Is health literacy of family carers associated with carer burden, quality of life, and time spent on informal care for older persons living with dementia?

Introduction Family carers are cornerstones in the care of older people living with dementia. Family carers report extensive carer burden, reduced health-related quality of life (HRQoL), and extensive time spent on informal care (Time). Health literacy (HL) is a concept associated with people’s ability to access health services, and navigate the healthcare system. This study’s aim was to investigate HL among family carers, and investigate the associations between HL and carer burden, HRQoL, and Time spent on informal care. Method We designed a self-administered survey comprising validated instruments, including the Health Literacy Scale (HLS-N-Q12) to measure HL, Relative Stress Scale (RSS) to measure carer burden, the EQ-5D-5L instrument to measure HRQoL, and some modified questions from the Resource Utilization in Dementia (RUD) questionnaire to measure time spent on informal care (Time). Descriptive analysis in addition to bivariate and multiple linear regressions were undertaken. In multiple linear regression analysis, we used HL as the independent variable to predict the outcomes (carer burden, HRQoL, Time). Analyses were adjusted for the effects of explanatory independent variables: age, gender, education levels, urban residency, having worked as health personnel, caring for someone with severe/mild dementia, and being born abroad. Findings In a non-probability sample of 188 family carers from across Norway, most of them female and over the age of 60, we found high levels of HL. In the bivariate analysis, carer burden and HRQoL (EQvalue) showed significant associations with HL. In the multiple regression analyses, HL was statistically significantly associated with carer burden (B = -0.18 CI:-0.33,-0.02 p = 0.02), HRQoL (EQvalue: B = 0.003 with 95% CI: 0.001, 0.006 p = 0.04), and Time (B = -0.03 with 95% CI: -0.06, 0.000, p = 0.046), after adjusting for the effect of independent variables. Conclusion This is one of the first studies to investigate the associations between HL and different outcomes for family carers of older people living with dementia. Additional research into the associations identified here is needed to further develop our understanding of how to support family carers in their roles. Targeted support that increases family carers’ HL may have potential to enhance their ability to provide sustainable care over time.

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Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice

Aging & Mental Health ◽

10.1080/13607863.2017.1390732 ◽

2017 ◽

Vol 22 (7) ◽

pp. 897-902 ◽

Cited By ~ 21

Author(s):

Liselot Kerpershoek ◽

Marjolein de Vugt ◽

Claire Wolfs ◽

Bob Woods ◽

Hannah Jelley ◽

...

Keyword(s):

Quality Of Life ◽

Informal Care ◽

Family Carers ◽

Middle Stage

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Qualidade de vida de estudantes do curso técnico em enfermagem

Revista de Enfermagem UFPE on line ◽

10.5205/1981-8963.2019.242601 ◽

2019 ◽

Vol 13 ◽

Author(s):

Patrícia Silva Nunes ◽

Tamíris Augusto Marinho ◽

Fernanda Letícia Silva Campanati ◽

Natielly Pryscilla Silva ◽

Charlise Fortunato Pedroso ◽

...

Keyword(s):

Quality Of Life ◽

Nursing Students ◽

Educational Institution ◽

Linear Regression Analysis ◽

Multiple Linear Regression Analysis ◽

Drop Out ◽

Bivariate Analysis ◽

Cross Sectional ◽

Calidad De Vida

Objetivo: investigar a qualidade de vida de estudantes do curso técnico em enfermagem e os desafios associados à formação profissional. Método: trata-se de um estudo quantitativo, descritivo, observacional, transversal e analítico, com discentes de uma instituição federal de ensino. Coletaram-se os dados utilizando o questionário WHOQOL-breve e o formulário com variáveis complementares. Empregaram-se, na análise bivariada, o teste t de student e a correlação de Pearson. Realizou-se a análise de regressão linear múltipla para verificar os fatores associados aos escores de qualidade de vida (p<0,05). Resultados: compôs-se o estudo por 165 discentes. Evidenciou-se, no domínio social, melhor avaliação média e a pior avaliação foi o domínio meio ambiente. Encontraram-se discentes com vontade de desistir do curso com escore médio de qualidade de vida menor em todos os domínios, sendo que aqueles que relataram dificuldade de se manter no curso por razões financeiras tiveram escores menores nos domínios físico (p=0,024) e ambiental (p<0,001). Conclusão: aferiu-se a pior qualidade de vida entre discentes com fragilidades nas redes de apoio social e financeira, o que pode impactar o rendimento escolar e o risco de evasão. Descritores: Qualidade de Vida; Estudantes de Enfermagem; Avaliação em Saúde; Educação; Enfermagem; Estudantes de Ciências da Saúde.AbstractObjective: to investigate the quality of life of nursing technical students and the challenges associated with vocational training. Method: this is a quantitative, descriptive, observational, cross-sectional and analytical study with students from a federal educational institution. Data was collected using the WHOQOL-brief questionnaire and the form with complementary variables. In the bivariate analysis, the Student's t test and Pearson's correlation were used. Multiple linear regression analysis was performed to verify factors associated with quality of life scores (p <0.05). Results: the study was composed by 165 students. In the social domain, the best average rating was evidenced and the worst one was the environment domain. Students were willing to drop out of the course with a lower average quality of life score in all domains, and those who reported difficulty in maintaining the course for financial reasons had lower scores in the physical (p = 0.024) and environmental domains. (p <0.001). Conclusion: the worst quality of life was assessed among students with weaknesses in social and financial support networks, which may impact school performance and the risk of dropout. Descriptors: Quality of Life; Students, Nursing; Health Evaluation; Education; Nursing, Students, Health Occupations. ResumenObjetivo: investigar la calidad de vida de los estudiantes técnicos de enfermería y los desafíos asociados con la formación profesional. Método: este es un estudio cuantitativo, descriptivo, observacional, transversal y analítico con estudiantes de una institución educativa federal. Los datos fueron recolectados utilizando el cuestionario breve WHOQOL y el formulario con variables complementarias. En el análisis bivariado, se utilizaron la prueba t de Student y la correlación de Pearson. Se realizó un análisis de regresión lineal múltiple para verificar los factores asociados con los puntajes de calidad de vida (p <0.05). Resultados: el estudio estuvo compuesto por 165 estudiantes. En el dominio social, se evidenció la mejor calificación promedio y la peor fue el dominio del medio ambiente. Los estudiantes estaban dispuestos a abandonar el curso con un puntaje promedio de calidad de vida más bajo en todos los dominios, y aquellos que informaron dificultades para mantener el curso por razones financieras tuvieron puntajes más bajos en el dominio físico (p = 0.024) y ambiental (p <0,001). Conclusión: se evaluó la peor calidad de vida entre los estudiantes con debilidades en las redes de apoyo social y financiero, lo que puede afectar el rendimiento escolar y el riesgo de abandono escolar. Descriptores: Calidad de Vida; Estudiantes de Enfermería; Evaluación en Salud; Educación; Enfermería; Estudiantes del Área de la Salud.

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Factors associated to quality of life of orthodontists graduated from a public university (1993-2016): A mixed-methods approach

Dental Press Journal of Orthodontics ◽

10.1590/2177-6709.25.5.23.e1-12.onl ◽

2020 ◽

Vol 25 (5) ◽

pp. 23e1-23e12 ◽

Cited By ~ 1

Author(s):

Natalia Muñoz-Pino ◽

Anderson E. Tibaná-Guisao ◽

Johnatan D. Cardona-Hincapié ◽

Alejandro Hurtado-Aristizábal ◽

Andrés A. Agudelo-Suárez

Keyword(s):

Quality Of Life ◽

Mixed Methods ◽

Public University ◽

Bivariate Analysis ◽

Cross Sectional Survey ◽

Cross Sectional ◽

Factors Associated ◽

Independent Variables ◽

Research Activities

ABSTRACT Introduction: For dental professionals, including orthodontists, Quality of life (QOL) is a topic of growing concern and could be determined by objective and subjective complex factors. Objective: This study analyzed the factors that influence the QOL of orthodontists graduated between 1993 and 2016 of a public university (Medellín, Colombia). Methods: A mixed-methods study was conducted (cross-sectional survey; 88 participants; 3 focus groups, 21 participants). Quantitative analysis: the research included sociodemographic, labor and health characteristics as independent variables and the WHOQOL-BREF questionnaire as main outcome for QOL. Frequencies were calculated and the association between QOL and independent variables was estimated by bivariate analysis (Chi square tests) and a linear multivariate regression. Qualitative analysis: Narrative content analysis according to thematic categories. Mixed methods: a conceptual framework for QOL using the triangulation was developed. Results: All the scores surpassed 55 points on the 4 domains of WHOQOL-BREF. A lower value was found in the physical dimension (57.1±10.7) and a greater value in the psychological dimension (70.8±8.3). The variables associated positively to QOL were permanent contract, teaching/research activities, monthly income, resting days per week and sex. Factors associated negatively were low social support, mental health and rent housing. Discourses of participants allowed to identify the concept of QOL and the contextual and social determinants and satisfiers. Conclusion: QOL of orthodontists is influenced by sociodemographic, employment, working and health factors. Therefore, QOL is a multidimensional concept that recognizes the political and socio-economic context and personal and professional experiences.

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The effects of medication adherence and health literacy on health-related quality of life in older people with hypertension

International Journal of Older People Nursing ◽

10.1111/opn.12196 ◽

2018 ◽

Vol 13 (3) ◽

pp. e12196 ◽

Cited By ~ 13

Author(s):

Nam Hee Park ◽

Mi Sook Song ◽

So Young Shin ◽

Ji-hye Jeong ◽

Hyo Young Lee

Keyword(s):

Quality Of Life ◽

Medication Adherence ◽

Health Literacy ◽

Older People ◽

Health Related Quality ◽

Related Quality ◽

Health Related

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Factors associated with health-related quality of life and burden on relatives of older people with multi-morbidity: a dyadic data study

BMC Geriatrics ◽

10.1186/s12877-020-01604-w ◽

2020 ◽

Vol 20 (1) ◽

Author(s):

Barbro Krevers ◽

Anne Ekdahl ◽

Tiny Jaarsma ◽

Jeanette Eckerblad ◽

Anna Milberg

Keyword(s):

Quality Of Life ◽

Older People ◽

Older Persons ◽

Linear Regression Analysis ◽

Health Related Quality ◽

High Burden ◽

Factors Associated ◽

Related Quality ◽

Health Related

Abstract Background This study aimed to identify factors associated with health-related quality of life (HRQoL) and the burden on the relatives of older people with multi-morbidity. Methods A secondary analysis of baseline data from 296 dyads, including older patients with multimorbidity and their relatives, which were previously collected in a randomized study. The analysis was conducted to select correlated independent variables to enter a final linear regression analysis of two models with different endpoints: the relatives’ HRQoL (EQ5D index) and burden (COPE index: Negative impact scale). Results Sixteen variables correlated with the relatives’ HRQoL, and 15 with the relatives’ burden. Both the HRQoL and burden correlated with both patient and relative variables. A high HRQoL was associated with relatives’ working/studying. A high burden was associated with caring for an older person with changed behaviour. A low burden was associated with the relatives’ high scores on positive values of caring, quality of support and HRQoL. Conclusion Older persons and their relatives should be considered as a unit in the development of support of older people in order to increase the health and quality of life of both groups. To support and protect relatives from a high burden, potential measures could include improving the relative’s HRQoL and strengthening their ability to find positive values in care and strengthening reliable and good support from others. The relatives’ HRQoL explained the variation in the burden. However, the burden did not explain the variation in the HRQoL, which suggests that the relatives’ HRQoL is not so readily affected by their burden, whereas the relatives’ HRQoL can influence their burden. The variables used in the regression analyses where chosen to reflect important aspects of the relatives’ and older persons’ situations. The final models explained 38% of the variation in the relatives’ burden but only 10% of the variation in their HRQoL. This could be important to consider when choosing outcome assessments in future studies.

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Investigation of Quality of Life Determinants in Children with Food Allergies

International Archives of Allergy and Immunology ◽

10.1159/000516875 ◽

2021 ◽

pp. 1-8

Author(s):

Zoe Morou ◽

Emilia Vassilopoulou ◽

Petros Galanis ◽

Athina Tatsioni ◽

Nikolaos G. Papadopoulos ◽

...

Keyword(s):

Quality Of Life ◽

Linear Regression Analysis ◽

Multiple Linear Regression Analysis ◽

Primary School Children ◽

Food Allergies ◽

Bivariate Analysis ◽

Family Quality Of Life ◽

Severe Allergic Reaction ◽

Health Related Qol

Background: Food allergy (FA) in children impacts their own and their family quality of life (QoL). The association of specific FA factors with the various domains of health-related QoL (HRQL) in children is unclear. Objective: The aim of this study was to evaluate FA characteristics in primary school children as determinants of components of HRQL. Methods: Children with FA were recruited from the allergy clinic of a tertiary children’s hospital. Demographic and clinical data were retrieved from their records, and 3 HRQL questionnaires were administered: the FA QoL Questionnaire-Child Form (FAQLQ-CF), the FA independent measure (FAIM), and the Pediatric QoL Questionnaire (PedsQL™). Stepwise multiple linear regression analysis was carried out to investigate the correlation between FA characteristics and the scores on the HRQL scales. Bonferroni correction for multiple comparisons was set at p < 0.0002. Results: Of 172 primary schoolchildren with FA invited to take part, 110 participated (response rate 64%), of whom 83 (75.5%) were male, aged 7.5–12.3 years (mean 10.0 ± 1.4) years. From 38 demographic and clinical characteristics, 10 were excluded on initial data analysis and 28 proceeded to bivariate analysis with the scores on FAQLQ-CF, FAIM, PedsQL™, and their subscales. Most of the 28 showed no correlation with the scores; only 4 were entered into multivariate analysis with FAQLQ-CF and PedsQL™ scores, none of which, finally showed significant association. Conclusion: The HRQL of children with FA did not depend on gender, age, number, and type of allergen or the characteristics of the most severe allergic reaction.

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PERSPECTIVES OF OLDER PEOPLE RECEIVING INFORMAL CARE ON FRAILTY, QUALITY OF LIFE, AND AUTONOMY

Innovation in Aging ◽

10.1093/geroni/igx004.2839 ◽

2017 ◽

Vol 1 (suppl_1) ◽

pp. 784-784

Author(s):

D. Lambotte ◽

B. Fret ◽

T. Kardol ◽

L. De Donder ◽

Keyword(s):

Quality Of Life ◽

Older People ◽

Informal Care

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The Quality of Life of Older People With a Disability in Ireland

PsycEXTRA Dataset ◽

10.1037/e537152013-001 ◽

2007 ◽

Cited By ~ 3

Author(s):

Kathy Murphy ◽

Eamon O'Shea ◽

Adeline Cooney ◽

Dympna Casey

Keyword(s):

Quality Of Life ◽

Older People

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Financial Interdependence among Malay Older People in the Community: An interpretative phenomenological analysis

Environment-Behaviour Proceedings Journal ◽

10.21834/e-bpj.v2i5.689 ◽

2017 ◽

Vol 2 (5) ◽

pp. 135

Author(s):

Ahmad Shahir Abdul Mutalib ◽

Akehsan Haji Dahlan ◽

Ajau Danis

Keyword(s):

Quality Of Life ◽

Older People ◽

Interpretative Phenomenological Analysis ◽

Publishing House ◽

Phenomenological Analysis ◽

Financial Assistance ◽

Depth Interview ◽

International Publishing ◽

Open Access Article

This study explores the practice of financial interdependence among Malay older people who live in the community in Malaysia. Eleven Malay older people participated in this qualitative study by an in-depth interview. The data was analyzed using six stages of the interpretative phenomenological analysis. Two main themes emerged from the interview transcripts are issues regarding living expenses and financial assistance. Financial interdependence is one of the most effective ways for the Malay older people in the community in Malaysia to adapt their retired status, to achieve maximum life satisfaction and productivity thereby improving their overall quality of life.Keywords: Financial interdependence, Older people, Quality of life, Interpretative phenomenological analysisISSN: 2398-4287© 2017. The Authors. Published for AMER ABRA by e-International Publishing House, Ltd., UK. This is an open access article under the CC BYNC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies), Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia.

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