scholarly journals Influence of A Public Health Emergency On Care For Patients With Duchenne Muscular Dystrophy: An Online, Cross-Sectional Survey

2022 ◽  
Author(s):  
Shu Zhang ◽  
Shaoxia Wang ◽  
Yuru Dong ◽  
Xinyu Chen ◽  
Miao Hu ◽  
...  
Keyword(s):  
Public Health ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Public Health Emergency ◽  
Daily Activities ◽  
Rehabilitation Services ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
The Public

Abstract Background: The public health emergency has created challenges for the care of patients, particularly those with chronic diseases such as Duchenne muscular dystrophy. To elucidate the challenges faced by Chinese patients with Duchenne muscular dystrophy during the public health emergency coronavirus disease 2019 pandemic, we conducted an online cross-sectional survey, the responses of which were collected between March 27 and June 30, 2021. Results: In total, valid questionnaire responses were obtained from 2,105 patients, of whom 49 lived in pandemic lockdown areas. Of the 2,056 responders from non-lockdown areas, 42.8% reduced their outside daily activities, 49.4% reduced their use of rehabilitation services, 39.7% postponed regular follow-up appointments, and 40.8% complained of accelerated declines in motor function over the previous year. The corresponding figures for the 49 participants from lockdown areas were almost all higher, with 67.3% reducing outside daily activities, 44.9% reducing their use of rehabilitation services, 79.6% postponing regular follow-up appointments, and 55.1% complaining of accelerated declines in motor function. When asked whether they expected more assistance from society than they had received before the pandemic, 60.8% of patients in non-lockdown areas and 87.8% of those in lockdown areas responded affirmatively. When asked whether they felt more anxious than they had before the pandemic and needed psychological counseling, 11.5% of respondents in non-lockdown areas and 18.4% of respondents in lockdown areas responded affirmatively. In non-lockdown areas, 76% of respondents had at least one telemedicine visit, and 71% of them thought that telemedicine was helpful. In lockdown areas, 91.8% had used telemedicine at least once, and 66.7% of them found it helpful.Conclusions: These public health emergency control measures have affected the care of patients with chronic diseases worldwide, particularly pronounced in lockdown areas. It is imperative that healthcare workers assist patients and establish more robust chronic disease management systems. Telemedicine is an effective model for providing healthcare to such patients.

S.P.59 Current care practice in Duchenne Muscular Dystrophy in Europe – results of the CARE-NMD cross-sectional survey

2012 ◽  
Vol 22 (9-10) ◽  
pp. 886-887
Author(s):  
J. Vry ◽  
K. Gramsch ◽  
S. Rodger ◽  
V. Antonova ◽  
P. Brabec ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Care Practice ◽  
Cross Sectional Survey ◽  
Cross Sectional

scholarly journals COVID-19 Related Misconceptions and Prevention Practices Among the Public in a Southeastern City in Nigeria

2021 ◽  
Vol 5 (2) ◽  
pp. 149-159
Author(s):  
Sorochi Iloanusi ◽  
Osaro Mgbere ◽  
Nchebe-Jah Raymond Iloanusi ◽  
Ismaeel Yunusa ◽  
Ekere J. Essien
Keyword(s):  
Public Health ◽  
Scientific Evidence ◽  
Demographic Characteristics ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Anambra State ◽  
The Public ◽  
Creative Commons ◽  
Study Population ◽  
The Government

Introduction: The COVID-19 pandemic brought several misconceptions that could hinder individuals from taking necessary measures to prevent infection, thus, undermining the public health containment efforts. We aimed to assess the prevalence of COVID-19 related misconceptions and their associations with demographic characteristics and prevention practices in Onitsha city in Anambra state, Nigeria. Methods: We analyzed data from a cross-sectional survey of 140 adult residents of Onitsha city in Anambra state, Nigeria, conducted in March 2020. Descriptive and inferential statistics were used to describe the study population and determine the associations between COVID-19 misconceptions, demographic characteristics, and implementation of COVID-19 prevention practices. Data management and statistical analyses were conducted using SAS JMP Statistical DiscoveryTM Software version 14.3 (SAS Institute, Cary, North Carolina, USA). Results: The participants’ average age was 34.5 (SD: ±10.9) years, and most were males (54.3%). Misconceptions about COVID-19 among the study population resulted in markedly reduced compliance with nearly all prevention practices. Some participants believed that COVID-19 would not spread in Nigeria (34.4%, p<0.0001), was not fatal (10.8%, p<0.0001), can be prevented and cured through spiritual means (48.2%, P <0.0001), use of herbs (13.6%, P <0.0001), use of antibiotics (11.4%, p<0.0001) and that COVID-19 vaccine was available (25.4%, p<0.01). Misconception about the possibility of COVID-19 spread was significantly associated with non-compliance to all prevention practices (P<0.05) except travel restrictions. Conclusions and Implications for Translation: Our study suggests the need for the government to tailor interventions targeting the common misconceptions in Onitsha in order to improve the public’s trust and compliance with recommended COVID-19 prevention practices. Misconception has become a significant public health challenge, primarily as its prioritization over scientific evidence and guidelines directly affects the pandemic preparedness and control efforts and may cause more people to be at risk of contracting COVID-19.   Copyright © 2021 Iloanusi et al. Published by Global Health and Education Projects, Inc. This is an open-access article distributed under the terms of the Creative Commons Attribution License CC BY 4.0.

scholarly journals How Public Health Nurses Identify and Intervene in Child Maltreatment Based on the National Clinical Guideline

2014 ◽  
Vol 2014 ◽  
pp. 1-7 ◽  
Author(s):  
Paavilainen Eija ◽  
Helminen Mika ◽  
Flinck Aune ◽  
Lehtomäki Leila
Keyword(s):  
Public Health ◽  
Child Maltreatment ◽  
Clinical Guideline ◽  
Public Health Nurses ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Web Based ◽  
Content Areas ◽  
Maltreated Children ◽  
The Public

Objectives. To describe how Finnish public health nurses identify and intervene in child maltreatment and how they implement the National Clinical Guideline in their work.Design and Sample. Cross-sectional survey of 367 public health nurses in Finland.Measures. A web-based questionnaire developed based on the content areas of the guideline: identifying, intervening, and implementing.Results. The respondents reported they identify child maltreatment moderately (mean 3.38), intervene in it better (4.15), and implement the guideline moderately (3.43, scale between 1 and 6). Those with experience of working with maltreated children reported they identify them betterP<0.001, intervene betterP<0.001, and implement the guideline betterP<0.001than those with no experience. This difference was also found for those who were aware of the guideline, had read it, and participated in training on child maltreatment, as compared to those who were not aware of the guideline, had not read it, or had not participated in such training.Conclusions. The public health nurses worked quite well with children who had experienced maltreatment and families. However, the results point out several developmental targets for increasing training on child maltreatment, for devising recommendations for child maltreatment, and for applying these recommendations systematically in practice.

scholarly journals Parental Hesitancy and Concerns around Accessing Paediatric Unscheduled Healthcare during COVID-19: A Cross-Sectional Survey

2020 ◽  
Vol 17 (24) ◽  
pp. 9264
Author(s):  
Emma Nicholson ◽  
Thérèse McDonnell ◽  
Ciara Conlon ◽  
Michael Barrett ◽  
Fergal Cummins ◽  
...  
Keyword(s):  
Public Health ◽  
Health Services ◽  
Healthcare Services ◽  
Public Health Emergency ◽  
Relative Risk Ratio ◽  
Regression Analyses ◽  
Severe Stress ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
The Government

A decrease in attendance at emergency departments among paediatric populations has been reported during the Coronavirus Disease 2019 (COVID-19) pandemic. The present study sought to understand parents’ hesitancy and concerns around accessing healthcare during the pandemic using a cross-sectional survey of parents of children under the age of 16 (N = 1044) in Ireland. Multinomial and logistic regression analyses were used to determine the factors that influenced avoidance and hesitancy. In total, 34% of participants stated that their child required healthcare during the pandemic, of whom 22% decided against seeking healthcare. Parents who reported being much more hesitant about accessing healthcare were more likely to report mild–moderate (Relative Risk Ratio (RRR) = 2.31, CI: 1.54–3.47) and severe–extremely severe stress (RRR: 3.37, CI: 1.81–6.27). Parents who understood government advice to mean avoiding health services were more likely to be hesitant to attend (RRR: 1.71, CI; 1.10–2.67). These effects held when restrictions were beginning to be lifted. Higher levels of stress were associated with a parent believing that the government advice meant that they should not attend health services (OR: 1.66, CI: 1.14–2.41). Public health messaging must ensure parents are reassured on the accessibility and safety of paediatric healthcare services as this public health emergency continues.

National Assessment of Nursing Schools and Nurse Educators Readiness for Radiation Emergencies and Nuclear Events

2019 ◽  
Vol 13 (5-6) ◽  
pp. 936-945
Author(s):  
Tener Goodwin Veenema ◽  
Roberta Proffitt Lavin ◽  
Sarah Schneider-Firestone ◽  
Mary Pat Couig ◽  
Joanne C. Langan ◽  
...  
Keyword(s):  
Public Health ◽  
Large Scale ◽  
Low Frequency ◽  
Public Health Emergency ◽  
Nursing Schools ◽  
Perception Of Risk ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Specific Content ◽  
Nuclear Events

ABSTRACTNurses will play a crucial role in responding to a public health emergency resulting from nuclear war or other large-scale release of radiation into the environment and in supporting the National Health Security Strategy. Schools of nursing are ultimately responsible for developing a competent nursing workforce prepared to assess a population’s public health emergency needs and respond to these low-frequency but high-impact events. This responsibility includes the provision of specific content and training regarding how to respond and care for patients and communities in the event of a nuclear or radiation emergency. To date, however, there has been a lack of empirical evidence focusing specifically on nursing schools’ capacity to prepare nurses for radiation emergencies and nuclear events, as well as perception of risk. This study employed a cross-sectional survey administered to a nationwide sample of nursing school administrators and faculty to assess content, faculty expertise, planning, and perception of risk related to radiation emergencies and nuclear events.

scholarly journals COVID-19 Preparedness and Perceived Safety in Nursing Homes in Southern Portugal: A Cross-Sectional Survey-Based Study in the Initial Phases of the Pandemic

2021 ◽  
Vol 18 (15) ◽  
pp. 7983
Author(s):  
Óscar Brito Fernandes ◽  
Pedro Lobo Julião ◽  
Niek Klazinga ◽  
Dionne Kringos ◽  
Nuno Marques
Keyword(s):  
Public Health ◽  
Nursing Homes ◽  
Safety Culture ◽  
Work Experiences ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Perceived Safety ◽  
Public Health Emergencies ◽  
Southern Portugal

(1) Background: Nursing homes’ preparedness in managing a public health emergency has been poor, with effects on safety culture. The objective of this study was to assess nursing homes’ COVID-19 preparedness in southern Portugal, including staff’s work experiences during the pandemic. (2) Methods: We used a COVID-19 preparedness checklist to be completed by management teams, followed by follow-up calls to nursing homes. Thereafter, a survey of staff was applied. Data analysis included descriptive statistics, exploratory factor analysis, and thematic analysis of open-end questions. (3) Results: In total, 71% (138/195) of eligible nursing homes returned the preparedness checklist. We conducted 83 follow-up calls and received 720 replies to the staff survey. On average, 25% of nursing homes did not have an adequate decision-making structure to respond to the pandemic. Outbreak capacity and training were areas for improvement among nursing homes’ contingency plans. We identified teamwork as an area of strength for safety culture, whereas compliance with procedures and nonpunitive response to mistakes need improvement. (4) Conclusions: To strengthen how nursing homes cope with upcoming phases of the COVID-19 pandemic or future public health emergencies, nursing homes’ preparedness and safety culture should be fostered and closely monitored.

scholarly journals Impact of Mechanical Ventilation Methods on the Life Perception of Subjects With Duchenne Muscular Dystrophy: French Cross-Sectional Survey

2020 ◽  
Vol 65 (11) ◽  
pp. 1712-1720
Author(s):  
Ghilas Boussaïd ◽  
Caroline Stalens ◽  
Christian Devaux ◽  
Sandrine Segovia-Kueny ◽  
Frédéric Lofaso ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Cross Sectional Survey ◽  
Cross Sectional
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