scholarly journals How parents cope with the care of a child with epilepsy: Based upon grounded theory

2020 ◽  
Author(s):  
Monirsadat nematollahi ◽  
Roghayeh Mehdi pour Rabori ◽  
Fatemeh Keshavarz ◽  
behnaz bagherian

Abstract Background: parents of children with epilepsy face health-related problems of their children. Coping strategies of parents, major caregivers, affect not only their stresses but also the children's quality of life. This study investigated the coping strategies of parents of children with epilepsy at two educational hospitals affiliated with Kerman University of Medical Sciences in Iran. Method: twenty parents (15 mothers and 5 fathers), and three nurses were selected using the purposive sampling method. Data were collected using qualitative semi-structured interviews and analyzed using the method suggested by Corbin and Strauss version 2008. The Interviews were conducted until thematic saturation was achieved. Results: the coping process had five phases: disbelief, patience, change to preserve, acceptance of the current situation, and self- empowerment.In summary, the parents of children with epilepsy had a five-phase coping strategy. The core category was "continued efforts of parents to restore calm."Conclusion: properly assessing the stresses of parents of children with epilepsy and their coping strategies may help medical staff and social workers provide more targeted support and balance the family function.

2019 ◽  
Author(s):  
Monirsadat nematollahi ◽  
Roghayeh Mehdi pour Rabori ◽  
Fatemeh Keshavarz ◽  
behnaz bagherian

Abstract Abstract: parents of children with seizure have to face the complicated health issues of their children. Coping strategies of parents as major care providers impact not only their handling of stresses on themselves, but also the children’s quality of life. This study investigated the coping processes of parents of children with seizure at two educational hospitals affiliated with the Kerman University of Medical Sciences in Iran. Method: Twenty parents (15 mothers and 5fathers) and three nurses were selected using the purposive sampling method. Data was collected using qualitative semi-structured interviews and analyzed using the method suggested by Corbin and Strauss. Interviews were conducted until thematic saturation was achieved. Results: The adaptation process had five phases: “Disbelief, Patience on what happened , patient on what happened, change to preserve, and acceptance of the current situation by the parents and her child and empowerment”. In summary, parents of children with seizure have a 5-phase coping strategy. Core category is achieved “continued efforts of parents to restore calm”. Conclusion: Properly assessing the stresses on parents of children with seizure and their coping strategies may help medical staff and social services provide more targeted support and promote the balance of the family function.


2020 ◽  
Author(s):  
Monirsadat nematollahi ◽  
Roghayeh Mehdi pour Rabori ◽  
Fatemeh Keshavarz ◽  
Behnaz Bagherian

Abstract Background: parents of children with seizure face the complicated health issues of their children. Coping strategies of parents as major care providers impact not only their handling of stresses on themselves but also the children's quality of life. This study investigated the coping processes of parents of children with a seizure at two educational hospitals affiliated with the Kerman University of Medical Sciences in Iran. Method: Twenty parents (15 mothers and 5fathers), and three nurses were selected using the purposive sampling method. Data was collected using qualitative semi-structured interviews and analyzed using the method suggested by Corbin and Strauss version 2008. The Interviews were conducted until thematic saturation was achieved. Results: The adaptation process had five phases: “Disbelief, Patience on what happened, change to preserve, acceptance of the current situation, and self- empowerment."In summary, the parents of children with seizure had 5-phase coping strategy. The Core category achieved was "continued efforts of parents to restore calm."Conclusion: Properly assessing the stresses on parents of children with seizure and their coping strategies may help medical staff and social services provide more targeted support and promote the balance of the family function.


2021 ◽  
Vol 31 (2) ◽  
Author(s):  
Behnaz Bagherian ◽  
Monirsadat Nematollahi ◽  
Roghayeh Mehdipour-Rabori

BACKGROUND፡ Parents of children with seizure face the complicated health issues of their children. Adaptation strategies of parents as major care providers impact not only their handling of stresses on themselves but also children's quality of life. This study investigated the adaptation processes of parents of children with seizure at two educational hospitals affiliated with Kerman University of Medical Sciences in Iran.METHODS: Twenty parents (15 mothers and 5 fathers), and three nurses were selected using purposive sampling method. Data was collected using qualitative semi-structured interviews and analyzed using the method suggested by Corbin and Strauss version 2008. The interviews were conducted until thematic saturation was achieved.RESULTS: The adaptation process had five phases: “Disbelief, Patience on what happened, change to preserve, acceptance of the current situation, and self- empowerment." In summary, the parents of children with seizure had a 5-phase adaptation strategy. The core category achieved was "continued efforts of parents to restore calm."CONCLUSION: Properly assessing the stresses’ resources on parents of children with seizure is necessary. Informing their adaptation strategies may help medical staff and social services to provide more targeted support and promote the balance of the family function.


2019 ◽  
Author(s):  
Turid Kristin Bigum Sundar ◽  
Kirsti Riiser ◽  
Milada Småstuen ◽  
Randi Opheim ◽  
Knut Løndal ◽  
...  

Abstract BackgroundOverweight and obesity are public concerns with risk of adverse health outcomes. Health-related quality of life (HRQoL) is lower in adolescents than children in general. An increase in body mass index (BMI) is associated with a decrease in HRQoL. The purpose of this study was to measure and explore the HRQoL among adolescents with overweight or obesity who had participated in an intervention study with the aim of increasing PA, reducing BMI and promoting HRQoL.Methods Mixed methods, with a convergent design, were used to investigate how different methodological approaches could expand our understanding of the adolescents’ HRQoL. Quantitative post-intervention data on HRQoL were collected among the 84 intervention participants, aged 13–14 years, using the KIDSCREEN 52 questionnaire. The data were compared with a Norwegian reference population of 244 individuals, and analysed using a non-parametric Mann-Whitney test. Qualitative semi-structured interviews were conducted with 21 adolescents from the intervention. A directed approach to content analysis was adopted, using the ten sub-scales from KIDSCREEN 52.ResultsHRQoL in the intervention sample was significantly reduced on the sub-scale of physical well-being compared to the reference population. The reference population scored significantly lower than the intervention sample on the sub-scale of parent relation and home life. No significant differences were found on the other sub-scales. The qualitative data supported the quantitative findings on the sub-scale of physical well-being, but showed that perceptions of fitness, energy level or health could vary. Regarding parent relations, the interviewees extended this to include relationships to other family members as equally important. Most of the interviewees expressed a negative view of their bodies, but not their clothing or accessories. This may explain why no statistically significant differences were found on these aspects in the results from the KIDSCREEN questionnaire. ConclusionThe use of the KIDSCREEN 52 instrument gave important indications about the adolescents’ HRQoL. Combining methods enabled a comprehensive approach to research on HRQoL, indicating better ways of providing help. More research using the benefits of mixed methods approaches is needed to further elucidate these findings.


2021 ◽  
Vol 31 (1) ◽  
Author(s):  
Sogand Tourani ◽  
Narges Rafiei ◽  
Shahnaz Rimaz ◽  
Seyed Kazem Malakouti ◽  
Alireza Heidari

BACKGROUND፡ Recently, one of the challenges in the health system of the country is the need for research contributing to policy-making. Therefore, it is crucial to develop activities in the field of knowledge Translation (KT). This study aimed to propose KT improvement strategies in universities of medical sciences in Iran.METHODS: In this qualitative study, 18 semi-structured interviews were conducted with key informants from the medical universities in Iran during January-July 2018. The transcribed documents were analyzed using the Gale framework analysis approach. Data organization was carried out using MAXQDA version 10 software.RESULTS: According to framework analysis, six KT improvement strategies were identified including improving the abilities and skills of researchers, improving the processes and quality of knowledge production, revising policies and laws, mproving the prerequisites, culture-building, and promoting the, use of evidence.CONCLUSION: Given the challenges and strategies outlined in this study, it seems that the mechanism of KT and its effects on improving health plans for policymakers and researchers has not been elucidated yet. Therefore, considerable changes in prerequisites, knowledge production processes, academic procedures, policies and laws are necessary for implementing KT in universities of medical sciences in Iran. 


2021 ◽  
pp. 125-140
Author(s):  
Jacky Reid ◽  
Andrea Nolan ◽  
Marian Scott

Abstract Animal welfare research is gradually moving towards inclusion of positive welfare, with the consideration of how animals can be provided a good life or a life worth living. The concept of quality of life, which originates from human medical sciences, definitely contributes to this. In this chapter the developers of the health-related quality of life tool for dogs share their expertise.


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