Development of a Science Gateway Software Platform for CCS Decision Support and Stakeholder Engagement

2021 ◽  
Author(s):  
Kevin Ellett ◽  
Jun Wang ◽  
Marcus Christie ◽  
Sudhakar Pamidighantam ◽  
Eroma Abeysinghe ◽  
...  
Keyword(s):  
Decision Support ◽  
Stakeholder Engagement ◽  
Software Platform ◽  
Science Gateway

scholarly journals Utility of a Mobile Clinical Decision Support Application in Patients Undergoing Spinal Cord Stimulation.

Neurosurgery ◽  
2019 ◽  
Vol 66 (Supplement_1) ◽  
Author(s):  
Shervin Rahimpour ◽  
Sarah E Hodges ◽  
Luis A Antezana ◽  
Abena A Ansah-Yeboah ◽  
Rajeev Dharmapurikar ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Chronic Pain ◽  
Decision Support ◽  
Patient Reported Outcomes ◽  
Clinical Decision ◽  
Software Platform ◽  
Clinical Specialist ◽  
Mobile Software ◽  
Patient Reported

Abstract INTRODUCTION Novel technologies to support real-time patient education, engagement and scalable outcomes monitoring to make clinically meaningful decisions are needed. The ManageMySurgery (MMS) Spinal Cord Stimulation (SCS) module is a mobile clinical decision support application that provides: (1) a mobile, patient-centered engagement tool for delivering pre-, peri- and postoperative SCS information; (2) scalable patient-reported outcomes collection; (3) a HIPAA-compliant 2-way messaging platform with a Clinical Specialist Educator for real-time support and goal setting. METHODS Prospective data was collected using the MMS mobile smartphone application in patients undergoing Medtronic SCS trial and permanent implant procedures. E-consent was obtained through the HIPAA compliant, mobile software platform. All data was de-identified, aggregated and analyzed. RESULTS A total of 20 patients (15-trial SCS and 5 permanent SCS patients) agreed to participate and logged onto the mobile software platform. For trial SCS patients, 100% of those that participated experienced >50% pain relief as documented in their patient-reported outcomes. Furthermore, patients found various features of the software platform helpful for navigating different aspects of their SCS procedure, with 81% finding MMS helpful in preparing for their SCS procedure, 88% finding MMS helpful in recovering from their SCS procedure and 94% in communicating with their Clinical Specialist Educator. In addition, 95% of patients would recommend MMS to a friend or family member. CONCLUSION The MMS platform appears to have utility both during the SCS Trial and Permanent procedures. In patients with chronic pain, novel patient engagement and follow-up tools such as MMS may be a good option for keeping patients engaged with the therapy and ensuring patients stay on track during their procedural journey. Randomized, controlled trials with extended follow-up are in progress and needed to further evaluate the utility of MMS in patients with chronic pain undergoing SCS.

scholarly journals Development of a Decision Support System for Sustainable Environmental Management and Stakeholder Engagement

Hydrology ◽  
2021 ◽  
Vol 8 (1) ◽  
pp. 40
Author(s):  
Angelos Alamanos ◽  
Alec Rolston ◽  
George Papaioannou
Keyword(s):  
Decision Support ◽  
Decision Support System ◽  
Support System ◽  
Stakeholder Engagement ◽  
Good Practice ◽  
Landscape Management ◽  
Management Options ◽  
Integrated Monitoring ◽  
Sustainable Water Resources Management ◽  
Multi Stakeholder

Undertaking integrated and sustainable water resources management (ISWRM) and providing socially acceptable solutions with scientifically solid bases is a dynamic and challenging process. Two basic pillars–umbrellas can be identified in the literature: stakeholder engagement and analysis; and integrated monitoring–modelling in the form of a decision support system (DSS) that can assess, evaluate and rank the management options. This study presents a framework that can be used as a good-practice example of successful stakeholder engagement (public engagement and collaboration with local communities towards shared visions) and an integrated DSS for ISWRM (including characterisation at catchment and local scales, programmes of measures and their evaluation): the Framework for Integrated Land and Landscape Management (FILLM), developed by an Irish multi-disciplinary and multi-stakeholder platform, the Water Forum. The fundamental theoretical principles and practical aspects of the FILLM are analysed. A step-by-step guide is proposed for its application, bridging the above pillars, using examples, reviewing methods and software, and analysing challenges and trends. It can help both socio-economic and environmental scientists (modellers) understand each other’s roles and find reviews of useful tools and methods for their work. This work can be a reference point for future ISWRM and environment management and can contribute to holistic education on such topics.

scholarly journals 1305: CLINICAL DECISION SUPPORT IMPROVES UNPLANNED EXTUBATION RISK CHARTING AND STAKEHOLDER ENGAGEMENT

2021 ◽  
Vol 50 (1) ◽  
pp. 653-653
Author(s):  
Atul Vats ◽  
Evan Orenstein ◽  
Christopher Fritzen ◽  
Karen Walson ◽  
Pinar Keskinocak ◽  
...  
Keyword(s):  
Decision Support ◽  
Clinical Decision Support ◽  
Stakeholder Engagement ◽  
Clinical Decision ◽  
Unplanned Extubation

scholarly journals Stakeholder engagement in methodological research: Development of a clinical decision support tool

2020 ◽  
Vol 4 (2) ◽  
pp. 133-140
Author(s):  
Denise H. Daudelin ◽  
Robin Ruthazer ◽  
Manlik Kwong ◽  
Rebecca C. Lorenzana ◽  
Daniel J. Hannon ◽  
...  
Keyword(s):  
Decision Making ◽  
Decision Support ◽  
User Interface ◽  
Knee Osteoarthritis ◽  
Stakeholder Engagement ◽  
Prediction Models ◽  
Decision Support Tool ◽  
Patient Specific ◽  
Support Tool ◽  
Methodological Research

AbstractIntroduction:Shared patient–clinician decision-making is central to choosing between medical treatments. Decision support tools can have an important role to play in these decisions. We developed a decision support tool for deciding between nonsurgical treatment and surgical total knee replacement for patients with severe knee osteoarthritis. The tool aims to provide likely outcomes of alternative treatments based on predictive models using patient-specific characteristics. To make those models relevant to patients with knee osteoarthritis and their clinicians, we involved patients, family members, patient advocates, clinicians, and researchers as stakeholders in creating the models.Methods:Stakeholders were recruited through local arthritis research, advocacy, and clinical organizations. After being provided with brief methodological education sessions, stakeholder views were solicited through quarterly patient or clinician stakeholder panel meetings and incorporated into all aspects of the project.Results:Participating in each aspect of the research from determining the outcomes of interest to providing input on the design of the user interface displaying outcome predications, 86% (12/14) of stakeholders remained engaged throughout the project. Stakeholder engagement ensured that the prediction models that form the basis of the Knee Osteoarthritis Mathematical Equipoise Tool and its user interface were relevant for patient–clinician shared decision-making.Conclusions:Methodological research has the opportunity to benefit from stakeholder engagement by ensuring that the perspectives of those most impacted by the results are involved in study design and conduct. While additional planning and investments in maintaining stakeholder knowledge and trust may be needed, they are offset by the valuable insights gained.

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