scholarly journals Custos Associados à Prestação Informal de Cuidados a Pessoas com Demência

2020 ◽  
Vol 33 (13) ◽  
Author(s):  
Cátia Luz Pires ◽  
Natália Duarte ◽  
Constança Paúl ◽  
Oscar Ribeiro
Keyword(s):  
Social Services ◽  
Informal Care ◽  
Family Income ◽  
Health Sector ◽  
Good Method ◽  
Care Recipient ◽  
Health And Social Services ◽  
Continuous Care ◽  
The Family ◽  
Use Of Services

Introduction: From a perspective that considers the costs borne by the informal caregiver and the care-recipient, this study quantifies and values the use of health and social services, and the time dedicated to caregiving in dementia situations.Material and Methods: Sociodemographic information and use of services was obtained from 123 caregiving dyads. Costs with informal care were evaluated and valued considering the Health Sector (health services), Patient/Family Sector (time of caregiving) and Other Sectors (social services, continuous care, other private services). Costs with health and social services considered the paying person; the Patient/Family Sector was valued through the proxy-good method. The costs were calculated per month and the value for 100 dyads.Results: The total cost of informal care was €61 982.2/month per 100 dyads. The Patient/Family Sector value (€44 030.0/month) contributed with 71.0% of the total costs, Other Sectors with 20.8% (€12 887.4/month), and the Health Sector with 8.2% (€5064.8/month).Discussion: The obtained value per dyad (€619.8/month) represents 77.5% of their monthly income (median = €800.0; interquartile range = 679.0), which can limit the decision of continuing the care provision at home. Considering the values presented for this specific sample, it is estimated that the exemption of fees in the Health Sector and/or benefits in social services may contribute to a downward estimate of the costs.Conclusion: Regardless of the complexity in estimating the costs associated with informal caregiving in dementia, this paper provides some insights on the burden they can represent for the family income.

Market of Resources for Health Care Teleservices Management

2010 ◽  
pp. 913-917 ◽  
Author(s):  
Maria Manuela Cunha ◽  
Goran D. Putnik ◽  
Ricardo Simões
Keyword(s):  
Social Services ◽  
Business Processes ◽  
Health Sector ◽  
Improve Patient Care ◽  
Public And Private ◽  
Services Sector ◽  
Health And Social Services ◽  
Strategic Direction ◽  
European Health ◽  
Improve Patient

According to a report on e-marketplaces for the health sector (Kuller, 2005), the European Health and Social Services sector is a complex web of “businesses” and “customers,” characterized by a combination of public and private providers who control the strategic direction and finances. The services are delivered by microbusinesses, that is, hospitals, clinics, general practitioners, and specialists, and delivered through government, public, or nonprofit bodies, not the private sector (although this is slowly changing in some countries) (Kuller, 2005). The resulting absence of the profit goal means that the motivation for changing business processes and implementing tools is driven by a need to improve “patient care,” and not a desire to make or save money. This partly explains why the Health and Social Services sector lags behind others with regard to IT infrastructure in place and e-business usage.

Is longer waiting time associated with health and social services utilization before treatment? A randomized study

2007 ◽  
Vol 12 (4) ◽  
pp. 209-214 ◽  
Author(s):  
Johanna Hirvonen ◽  
Marja Blom ◽  
Ulla Tuominen ◽  
Seppo Seitsalo ◽  
Matti Lehto ◽  
...  
Keyword(s):  
Social Services ◽  
Informal Care ◽  
Home Health Care ◽  
Waiting Time ◽  
Joint Replacement ◽  
Randomized Study ◽  
Utilization Rate ◽  
Services Utilization ◽  
Health And Social Services ◽  
Joint Replacement Surgery

Objective: To determine whether longer waiting time for major joint replacement is associated with health and social services utilization before treatment. Methods: When placed on the waiting list, patients were randomized to short (≤3 months) or a non-fixed waiting time. Utilization measures were the use of home health care, rehabilitation and social services before treatment. Results: A total of 833 patients with osteoarthritis of the hip or knee joint were recruited into the study. Six hundred and twenty-two patients were included in the analysis. The majority of patients were not using any services before hospital admission for joint replacement surgery. The most commonly used service was unpaid home help provided by relatives, neighbours, friends and volunteers (informal care). In both groups, private support services were utilized more often than public ones. Patients with a short waiting time were more likely than those with a non-fixed waiting time to use rehabilitation (13.5% versus 8.2%, P = 0.032) and visiting care services (7.5% versus 3.9%, P = 0.054). Conclusions: Only a few patients used professional care. They were more likely to require informal care during the waiting time. A longer waiting time did not result in a higher utilization rate before admission for treatment.

Nobody asked me how I felt: experiences of adult children of persons with young-onset dementia

2014 ◽  
Vol 26 (12) ◽  
pp. 1935-1944 ◽  
Author(s):  
Maria Lage Barca ◽  
Kirsten Thorsen ◽  
Knut Engedal ◽  
Per Kristian Haugen ◽  
Aud Johannessen
Keyword(s):  
Social Services ◽  
Adult Children ◽  
Qualitative Interviews ◽  
Research Field ◽  
Young Onset ◽  
Health And Social Services ◽  
The Family ◽  
Living Together ◽  
Centered Care ◽  
Young Onset Dementia

ABSTRACTBackground:There are few studies of young persons (<65 years old) with dementia, and the situation of their children has been a neglected research field. The aim is explore how adult children of a parent with young-onset dementia have experienced the development of their parents’ dementia and what needs they have for assistance.Method:Qualitative interviews with 14 informants (aged 20–37 years; 12 daughters, 2 sons) during 2011 were conducted and analyzed thematically.Results:The informants experienced great burdens and felt neglected during the development of their parents’ dementia, both by their family and by health and social services. They emphasized a need to be seen as individuals, with their experiences, feelings, and personal needs for assistance. The stresses experienced during the development of parental dementia seemed to increase conflicts in the family. There were variations in reactions between children, depending on age, gender, family structure and relationships, responsibilities, personal relations with both parents, and whether there was an adult primary caregiver. The length of time living together with the parent with dementia seemed to increase the stress and burden to the children. They expressed a great need for information and support.Conclusion:The findings strengthen the notion of the need for family-oriented support, combined with person-centered care for the children according to their needs. In addition, group meetings and contact with other young people in the same stage of life could be of interest for some.

Depression in the Developing World

2017 ◽  
Author(s):  
Harry Minas
Keyword(s):  
Mental Health ◽  
International Development ◽  
Social Services ◽  
Development Programs ◽  
Middle Income ◽  
Health And Social Services ◽  
Middle Income Countries ◽  
Culturally Informed ◽  
Global Understanding

This chapter provides an overview of what is known about prevalence, social determinants, treatment, and course and impact of depression in developing, or low- and middle-income, countries. The importance of culture in depression and in the construction and application of diagnostic classifications and in health and social services is highlighted, with a particular focus on the applicability of ‘Western’ diagnostic constructs and service systems in developing country settings. The role of international organizations, such as WHO, and international development programs, such as the SDGs, in improving our understanding of depression and in developing effective and culturally appropriate responses is briefly examined. There is both a need and increasing opportunities in developing countries for greater commitment to mental health of populations, increased investment in mental health and social services, and culturally informed research that will contribute to improved global understanding of mental disorders in general and depression in particular.

scholarly journals The Integration of Psychosocial Care into National Dementia Strategies Across Europe: Evidence from the Skills in DEmentia Care (SiDECar) Project

2021 ◽  
Vol 18 (7) ◽  
pp. 3422
Author(s):  
Ilaria Chirico ◽  
Rabih Chattat ◽  
Vladimíra Dostálová ◽  
Pavla Povolná ◽  
Iva Holmerová ◽  
...  
Keyword(s):  
Content Analysis ◽  
Clinical Practice ◽  
Social Services ◽  
Psychosocial Care ◽  
Psychosocial Interventions ◽  
System Of Care ◽  
Dementia Care ◽  
Integrated System ◽  
Health And Social Services

There is evidence supporting the use of psychosocial interventions in dementia care. Due to the role of policy in clinical practice, the present study investigates whether and how the issue of psychosocial care and interventions has been addressed in the national dementia plans and strategies across Europe. A total of 26 national documents were found. They were analyzed by content analysis to identify the main pillars associated with the topic of psychosocial care and interventions. Specifically, three categories emerged: (1) Treatment, (2) Education, and (3) Research. The first one was further divided into three subcategories: (1) Person-centred conceptual framework, (2) Psychosocial interventions, and (3) Health and social services networks. Overall, the topic of psychosocial care and interventions has been addressed in all the country policies. However, the amount of information provided differs across the documents, with only the category of ‘Treatment’ covering all of them. Furthermore, on the basis of the existing policies, how the provision of psychosocial care and interventions would be enabled, and how it would be assessed are not fully apparent yet. Findings highlight the importance of policies based on a comprehensive and well-integrated system of care, where the issue of psychosocial care and interventions is fully embedded.

scholarly journals Strategies for involving patients and the public in scaling-up initiatives in health and social services: protocol for a scoping review and Delphi survey

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Ali Ben Charif ◽  
◽  
Karine V. Plourde ◽  
Sabrina Guay-Bélanger ◽  
Hervé Tchala Vignon Zomahoun ◽  
...  
Keyword(s):  
Social Services ◽  
Scoping Review ◽  
Delphi Study ◽  
Public Involvement ◽  
Scale Up ◽  
Scaling Up ◽  
Delphi Survey ◽  
The Public ◽  
Health And Social Services ◽  
Scoping Reviews

Abstract Background The scale-up of evidence-based innovations is required to reduce waste and inequities in health and social services (HSS). However, it often tends to be a top-down process initiated by policy makers, and the values of the intended beneficiaries are forgotten. Involving multiple stakeholders including patients and the public in the scaling-up process is thus essential but highly complex. We propose to identify relevant strategies for meaningfully and equitably involving patients and the public in the science and practice of scaling up in HSS. Methods We will adapt our overall method from the RAND/UCLA Appropriateness Method. Following this, we will perform a two-prong study design (knowledge synthesis and Delphi study) grounded in an integrated knowledge translation approach. This approach involves extensive participation of a network of stakeholders interested in patient and public involvement (PPI) in scaling up and a multidisciplinary steering committee. We will conduct a systematic scoping review following the methodology recommended in the Joanna Briggs Institute Reviewers Manual. We will use the following eligibility criteria: (1) participants—any stakeholder involved in creating or testing a strategy for PPI; (2) intervention—any PPI strategy proposed for scaling-up initiatives; (3) comparator—no restriction; (4) outcomes: any process or outcome metrics related to PPI; and (5) setting—HSS. We will search electronic databases (e.g., Medline, Web of Science, Sociological Abstract) from inception onwards, hand search relevant websites, screen the reference lists of included records, and consult experts in the field. Two reviewers will independently select and extract eligible studies. We will summarize data quantitatively and qualitatively and report results using the PRISMA extension for Scoping Reviews (PRISMA-ScR) checklist. We will conduct an online Delphi survey to achieve consensus on the relevant strategies for PPI in scaling-up initiatives in HSS. Participants will include stakeholders from low-, middle-, and high-income countries. We anticipate that three rounds will allow an acceptable degree of agreement on research priorities. Discussion Our findings will advance understanding of how to meaningfully and equitably involve patients and the public in scaling-up initiatives for sustainable HSS. Systematic review registration We registered this protocol with the Open Science Framework on August 19, 2020 (https://osf.io/zqpx7/).

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