Investigation of the association between family members’ satisfaction with patient care in the Intensive Care Unit, spirituality and resilience

Abstract Background: The admission of a patient in the Intensive Care Unit (ICU) is a traumatic experience for the patient himself and his support group which mainly consists of his family members. The psychological burden of the family members increases, as they experience negative feelings. The implementation of family-centered care helps family members to satisfy their needs, eliminates psychological impact and improves patient’s health outcomes. The aim of this study is to investigate the family members’ satisfaction with patient care in the ICU, their perceived stress, spirituality and resilience.Methods: One hundred and four family members of patients admitted in the ICU for greater than 48 hours between January and March 2019 were enrolled. The questionnaire included the following psychometric tools: the Family Satisfaction with care in the Intensive Care Unit scale, the Perceived Stress Scale, the Connor – Davidson Resilience Scale, the Daily Spiritual Experience Scale and the Acute Physiology and Chronic Health Evaluation Scale.Results: The mean value of satisfaction with care was 88,9%, of satisfaction with decision making was 79,1% and of the overall satisfaction was 85%. Resilience was associated with perceived stress (p<0,001) and with spirituality (p= 0,019). Spirituality was associated with satisfaction with care (p= 0.013), with satisfaction with decision making (p= 0,018) and with the overall satisfaction (p= 0,003).Conclusions: Family members were highly satisfied. Those with higher spirituality score were more satisfied and those who were more resilient had less perceived stress. These data suggest that interventions should aim at increasing resilience and providing spiritual assistance to family members of ICU treated patients.

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Investigation of the association between family members’ satisfaction with patient care in the Intensive Care Unit, spirituality and resilience.

10.21203/rs.2.19526/v1 ◽

2019 ◽

Author(s):

Iokasti Papathanasiou ◽

Vasileios Tzenetidis ◽

Athanasios Nikolentzos ◽

Pavlos Sarafis ◽

Maria Malliarou

Keyword(s):

Intensive Care Unit ◽

Decision Making ◽

Intensive Care ◽

Patient Care ◽

Perceived Stress ◽

Family Members ◽

Satisfaction With Care ◽

Psychological Burden ◽

Unit Scale ◽

The Family

Abstract Background: The admission of a patient in the Intensive Care Unit (ICU) is a traumatic experience for the patient himself and his support group which mainly consists of his family members. The psychological burden of the family members increases, as they experience negative feelings. The implementation of family-centered care helps family members to satisfy their needs, eliminates psychological impact and improves patient’s health outcomes. The aim of this study is to investigate the family members’ satisfaction with patient care in the ICU, their perceived stress, spirituality and resilience.Methods: One hundred and four family members of patients admitted in the ICU for greater than 48 hours between January and March 2019 were enrolled. The questionnaire included the following psychometric tools: the Family Satisfaction with care in the Intensive Care Unit scale, the Perceived Stress Scale, the Connor – Davidson Resilience Scale, the Daily Spiritual Experience Scale and the Acute Physiology and Chronic Health Evaluation Scale. Results: The mean value of satisfaction with care was 88,9%, of satisfaction with decision making was 79,1% and of the overall satisfaction was 85%. Resilience was associated with perceived stress (p<0,001) and with spirituality (p= 0,019). Spirituality was associated with satisfaction with care (p= 0.013), with satisfaction with decision making (p= 0,018) and with the overall satisfaction (p= 0,003).Conclusions: Family members were highly satisfied. Those with higher spirituality score were more satisfied and those who were more resilient had less perceived stress. These data suggest that interventions should aim at increasing resilience and providing spiritual assistance to family members of ICU treated patients.

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Developing Family Satisfaction with Care in Adult Critical Care Public Hospital Terengganu, Malaysia

The Journal of Management Theory and Practice (JMTP) ◽

10.37231/jmtp.2021.2.2.101 ◽

2021 ◽

pp. 31-35

Author(s):

Wan Nor Aliza Wan Abdul Rahman ◽

Abdul Karim Othman ◽

Yuzana Mohd Yusop ◽

Asyraf Afthanorhan ◽

Hasnah Zani ◽

...

Keyword(s):

Intensive Care Unit ◽

Decision Making ◽

Intensive Care ◽

Shared Decision Making ◽

Family Members ◽

Family Satisfaction ◽

Satisfaction With Care ◽

Shared Decision ◽

Cross Sectional ◽

The Family

In admissions to the intensive care unit (ICU), there is a high possibility of a life-threatening condition and possible emotional distress for family members. When the family is distressed and hospitalized, a significant level of stress and anxiety will be generated among family members, thereby decreasing their ability to make responsible decisions. As a result, the family members need full and up-to-date details, helping them to retain hope, and this contributes to lower stress levels. While there is growing evidence of the effectiveness of shared decision-making for family members who are directly involved in decisions, particularly regarding shared decision-making in the Malaysian context, there is less evidence that supported decisions help overall outcome. This study aims to developing the family satisfaction with decision making in the Intensive Care Unit (FS-ICU)-33 Malay language version of family member’s satisfaction with care and decision making during their stay at the intensive care units. A quantitative, cross-sectional validation study and purposive sampling was conducted from 1st November 2017 and 10 October 2018 to January 2020 among 208 of family members. The family members of the ICU patients involved in this study had an excellent satisfaction level with service care. Higher satisfaction in ICU care resulting in higher decision-making satisfaction and vice versa.

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Half the family members of intensive care unit patients do not want to share in the decision-making process: A study in 78 French intensive care units*

Critical Care Medicine ◽

10.1097/01.ccm.0000139693.88931.59 ◽

2004 ◽

Vol 32 (9) ◽

pp. 1832-1838 ◽

Cited By ~ 174

Author(s):

Élie Azoulay ◽

Frédéric Pochard ◽

Sylvie Chevret ◽

Christophe Adrie ◽

Djilali Annane ◽

...

Keyword(s):

Intensive Care Unit ◽

Decision Making ◽

Intensive Care ◽

Intensive Care Units ◽

Family Members ◽

Decision Making Process ◽

The Family

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Measuring Family Satisfaction With Care Delivered in the Intensive Care Unit

Critical Care Nurse ◽

10.4037/ccn2016276 ◽

2016 ◽

Vol 36 (6) ◽

pp. e8-e14 ◽

Cited By ~ 12

Author(s):

Kathleen Clark ◽

Kerry A. Milner ◽

Marlene Beck ◽

Virginia Mason

Keyword(s):

Health Care ◽

Intensive Care Unit ◽

Decision Making ◽

Intensive Care ◽

Family Members ◽

Family Satisfaction ◽

Surgical Intensive Care Unit ◽

Satisfaction With Care ◽

Free Text ◽

The Mean

BackgroundIn our competitive health care environment, measuring the experience of family members of patients in the intensive care unit to ensure that health care providers are meeting families’ needs is critical. Surveys from Press Ganey and the Centers for Medicare and Medicaid Services are unable to capture families’ satisfaction with care in this setting.ObjectiveTo implement a sustainable measure for family satisfaction in a 12-bed medical and surgical intensive care unit. To assess the feasibility of the selected tool for measuring family satisfaction and to make recommendations that are based on the results.MethodA descriptive survey design using the Family Satisfaction in the Intensive Care Unit 24-item questionnaire to measure satisfaction with care and decision-making.ResultsForty family members completed the survey. Overall, the mean score for families’ satisfaction with care was 72.24% (SD, 14.87%) and the mean score for families’ satisfaction with decision-making was 72.03% (SD, 16.61%). Families reported that nurses put them at ease and provided understandable explanations. Collaboration, inclusion of families in clinical discussions, and timely information regarding changes in the patient’s condition were the most common points brought up in free-text responses from family members. Written communication, including directions and expectations, would have improved the families’ experience.ConclusionAlthough patients’ family members reported being satisfied with their experience in the intensive care unit, there is room for improvement. Effective communication among the health care team, patients’ families, and patients will be targeted for quality improvement initiatives.

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Family satisfaction in the trauma and surgical intensive care unit: another important quality measure

Trauma Surgery & Acute Care Open ◽

10.1136/tsaco-2019-000302 ◽

2019 ◽

Vol 4 (1) ◽

pp. e000302

Author(s):

Tom Maxim ◽

Agustin Alvarez ◽

Yvonne Hojberg ◽

Derek Antoku ◽

Chioma Moneme ◽

...

Keyword(s):

Intensive Care Unit ◽

Decision Making ◽

Intensive Care ◽

Language Translation ◽

Family Members ◽

Family Satisfaction ◽

Surgical Intensive Care Unit ◽

Satisfaction With Care ◽

Surgical Intensive Care ◽

Total Satisfaction

BackgroundA growing body of research has explored patient satisfaction as one of the healthcare quality measures. To date, scarce data are available regarding family experience in the trauma and surgical intensive care unit (TSICU). The purpose of this study was to describe and analyze the results of a family satisfaction survey in the TSICU.MethodsFamily members of patients at a level 1 trauma center were invited to participate in this study after 72 hours of intensive care unit stay. Participants completed a modified version of the Family Satisfaction in the Intensive Care Unit questionnaire, a validated survey measuring family satisfaction with care and decision-making. Data collection spanned from April 2016 to July 2017. Patient characteristics were compiled from the medical record. Quantitative analysis was performed using a 5-point Likert score, converted to a scale of 0 (poor) to 100 (excellent).ResultsThe overall response rate was 78.6%. Of the 103 family members for 88 patients, most were young (median age: 41 years) and female (75%). Language fluency was 44.6% English-only, 31.7% Spanish-only, and 23.8% bilingual. Mean summary family satisfaction scores (±SD) were 80.6±26.4 for satisfaction with care, 79.3±27.1 for satisfaction with decision-making, and 80.1±26.7 for total satisfaction. Respondents were less satisfied with the frequency of communication with physicians (70.7±27.4) and language translation (73.2±31.2).DiscussionOverall family satisfaction with the care provided to patients in the TSICU is high, although opportunities for improvement were noted in the frequency of communication between physicians and family and language translation services. Further quality improvement projects are warranted.Level of evidenceCare management study: level V.

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The Effect of Information Booklets on Family Members’ Satisfaction with Decision Making in an Intensive Care Unit of Malaysia

Journal of Young Pharmacists ◽

10.5530/jyp.2016.2.13 ◽

2016 ◽

Vol 8 (2) ◽

pp. 128-132 ◽

Cited By ~ 1

Author(s):

Hamidah Othman ◽

Pathmawathi Subramanian ◽

Noor Azizah Mohd Ali ◽

Haszalina Hassan ◽

Mainul Haque

Keyword(s):

Intensive Care Unit ◽

Decision Making ◽

Intensive Care ◽

Family Members

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Making a Connection: Family Experiences With Bedside Rounds in the Intensive Care Unit

Critical Care Nurse ◽

10.4037/ccn2018128 ◽

2018 ◽

Vol 38 (3) ◽

pp. 18-26 ◽

Cited By ~ 7

Author(s):

Shawn E. Cody ◽

Susan Sullivan-Bolyai ◽

Patricia Reid-Ponte

Keyword(s):

Intensive Care Unit ◽

Intensive Care ◽

Health Care Providers ◽

Family Members ◽

Management Style ◽

Family Management ◽

Care Providers ◽

Bedside Rounds ◽

The Family ◽

The Future

Background The hospitalization of a family member in an intensive care unit can be stressful for the family. Family bedside rounds is a way for the care team to inform family members, answer questions, and involve them in care decisions. The experiences of family members with intensive care unit bedside rounds have been examined in few studies. Objectives To describe (1) the experiences of family members of patients in the intensive care unit who participated in family bedside rounds (ie, view of the illness, role in future management, and long-term consequences on individual and family functioning) and (2) the experiences of families who chose not to participate in family bedside rounds and their perspectives regarding its value, their illness view, and future involvement in care. Methods A qualitative descriptive study was done, undergirded by the Family Management Style Framework, examining families that participated and those that did not. Results Most families that participated (80%) found the process helpful. One overarching theme, Making a Connection: Comfort and Confidence, emerged from participating families. Two major factors influenced how that connection was made: consistency and preparing families for the future. Three types of consistency were identified: consistency in information being shared, in when rounds were being held, and in informing families of rounding delays. In terms of preparing families for the future, families appeared to feel comfortable with the situation when a connection was present. When any of the factors were missing, families described feelings of anger, frustration, and fear. Family members who did not participate described similar feelings and fear of the unknown because of not having participated. Conclusion What health care providers say to patients’ families matters. Families may need to be included in decision-making with honest, consistent, easy-to-understand information.

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The Vortex: Families’ Experiences With Death in the Intensive Care Unit

American Journal of Critical Care ◽

10.4037/ajcc2002.11.3.200 ◽

2002 ◽

Vol 11 (3) ◽

pp. 200-209 ◽

Cited By ~ 103

Author(s):

Karin T. Kirchhoff ◽

Lee Walker ◽

Ann Hutton ◽

Vicki Spuhler ◽

Beth Vaughan Cole ◽

...

Keyword(s):

Intensive Care Unit ◽

Intensive Care ◽

Life Experiences ◽

Healthcare Providers ◽

Family Members ◽

Terminal Condition ◽

Loved One ◽

The Family ◽

Downward Spiral ◽

Eventual Loss

• Background Lack of communication from healthcare providers contributes to the anxiety and distress reported by patients’ families after a patient’s death in the intensive care unit.• Objective To obtain a detailed picture of the experiences of family members during the hospitalization and death of a loved one in the intensive care unit.• Methods A qualitative study with 4 focus groups was used. All eligible family members from 8 intensive care units were contacted by telephone; 8 members agreed to participate.• Results The experiences of the family members resembled a vortex: a downward spiral of prognoses, difficult decisions, feelings of inadequacy, and eventual loss despite the members’ best efforts, and perhaps no good-byes. Communication, or its lack, was a consistent theme. The participants relied on nurses to keep informed about the patients’ condition and reactions. Although some participants were satisfied with this information, they wished for more detailed explanations of procedures and consequences. Those family members who thought that the best possible outcome had been achieved had had a physician available to them, options for treatment presented and discussed, and family decisions honored.• Conclusions Uncertainty about the prognosis of the patient, decisions that families make before a terminal condition, what to expect during dying, and the extent of a patient’s suffering pervade families’ end-of-life experiences in the intensive care unit. Families’ information about the patient is often lacking or inadequate. The best antidote for families’ uncertainty is effective communication.

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Timely Family Feedback to Guide Family Engagement in the Intensive Care Unit

Critical Care Nurse ◽

10.4037/ccn2020644 ◽

2020 ◽

Vol 40 (6) ◽

pp. 42-51

Author(s):

Natalie S. McAndrew ◽

Laura Mark ◽

Mary Butler

Keyword(s):

Intensive Care Unit ◽

Intensive Care ◽

Quality Improvement ◽

Patient Care ◽

Care Delivery ◽

Family Engagement ◽

Family Satisfaction ◽

Family Experience ◽

Improvement Project ◽

The Family

Background Organizations motivated to provide high-quality care in the intensive care unit are exploring strategies to engage families in patient care. Such initiatives are based on emerging evidence that family engagement improves quality and safety of care. Objective To gather family feedback to guide future nurse-led quality improvement efforts to engage families in the intensive care unit setting. Methods The Critical Care Family Satisfaction Survey, which consists of 20 items rated from 1 (very dissatisfied) to 5 (very satisfied), was paired with open-ended questions and administered to families during the intensive care unit stay from March through December 2017. Content analysis was used to identify themes regarding the family experience. Results Responses were collected from 178 family members. The mean (SD) score on the survey was 4.65 (0.33). Five themes emerged regarding the delivery of family care in the intensive care unit: family interactions with the interdisciplinary team, information sharing and effective communication, family navigation of the intensive care unit environment, family engagement in the intensive care unit, and quality of patient care. Conclusions This quality improvement project provided foundational information to guide family engagement efforts in the intensive care unit. Real-time solicitation of feedback is essential to improving the family experience and guiding family-centered care delivery in this practice environment.

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Family-Centered Communication and Acute Stress in Israeli Intensive Care Units

American Journal of Critical Care ◽

10.4037/ajcc2019562 ◽

2019 ◽

Vol 28 (4) ◽

pp. 274-280 ◽

Cited By ~ 3

Author(s):

Freda DeKeyser Ganz ◽

Gilat Yihye ◽

Nicole Beckman

Keyword(s):

Intensive Care Unit ◽

Intensive Care ◽

Intensive Care Units ◽

Perceived Stress ◽

Acute Stress ◽

Family Members ◽

Personal Characteristics ◽

Perceived Stress Scale ◽

Stress Scale ◽

Family Centered

Background Intensive care unit stays can be stressful for patients’ family members. Family-centered communication has 6 components: fostering relationships, exchanging information, responding to emotions, managing uncertainty, making decisions, and enabling patient self-management. Whether these communication components decrease family members’ stress is unknown. Objective To describe levels of family-centered communication and associations with acute stress while patients are in the intensive care unit. Methods A convenience sample of 130 family members of patients in 2 intensive care units in a Jerusalem, Israel, tertiary medical center received a family-centered communication questionnaire, the Perceived Stress Scale, and a personal characteristics questionnaire. Results Most respondents were women (n = 79, 60.8%), children of the patient (n = 67, 51.9%), and familiar with the patient’s diagnosis (n = 111, 85.4%). Mean (SD) participant age was 45.7 (13.6) years. Most considered the patient medically stable (n = 75, 57.7%). Mean (SD) intensive care unit stay was 7.45 (5.8) days. Mean (SD) total and item scores for family-centered communication were 98.75 (18.21) and 3.80 (0.70), respectively; for the Perceived Stress Scale, 19.63 (5.92) and 1.96 (0.59), respectively. Relationship building (r = −0.31, P = .002), participation in care management (r = −0.32, P = .001), and emotional support (r = −0.29, P = .003), and were significantly related to stress. Conclusions Stress levels were mild to moderate and communication scores were moderate to high. Better nurse communication with family members was associated with decreased acute stress, irrespective of personal characteristics or perceptions of the patient’s medical status.

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