Early Management and Decision Making for the Treatment of Myelomeningocele

PEDIATRICS ◽  
1983 ◽  
Vol 72 (4) ◽  
pp. 450-458 ◽  
Author(s):  
Richard H. Gross ◽  
Alan Cox ◽  
Ruth Tatyrek ◽  
Michael Pollay ◽  
William A. Barnes
Keyword(s):  
Supportive Care ◽  
Early Selection ◽  
Early Management ◽  
Ethical Concerns ◽  
University Of Oklahoma ◽  
Legal Custody ◽  
Oklahoma Health ◽  
The University ◽  
Vigorous Treatment

A program for early selection and treatment of the infant with myelomeningocele was developed at the University of Oklahoma Health Sciences Center in 1977. Over a 5-year period, 69 babies were evaluated, 36 babies were recommended for early vigorous treatment. Of the 33 babies for whom only supportive care was recommended, five were initially treated at the parents' request, two underwent delayed vigorous treatment, one was subsequently treated by "crisis management," one moved and did not return for follow-up, and 24 received only supportive care. All 24 babies died between 1 to 189 days of age (mean 37 days). The involvement of several physicians and paramedical support personnel is considered essential for this approach of early selection and treatment. Continued support and regular follow-up is necessary for any baby who receives only supportive care. Parents retain legal custody. Although ethical concerns make any approach difficult, the method presented is considered to be the best alternative available at this time.

Financial Conflicts of Interest in Human Subjects Research: The Problem of Institutional Conflicts

2002 ◽  
Vol 30 (3) ◽  
pp. 390-402 ◽  
Author(s):  
Mark Barnes ◽  
Patrik S. Florencio
Keyword(s):  
Conflicts Of Interest ◽  
Medical Center ◽  
Human Subjects ◽  
The United States ◽  
Human Subjects Research ◽  
Human Research ◽  
University Of Oklahoma ◽  
Financial Conflicts Of Interest ◽  
Oklahoma Health ◽  
The University

In both academic literature and the media, financial conflicts of interest in human subjects research have come center-stage. The cover of a recent edition of Time magazine features a research subject in a cage with the caption human guinea pigs, signifying perhaps that human research subjects are no more protected from research abuses than are laboratory animals. That magazine issue highlights three well-publicized cases of human subjects research violations that occurred at the University of Oklahoma, the University of Pennsylvania, and Johns Hopkins University.At St. John Medical Center in Tulsa, Oklahoma, a study that was co-sponsored by the University of Oklahoma Health Sciences Center investigated an experimental vaccine for malignant melanoma. In that case, the chair of the university's institutional review board (IRB) — the committee within each medical institution charged with ethics review of human research projects undertaken at that institution — and the dean of the University's College of Medicine allegedly concealed from both the IRB and the United States Food and Drug Administration (FDA) a report by an outside consulting firm that had found severe deficiencies with the melanoma vaccine study being conducted at the medical center.

scholarly journals Didactic Content and Experiential Aging Simulation for Developing Patient-Centered Strategies and Empathy for Older Adults

2018 ◽  
Vol 39 (01) ◽  
pp. 074-082 ◽  
Author(s):  
Anna Jilla ◽  
Jeffrey Danhauer ◽  
Carole Johnson
Keyword(s):  
Older Adults ◽  
Hearing Loss ◽  
Health Care Providers ◽  
The Elderly ◽  
Care Providers ◽  
Patient Centered ◽  
University Of Oklahoma ◽  
Sensory Disorders ◽  
Oklahoma Health ◽  
The University

AbstractThe number of people over 65 years of age is increasing, and many of those individuals will have sensorineural hearing loss in addition to other chronic health conditions. Future hearing health care providers need to be sensitive to the needs of elderly patients. The purpose of this article is to describe an experiential learning curriculum used in the Doctor of Audiology program in the Department of Communication Sciences and Disorders at the University of Oklahoma Health Sciences Center. The curriculum uses simulations of sensory disorders common in the elderly to transform knowledge and active experience into patient-centered, empathetic counseling skills and strategies to use with older adults with hearing loss.

Management Protocol for Abacavir-Related Hypersensitivity Reaction

2000 ◽  
Vol 34 (2) ◽  
pp. 247-249 ◽  
Author(s):  
Patrick G Clay ◽  
R Chris Rathbun ◽  
Leonard N Slater
Keyword(s):  
Hypersensitivity Reaction ◽  
Health Sciences ◽  
Response Mechanism ◽  
Data Synthesis ◽  
University Of Oklahoma ◽  
Management Procedure ◽  
Management Protocol ◽  
Oklahoma Health ◽  
The University

OBJECTIVE: To develop an abacavir hypersensitivity reaction management protocol for the University of Oklahoma Health Sciences Center. DATA SYNTHESIS: Conference abstracts, published literature, and manufacturer-provided materials were reviewed to define the syndrome and manifestations and to recommend steps to take when a patient develops abacavir-related reactions. RESULTS: Initial education, formalized contact and response mechanism, and intervention levels were incorporated into a protocol for clinicians. CONCLUSIONS: Abacavir, a newly approved agent for the treatment of HIV, has been associated with a fatal hypersensitivity reaction. Our protocol provides a mechanism to minimize progression of abacavir hypersensitivity reaction by providing a formalized management procedure

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