Children with Epilepsy: Quality of Life and Psychosocial Needs

2000 ◽  
Vol 18 (1) ◽  
pp. 26-47 ◽  
Author(s):  
JOAN K. AUSTIN ◽  
DAVID W. DUNN
Keyword(s):  
Quality Of Life ◽  
Psychological Functioning ◽  
Intervention Studies ◽  
School Age Children ◽  
Future Research ◽  
School Age ◽  
Psychosocial Needs ◽  
Life Problems ◽  
Infants And Young Children

In this chapter, research related to quality of life in children with epilepsy and their psychosocial needs is reviewed. Nursing and nonnursing research reports and descriptions of instruments developed between January 1994 and February 1999 are included. Most research reports described quality-of-life problems, especially psychological functioning in school-age children. Less attention was devoted to psychosocial needs. Major gaps included intervention studies and research on infants and young children. Conclusions include recommendations for future research.

Temperament and the Impact of Stuttering in Children Aged 8–14 Years

2021 ◽  
Vol 64 (2) ◽  
pp. 417-432
Author(s):  
Kurt Eggers ◽  
Sharon Millard ◽  
Elaine Kelman
Keyword(s):  
Quality Of Life ◽  
Negative Affect ◽  
Early Adolescent ◽  
School Age Children ◽  
Future Research ◽  
School Age ◽  
Only Child ◽  
The Impact ◽  
Parent Version

Purpose The goal of this study was to evaluate possible associations between child- and mother-reported temperament, stuttering severity, and child-reported impact of stuttering in school-age children who stutter. Method Participants were 123 children who stutter (94 boys and 29 girls) who were between 9;0 and 14;10 (years;months) and their mothers. Temperament was assessed with the revised child and parent version of the Early Adolescent Temperament Questionnaire–Revised ( Ellis & Rothbart, 2001 ). The Overall Assessment of the Speaker's Experience of Stuttering (Yaruss & Quesal, 2006) was used to evaluate the stuttering impact. Results Child- and mother-reported Early Adolescent Temperament Questionnaire–Revised temperament factors correlated moderately. No statistically significant associations were found between temperament and stuttering severity. The temperament factors of Surgency (both child- and mother-reported) and Negative Affect (only child-reported) correlated moderately with the Overall Impact and several subsections (i.e., Speaker's Reactions, Daily Communication, and/or Quality of Life) of the Overall Assessment of the Speaker's Experience of Stuttering. Conclusions More extraverted and less fearful/shy children experience a lower overall impact of their stuttering. Children with higher levels of irritability and frustration experience a higher overall impact of their stuttering. Since children's ratings of temperament were more sensitive to these associations than mothers, this study supports the inclusion of child-reported temperament questionnaires in future research.

Quality of Life of Obese School-Age Children and their Mothers' Perspectives in Cairo, Egypt

2017 ◽  
Vol 8 (4) ◽  
pp. 269-285
Author(s):  
Mona Abo Baker Abd Ellatef ◽  
Ebtesam A. Elsayed ◽  
Khalil Abd Elmaksoud Abd Elhamed ◽  
Mohammed Almohaithef
Keyword(s):  
Quality Of Life ◽  
School Age Children ◽  
School Age

scholarly journals Emotional and behavioral outcomes and quality of life in school-age children born as late preterm: retrospective cohort study

2017 ◽  
Vol 58 (5) ◽  
pp. 332-341 ◽  
Author(s):  
Branka Polić ◽  
Andreja Bubić ◽  
Julije Meštrović ◽  
Joško Markić ◽  
Tanja Kovačević ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Retrospective Cohort Study ◽  
Retrospective Cohort ◽  
Behavioral Outcomes ◽  
Late Preterm ◽  
School Age Children ◽  
School Age

scholarly journals Quality of life of parents of school age children with a birth weight less than 1500 grams

2019 ◽  
Vol 91 (3) ◽  
pp. 151-157
Author(s):  
Leticia Alcántara-Canabal ◽  
Lucía Martínez-Pérez ◽  
Sara Gutiérrez-Alonso ◽  
Cristina Fernández-Baizán ◽  
Marta Méndez
Keyword(s):  
Quality Of Life ◽  
Birth Weight ◽  
School Age Children ◽  
School Age

Quality of Life among School Age Children with Congenital Heart Disease

2018 ◽  
Vol 9 (4) ◽  
pp. 221-236
Author(s):  
Amal A Hussien ◽  
Nora Abd-Elhamid Zaki ◽  
Saleh E. Emery
Keyword(s):  
Quality Of Life ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
School Age Children ◽  
School Age

scholarly journals The burden of severe asthma in childhood and adolescence: results from the paediatric U-BIOPRED cohorts

2015 ◽  
Vol 46 (5) ◽  
pp. 1322-1333 ◽  
Author(s):  
Louise Fleming ◽  
Clare Murray ◽  
Aruna T. Bansal ◽  
Simone Hashimoto ◽  
Hans Bisgaard ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Severe Asthma ◽  
School Age Children ◽  
Life Questionnaire ◽  
School Age ◽  
Poor Control ◽  
Paediatric Asthma ◽  
Quality Of Life Questionnaire ◽  
Impaired Quality

U-BIOPRED aims to characterise paediatric and adult severe asthma using conventional and innovative systems biology approaches.A total of 99 school-age children with severe asthma and 81 preschoolers with severe wheeze were compared with 49 school-age children with mild/moderate asthma and 53 preschoolers with mild/moderate wheeze in a cross-sectional study.Despite high-dose treatment, the severe cohorts had more severe exacerbations compared with the mild/moderate ones (annual medians: school-aged 3.0 versus 1.1, preschool 3.9 versus 1.8; p<0.001). Exhaled tobacco exposure was common in the severe wheeze cohort. Almost all participants in each cohort were atopic and had a normal body mass index. Asthma-related quality of life, as assessed by the Paediatric Asthma Quality of Life Questionnaire (PAQLQ) and the Paediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ), was worse in the severe cohorts (mean±se school-age PAQLQ: 4.77±0.15 versus 5.80±0.19; preschool PACQLQ: 4.27±0.18 versus 6.04±0.18; both p≤0.001); however, mild/moderate cohorts also had significant morbidity. Impaired quality of life was associated with poor control and airway obstruction. Otherwise, the severe and mild/moderate cohorts were clinically very similar.Children with severe preschool wheeze or severe asthma are usually atopic and have impaired quality of life that is associated with poor control and airflow limitation: a very different phenotype from adult severe asthma. In-depth phenotyping of these children, integrating clinical data with high-dimensional biomarkers, may help to improve and tailor their clinical management.

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