The illness of women and men with sickle cell disease: a Grounded Theory study

Objective: to understand the meanings given by women and men with sickle cell disease on the illness experience. Method: analytical study with a qualitative approach, conducted with 17 adults with sickle cell disease using the Theory Based on Data, or Grounded Theory, as theoretical-methodological referential. Data were collected between the years of 2012 and 2013, in an individual in-depth interview. All the interviews were recorded and analyzed according to the Grounded Theory comparative analysis technique. Results: data show four categories which group the experience of illness, the feelings experienced and the path to living with sickle cell disease. Conclusions: it was possible to understand that the experience was built by a process in which these people redefined the meaning of their lives, applying new directions to life and to care regarding the experience of the illness. In the context of chronic disease, the nurse's care is also seen in this study as a foundation, providing attention, directions, and guidance through the required confrontations. Understanding the experience lived by these people, it is possible to enlarge the dimensions and the essence of nursing care required throughout life.

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CHRONIC SORROW IN CAREGIVERS OF SCHOOL AGE CHILDREN WITH SICKLE CELL DISEASE: A Grounded Theory Approach

Issues in Comprehensive Pediatric Nursing ◽

10.1080/01460860050174693 ◽

2000 ◽

Vol 23 (3) ◽

pp. 141-154 ◽

Cited By ~ 14

Author(s):

Ladonna Northington

Keyword(s):

Grounded Theory ◽

Sickle Cell Disease ◽

Sickle Cell ◽

School Age Children ◽

Theory Approach ◽

School Age ◽

Chronic Sorrow ◽

Cell Disease ◽

Grounded Theory Approach

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Contraception and reproductive planning from the perspective of women with sickle cell disease

Revista Gaúcha de Enfermagem ◽

10.1590/1983-1447.2021.20200109 ◽

2021 ◽

Vol 42 ◽

Author(s):

Evelyne Nascimento Pedrosa ◽

Maria Suely Medeiros Corrêa ◽

Ana Laura Carneiro Gomes Ferreira ◽

Caroline Eloisa da Silva Sousa ◽

Rayane Alves da Silva ◽

...

Keyword(s):

Sickle Cell Disease ◽

Health Service ◽

Sickle Cell ◽

Health Workers ◽

Service Access ◽

Cell Disease ◽

Health Service Access ◽

Lack Of Information ◽

Analysis Technique ◽

Contraception Use

ABSTRACT Objective To understand the perceptions of women with sickle cell disease (SCD) about reproductive planning in a public health service. Method This is a qualitative study conducted with 15 women with SCD attended at a public hospital in Recife, between August 2018 and May 2019. Bardin’s content analysis technique was used. Results The women were between 25 and 38 years old, married, and had low education. After the analysis, four thematic categories emerged: information about contraception, use of contraceptive methods, feelings about pregnancy, and gynecological consultation. It was found that women with SCD are influenced by factors such as fear of complications during pregnancy, lack of information on reproductive planning, partners and health professional opinion, and difficulties in health service access. Final considerations The reports demonstrate that health workers need to improve the way through which information reaches the patient, to offer a more satisfactory professional practice.

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Results from transcranial Doppler examination on children and adolescents with sickle cell disease and correlation between the time-averaged maximum mean velocity and hematological characteristics: a cross-sectional analytical study

Sao Paulo Medical Journal ◽

10.1590/s1516-31802011000300003 ◽

2011 ◽

Vol 129 (3) ◽

pp. 134-138 ◽

Cited By ~ 12

Author(s):

Mary Hokazono ◽

Gisele Sampaio Silva ◽

Edina Mariko Koga Silva ◽

Josefina Aparecida Pellegrini Braga

Keyword(s):

Sickle Cell Disease ◽

Sickle Cell ◽

Sickle Cell Anemia ◽

Transcranial Doppler ◽

Analytical Study ◽

Hematological Parameters ◽

Cell Disease ◽

Mean Velocity ◽

Cross Sectional ◽

Group I

CONTEXT AND OBJECTIVE: Transcranial Doppler (TCD) detects stroke risk among children with sickle cell anemia (SCA). Our aim was to evaluate TCD findings in patients with different sickle cell disease (SCD) genotypes and correlate the time-averaged maximum mean (TAMM) velocity with hematological characteristics. DESIGN AND SETTING: Cross-sectional analytical study in the Pediatric Hematology sector, Universidade Federal de São Paulo. METHODS: 85 SCD patients of both sexes, aged 2-18 years, were evaluated, divided into: group I (62 patients with SCA/Sß0 thalassemia); and group II (23 patients with SC hemoglobinopathy/Sß+ thalassemia). TCD was performed and reviewed by a single investigator using Doppler ultrasonography with a 2 MHz transducer, in accordance with the Stroke Prevention Trial in Sickle Cell Anemia (STOP) protocol. The hematological parameters evaluated were: hematocrit, hemoglobin, reticulocytes, leukocytes, platelets and fetal hemoglobin. Univariate analysis was performed and Pearson's coefficient was calculated for hematological parameters and TAMM velocities (P < 0.05). RESULTS: TAMM velocities were 137 ± 28 and 103 ± 19 cm/s in groups I and II, respectively, and correlated negatively with hematocrit and hemoglobin in group I. There was one abnormal result (1.6%) and five conditional results (8.1%) in group I. All results were normal in group II. Middle cerebral arteries were the only vessels affected. CONCLUSION: There was a low prevalence of abnormal Doppler results in patients with sickle-cell disease. Time-average maximum mean velocity was significantly different between the genotypes and correlated with hematological characteristics.

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