scholarly journals Health Care Providers’ Awareness on Medical Management of Children With Autism Spectrum Disorder: Cross-Sectional Study in Russia

2020 ◽  
Author(s):  
Yana Mukhamedshina ◽  
Rezeda Fayzullina ◽  
Irina Nigmatullina ◽  
Catrin Rutland ◽  
Veronika Vasina
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Health Care Providers ◽  
Medical Management ◽  
Online Survey ◽  
Autism Spectrum ◽  
Repetitive Behaviors ◽  
Spectrum Disorder ◽  
Care Providers ◽  
Positive Effects

Abstract Background: Autism spectrum disorder (ASD) is a complex developmental range of conditions that involves difficulties with social interaction and restricted/repetitive behaviors. Unfortunately, health care providers often experience difficulties in diagnosis and management of individuals with ASD and may have no knowledge about possible ways to overcome barriers in ASD patient interactions in healthcare settings. At the same time, the provision of appropriate medical services can have positive effects on habilitative progress, functional outcome, life expectancy and quality of life for individuals with ASD.Methods: This online survey designed research study evaluated the awareness and experience of students/residents (n=247) and physicians (n=100) in medical management of children with ASD, as well as the views and experiences of caregivers of children on the autism spectrum (n=158), all based in Russia.Results: We have established that the Russian medical community has limited ASD knowledge among providers, and have suggested possible reasons for this. Based on the online survey of students/residents, non-psychiatric physicians and caregivers of children diagnosed with ASD, the main problems pertaining to medical management of individuals with ASD were identified, and possible problem solving solutions within medical practice were proposed.Conclusions: Results of this study should be considered both when implementing measures to improve healthcare practices, and in developing models of effective medical management due to start in not only in Russia but also in a number of other countries.

scholarly journals Health care providers’ awareness on medical management of children with autism spectrum disorder: cross-sectional study in Russia

2022 ◽  
Vol 22 (1) ◽  
Author(s):  
Y. O. Mukhamedshina ◽  
R. A. Fayzullina ◽  
I. A. Nigmatullina ◽  
C. S. Rutland ◽  
V. V. Vasina
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Health Care Providers ◽  
Medical Management ◽  
Autism Spectrum ◽  
Repetitive Behaviors ◽  
Spectrum Disorder ◽  
Care Providers ◽  
Positive Effects ◽  
Children With Asd

Abstract Background Autism spectrum disorder (ASD) is a complex developmental range of conditions that involves difficulties with social interaction and restricted/repetitive behaviors. Unfortunately, health care providers often experience difficulties in diagnosis and management of individuals with ASD, and may have no knowledge about possible ways to overcome barriers in ASD patient interactions in healthcare settings. At the same time, the provision of appropriate medical services can have positive effects on habilitative progress, functional outcome, life expectancy and quality of life for individuals with ASD. Methods This online survey research study evaluated the awareness and experience of students/residents (n = 247) and physicians (n = 100) in the medical management of children with ASD. It also gathered the views and experiences of caregivers to children with ASD (n = 158), all based in Russia. Results We have established that the Russian medical community has limited ASD knowledge among providers, and have suggested possible reasons for this. Based on results from online surveys completed by students/residents, non-psychiatric physicians, and caregivers of children diagnosed with ASD, the main problems pertaining to medical management of individuals with ASD were identified. Possible problem solving solutions within medical practice were proposed. Conclusions The results from this study should be considered when implementing measures to improve healthcare practices, and when developing models for effective medical management, due to start not only in Russia but also in a number of other countries.

Autism comes to the hospital: The experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals

Autism ◽  
2014 ◽  
Vol 19 (4) ◽  
pp. 482-490 ◽  
Author(s):  
Barbara Muskat ◽  
Priscilla Burnham Riosa ◽  
David B Nicholas ◽  
Wendy Roberts ◽  
Kevin P Stoddart ◽  
...  
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Health Care Providers ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Care Providers

scholarly journals A review of emergency department visits made by youth and adults with autism spectrum disorder from the parent perspective

2018 ◽  
Vol 4 (1) ◽  
pp. 10-18 ◽  
Author(s):  
Yona Lunsky ◽  
Ami Tint ◽  
Jonathan A. Weiss ◽  
Anna Palucka ◽  
Elspeth Bradley
Keyword(s):  
Autism Spectrum Disorder ◽  
Health Care Providers ◽  
Autism Spectrum ◽  
Emergency Department Visits ◽  
Spectrum Disorder ◽  
Care Providers ◽  
Content Type ◽  
Adolescents And Adults ◽  
Ed Visits ◽  
Adults With Asd

Purpose Past research has shown individuals with autism spectrum disorder (ASD) visit hospital emergency departments (ED) at high rates. In order to assist individuals with ASD, their families and health care providers to improve ED care, it is important to understand these encounters in greater detail. The purpose of this paper is to provide a descriptive summary of the ED experiences of adolescents and adults with ASD, from the perspective of their families. Design/methodology/approach A subset of data from a larger prospective cohort study was used. Specifically, 46 parents of adolescents and adults with ASD provided details concerning 49 ED visits over a 12-month period. Findings Results suggest a range of presentations requiring ED use, and also diverse profiles of those with ASD who visited the ED, in terms of age, gender, and ASD severity. While overall degree of satisfaction with care received in the ED was high, parents provided recommendations to improve the ED experiences for their family members with ASD. Originality/value This is the first study to provide detailed accounts of ED visits from the perspective of parents of adolescents and adults with ASD. Families play an important role in the lives of individuals with ASD across the lifespan and it is important to include their perspective to improve hospital-based care for those with ASD.

scholarly journals Standards of diagnostic assessment for autism spectrum disorder

2019 ◽  
Vol 24 (7) ◽  
pp. 444-451 ◽  
Author(s):  
Jessica A Brian ◽  
Lonnie Zwaigenbaum ◽  
Angie Ip
Keyword(s):  
Autism Spectrum Disorder ◽  
Health Care Providers ◽  
Wait Time ◽  
Primary Care Providers ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Diagnostic Evaluation ◽  
Diagnostic Process ◽  
Care Providers ◽  
Community Based

Abstract The rising prevalence of autism spectrum disorder (ASD) has created a need to expand ASD diagnostic capacity by community-based paediatricians and other primary care providers. Although evidence suggests that some children can be definitively diagnosed by 2 years of age, many are not diagnosed until 4 to 5 years of age. Most clinical guidelines recommend multidisciplinary team involvement in the ASD diagnostic process. Although a maximal wait time of 3 to 6 months has been recommended by three recent ASD guidelines, the time from referral to a team-based ASD diagnostic evaluation commonly takes more than a year in many Canadian communities. More paediatric health care providers should be trained to diagnose less complex cases of ASD. This statement provides community-based paediatric clinicians with recommendations, tools, and resources to perform or assist in the diagnostic evaluation of ASD. It also offers guidance on referral for a comprehensive needs assessment both for treatment and intervention planning, using a flexible, multilevel approach.

Is acetaminophen safe in pregnancy?

2017 ◽  
Vol 17 (1) ◽  
pp. 445-446 ◽  
Author(s):  
Katsuhiro Toda
Keyword(s):  
Autism Spectrum Disorder ◽  
Adverse Effects ◽  
Pregnant Women ◽  
Health Care Providers ◽  
Motor Development ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Effective Dosage ◽  
Care Providers ◽  
In Pregnancy

AbstractAcetaminophen is thought to be the safest analgesic and antipyretic medicine for pregnant women, and it is widely used all over the world. However, prenatal acetaminophen was reported to be associated with asthma, lower performance intelligence quotient (IQ), shorter male infant anogenital distance (predicting poor male reproductive potential), autism spectrum disorder, neurodevelopmental problems (gross motor development, communication), attention-deficit/hyperactivity disorder, poorer attention and executive function, and behavioral problems in childhood. Each article has poor power to show risks of acetaminophen, however, the integration of the articles that showed adverse effects of acetaminophen may have power to show them. Acetaminophen use in childhood was associated with autism spectrum disorder, asthma symptoms, wheezing, and allergic disease. Acetaminophen is the safest medicine as analgesics for nociceptive pain and antipyretics in childhood and pregnancy. There is no alternative medication of acetaminophen. Acetaminophen should not be withheld from children or pregnant women for fears it might develop adverse effects. Acetaminophen should be used at the lowest effective dosage and for the shortest time. When we know the possible, rare but serious complications, we should use acetaminophen in pregnancy only when needed and no safer option for pain or fever relief is available. Health care providers should help inform the general lay public about this difficult dilemma.

scholarly journals Parenting a Child With Autism Spectrum Disorder: Perspective of Jordanian Mothers

2020 ◽  
pp. 104365962097063
Author(s):  
Khulood Kayed Shattnawi ◽  
Wafa’a M. Bani, Saeed ◽  
Ahlam Al-Natour ◽  
Mohammed M. Al-Hammouri ◽  
Manar Al-Azzam ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Health Care Providers ◽  
Family Relationships ◽  
Social Life ◽  
Public Awareness ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Care Providers ◽  
Wide Range ◽  
Financial Burdens

Introduction: Parenting a child diagnosed with autism spectrum disorder (ASD) is challenging for mothers because of concerns related to behavior, difficulties in accessing specialized care, and lack of community acceptance, yet their stories in Jordanian context are still unknown. Common challenges in Jordan include financial burdens, lack of public awareness, and lack of specialized knowledge even among health care providers, which may lead to delays in obtaining the diagnosis and interventions for ASD. Method: A phenomenological descriptive approach was used to explore and understand the mothers’ everyday lived experiences of raising a child with ASD. Semistructured interviews were conducted with 14 mothers to identify their challenges so that nurses can identify gaps in services, empower families, and facilitate optimum care to these Jordanian families. Findings: The main themes that emerged were (1) mothers’ journeys with the diagnosis, in which mothers recognized the abnormalities of their children, reported delays in getting the diagnosis and initiation of treatment, and described a wide range of reactions to the diagnosis from grief and guilt to a blessing from God; (2) the burden of care, by which mothers reported physical and emotional exhaustion, financial burdens, and concerns about the quality of available services; and (3) the consequences and the hurdle of having a child with ASD, which affected the family relationships and social life. Discussion: Jordanian mothers caring for children with ASD face several challenges, including physical, psychological, financial, and social challenges, in addition to limited specialized services. Identifying their unique challenges and needs are essential to support them, provide appropriate services and resources, and develop policies and guidelines for culturally competent quality services.

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