scholarly journals The experiences of family caregivers of people with severe mental illness in the Middle East: A systematic review and meta-synthesis of qualitative data

PLoS ONE ◽  
2021 ◽  
Vol 16 (7) ◽  
pp. e0254351
Author(s):  
Aisha Hamed Alyafei ◽  
Taghrid Alqunaibet ◽  
Hassan Mansour ◽  
Afia Ali ◽  
Jo Billings
Keyword(s):  
Systematic Review ◽  
Mental Illness ◽  
Middle East ◽  
Severe Mental Illness ◽  
Family Caregivers ◽  
Critical Role ◽  
Geographical Area ◽  
Well Being ◽  
Negative Consequences ◽  
Middle East Countries

Background There is a wealth of literature exploring the experiences of family caregivers of people with severe mental illness (SMI) in western countries, however, this topic has been neglected in the Middle East, despite families being the main source of caregiving in this context. The purpose of this review was to conduct a systematic review and qualitative meta-synthesis to explore the experiences of family caregivers living in countries in the Middle East caring for a relative with severe mental illness. Methods A systematic review and meta-synthesis were conducted, to comprehensively gain a thorough and detailed overview of what is known about family caregivers’ experiences from published qualitative research in the Middle East geographical area from inception to May 2021. The review protocol was pre-registered with PROSPERO (Ref: CRD42020165519). Results The review identified twelve qualitative studies that explored caregivers’ experiences of caring for relatives with SMI in Middle East countries. Family caregivers’ experiences were captured under seven overarching themes. The participants across all studies reported negative consequences of providing care, increased burden and emotional distress. Many experienced issues with family/marital relationships and stigmatizing attitudes and behaviours from their communities. Caregivers expressed the need for increased support which was perceived to have a critical role in improving family caregivers’ experiences. Conclusions The meta-synthesis revealed many challenges and issues that affect caregivers of people with SMI in the Middle East. Family caregivers experienced distress and burden, and reported significant impact on their psychological well-being. Their experiences highlight the urgent need to provide more support for family caregivers in Middle East countries.

scholarly journals Evaluation of an interaction-skills training for reducing the burden of family caregivers of patients with severe mental illness: a pre-posttest design

2018 ◽  
Vol 18 (1) ◽  
Author(s):  
Yasmin Gharavi ◽  
Barbara Stringer ◽  
Adriaan Hoogendoorn ◽  
Jan Boogaarts ◽  
Bas Van Raaij ◽  
...  
Keyword(s):  
Mental Illness ◽  
Severe Mental Illness ◽  
Family Caregivers ◽  
Skills Training ◽  
Interaction Skills

P.3.c.007 A well being programme (WSP) in severe mental illness. Reducing risk for physical ill-health: a post programme re-audit at 2 years

2006 ◽  
Vol 16 ◽  
pp. S400
Author(s):  
S. Smith ◽  
D. Yeomans ◽  
C.J. Bushe ◽  
C. Eriksson ◽  
T. Harrison ◽  
...  
Keyword(s):  
Mental Illness ◽  
Severe Mental Illness ◽  
Well Being

scholarly journals Improving community health networks for people with severe mental illness: a case study investigation

2015 ◽  
Vol 3 (5) ◽  
pp. 1-234 ◽  
Author(s):  
Vanessa Pinfold ◽  
Daryl Sweet ◽  
Ian Porter ◽  
Cath Quinn ◽  
Richard Byng ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Illness ◽  
Severe Mental Illness ◽  
Community Health ◽  
Well Being ◽  
Personal Networks ◽  
System Level ◽  
Network Type ◽  
Care System

IntroductionPolicy drivers in mental health to address personal recovery, stigma and poor physical health indicate that new service solutions are required. This study aimed to understand how connections to people, places and activities were utilised by individuals with severe mental illness (SMI) to benefit health and wellbeing.MethodsA five-module mixed-methods design was undertaken in two study sites. Data were collected from 150 network-mapping interviews and 41 in-depth follow-up interviews with people with SMI; in-depth interviews with 30 organisation stakeholders and 12 organisation leaders; and 44 telephone interviews with practitioners. We undertook a three-stage synthesis process including independent lived experience feedback, and a patient and public involvement team participated in tool design, data collection, analysis and write-up.ResultsThree personal network types were found in our study using the community health network approach: diverse and active; family and stable; formal and sparse. Controlled for other factors we found only four variables significantly associated with which network type a participant had: living alone or not; housing status; formal education; long-term sickness or disability. Diagnosis was not a factor. These variables are challenging to address but they do point to potential for network change. The qualitative interviews with people with SMI provided further understanding of connection-building and resource utilisation. We explored individual agency across each network type, and identified recognition of the importance and value of social support and active connection management alongside the risks of isolation, even for those most affected by mental illness. We identified tensions in personal networks, be that relationships with practitioners or families, dealing with the impact of stigma, or frustrations of not being in employment, which all impact on network resources and well-being. The value of connectedness within personal networks of people, place and activity for supporting recovery was evident in shaping identity, providing meaning to life and sense of belonging, gaining access to new resources, structuring routines and helping individuals ‘move on’ in their recovery journey.Health-care practitioners recognised that social factors were important in recovery but reported system-level barriers (workload, administrative bureaucracy, limited contact time with clients) in addressing these issues fully. Even practitioners working in third-sector services whose remit involved increasing clients’ social connection faced restrictions due to being evaluated by outcome criteria that limited holistic recovery-focused practices. Service providers were keen to promote recovery-focused approaches. We found contrasts between recovery ideology within mental health policy and recovery practice on the ground. In particular, the social aspects of supporting people with SMI are often underprioritised in the health-care system. In a demanding and changing context, strategic multiagency working was seen as crucial but we found few examples of embedded multisector organisation partnerships.ConclusionWhile our exploratory study has limitations, findings suggest potential for people with SMI to be supported to become more active managers of their personal networks to support well-being regardless of current network type. The health and social care system does not currently deliver multiagency integrated solutions to support SMI and social recovery.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

scholarly journals Volunteering in the care of people with severe mental illness: a systematic review

2012 ◽  
Vol 12 (1) ◽  
Author(s):  
Claudia Hallett ◽  
Günter Klug ◽  
Christoph Lauber ◽  
Stefan Priebe
Keyword(s):  
Systematic Review ◽  
Mental Illness ◽  
Severe Mental Illness

scholarly journals Economic burden of caregiving for persons with severe mental illness in sub-Saharan Africa: A systematic review

PLoS ONE ◽  
2018 ◽  
Vol 13 (8) ◽  
pp. e0199830 ◽  
Author(s):  
Rebecca Addo ◽  
Samuel Agyei Agyemang ◽  
Yesim Tozan ◽  
Justice Nonvignon
Keyword(s):  
Systematic Review ◽  
Mental Illness ◽  
Severe Mental Illness ◽  
Economic Burden ◽  
Sub Saharan Africa ◽  
Sub Saharan
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