scholarly journals Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey

PLoS Currents ◽  
2018 ◽  
Author(s):  
Pangaja Paramsothy ◽  
Adrienne R. Herron ◽  
Molly M. Lamb ◽  
Kathi Kinnett ◽  
Jodi Wolff ◽  
...  
Keyword(s):  
Health Care ◽  
Muscular Dystrophy ◽  
Life Experiences ◽  
Care Transitions ◽  
Becker Muscular Dystrophy ◽  
Research Network ◽  
Care Transition ◽  
Childhood Onset ◽  
Health Care Transition ◽  
Health Care Transitions

scholarly journals Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): Case Definition in Surveillance for Childhood-Onset Duchenne/Becker Muscular Dystrophy

2010 ◽  
Vol 25 (9) ◽  
pp. 1098-1102 ◽  
Author(s):  
Katherine D. Mathews ◽  
Chris Cunniff ◽  
Jiji R. Kantamneni ◽  
Emma Ciafaloni ◽  
Timothy Miller ◽  
...  
Keyword(s):  
Muscular Dystrophy ◽  
Becker Muscular Dystrophy ◽  
Case Definition ◽  
Research Network ◽  
Childhood Onset

scholarly journals Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers

Dementia ◽  
2021 ◽  
pp. 147130122110317
Author(s):  
Marianne Saragosa ◽  
Lianne Jeffs ◽  
Karen Okrainec ◽  
Kerry Kuluski
Keyword(s):  
Older Adults ◽  
Health Care ◽  
Quality Care ◽  
Care Transitions ◽  
Poor Quality ◽  
Empirical Literature ◽  
Care Transition ◽  
Health Care Transition ◽  
Healthcare Transition ◽  
People With Dementia

Older adults living with dementia are at risk for more complex health care transitions than individuals without this condition, non-impaired individuals. Poor quality care transitions have resulted in a growing body of qualitative empirical literature that to date has not been synthesized. We conducted a systematic literature review by applying a meta-ethnography approach to answer the following question: How do older adults with dementia and/or their caregivers experience and perceive healthcare transition: Screening resulted in a total of 18 studies that met inclusion criteria. Our analysis revealed the following three categories associated with the health care transition: (1) Feelings associated with the healthcare transition; (2) processes associated with the healthcare transition; and (3) evaluating the quality of care associated with the health care transition. Each category is represented by several themes that together illustrate an interconnected and layered experience. The health care transition, often triggered by caregivers reaching a “tipping point,” is manifested by a variety of feelings, while simultaneously caregivers report managing abrupt transition plans and maintaining vigilance over care being provided to their family member. Future practice and research opportunities should be more inclusive of persons with dementia and should establish ways of better supporting caregivers through needs assessments, addressing feelings of grief, ongoing communication with the care team, and integrating more personalized knowledge at points of transition.

Beliefs About Health Care Transition in Pediatric Thoracic Organ Transplant

2010 ◽  
Author(s):  
Cindy L. Buchanan ◽  
Debra Lefkowitz ◽  
Karen McCandless ◽  
Samuel Goldfarb
Keyword(s):  
Health Care ◽  
Organ Transplant ◽  
Care Transition ◽  
Health Care Transition ◽  
Thoracic Organ
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