scholarly journals Usual care for mental health problems in children with epilepsy: A cohort study

F1000Research ◽  
2020 ◽  
Vol 7 ◽  
pp. 1907
Author(s):  
Alice Welch ◽  
Roz Shafran ◽  
Isobel Heyman ◽  
Anna Coughtrey ◽  
Sophie Bennett

Background: Epilepsy is one of the most common chronic paediatric conditions. Children and young people with epilepsy are at a significantly higher risk of developing mental health problems relative to the general population, yet the majority of these problems are unrecognised and under-treated in clinical practice. Although there is little epilepsy-specific guidance as to what interventions to use, researchers suggest there is no reason why clinicians should not be using the evidence base. Given the poor prognosis of untreated mental health difficulties, this cohort study sought to identify what psychological treatment young people with epilepsy with mental health needs receive in routine practice. Methods: Participants were children and young people aged 3 to 18 attending paediatric neurology clinics. The parents of those children who met threshold for impairing symptoms on the Strengths and Difficulties questionnaire were asked to complete the Development and Well-being Assessment (DAWBA), an online clinical assessment designed to generate psychiatric diagnoses. Participants who met clinical threshold for a disorder according to the DAWBA were provided with a bespoke measure asking questions regarding their experience with treatment for mental health support. Results: 16 of the 46 parents who completed the DAWBA reported that they had experienced previous or current support for their child’s mental health difficulties. The mental health support offered to families was highly variable, inadequate and often not clearly compliant with existing UK National Institute for Health and Clinical Excellence (NICE) guidelines for mental health treatment in children and young people. Conclusions: The present study demonstrates the inconsistency and inadequacy of mental health provision for children and young people with epilepsy. Future work should explore reasons for the treatments offered failing to adhere to existing guidance for mental health difficulties in children, as well as possible solutions to this.

F1000Research ◽  
2018 ◽  
Vol 7 ◽  
pp. 1907 ◽  
Author(s):  
Alice Welch ◽  
Roz Shafran ◽  
Isobel Heyman ◽  
Anna Coughtrey ◽  
Sophie Bennett

Background: Epilepsy is one of the most common chronic paediatric conditions. Children and young people with epilepsy are at a significantly higher risk of developing mental health problems relative to the general population, yet the majority of these problems are unrecognised and under-treated in clinical practice. Although there is little epilepsy-specific guidance as to what interventions to use, researchers suggest there is no reason why clinicians should not be using the evidence base. Given the poor prognosis of untreated mental health difficulties, this cohort study sought to identify what psychological treatment young people with epilepsy with mental health needs receive in routine practice. Methods: Participants were children and young people aged 3 to 18 attending paediatric neurology clinics. The parents of those children who met threshold for impairing symptoms on the Strengths and Difficulties questionnaire were asked to complete the Development and Well-being Assessment (DAWBA), an online clinical assessment designed to generate psychiatric diagnoses. Participants who met clinical threshold for a disorder according to the DAWBA were provided with a bespoke measure asking questions regarding their experience with treatment for mental health support. Results: 16 of the 46 parents who completed the DAWBA reported that they had experienced previous or current support for their child’s mental health difficulties. The mental health support offered to families was highly variable, inadequate and often not clearly compliant with existing UK National Institute for Health and Clinical Excellence (NICE) guidelines for mental health treatment in children and young people. Conclusions: The present study demonstrates the inconsistency and inadequacy of mental health provision for children and young people with epilepsy. Future work should explore reasons for the treatments offered failing to adhere to existing guidance for mental health difficulties in children, as well as possible solutions to this.


2021 ◽  
Vol 28 (1) ◽  
pp. 181-203
Author(s):  
Ana Petak ◽  
Sanja Narić ◽  
Roberta Matković

ATTITUDES TOWARD PEOPLE WITH MENTAL HEALTH DIFFICULTIES The implementation of modern approaches that seek to deinstitutionalize traditional psychiatric services is hampered by unfavorable attitudes of the community towards people with mental disabilities. Stigma is one of the most important factors that delay seeking help and negatively affects the quality of life of people with mental health problems. The research was conducted to describe attitudes towards people with mental health problems and determine their relationship with socio-demographic variables, information, and personal experience with mental health problems. There were 108 participants aged 21 to 59 (71% female, 64.5% college and university degrees). The Community Attitudes toward Mental Illness scale (CAMI) (Taylor & Dear, 1981) and a survey questionnaire were used online. Participants have generally benevolent attitudes toward all dimensions of the scale. Higher self-assessment of knowledge about mental health problems leads to more favorable attitudes towards authoritarianism, and younger age to less social restraint. Participants with a high school diploma have more negative attitudes towards the dimensions of authoritarianism and benevolence than participants with a university degree. There are no significant differences in attitudes regarding the experience of seeking mental health support, but on the authoritarian dimension, there is a significant interaction effect of being informed and mental health support seeking. The results indicate the importance of further research into the relationship between attitudes and mental health support seeking and the level of being informed on mental health issues. Key words: mental health; mental health difficulties; attitudes; stigmatization


Author(s):  
Miranda Wolpert

This chapter aims to guide the thinking of practitioners who might be involved in developing services to meet the needs of children and young people with mental health difficulties. Anyone involved in this challenging but vital endeavour will need to address the following questions: ♦ Who should the service be for? ♦ What sort of interventions should be provided? ♦ How should the service be structured? ♦ Who should the staff be? ♦ How can the service be made most accessible? ♦ How can service quality be ensured? This chapter will look at each of these issues in turn to explore how each might best be approached.


BMJ Open ◽  
2021 ◽  
Vol 11 (9) ◽  
pp. e045923
Author(s):  
Vanessa Place ◽  
Benjamin Nabb ◽  
Ester Gubi ◽  
Karima Assel ◽  
Johan Åhlén ◽  
...  

ObjectivesTo develop conceptual understanding of perceived barriers to seeking care for migrant children and young people (aged 0–25 years) with mental health problems and/or neurodevelopmental differences in high-income countries.DesignQualitative evidence synthesis using meta-ethnography methodology. We searched four electronic databases (Medline, PsycINFO, Global Health and Web of Science) from inception to July 2019 for qualitative studies exploring barriers to care (as perceived by migrant communities and service providers) for migrant children and young people in high-income countries with neurodevelopmental differences and/or mental health problems. The quality of included studies was explored systematically using a quality assessment tool.ResultsWe screened 753 unique citations and 101 full texts, and 30 studies met our inclusion criteria. We developed 16 themes representing perceived barriers to care on the supply and demand side of the care-seeking process. Barriers included: stigma; fear and mistrust of services; lack of information on mental health and service providers lacking cultural responsiveness. Themes were incorporated into Levesque et al’s conceptual framework of patient-centred access to healthcare, creating a version of the framework specific to migrant children and young people’s mental health and neurodevelopmental differences.ConclusionsThis is the first qualitative evidence synthesis on barriers to care for mental health problems and/or neurodevelopmental differences in migrant children and young people in high-income countries. We present an adapted conceptual framework that will help professionals and policy-makers to visualise the complex nature of barriers to care, and assist in improving practice and designing interventions to overcome them. Similar barriers were identified across study participants and migrant populations. While many barriers were also similar to those for children and young people in general populations, migrant families faced further, specific barriers to care. Interventions targeting multiple barriers may be required to ensure migrant families reach care.


2021 ◽  
Vol 30 (12) ◽  
pp. 760-761
Author(s):  
Alan Glasper

Emeritus Professor Alan Glasper, from the University of Southampton, discusses a new initiative from NHS England/NHS Improvement to improve mental health support for children and young people in schools


2020 ◽  
Vol 3 (1) ◽  
Author(s):  
Aislinn D. Bergin ◽  
Elvira Perez Vallejos ◽  
E. Bethan Davies ◽  
David Daley ◽  
Tamsin Ford ◽  
...  

Abstract Digital health interventions (DHIs) have frequently been highlighted as one way to respond to increasing levels of mental health problems in children and young people. Whilst many are developed to address existing mental health problems, there is also potential for DHIs to address prevention and early intervention. However, there are currently limitations in the design and reporting of the development, evaluation and implementation of preventive DHIs that can limit their adoption into real-world practice. This scoping review aimed to examine existing evidence-based DHI interventions and review how well the research literature described factors that researchers need to include in their study designs and reports to support real-world implementation. A search was conducted for relevant publications published from 2013 onwards. Twenty-one different interventions were identified from 30 publications, which took a universal (n = 12), selective (n = 3) and indicative (n = 15) approach to preventing poor mental health. Most interventions targeted adolescents, with only two studies including children aged ≤10 years. There was limited reporting of user co-design involvement in intervention development. Barriers and facilitators to implementation varied across the delivery settings, and only a minority reported financial costs involved in delivering the intervention. This review found that while there are continued attempts to design and evaluate DHIs for children and young people, there are several points of concern. More research is needed with younger children and those from poorer and underserved backgrounds. Co-design processes with children and young people should be recognised and reported as a necessary component within DHI research as they are an important factor in the design and development of interventions, and underpin successful adoption and implementation. Reporting the type and level of human support provided as part of the intervention is also important in enabling the sustained use and implementation of DHIs.


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