scholarly journals Couples’ Sexual Adjustment Process to Cancer: A Metasynthesis and Qualitative Study

2016 ◽  
Vol 9 (1) ◽  
pp. 88-89
Author(s):  
C. Benoot ◽  
◽  
K. Hannes ◽  
J. Bilsen ◽  
◽  
...  
Keyword(s):  
Qualitative Study ◽  
Medical Treatment ◽  
Conceptual Framework ◽  
Advanced Cancer ◽  
Cognitive Restructuring ◽  
Constructivist Grounded Theory ◽  
Adjustment Process ◽  
Sexual Adjustment ◽  
Grieving Process ◽  
Restructuring Process

Objective: Existing research on couples’ sexual adjustment to cancer lacks a clear theoretical framework which is necessary to underpin interventions supporting couples in such adjustment. Possibly as a result, current interventions show disappointing results. We therefore wanted to construct a conceptual framework of couples’ sexual adjustment to cancer, leading to theory-based and therefore more adequate interventions. Design and Method: We performed a meta-synthesis of 21 papers to arrive at a preliminary framework of sexual adjustment to cancer, using the techniques of meta-ethnography. This preliminary framework guided our qualitative study with 20 patients and partners with advanced cancer, using constructivist grounded-theory methodology. Results: The combination of these two methods led to a conceptual model of sexual adjustment, showing that couples engage in a combination of three different pathways: 1) a grieving pathway, in which sexual changes are depicted as one of the losses due to cancer; 2) a cognitive-restructuring pathway, in which sexual changes are depicted as normative and culturally determined in which their meaning need to be renegotiated; 3) a rehabilitation pathway, in which sexual changes are depicted as bodily dysfunctions which need medical treatment. Contextual factors influence this adjustment process, e.g. couples with advanced cancer emphasize the grieving process over the rehabilitation or restructuring process, as sexuality is often seen as a definite loss because of the irreversible character of the disease. Conclusions: For an intervention to be more effective it could be based on above conceptual framework, which emphasizes the multiple and flexible pathways a couple can take to adjust to sexual changes.

scholarly journals Compounded trauma: A qualitative study of the challenges for refugees living with advanced cancer

2021 ◽  
pp. 026921632110002
Author(s):  
Ping Guo ◽  
Sawsan Alajarmeh ◽  
Ghadeer Alarja ◽  
Waleed Alrjoub ◽  
Ayman Al-Essa ◽  
...  
Keyword(s):  
Social Support ◽  
Qualitative Study ◽  
Advanced Cancer ◽  
Psychosocial Support ◽  
Large Population ◽  
Community Support ◽  
Support Network ◽  
Psychosocial Needs ◽  
Physical And Mental Health ◽  
The Impact

Background: Although palliative care is now an essential health service under Universal Health Coverage, ensuring access and appropriate care for refugees is a specific challenge for this large population. Aim: To identify the needs and experiences of adult refugees in Jordan with advanced cancer and informal caregivers. Design: A qualitative study using semi-structured interviews. Setting/participants: Participants were purposively sampled at two Jordanian hospitals to achieve heterogeneity by age, gender, country of origin, and primary diagnosis. Results: Twenty-nine refugees (22 patients, 7 caregivers) participated, and four themes were generated: (1) Psychological distress and sustaining social support. Refugees often experienced unmet psychosocial needs. However, psychosocial support was reported either absent or limited. (2) Knowledge and uncertainty. Lack of information and poor communication between healthcare providers and patients caused significant distress due to uncertainty. (3) Family anxiety and support roles. Being away from the home country cut patients and caregivers off from their wider social support network, which added increased anxiety and responsibilities to caregivers. (4) Compounded trauma and poverty. Many refugees have experienced trauma related to war that may affect their physical and mental health. They faced serious financial crises caused by the rising cost of medicines and treatment. Conclusions: This study reveals the impact of fractured families and networks on social support in advanced cancer, and the compounding trauma of the disease for refugees. Detailed person-centred assessment and emphasis on psychosocial support is essential, and home-based care should not presume community support for patients to remain at home.

scholarly journals Perceptions of involvement in advance care planning and emotional functioning in patients with advanced cancer

2021 ◽  
Author(s):  
Lente L. Kroon ◽  
◽  
Janneke van Roij ◽  
Ida J. Korfage ◽  
An K. L. Reyners ◽  
...  
Keyword(s):  
Quality Of Care ◽  
Medical Treatment ◽  
Advanced Cancer ◽  
Advance Care Planning ◽  
Emotional Functioning ◽  
Solid Cancer ◽  
Care Planning ◽  
Advance Care ◽  
Prospective Longitudinal

Abstract Purpose Advance Care Planning (ACP) is positively associated with the quality of care, but its impact on emotional functioning is ambiguous. This study investigated the association between perceptions of ACP involvement and emotional functioning in patients with advanced cancer. Methods This study analyzed baseline data of 1,001 patients of the eQuiPe study, a prospective, longitudinal, multicenter, observational study on quality of care and quality of life in patients with advanced cancer in the Netherlands. Patients with metastatic solid cancer were asked to participate between November 2017 and January 2020. Patients’ perceptions of ACP involvement were measured by three self-administered statements. Emotional functioning was measured by the EORTC-QLQ-C30. A linear multivariable regression analysis was performed while taking gender, age, migrant background, education, marital status, and symptom burden into account. Results The majority of patients (87%) reported that they were as much involved as they wanted to be in decisions about their future medical treatment and care. Most patients felt that their relatives (81%) and physicians (75%) were familiar with their preferences for future medical treatment and care. A positive association was found between patients’ perceptions of ACP involvement and their emotional functioning (b=0.162, p<0.001, 95%CI[0.095;0.229]) while controlling for relevant confounders. Conclusions Perceptions of involvement in ACP are positively associated with emotional functioning in patients with advanced cancer. Future studies are needed to further investigate the effect of ACP on emotional functioning. Trial registration number NTR6584 Date of registration: 30 June 2017 Implications for Cancer Survivors Patients’ emotional functioning might improve from routine discussions regarding goals of future care. Therefore, integration of ACP into palliative might be promising.

scholarly journals ‘I'll be in a safe place’: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e012134 ◽  
Author(s):  
Lesley A Henson ◽  
Irene J Higginson ◽  
Barbara A Daveson ◽  
Clare Ellis-Smith ◽  
Jonathan Koffman ◽  
...  
Keyword(s):  
Emergency Department ◽  
Qualitative Study ◽  
Advanced Cancer ◽  
Emergency Department Care ◽  
Safe Place

Meanings of happiness among two ethnic groups living with advanced cancer in south London: a qualitative study

2012 ◽  
Vol 22 (5) ◽  
pp. 1096-1103 ◽  
Author(s):  
Jonathan Koffman ◽  
Myfanwy Morgan ◽  
Polly Edmonds ◽  
Peter Speck ◽  
Richard Siegert ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Ethnic Groups ◽  
Advanced Cancer

scholarly journals Assets-Based Learning Abroad: First-Generation Latinx College Students Leveraging and Increasing Community Cultural Wealth in Costa Rica

2019 ◽  
Vol 31 (2) ◽  
pp. 63-85
Author(s):  
David Wick ◽  
Tasha Y. Willis ◽  
Jacqueline Rivera ◽  
Evelyn Lueker ◽  
Maria Hernandez
Keyword(s):  
College Students ◽  
Costa Rica ◽  
Qualitative Study ◽  
International Education ◽  
Conceptual Framework ◽  
First Generation ◽  
Integrated Approach ◽  
Student Interaction ◽  
Community Cultural Wealth ◽  
Cultural Wealth

This qualitative study counters deficit narratives about first generation Latinx students by exploring multi ple forms of community cultural wealth (CCW; Yosso, 2005) that 25 students leveraged and increased during service activities and homestays in Costa Rica. Through longitudinal data and with CCW as a conceptual framework, three key themes emerged First, s tudents were able to leverage their linguistic and familial capital to connect quickly and meaningfully with locals. Additionally, students drew upon their linguistic, familial, aspirational, and resistant capital while abroad to deepen their engagement. Finally, student interaction with their forms of CCW appeared to deepen their bicultural identities, strengthen their resistance to injustice, and instill a strong desire to inspire other Latinx students to pursue international education. Implications fo r practice include an integrated approach to recognizing and rewarding students’ CCW related capital in the advising, application and preparation processes. Implications underscore the importance of using strengths based pedagogies in the design of educat ion abroad programs.

scholarly journals Upaya Pencegahan Perbedaan Diagnosis Klinis Dan Diagnosis Asuransi Dengan Diberlakukan Program Jaminan Kesehatan Nasional (JKN) Dalam Pelayanan Bpjs Kesehatan Studi Di Rsud Kota Semarang

2016 ◽  
Vol 4 (2) ◽  
pp. 84-90
Author(s):  
Faik Agiwahyuanto ◽  
Sudiro Sudiro ◽  
Inge Hartini
Keyword(s):  
Qualitative Study ◽  
Social Security ◽  
Medical Treatment ◽  
Emergency Room ◽  
Medical Record ◽  
Clinical Pathway ◽  
Public Hospital ◽  
Medical Service ◽  
Hospital Director ◽  
Social Security Agency

Percentage of clinical and insurance diagnosis differences at Semarang City Public Hospital tended to increase. If this condition remained, it would lead to upcoding (fraud). The aim of this study was to explain a process of clinical and insurance diagnosis at a hospital in the implementation of Healthcare and Social Security Agency (Health BPJS). This was a qualitative study. Main informants consisted of doctors at an emergency room, surgeons, and internists. Informants for triangulation purpose consisted of a Hospital Director, a hospital verifier, and a head of Medical Record Unit. Data were analysed using content analysis.The results of this research showed that there were any differences in clinical and insurance diagnosis at Semarang City Public Hospital. The cause of these differences was due to differences in diagnosis and medical treatment between medical service standard of doctors at the hospital and a standard of INA-CBGs. To prevent the differences of clinical and insurance diagnosis, the Semarang City Public Hospital had formed an internal verifier team of the hospital and a Clinical Micro System team. A medical committee had a role to minimise the occurrence of upcoding by multiplying kinds of Clinical Pathway as a reference for doctors in diagnosing and determining kinds of treatments for patients.The differences of clinical and insurance diagnosis must be equated to prevent the occurrence of upcoding and disadvantage of the hospital. Efforts to prevent these differences are by adding officers, training coding, making and multiplying algorithm of clinical pathway, forming a team of Clinical Micro System, and monitoring and evaluating medical services.

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