Waiting as Performative and Relational: A Narrative Inquiry Study Into the Experiences of Women Who Use Substances

2021 ◽  
pp. RTNP-D-20-00005
Author(s):  
Georgia Dewart ◽  
Andrew Estefan ◽  
D. Jean Clandinin ◽  
Vera Caine

Background and PurposeThe act of waiting in health care is becoming increasingly prevalent worldwide. Waiting in health care is not a neutral activity; it is filled with expectations marked by cultural and social norms. In this article, we consider the performative nature of waiting by reflecting on the experiences of two participants in a narrative inquiry study.MethodsDrawing on a narrative inquiry study focused on the experiences of three women who disclosed illegal substance use during their pregnancy or early postnatal period, we inquired into two participants' experiences of waiting. The study which took place in a large urban center in Western Canada, where the researcher connected with participants who faced numerous challenges due to poverty, stigma, and discrimination.ResultsSharing the narratives of Georgia Dewart, and participants Renate, and Marilynn, we explore the performative act of waiting in their interactions with health care. We consider the political and social implications of the act in order to explore the subtleties and overlooked consequences of waiting. This work encourages the nursing profession to address overlooked aspects of care, such as the act of waiting.Implications for PracticeOur findings draw attention to the normative expectations within participants' experiences of waiting. This work offers methodological considerations for those engaging with Butler's concept of performativity when considering everyday acts. We also challenge care providers to reflect on their experiences working with clients, families, and communities to consider both the relational and performative nature of these interactions.

Author(s):  
Asia L. van Buuren ◽  
Susan E. O’rinn ◽  
Hayley Lipworth ◽  
Paige Church ◽  
Anne Berndl

PURPOSE: Despite an increasing number of individuals with spina bifida reaching reproductive age, there has been a paucity of research into their reproductive health care needs. The objective of this study was to better understand the reproductive health experiences of self-identified women with spina bifida using qualitative methodology. METHODS: A phenomenological study design was used to address this objective. Women with spina bifida identified their interest in participating in a semi-structured interview after completing an online reproductive health survey. Interviews were recorded and transcribed verbatim. Qualitative analysis followed a phenomenological approach using Dedoose software. RESULTS: Twelve self-identified women with spina bifida participated. They described experiences in four domains: sexual education, pregnancy, labor and delivery, and postpartum. In addition, an intersecting domain of social justice and advocacy emerged. Numerous themes are described, including a lack of tailored sexual health information, impact of pregnancy on function, attitudes towards delivery method, and parenting challenges. CONCLUSION: This study explored the continuum of reproductive health experiences of women with spina bifida. They face unique reproductive health challenges that provide an opportunity for health care providers to offer more holistic care.


Author(s):  
Sourav Goswami ◽  
Subodh S. Gupta ◽  
Abhishek V. Raut ◽  
Bishan S. Garg

Background: Melghat, the hilly and forest dense area in the northeastern Maharashtra is the home of the Gond and Korku tribes. The maternal and child health indicators in Melghat are poor compared to other parts of Maharashtra. Apart from poor socio-economic development, traditions and social norms prevailing in the area also prevent people to seek reproductive health care. The current study tried to capture the perception of women in reproductive health regarding their practices during the antenatal, natal and postnatal period and reasons for not seeking medical advice during pregnancy or childbirth. Methods: This qualitative study was conducted during September to October 2015 in the selected villages under three PHC areas of Melghat region, where we used in-depth, key informant interviews and focus group discussion with the purposively chosen participants, after taking verbal consent from them. All the interviews were audio recorded which were transcribed for doing the analysis. Ethical clearance was taken from institutional ethical committee. Results: We identified different practices during the antenatal, natal and postnatal period in Melghat, which could be classified into common and deviant. Though some of the mothers go to health facilities for delivery but still there are many others who prefer home delivery due to poor health literacy, family customs, poor communication network, perception regarding quality of health care in government health facilities and more reliance on health seeking from unqualified health care providers and faith healers. Conclusions: More emphasis should be given on counselling for increasing the awareness among the mothers and their families regarding institutional delivery, birth preparedness and maternal deaths in Melghat, along with improvement in quality of services at government health facilities and the inter-sectorial coordination. 


2020 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Danielle Pollock ◽  
Megan Cooper ◽  
Alexa McArthur ◽  
Timothy Barker ◽  
Zachary Munn

2009 ◽  
Vol 9 (1) ◽  
Author(s):  
Mwifadhi Mrisho ◽  
Brigit Obrist ◽  
Joanna Armstrong Schellenberg ◽  
Rachel A Haws ◽  
Adiel K Mushi ◽  
...  

2005 ◽  
Vol 24 (4) ◽  
pp. 379-394 ◽  
Author(s):  
Catherine Ward-Griffin ◽  
Judith Belle Brown ◽  
Anthony Vandervoort ◽  
Susan McNair ◽  
Ian Dashnay

ABSTRACTThe purpose of this feminist narrative study was to examine the experiences of women in four different health professions (nursing, medicine, physiotherapy, and social work) who provided care to elderly relatives. Although caring is a central and common feature of the personal and professional lives of many women (Baines, Evans, & Neysmith, 1991; Baines, 2004), the separation of professional, paid caregiving from family, unpaid caregiving among health care providers is problematic. Study findings suggest that female health professionals who assume familial responsibilities continually negotiate the boundaries between their professional and personal caring work. Despite the use of a variety of strategies for managing their double-duty caregiving demands, many women experienced a dramatic blurring or erosion of these boundaries, resulting in feelings of isolation, tension, and extreme physical and mental exhaustion. These findings suggest that women who are double-duty caregivers, especially those with limited time, finances, or other tangible supports, may experience poor health, which warrants further study.


1999 ◽  
Vol 27 (2) ◽  
pp. 203-203
Author(s):  
Kendra Carlson

The Supreme Court of California held, in Delaney v. Baker, 82 Cal. Rptr. 2d 610 (1999), that the heightened remedies available under the Elder Abuse Act (Act), Cal. Welf. & Inst. Code, §§ 15657,15657.2 (West 1998), apply to health care providers who engage in reckless neglect of an elder adult. The court interpreted two sections of the Act: (1) section 15657, which provides for enhanced remedies for reckless neglect; and (2) section 15657.2, which limits recovery for actions based on “professional negligence.” The court held that reckless neglect is distinct from professional negligence and therefore the restrictions on remedies against health care providers for professional negligence are inapplicable.Kay Delaney sued Meadowood, a skilled nursing facility (SNF), after a resident, her mother, died. Evidence at trial indicated that Rose Wallien, the decedent, was left lying in her own urine and feces for extended periods of time and had stage I11 and IV pressure sores on her ankles, feet, and buttocks at the time of her death.


Author(s):  
Pauline A. Mashima

Important initiatives in health care include (a) improving access to services for disadvantaged populations, (b) providing equal access for individuals with limited or non-English proficiency, and (c) ensuring cultural competence of health-care providers to facilitate effective services for individuals from diverse racial and ethnic backgrounds (U.S. Department of Health and Human Services, Office of Minority Health, 2001). This article provides a brief overview of the use of technology by speech-language pathologists and audiologists to extend their services to underserved populations who live in remote geographic areas, or when cultural and linguistic differences impact service delivery.


Sign in / Sign up

Export Citation Format

Share Document