scholarly journals Quality of life of mothers who have children with developmental disabilities

Author(s):  
Jasmina Mahmutović ◽  
Najda Veladžić ◽  
Amra Mačak Hadžiomerović ◽  
Suada Branković ◽  
Hadžan Konjo ◽  
...  

Introduction: The primary source of strength and support is the child’s family. A special role in caring for a child with developmental disabilities is played by his mother. The objective of this research is to find out the assessment of the quality of life (QOL) of disabled children mothers as well as to research the relation of sociodemographic variables of the respondents, as specified in this study and estimate the quality of their life and health.Methods: The cross-sectional study was performed by the use of the descriptive-analytical method. In a targeted association of families which have children and persons with difficulties was conducted this research on a sample of 100 registered mothers. The research instrument was the standardized questionnaire for QOL, the World Health Organization QOL-BREF and the users’ records of the mothers in the association.Results: The average age of the respondents was M = 48. 01 ± 11. 68. About 62% of the respondents are married, 54% have a high school diploma, 67% are not employed, 68% of the respondents did not declare to have health problems, and among those who declared to have health problems, the most common disease was diabetes mellitus. The average number of household members was M = 3. 44 members. The number of the household members was significantly and positively related to the domain of social interaction (rs = 0. 219; p < 0. 05), the domain of the environment (rs = 0. 220; p < 0. 05) and to the general QOL (rs = 0. 227; p < 0. 05). The age of the respondents was significantly and positivelyrelated only to the environmental domain (rs = 0. 205; p < 0. 05). The respondents who drive a car showed a significantly higher level of QOL in the field of mental health (p = 0. 042) and the environment (p = 0. 005). Concerning mothers with higher incomes rate, their QOL was better in the following domains: Physical health (p = 0. 030), mental health (p = 0. 002), environment (p = 0. 000001), and general QOL (p = 0. 0002).Conclusion: The respondents with a larger number of household members, those who have the support of family members, who were without health problems, and who independently use own car for transportation, consider their QOL as being better. Therefore, a promotional – preventive program for improving the life quality of mothers of children and persons with disabilities should include accessible life in the community and the ability to recognize the unique needs of the entire family of children and persons with disabilities.

Author(s):  
Kelly da Silva ◽  
Raphaela Barroso Guedes-Granzotti ◽  
Vanessa Veis Ribeiro ◽  
Rodrigo Dornelas ◽  
Pablo Jordão Alcântara Cruz ◽  
...  

Purpose The aim of this study was to identify the factors that are related to the quality of life and sleep of Brazilian speech-language pathology students during the COVID-19 pandemic. Method This study adopted a cross-sectional, descriptive observational design. A total of 161 undergraduate speech-language pathology students participated in this study. The relationship between quality of life and sleep, socioeconomic characteristics, and health problems was examined using correlational analysis. Participant data were collected using an online form, which included questions that assessed their socioeconomic and health characteristics during the pandemic; the Pittsburgh Sleep Quality Index; and the first two questions of the World Health Organization Quality of Life–Brief Version. Results There were relationships between sleep dysfunction, a reduction in household income during the pandemic, membership to a risk group, living with at-risk individuals, time spent on the Internet (hours), and the purpose underlying Internet use. Satisfaction with health was related to membership to a risk group. Perceptions of the negative impact of the pandemic on mental health were related to sleep dysfunction and quality of life during the pandemic. Conclusion The present findings underscore the need for policies that promote health, prevent diseases, and address mental health problems during times of crisis, such as the COVID-19 pandemic.


Author(s):  
Elainy da S. Camilo Loiola ◽  
Tiago Oliveira Loiola ◽  
Renan Santos Mugrabi

The literature indicates a high prevalence of mental disorders in the university population and reveals the vulnerability of this public to psychic illness. Thus, exploring protective and risk constructs related to mental health problems in higher education students is important to collaborate with more effective interventions. Studies already associate personal and academic characteristics including age, income, and academic performance with mental illness of university students. However, there is still little scientific knowledge about psychosocial predictors such as quality of life to psychological disorders in this population. This study analyzed the predictive effect of quality of life on mental health of academics from a Public University of western Amazonia of Brazil. A cross-sectional design was carried out with 301 university students, who responded to the instruments: Quality of Life of the World Health Organization (WHOQOL-bref); Maslach Burnout Invetory/Student SurveyBI (MBI-SS); General Health Questionnaire (QSG); and a socio-demographic and academic characterization form. The results of the regression analyses indicated that the Quality-of-Life domains predicted the dimensions of emotional exhaustion and professional efficacy of burnout syndrome and influenced the five factors of general health, namely psychic stress, desire for death, distrust in performance capacity, sleep disorders and psychosomatic disorders. These findings suggest that strategies focused on increasing quality of life can mitigate mental health problems among university students.


Author(s):  
Romany H. Gabra ◽  
Doaa F. Hashem ◽  
Gellan K. Ahmed

Abstract Background Most autism spectrum disorder (ASD) interventions evaluated child outcomes and ignoring the role of parent and family factors on both the immediate- and long-term effects of therapy. The purpose of this study was to determine the relationship between stigma, parent mental health problems, and quality of life and burden in families of children with ASD in Egypt and its risk factors. Seventy parents of ASD children were recruited from two child intervention centers. Participants were divided into two groups based on burden scale: caregivers of moderate burden (n = 27) and caregivers of severe burden (n = 43). All parents were evaluated for demographic data, zarit Burden Interview, socioeconomic scale, symptom checklist–90 (SCL90), Explanatory Model Interview Catalogue Community Stigma Scale (EMIC-CSS), and the World Health Organization Quality of Life–BREF (WHOQOL-BREF). Results Half of the parents reported significant stigma, particularly caregivers with a severe burden. Caregivers with severe burden had more depression and about twice the frequency of sensitivity and somatization problems, lower QoL (20%) as compared with caregivers with moderate burden. Parents with ASD had many associate factors such as work, male autistic children and their caregiver, age of children and parents, the severity of the condition, and disease duration with burden, stigma, QoL, and mental health problems. Conclusions This study linked the interrelationships between increased burden and stigma, impaired quality of life, and parental mental health problems; the presence of one of these variables was found to increase the risk of other variables.


Author(s):  
Rajeswari Sambasivam ◽  
Anitha Jeyagurunathan ◽  
Edimansyah Abdin ◽  
Saleha Shafie ◽  
Sherilyn Chang ◽  
...  

Abstract Purpose The physical and mental wellbeing of an individual is impacted by the type occupation one does. This study aims to establish the prevalence of mental and physical disorders, the association of occupational groups and health-related quality of life, and the extent of work-loss and work-cut back in past 30 days among the employed in the Singapore resident population. Methods Data from a population-based, epidemiological survey of a representative sample of Singapore citizens and permanent residents aged 18 years and above were used. Lifetime diagnosis of select mental disorders was established using the World Health Organization’s Composite International Diagnostic Interview version 3.0 (WHO-CIDI 3.0). Data on nicotine dependence, work productivity, quality of life and socio-demographics were obtained via self-report. Ten major occupational groups based on the Singapore Standard Occupational Classification were included in the analysis. Results The sample comprised 4021 employed individuals who were predominantly males (54.7%) and aged 35–49 years (35.4%). ‘Service and sales workers’ (22.6%), ‘Professionals’ (17.3%) and ‘Legislators, senior officials and managers’ (16.4%) were the three largest occupational groups. Socio-demographic characteristics differed significantly (p < 0.001) across all occupational groups. Lifetime prevalence of mood disorders among the employed was 8.4% and the most prevalent physical disorder was chronic pain (18.9%). No significant differences were observed in work productivity loss across the occupational groups. Conclusions The disparities in the socio-demographic characteristics and prevalence of mental and physical disorders across occupational categories provide policymakers with vital information to pilot effective interventions that can improve the psychosocial and physical conditions at work.


2021 ◽  
Author(s):  
Jonas Jardim de Paula ◽  
Danielle de Souza Costa ◽  
Antônio Geraldo Silva ◽  
Débora Marques de Miranda ◽  
Leandro Malloy-Diniz

Quality of Life (QoL) is a multidimensional estimate of biopsychosocial health and wellbeing.1 The COVID-19 pandemic led to an abrupt change in our lifestyle, demanding resilience and coping mechanisms2. Health care providers are in the frontline of COVID-19 patients’ diagnosis, treatment, and rehabilitation, and there is a well-documented impact of this context on their physical and mental health2. This might impact their wellbeing and reduce their quality of life. In this research letter, we investigated which factors are associated with QoL in Brazilian healthcare professionals. We aim to investigate both protective and risk factors for the four main aspects of QoL: physical, psychological, social relations, and environment. We assessed 97.771 Brazilian adults, most (92.3%) health professionals of different professions from all the five-country regions. All included individuals agreed in a written consent to participate. Participants showed an average of 35.45 years old (±9.49) and were predominantly female (80%). They answered an online questionnaire about sociodemographic aspects, measures of mental health, and quality of life in the first semester of 2020. A detailed description of the sample and procedures can be found elsewhere3. All participants answered the WHOQoL-BREF, a standardized tool for QoL assessment developed by the World Health Organization. Stepwise linear regression analysis was used to assess the role of sociodemographic factors, previously diagnosed mental disorders, COVID-19 related symptoms as well a series of specific questions regarding participants worries and perceptions about the pandemic, including the protective behaviors' adoption (social distancing, usage of masks and sanitizer, among others). A full list of variables (64 in total) is available on the SAMBE webpage (http://abpbrasil.org.br/pcabp/). Since we have a large sample size our statistical power is about 99% (alpha=0.01) to detect small effect sizes. To simplify our results and allow a more direct application to real-life settings we only included significant predictors which showed at least 1% of adjusted explained variance in the stepwise models. The stepwise regression model was summarized in the figure below. All regression models were significant (p&lt;0.001) as well all the predictors reported in the Figure. Total explained variance was 26% for Physical QoL, 27% for Psychological, 13% for Social Relations, and 19% for Environmental. A history of previous depression, presence of Headache, and the perception of worsening in home relationships were risk factors for lower QoL in all four domains. Our results suggest a multidimensional pattern of determinants of QoL in health care professionals in the early days of the pandemic. Interesting features emerged as predictors of QoL such as changes in home relationships, worsening in work productivity, and mental health. Expected and new predictors may shed light on which factors should be considered in interventions aiming at the development of mitigation of impact QoL in these populations.


2013 ◽  
Vol 2013 ◽  
pp. 1-8 ◽  
Author(s):  
Filip Morisse ◽  
Eleonore Vandemaele ◽  
Claudia Claes ◽  
Lien Claes ◽  
Stijn Vandevelde

The field of intellectual disability (ID) is strongly influenced by the Quality of Life paradigm (QOL). We aimed at investigating whether or not the QOL paradigm also applies to clients with ID and cooccurring mental health problems. This paper aims at stimulating a debate on this topic, by investigating whether or not QOL domains are universal. Focus groups with natural and professional network members were organized to gather qualitative data, in order to answer two questions: (1) Are the QOL dimensions conceptualized in the model of Schalock et al. applicable for persons with ID and mental health problems? (2) What are indicators relating to the above-mentioned dimensions in relation to persons with ID and mental health problems? The results offer some proof for the assumption that the QOL construct seems to have universal properties. With regard to the second question, the study revealed that the natural and professional network members are challenged to look for the most appropriate support strategies, taking specific indicators of QOL into account. When aspects of empowerment and regulation are used in an integrated manner, the application of the QOL paradigm could lead to positive outcomes concerning self-determination, interdependence, social inclusion, and emotional development.


2021 ◽  
pp. 56-58
Author(s):  
Binda Kumari

There are many diseases or health issues that commonly occur among Indians like Infectious, contagious and waterborne diseases such as typhoid, infectious hepatitis, diarrhea, worm infestations, measles, whooping cough, respiratory infections, malaria, tuberculosis, pneumonia etc. India is a country which is quite infamous for its sanitation and cleanliness. The chaotic waste management system and urban planning is responsible for the overowing gutters and scattered waste. School students has to suffer a lot because of this mismanagement. To add to the poor sanitary conditions, the population load is increasing each day. This has resulted in slums and poverty. The poor and unhealthy living is the primary cause for many health disorders (Mehta, 2014). The goals of the School Students Health problems continue to focus on disease prevention and health promotion, but have areas of expanded focus. First, the goals emphasize quality of life, wellbeing, and functional capacity—all important wellness considerations. Consistent with national health goals for the new millennium, this book is designed to aid all school students adopting healthy lifestyles that will allow them to achieve lifetime health, tness and wellness. This emphasis is based on the World Health Organization statement that “It is counterproductive to evaluate development of programs without considering their impact on the quality of life of the community. School Students can no longer maintain strict, articial divisions between physical and mental well-being (World Health Organization, 1995).” Second, the new national health goals take the “bold step” of trying to “eliminate” health disparities as opposed to reducing them as outlined in Healthy School Students.


2019 ◽  
Vol 207 (3) ◽  
pp. 137-139 ◽  
Author(s):  
Nicolas Rüsch ◽  
Alexandra Malzer ◽  
Nathalie Oexle ◽  
Tamara Waldmann ◽  
Tobias Staiger ◽  
...  

2020 ◽  
pp. 1-8
Author(s):  
S. M. J. Leijdesdorff ◽  
C. E. M. Huijs ◽  
R. M. C. Klaassen ◽  
A. Popma ◽  
T. A. M. J. van Amelsvoort ◽  
...  

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