scholarly journals Affected Illness Perceptions and the Association with Impaired Quality of Life in Patients with Long-Term Remission of Acromegaly

2011 ◽  
Vol 96 (11) ◽  
pp. 3550-3558 ◽  
Author(s):  
Jitske Tiemensma ◽  
Adrian A. Kaptein ◽  
Alberto M. Pereira ◽  
Johannes W. A. Smit ◽  
Johannes A. Romijn ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Illness Perceptions ◽  
Impaired Quality

Impaired quality of life in patients with treated acromegaly despite long-term biochemically stable disease: Results from a 5-years prospective study

2017 ◽  
Vol 86 (6) ◽  
pp. 806-815 ◽  
Author(s):  
Nikolaos Kyriakakis ◽  
Julie Lynch ◽  
Stephen G. Gilbey ◽  
Susan M. Webb ◽  
Robert D. Murray
Keyword(s):  
Quality Of Life ◽  
Prospective Study ◽  
Stable Disease ◽  
Impaired Quality

scholarly journals “You’re only a carrier” – women and the language of haemophilia

2021 ◽  
Vol 8 (1) ◽  
pp. 128-132
Author(s):  
Steve Chaplin ◽  
Kate Khair
Keyword(s):  
Quality Of Life ◽  
Factor Viii ◽  
Strong Evidence ◽  
18Th Century ◽  
Joint Damage ◽  
Gene Variant ◽  
Factor Viii Activity ◽  
Impaired Quality

Abstract Women who have the gene variant for haemophilia are labelled solely as ‘carriers’ unless they have a factor VIII activity of ≤40%. This term, which describes an individual who can pass on a disorder but are themselves unaffected, reflects a legacy that extends from the 18th century to the present day. There is strong evidence that women labelled as carriers experience heavy periods, joint damage, pain and impaired quality of life. The label ‘carrier’ does not recognise this burden and is associated with guilt, stigma and difficulty accessing care. People living with a long-term disorder should now be described using person-first terminology and it is common to see the term ‘people with haemophilia’. The term ‘carrier’ should be limited to its application in genetics and not used as a catch-all label for women with haemophilia.

scholarly journals Problems of Diagnosis, Conservative Treatment and Long-Term Results of “Mallet Finger” Fracture

2021 ◽  
pp. 42-50
Author(s):  
A.A. Bezuhlyi ◽  
A.S. Lysak
Keyword(s):  
Quality Of Life ◽  
Upper Extremity ◽  
Distal Phalanx ◽  
Diagnosis And Treatment ◽  
Long Term Results ◽  
Mallet Finger ◽  
Dorsal Edge ◽  
Impaired Quality

Summary. Distal phalanx dorsal edge fracture is treated in a relatively simple closed manner during the first weeks after injury. The role of the distal interphalangeal joint in the upper extremity integral function reaches conventionally only a few percent. This may lead to insufficient attention and a large number of mistakes in diagnosis and treatment of such injuries, which in turn provokes complications that are much more difficult to treat than the primary injury. This article considers the most common problems of diagnosis and treatment of “mallet finger” fractures. Advantages and disadvantages of various techniques used in the treatment of such fractures in acute and neglected cases are considered and analyzed. Objective: to study the effect of distal phalanx dorsal edge avulsive fractures on function of the upper limb, quality of life, and depression rate in long term period after injury. Materials and Methods. Data from 11 patients (8 (88%) males and 3 (12%) females) with neglected cases of distal phalanx dorsal edge avulsive fractures were studied. QuickDASH questionnaire and visual analog scales were used to study impaired quality of life and depression rate in such patients. Indicators that lead to the need for surgery in long term period after injury have been identified. Results. It was determined that in long term period, in patients with a “mallet finger” fracture, function of the upper extremity suffered significantly and was 29.2±20.2 points (range 2.3-75) according to QuickDASH scale. This condition also significantly affected the general well-being of the patient. Average value of impaired quality of life was 43.6±24.6 (range 0-90 points), and depression rate due to upper extremity dysfunction was 44.6±22.7 (range 0-90 points). Conclusions. Despite the relatively minor injury, high rates of dysfunction, impact on quality of life and depression rate indicate the need to restore finger function even in long term period after injury.

scholarly journals Long-Term Impaired Quality of Life in Cushing’s Syndrome despite Initial Improvement after Surgical Remission

2006 ◽  
Vol 91 (2) ◽  
pp. 447-453 ◽  
Author(s):  
John R. Lindsay ◽  
Tonya Nansel ◽  
Smita Baid ◽  
Julie Gumowski ◽  
Lynnette K. Nieman
Keyword(s):  
Quality Of Life ◽  
Cushing’S Syndrome ◽  
Cushing's Syndrome ◽  
Initial Improvement ◽  
Impaired Quality

scholarly journals Negative illness perceptions are associated with impaired quality of life in patients after long-term remission of Cushing's syndrome

2011 ◽  
Vol 165 (4) ◽  
pp. 527-535 ◽  
Author(s):  
Jitske Tiemensma ◽  
Adrian A Kaptein ◽  
Alberto M Pereira ◽  
Johannes W A Smit ◽  
Johannes A Romijn ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Vestibular Schwannoma ◽  
Cushing’S Syndrome ◽  
Intervention Program ◽  
Illness Perceptions ◽  
Illness Perception ◽  
Cushing's Syndrome ◽  
Chronic Obstructive

ObjectiveIllness perceptions pertain to the pattern of beliefs patients develop about their illness. Illness perceptions are determinants of quality of life (QoL). Factors contributing to persisting impaired QoL after Cushing's syndrome (CS) remain largely unknown. Therefore, the objective of this study was to explore illness perceptions, as potentially modifiable psychological factors, in relation to QoL in patients with long-term remission of CS.DesignCross-sectional study.MethodsWe included patients with long-term remission of CS (n=52). Illness perceptions were evaluated using the Illness Perception Questionnaire (IPQ)-Revised, and QoL was measured using the physical symptom checklist, EuroQoL-5D (EQ-5D), and the CushingQoL. Reference data were derived from recent studies and included patients with vestibular schwannoma (n=80), acute (n=35) or chronic (n=63) pain, and chronic obstructive pulmonary disease (COPD; n=171).ResultsIllness perceptions showed a strong correlation with QoL. Patients with CS scored distinctively more negative on the IPQ compared with patients with vestibular schwannoma and patients with acute pain, and also reported more illness-related complaints (all P<0.01). There were also some differences in illness perceptions between patients with CS and patients with chronic pain and patients with COPD, but there was no distinct pattern.ConclusionsPatients after long-term remission of CS report more negative illness perceptions compared with patients with other acute or chronic conditions. Further research is needed to assess whether QoL in CS can be improved by addressing these illness perceptions, for example, by a self-management intervention program.

Impaired quality of life in patients with acromegaly despite long-term disease control: results from a longitudinal study

2015 ◽  
Author(s):  
Nikolaos Kyriakakis ◽  
Julie Lynch ◽  
John O'Dwyer ◽  
Stephen G Gilbey ◽  
Robert D Murray
Keyword(s):  
Quality Of Life ◽  
Longitudinal Study ◽  
Disease Control ◽  
Impaired Quality

scholarly journals Bariatric Surgery: Preoperative Assessment

2020 ◽  
Author(s):  
Hawa Juma El-Shareif
Keyword(s):  
Quality Of Life ◽  
Bariatric Surgery ◽  
Metabolic Profile ◽  
Preoperative Assessment ◽  
Surgical Mortality ◽  
Surgical Evaluation ◽  
Impaired Quality ◽  
Rule Out

Obesity is associated with increased morbidity and mortality and impaired quality of life. Weight losse is associated with improvement or even cure of cardiovascular risk factors with cardiometabolic benefit. nonsurgical measures for weight loss is rarely successful in the long term. Bariatric surgery has achieved clear success in reversing the abnormal metabolic profile associated with obesity. Pre surgical evaluation is important to rule out any medical or psychological problems that increased the surgical mortality or adversely affect the outcome.

scholarly journals Impaired quality of life in patients in long-term remission of Cushing's syndrome of both adrenal and pituitary origin: a remaining effect of long-standing hypercortisolism?

2012 ◽  
Vol 167 (5) ◽  
pp. 687-695 ◽  
Author(s):  
M A E M Wagenmakers ◽  
R T Netea-Maier ◽  
J B Prins ◽  
T Dekkers ◽  
M den Heijer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Patient Group ◽  
Cushing’S Syndrome ◽  
Negative Influence ◽  
Cushing's Syndrome ◽  
Control Group ◽  
Cross Sectional ◽  
Impaired Quality

Objective The determinants that cause impaired quality of life (QOL) in patients in long-term remission of Cushing's syndrome (CS) are unknown. The aim of this study was to get more insight into the patient and disease characteristics related to impaired QOL in these patients. Design Cross-sectional study. Methods The QOL of 123 patients in remission of CS (age 52.2±12.0 years, 106 women, duration of remission 13.3±10.4 years, 80% pituitary CS), assessed with seven validated questionnaires, was compared with the QOL of an age- and sex-matched control group (n=105). To investigate the influence of the aetiology of CS on QOL, patients in remission of pituitary and adrenal CS were compared. Furthermore, the influence of hormonal deficiencies, treatment strategy, duration of remission, gender and age on QOL was investigated. Results QOL in the total patient group and each patient subgroup was significantly worse on practically all dimensions of questionnaires compared with the control group (P<0.05), except for patients in remission of pituitary CS without hormonal deficiencies who had an impaired QOL on 50% of the QOL dimensions. Subgroup analysis revealed no difference in QOL between different patient groups, especially no difference between patients in remission of adrenal and pituitary CS. Female gender and a shorter duration of remission had a negative influence on QOL in the patient group. Conclusions QOL remains impaired in patients in long-term remission of CS regardless of aetiology, presence of hormonal deficiencies and treatment strategies. More research is needed to establish the causes.

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