The Effects of Spirituality on the Quality of Life of Persons with Cerebral Palsy : Focusing on the Mediating Effects of Social Support

2017 ◽  
Vol 28 (4) ◽  
pp. 97-120
Author(s):  
Il Gyo Jeong
2019 ◽  
Vol 18 ◽  
pp. e019002
Author(s):  
Katarína Molnárová Letovancová ◽  
Miriam Slaná ◽  
Michaela Hromková

The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale ("FQOL"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the "Emotional Well-Being" dimension (13.2551 points) and "Social Support" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.


2014 ◽  
Vol 13 (4) ◽  
Author(s):  
Mercè Boixadós ◽  
Benigna Gómez-Zúñiga ◽  
Eulàlia Hernández-Encuentra ◽  
Noemí Guillamón ◽  
Diego Redolar-Ripoll ◽  
...  

The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers’ burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers’ needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the “peer-to-peer” and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy.


AIDS Care ◽  
2014 ◽  
Vol 26 (8) ◽  
pp. 996-1003 ◽  
Author(s):  
Wen-Li Hou ◽  
Chia-En Chen ◽  
Hsiao-Ying Liu ◽  
Yi-Yin Lai ◽  
Hsin-Chun Lee ◽  
...  

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