Family Stress and Adjustment as Perceived by Parents of Children with Autism or Down Syndrome: Implications for Intervention

1997 ◽  
Vol 19 (4) ◽  
pp. 15-32 ◽  
Author(s):  
John L. Sanders ◽  
Sam B. Morgan
Author(s):  
Robert M. Hodapp ◽  
Ellen G. Casale

Compared to parents of children with other types of intellectual disabilities, parents of children with Down syndrome experience less stress and more rewards, although this “Down syndrome advantage” mostly occurs compared to parents of children with autism and before groups are equated. Behaviorally, children with Down syndrome display more sociable interactional styles and baby-faced facial features, along with fewer instances of severe behavior problems. Demographically, parents of children with (versus without) Down syndrome average 5 years older when giving birth; parents are more often well educated, married, of higher socioeconomic status, and they likely provide these children greater financial and cultural resources. In most industrialized societies, rates of Down syndrome seem steady, with easily available, noninvasive prenatal testing counteracted by increasing numbers of women giving birth at older ages. Parenting children with Down syndrome relates to characteristics of children, their parents, and society, all of which intersect in important, underexplored ways.


2021 ◽  
Vol 2 (1) ◽  
pp. 29-41
Author(s):  
Mansour Mohammed Ali Bopaeda

Having a baby is a huge responsibility. It often happens that mothers, especially when they are having their first baby, feel stressed and incompetent in their role as mothers even as their children normally grows. The purpose of this article is to identify the general features of psychological stress among mothers of autism spectrum disorder and Down syndrome and to identify the differences and relationship in psychological stress between mothers of autism and down syndrome. In this study participated a group of mothers with children who have autism (n = 44) and mothers of children with Down syndrome (n = 44). The findings made proved that the general features of psychological stress are high Among mothers of autistic children, while it was low among mothers of Down syndrome, there were also statistically significant differences in the level of psychological stress between mothers of autism and Down syndrome, and a correlation was found between mothers of autism and Down syndrome at the level of significance (0.01).


PEDIATRICS ◽  
2009 ◽  
Vol 124 (Supplement 4) ◽  
pp. S443-S449 ◽  
Author(s):  
Robert J. McGrath ◽  
David J. Laflamme ◽  
Amy P. Schwartz ◽  
Michelle Stransky ◽  
John B. Moeschler

2020 ◽  
Vol 32 (2) ◽  
pp. 93
Author(s):  
Aikaterini Katsiana ◽  
Nikolaos Strimpakos ◽  
Ventoulis Ioannis ◽  
Eleni Sofologi ◽  
Eleni Bonti ◽  
...  

Sensors ◽  
2021 ◽  
Vol 21 (24) ◽  
pp. 8414
Author(s):  
João Antonio Campos Panceri ◽  
Éberte Freitas ◽  
Josiany Carlos de Souza ◽  
Sheila da Luz Schreider ◽  
Eliete Caldeira ◽  
...  

This work introduces a new socially assistive robot termed MARIA T21 (meaning “Mobile Autonomous Robot for Interaction with Autistics”, with the addition of the acronym T21, meaning “Trisomy 21”, which is used to designate individuals with Down syndrome). This new robot is used in psychomotor therapies for children with Down syndrome (contributing to improve their proprioception, postural balance, and gait) as well as in psychosocial and cognitive therapies for children with autism spectrum disorder. The robot uses, as a novelty, an embedded mini-video projector able to project Serious Games on the floor or tables to make already-established therapies funnier to these children, thus creating a motivating and facilitating effect for both children and therapists. The Serious Games were developed in Python through the library Pygame, considering theoretical bases of behavioral psychology for these children, which are integrated into the robot through the robot operating system (ROS). Encouraging results from the child–robot interaction are shown, according to outcomes obtained from the application of the Goal Attainment Scale. Regarding the Serious Games, they were considered suitable based on both the “Guidelines for Game Design of Serious Games for Children” and the “Evaluation of the Psychological Bases” used during the games’ development. Thus, this pilot study seeks to demonstrate that the use of a robot as a therapeutic tool together with the concept of Serious Games is an innovative and promising tool to help health professionals in conducting therapies with children with autistic spectrum disorder and Down syndrome. Due to health issues imposed by the COVID-19 pandemic, the sample of children was limited to eight children (one child with typical development, one with Trisomy 21, both female, and six children with ASD, one girl and five boys), from 4 to 9 years of age. For the non-typically developing children, the inclusion criterion was the existence of a conclusive diagnosis and fulfillment of at least 1 year of therapy. The protocol was carried out in an infant psychotherapy room with three video cameras, supervised by a group of researchers and a therapist. The experiments were separated into four steps: The first stage was composed of a robot introduction followed by an approximation between robot and child to establish eye contact and assess proxemics and interaction between child/robot. In the second stage, the robot projected Serious Games on the floor, and emitted verbal commands, seeking to evaluate the child’s susceptibility to perform the proposed tasks. In the third stage, the games were performed for a certain time, with the robot sending messages of positive reinforcement to encourage the child to accomplish the game. Finally, in the fourth stage, the robot finished the games and said goodbye to the child, using messages aiming to build a closer relationship with the child.


2016 ◽  
Vol 15 (3) ◽  
Author(s):  
Guadalupe Elizabeth Morales ◽  
Bernadette Rogé

We synthesize the main findings from two studies that examined moral judgement abilities in people with autism, and in people with Down syndrome. In both studies, the way these people mentally combine information about the intent of a harmful act and the severity of its consequences when attributing blame to an offender was compared with that of typically developing controls. Adolescents and adults with autism or with Down syndrome were, practically to the same extent as controls, able to take into account both information pieces for attributing blame. It would be an exaggeration to imply that adolescents and adults with either autism or Down syndrome are severely immature in moral judgement based on the fact that they are usually not able to explain or justify their judgements with sophisticated philosophical arguments. By contrast, children with autism blame attribution appeared to be essentially based on consequence information. The finding that adolescents and adults with autism or Down syndrome are able to make moral judgements in a way that is not very different from adolescents and adults of the same age could influence the way these people are perceived, cared for, and attributed basic rights.


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