE.


2003 ◽  
Vol 11 (3) ◽  
pp. 226-226
Author(s):  
Jasmina Mitrovic ◽  
Branka Popovic ◽  
Dusanka Jelecanin

Background: New chemotherapy combinations are extensively investigated in metastatic breast cancer, especially in anthracycline resistant patients. However, the higher the treatment efficacy, usually the greater therapy side effects are reported. We present our health care experience in treating advanced breast cancer patients with three-drug combinations consisting of Taxotere, Mitomycin C and Vinblastin. Aim of the work was to evaluate the toxicity profile and the effectiveness of health care measures in prevention of chemotherapy side effects. Nurses interventions in prevention of complications due to therapy related toxicity were as follows: Regular check-ups of patients, monitoring for signs and symptoms of infection in severely neutropenic patients, monitoring for hemorrhagic syndrome in patients with severe thrombocytopenia, monitoring for the signs and symptoms of stomatitis and aseptic care of oral cavity in order to prevent oral mucosal damage. Methodology: From December 1998 to April 2000, 27 patients were included into the phase II study of metastatic breast cancer patients. The following therapy regime was used: Taxotere 80 mg/m 2 every 3 weeks Vinblastin 6mg/m 2 every 3 weeks, and Mitomycin C 12 mg/m 2 in 6-week intervals. Presented data are obtained from interviews, analysis of health care lists and patients' diaries, which they filled in at home. Results During the study, a total of 133 chemotherapy cycles were applied. Neutropenia of grade 3-4 was registered in 25/27 patients (93%), and only 12 patients (48%) had at least one episode of febrile neutropenia, which was manageable. Other toxicities were as follows: Thrombocytopenia of grade 3 in 1 out of 27 patients, without development of hemorrhagic syndrome, anemia of grade 3 in 3 women, neurosensory toxicity in 4 patients, and liquid retention in 6 patients. However, mucositis of grade 4 occurred in 1 patients, and grade 3 in 2 of them despite the rigorous health care interventions. Fatigue of grade 2 developed in 7 patients. Other toxicities were mild or moderate, the most frequent of which was diarrhea in 3 women. Conclusion: Our results confirm that a TXTR-MTC-VLB combination has considerable acute and cumulative side effects that are expected. However regular monitoring and in time nursing interventions may spare patients from suffering the severe complications due to chemotherapy side effects.


2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 8s-8s
Author(s):  
C. Asoogo ◽  
M. Hoyte-Williams ◽  
B. Dwobeng ◽  
D. Sam ◽  
E. Amankwa-Frimpong

Background: Breast cancer is a leading cause of death among women in Ghana. About 50% of cases seen at the oncology directorate are breast cancer-related, and 85% of these cases present in advanced stage with very poor prognosis and high mortality. Objectives: To explore and describe the experiences of patients diagnosed and living with metastatic breast cancer. Methods: A cross sectional descriptive study design was used to involved breast cancer patients at Komfo Anokye Teaching Hospital who comes from various social and ethnic groups as well as geographically distinct areas from the vast territory of the Ashanti region and the Northern part of Ghana. Convenient sampling was used to select 120 participants for the study using semistructured questionnaire. Data of their social and demographic background and experiences living with metastatic breast cancer were obtained after seeking informed consent. Results: The study revealed that 12% of participants diagnosed and living with metastatic breast cancer experience loneliness and devastated, 22% experience fear and anxiety, while 35% experience stigma from both family and the society. Moreover, feeling of anger and hopelessness also account for 15%, 11% experience financial changes, while 5% of participants experience both physical and emotional pain with their diagnosis and treatment. Recommendations were made for policy makers, health care professionals, and other researchers. These include the need for intensified metastatic breast cancer awareness campaigns, educating health care providers on the need for professional counseling on metastatic breast cancer and the need to organized support groups, so that patients could contact each other. Emphasis should be placed on training of nurses to deal with issues relating to metastatic breast cancer. Conclusion: Generally, fear and anxiety, stigma, feeling of loneliness, devastated, anger and hopelessness, emotional and physical pain and financial changes are the variables that explain the experiences of women diagnosed and living with metastatic breast cancer. Some support groups has shown an improvement, therefore efforts to raise public awareness of metastatic breast cancer should be continued. The current study became imperative to fill this identified gap and improve health interventions and health outcomes for metastatic breast cancer patients in future.


2018 ◽  
Vol 36 (30_suppl) ◽  
pp. 32-32 ◽  
Author(s):  
Stephanie B. Wheeler ◽  
Jennifer Spencer ◽  
Michelle L. Manning ◽  
Cleo A. Samuel ◽  
Katherine Elizabeth Reeder-Hayes ◽  
...  

32 Background: Recent data suggest that the adverse financial impact of cancer is an underappreciated source of potential harm to patients, also known as “financial toxicity”. Little is known about the financial impact of cancer in patients with widespread, incurable disease, despite the relatively high cost of their care. We conducted a national survey of patients with metastatic breast cancer to address this gap. Methods: We partnered with the Metastatic Breast Cancer Network to field an online survey of metastatic breast cancer patients over a fourteen-day period using Qualtrics. The survey required approximately 20 minutes to complete, and participants were offered a $10 Amazon gift card. Survey items included sociodemographic information, health insurance status, cost-related communication with providers, post-treatment financial burden, financial coping strategies, and emotional well-being. We report financial outcomes stratified by health insurance status, as insurance is an important protective mechanism against health-related financial shocks. Results: 1,513 participants responded from 41 states. More than a third of these women (35%) were uninsured. Uninsured individuals more often reported refusing or delaying treatment due to cost (98% vs. 41% of insured, p < .001) and were also more likely to report skipping non-medical bills (40% vs. 16%, p < .001), stopping work after diagnosis (65% vs. 46%, p < .001), or being contacted by a collections agency (77% vs. 36%, p < .001). Despite this, insured participants reported higher cost-related emotional distress, including being “quite a bit” or “very” stressed about not knowing cancer costs (53% vs. 32%, p < .001) and about financial stress on their family due to their cancer (52% vs. 27%, p < .001). Conclusions: Metastatic breast cancer patients reported an unprecedented level of cancer-related financial harm and significant worry about the financial legacy left behind in the wake of their illness. Health insurance expansion is a necessary, but insufficient strategy to address this financial burden; additional interventions to prevent and mitigate cancer-related financial harm are urgently needed.


The Breast ◽  
2019 ◽  
Vol 48 ◽  
pp. S37-S38
Author(s):  
Mary-Gloria Anulika Orji ◽  
Runcie C.W. Chidebe ◽  
Khadijat Banwo-Fatai ◽  
Tochukwu C. Orjiakor

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