scholarly journals Effects of Family-Based Dignity Intervention And Expressive Writing On Anticipatory Grief of Family Caregivers of Patient With Cancer: A Study Protocol For A Mixed Methods Study

2021 ◽  
Author(s):  
Naima Seyedfatemi ◽  
Tahereh Najafi Ghezeljeh ◽  
Jafar Bolhari ◽  
Masoud Rezaei
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Expressive Writing ◽  
Intervention Group ◽  
Structured Interview ◽  
Mixed Methods Study ◽  
Anticipatory Grief ◽  
Writing Group ◽  
Family Based

Abstract Background: Family caregivers of dying cancer patients are affected by grief experiences and bereavement complications. Several approaches such as psycho-emotional care and an increase in spirituality have been suggested to diminish these complications. However, no study has examined the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients. This study was done to describe the protocol of a mixed-methods study on the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients.Methods: This mixed-methods study will be done in an embedded explanatory design with two quantitative and qualitative phases. In the first phase (quantitative), a randomized clinical trial will be done, in which 200 family caregivers of dying cancer patients will be randomly assigned to one of the four groups: family-based dignity intervention (group 1), expressive writing intervention (group 2), combined family-based dignity intervention and expressive writing (group 3), and controls (group 4). At baseline, one week and two weeks after the interventions, anticipatory grief will be assessed by a 13-item anticipatory grief scale. After the quantitative phase, the qualitative phase will be conducted through the conventional content analysis approach of Granheim and Lundman, in which an individual semi-structured interview will be taken from participants in the first phase to collect data on their experiences on interventions. Finally, data from quantitative and qualitative phases will be analyzed and discussed.Discussion: Family caregivers of dying cancer patients usually experience depression, anxiety, and psychological distress due to isolation and inadequate social support. Psychological interventions such as dignity and expressive writing interventions may help caregivers to obtain a better understanding of themselves and to increase their abilities to cope with caregiving difficulties. Therefore, there is a need for a comprehensive study confirming the effects of mentioned interventions on family caregivers of dying cancer patients. Trial registration: Iranian Registry of Clinical Trials (www.irct.ir) IRCT20210111050010N1. Retrospectively registered 6 February 2021.

scholarly journals Effects of family-based dignity intervention and expressive writing on anticipatory grief of family caregivers of patients with cancer: a study protocol for a four-arm randomized controlled trial and a qualitative process evaluation

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Naima Seyedfatemi ◽  
Tahereh Najafi Ghezeljeh ◽  
Jafar Bolhari ◽  
Masoud Rezaei
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Study Protocol ◽  
Expressive Writing ◽  
Intervention Group ◽  
Mixed Methods Study ◽  
Trial Registration ◽  
Anticipatory Grief ◽  
Family Based

Abstract Background Family caregivers of dying cancer patients are affected by grief experiences and bereavement complications. Several approaches such as psycho-emotional care and an increase in spirituality have been suggested to diminish these complications. However, the knowledge about the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients is limited. This is a study protocol describing a hospital-based mixed-methods study on the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients. Methods This mixed-methods study will be done in an embedded explanatory design with two quantitative and qualitative phases. In the first phase (quantitative), a randomized clinical trial will be done, in which 200 family caregivers of dying cancer patients will be randomly assigned to one of the four groups: family-based single dignity intervention (group 1), expressive writing intervention (group 2), combined family-based single dignity intervention and expressive writing (group 3), and control (group 4). At baseline, 1 week and 2 weeks after the interventions, anticipatory grief will be assessed by a 13-item anticipatory grief scale. After the quantitative phase, the qualitative phase will be conducted through the conventional content analysis approach of Granheim and Lundman, in which an individual semi-structured interview will be taken from participants in the first phase to collect data on their experiences on interventions. Finally, data from the quantitative and qualitative phases will be analyzed and discussed. Discussion Family caregivers of dying cancer patients usually experience depression, anxiety, and psychological distress due to isolation and inadequate social support. Psychological interventions such as dignity and expressive writing interventions may help caregivers to obtain a better understanding of themselves and to increase their abilities to cope with caregiving difficulties. Therefore, there is a need for a comprehensive study confirming the effects of mentioned interventions on family caregivers of dying cancer patients. Trial registration Iranian Registry of Clinical Trials (www.irct.ir) identifier: IRCT20210111050010N1. Date of trial registration: Feb 6, 2021. This is the first version of this protocol.

scholarly journals Comparing perspectives of family caregivers and healthcare professionals regarding caregiver burden in dementia care: results of a mixed methods study in a rural setting

2019 ◽  
Vol 49 (2) ◽  
pp. 199-207
Author(s):  
Simon Krutter ◽  
Dagmar Schaffler-Schaden ◽  
Roland Essl-Maurer ◽  
Laura Wurm ◽  
Alexander Seymer ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Rural Areas ◽  
Healthcare Professionals ◽  
Mixed Methods Study ◽  
Rural Setting ◽  
Disruptive Behaviour ◽  
Cross Sectional Survey ◽  
Psychosocial Burden

Abstract Background Persons with dementia (PwD) need support to remain in their own homes as long as possible. Family caregivers, homecare nurses and general practitioners (GPs) play an important role in providing this support, particularly in rural settings. Assessing caregiver burden is important to prevent adverse health effects among this population. This study analysed perceived burden and needs of family caregivers of PwD in rural areas from the perspectives of healthcare professionals and family caregivers. Methods This was a sequential explanatory mixed methods study that used both questionnaires and semi-structured interviews. Questionnaires measuring caregiver burden, quality of life and nursing needs were distributed to the caregivers; health professionals received questionnaires with adjusted items for each group. Additionally, in-depth qualitative interviews were carried out with eight family caregivers. Results The cross-sectional survey population included GPs (n = 50), homecare nurses (n = 140) and family caregivers (n = 113). Healthcare professionals similarly assessed the psychosocial burden and stress caused by behavioural disturbances as most relevant. Psychological stress, social burden and disruptive behaviour (in that order) were regarded as the most important factors from the caregivers’ perspective. It was found that 31% of caregivers reported permanent or frequent caregiver overload. Eight themes related to caregiver burden emerged from the subsequent interviews with caregivers. Conclusions Professional support at home on an hourly basis was found to be highly relevant to prevent social isolation and compensate for lack of leisure among caregivers of PwD. Improvement of interprofessional dementia-related education is needed to ensure high-quality primary care.

scholarly journals Nursing management of fatigue in cancer patients: Mixed methods study

2019 ◽  
Vol 30 ◽  
pp. v844 ◽  
Author(s):  
A. Tolotti ◽  
L. Bonetti ◽  
A. Bordoni ◽  
N. Prieto-Casais ◽  
L. Moser ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Cancer Patients ◽  
Mixed Methods Study ◽  
Nursing Management

The impact of music therapy versus music medicine on psychological outcomes and pain in cancer patients: a mixed methods study

2014 ◽  
Vol 23 (5) ◽  
pp. 1261-1271 ◽  
Author(s):  
Joke Bradt ◽  
Noah Potvin ◽  
Amy Kesslick ◽  
Minjung Shim ◽  
Donna Radl ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Music Therapy ◽  
Cancer Patients ◽  
Psychological Outcomes ◽  
Mixed Methods Study ◽  
Music Medicine ◽  
The Impact

scholarly journals Legacy Beliefs Across Generations: Comparing Views of Older Parents and Their Adult Children

2018 ◽  
Vol 88 (2) ◽  
pp. 168-186
Author(s):  
Thomas M. Meuser ◽  
Thuli G. Mthembu ◽  
Brianne L. Overton ◽  
Nicolette V. Roman ◽  
Rebecca D. Miller ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Adult Child ◽  
Structured Interview ◽  
The Self ◽  
Mixed Methods Study ◽  
Mutual Understanding ◽  
New Approach ◽  
Older Parents ◽  
Parents And Children ◽  
Intention To Continue

This mixed-methods study examined legacy beliefs (i.e., anticipated remembrances and linkages to the self after death) as understood in 14 older parent and adult child pairs. This work validates and expands on a 2005 typology of legacy beliefs from gerontologists, Elizabeth Hunter and Graham Rowles. A structured interview was administered separately to parents and children, coded for legacy examples (i.e., those unique to the parent, overlapping, unique to the child), and analyzed with respect to expectations of similarity reported by each participant. Most predicted moderate to high overlap in mutual understanding of parent legacy. This was not the case, as there were far more unique legacy examples given than shared. Pairs agreed least with respect to material legacies, with half showing no agreement. All reported finding the structured discussion of legacy to be beneficial, with some indicating an intention to continue these discussions further. This work may constitute a new approach to intervention.

scholarly journals A Web-Based Psychosocial Intervention for Family Caregivers of Older People: Results from a Mixed-Methods Study in Three European Countries

2016 ◽  
Vol 5 (4) ◽  
pp. e196 ◽  
Author(s):  
Francesco Barbabella ◽  
Arianna Poli ◽  
Frida Andréasson ◽  
Benjamin Salzmann ◽  
Roberta Papa ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Older People ◽  
Family Caregivers ◽  
Psychosocial Intervention ◽  
Mixed Methods Study ◽  
European Countries ◽  
Web Based

scholarly journals Successful Negotiation of Goal Conflict between Romantic Partners Predicts Better Goal Outcomes During COVID-19: A Mixed Methods Study

2020 ◽  
Author(s):  
Laura Marika Vowels ◽  
Katherine Carnelley ◽  
Rachel Francois-Walcott
Keyword(s):  
Mixed Methods ◽  
Daily Diary ◽  
Extended Period ◽  
Structured Interview ◽  
Romantic Partners ◽  
Mixed Methods Study ◽  
Goal Conflict ◽  
Emotional Needs ◽  
Interdependence Theory ◽  
Conflict Strategies

Interdependence theory suggests that romantic partners become more interdependent as they spend more time together. Due to COVID-19, partners have been together for an extended period while coping with demands caused by the pandemic. This is likely to lead to instances of conflict between partners’ goals. Goal conflict is damaging for relationships as it continuously tests the commitment between partners. In a concurrent mixed-methods study, we investigated whether (negotiation of) goal conflict was associated with goal outcomes (progress, confidence, motivation) and what strategies partners used during the pandemic to negotiate goal conflict. Quantitative participants (n = 200) completed a daily diary for a week and weekly longitudinal reports for a month and qualitative participants (n = 48) attended a semi-structured interview. Results showed that higher goal conflict was associated with lower goal outcomes, and successful negotiation of goal conflict was associated with better goal outcomes. Qualitative analyses identified three conflict strategies (compromise, integration, concession). Conversations focused on both practical and emotional needs and included respectful communication and space from conflict (timeout or avoidance). The mixed-methods results suggest that goal conflict was relatively low during the pandemic and participants were often able to negotiate goal conflict resulting in better goal outcomes.

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