Spiritual aspects of the family caregivers’ experiences when caring for a community‐dwelling adult with severe mental illness: a systematic review of qualitative evidence

Background There is a wealth of literature exploring the experiences of family caregivers of people with severe mental illness (SMI) in western countries, however, this topic has been neglected in the Middle East, despite families being the main source of caregiving in this context. The purpose of this review was to conduct a systematic review and qualitative meta-synthesis to explore the experiences of family caregivers living in countries in the Middle East caring for a relative with severe mental illness. Methods A systematic review and meta-synthesis were conducted, to comprehensively gain a thorough and detailed overview of what is known about family caregivers’ experiences from published qualitative research in the Middle East geographical area from inception to May 2021. The review protocol was pre-registered with PROSPERO (Ref: CRD42020165519). Results The review identified twelve qualitative studies that explored caregivers’ experiences of caring for relatives with SMI in Middle East countries. Family caregivers’ experiences were captured under seven overarching themes. The participants across all studies reported negative consequences of providing care, increased burden and emotional distress. Many experienced issues with family/marital relationships and stigmatizing attitudes and behaviours from their communities. Caregivers expressed the need for increased support which was perceived to have a critical role in improving family caregivers’ experiences. Conclusions The meta-synthesis revealed many challenges and issues that affect caregivers of people with SMI in the Middle East. Family caregivers experienced distress and burden, and reported significant impact on their psychological well-being. Their experiences highlight the urgent need to provide more support for family caregivers in Middle East countries.

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Social support and quality of life among rural family caregivers of persons with severe mental illness in Sichuan Province, China: mediating roles of care burden and loneliness

Quality of Life Research ◽

10.1007/s11136-021-02793-6 ◽

2021 ◽

Author(s):

Baiyang Zhang ◽

Kyaien O. Conner ◽

Hongdao Meng ◽

Naidan Tu ◽

Danping Liu ◽

...

Keyword(s):

Quality Of Life ◽

Social Support ◽

Mental Illness ◽

Severe Mental Illness ◽

Family Caregivers ◽

Sichuan Province ◽

Care Burden ◽

Rural Family

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Evaluation of an interaction-skills training for reducing the burden of family caregivers of patients with severe mental illness: a pre-posttest design

BMC Psychiatry ◽

10.1186/s12888-018-1669-z ◽

2018 ◽

Vol 18 (1) ◽

Cited By ~ 5

Author(s):

Yasmin Gharavi ◽

Barbara Stringer ◽

Adriaan Hoogendoorn ◽

Jan Boogaarts ◽

Bas Van Raaij ◽

...

Keyword(s):

Mental Illness ◽

Severe Mental Illness ◽

Family Caregivers ◽

Skills Training ◽

Interaction Skills

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Percepção da sobrecarga familiar nos cuidados ao paciente psiquiátrico crônico

Enfermagem em Foco ◽

10.21675/2357-707x.2011.v2.n4.193 ◽

2011 ◽

Vol 2 (4) ◽

pp. 245-247

Author(s):

Mohema Duarte de Oliveira ◽

Mariana Ferreira de Sá ◽

Maria Luciene Rocha

Keyword(s):

Mental Illness ◽

Family Caregivers ◽

Literature Search ◽

Psychiatric Patients ◽

Family Burden ◽

The Family ◽

The Impact ◽

Chronic Psychiatric Patients

Objetivos: avaliar o impacto da sobrecarga familiar nos cuidados ao paciente psiquiátrico crônico. Metodologia: pesquisa bibliográfica por meio de referências publicadas em documentos, livros, revistas, artigos científicos, internet, ou seja, aborda tudo o que foi publicado sobre o tema proposto. Resultados: a convivência com a pessoa acometida por uma doença mental é desgastante para o familiar e, muitas vezes, há dificuldade de compreensão dos sintomas apresentados pelo doente. Conclusão: há a necessidade de desenvolver programas de informação, orientação e apoio aos familiares dos pacientes psiquiátricos.Descritores: Sobrecarga, Familiares Cuidadores, Pacientes Psiquiátricos.Perception of the familiar overload in the cares to the chronic psychiatric patientAims: to assess the impact of family burden in caring for chronic psychiatric patients. Methodology: literature search by means of references in published papers, books, magazines, papers, and internet, that is, it approaches all publishings on the theme. Results: living with the person affected by mental illness is stressful for the family and sometimes there is difficulty in understanding the symptoms presented by the patient. Conclusion: there is a need to develop information, guidance and support to families of psychiatric patients.Descriptors: Overload, Family Caregivers, Psychiatric Patients.La percepción de la carga familiar en el cuidado de pacientes psiquiátricos crónicosObjectivos: Evaluar el impacto de la carga familiar en el cuidado de pacientes psiquiátricos crónicos. Metodología: la literatura a través de referencias de artículos publicados, libros, revistas, periódicos, internet, o las direcciones de lo que se ha publicado sobre el tema. Resultados: la convivencia con la persona afectada por una enfermedad mental es muy estresante para la familia y con frecuencia hay dificultad en la comprensión de los síntomas que presenta el paciente. Conclusión: Hay una necesidad de desarrollar programas de información, orientación y apoyo a las familias de los pacientes psiquiátricos.Descriptores: Sobrecarga, Los Cuidadores Familiares, Los Pacientes Psiquiátricos.

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PSYCHOLOGICAL PROBLEMS OF FAMILY CAREGIVERS OF PATIENTS WITH SCHIZOPHRENIA

10.36106/paripex/2103752 ◽

2020 ◽

pp. 43-44

Author(s):

Sejal Macwan ◽

Ninad Jhala

Keyword(s):

Mental Health ◽

Mental Illness ◽

Family Caregivers ◽

Psychological Problems ◽

World Health ◽

World Health Report ◽

Care Givers ◽

Care Giving ◽

Health Report ◽

The Family

Approximately 24 million people worldwide experiencing schizophrenia (The World Health Report, 2001). Several people with mental disorder have to rely on support of family and friends to help them in their day-to-day happenings. In that era, caregivers are at risk for physical and mental health dilemma.1 Caring for a person with any mental illness often creates physical, emotional dilemma among the family caregivers more than they think. That is why it is also essential to rationalize that issue too. Family care givers of patients with any mental illness have different perspectives and coping strategies about the situation that may lead to feeling of sadness, loneliness, helplessness, hopeless at a variance among the care givers. OBJECTIVES: • To study levels of psychological problems faced by the family caregivers of patients with schizophrenia. • To study association between demographic variables and levels of psychological problems of family caregivers with schizophrenia. METHOD: A descriptive study was carried out to examine the psychological problems faced by family caregivers of patients with schizophrenia. 200 family caregivers were selected by applying stratified systematic sampling method from the government hospitals of mental health of Gujarat state with a criterion of minimum facility of 100 beds. A self-structured interview schedule was designed for study purpose by referring the Burden Assessment Tool of Thara et.al (1998) and Zarit Burden Interview. RESULT: Majority of the respondents (51%) feel anxious, depressed and frustrated due to caregiving responsibility. Majority of the respondents (52.5%) believed that care giving responsibility is mentally tiring for the family caregivers. Majority of the respondents (40.5%) agree with the statement that their contacts with family & friends have lessened due to the illness of care receiver.

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