scholarly journals The Experiences of Multiple Sclerosis Patients’ Family Caregivers at the First Hospitalization of Their Patients: A Qualitative Study

2020 ◽  
Vol Volume 14 ◽  
pp. 1159-1172
Author(s):  
Banafsheh Tehranineshat ◽  
Shahrzad Yektatalab ◽  
Marzieh Momennasab ◽  
Mostafa Bijani ◽  
Fateme Mohammadi
Keyword(s):  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Multiple Sclerosis Patients

scholarly journals Psychological Status in Multiple Sclerosis Patients: A Qualitative Study

2020 ◽  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Psychological Status ◽  
Psychological State ◽  
Analysis Approach ◽  
Data Saturation ◽  
Multiple Sclerosis Patients

Background: Multiple Sclerosis (MS) is a chronic and progressive disease and getting along with the social activities ages have a significant impact on the quality of life and psychological status of these patients. Because the psychological state of patients is an effective factor in the treatment process and life in chronic conditions, The aim of this study was to identify the psychological status of these patients from the viewpoint of patients and experts. Methods: The current qualitative study was conducted in thematic analysis approach. In this study, participated 24 MS patients with maximum diversity in gender, age, illness duration and illness severity, and 8 experts in Neurology, Psychiatry, Psychology and Nursing from Guilan province. Participants were selected by purposive sampling method and Then, the data were gathered through unstructured interviews up to data saturation. Data analysis was done using thematic analysis approach by Attride-Stirling method. Findings: From the total information, three global themes (individual problems, interactive problems, and disease-related problems) were identified. Interactive problems included (interpersonal sensitivity, aggression, sexual, social, and dependence) and disease-related problems (disease reaction). Conclusion: The results of this study showed that MS patients are involved in several psychological problems in the domains include; individual, interactive, and disease-related, Accordingly, it is necessary to develop psychological interventions based on these problems and present for improving the mental status, quality of life and their compatibility.

scholarly journals Dealing with Chronic Illness: Experiences of Iranian Families of Persons with Multiple Sclerosis—A Qualitative Study

2017 ◽  
Vol 2017 ◽  
pp. 1-8 ◽  
Author(s):  
Hossein Ebrahimi ◽  
Hadi Hasankhani ◽  
Hossein Namdar ◽  
Esmail Khodadadi ◽  
Marjaneh Fooladi
Keyword(s):  
Multiple Sclerosis ◽  
Chronic Illness ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Qualitative Content Analysis ◽  
Illness Experiences ◽  
Purposeful Sampling ◽  
Care And Support ◽  
Depth Interviews

Background. Today family members are providing care and support to each other during illness. In particular, in chronic illness, such as multiple sclerosis, the families are more involved in caring for and supporting their patients, so they use several strategies to cope with this situation. The purpose of this study was to explore the coping strategies in family caregivers of persons with multiple sclerosis in Iran. Methods. This is a qualitative study that was conducted through 18 family caregivers of persons with multiple sclerosis. A purposeful sampling method was used. Data were collected through semistructured and in-depth interviews conducted in Multiple Sclerosis Society and hospitals of Tabriz in Iran. The collected data was analyzed according to qualitative content analysis. Results. Five main categories were elicited from interviews: “using spirituality,” “living with hope,” “experiencing persistence and stability,” “seeking support,” and “seeking alternative treatments.” Conclusion. The study findings can help to inform the support given to families to help them cope with the effects of caring for someone with multiple sclerosis. Health system managers and professionals by using these results are able to support patients and their families appropriately in order to improve their quality of life and alleviate the complications of disease.

scholarly journals Multiple sclerosis patients need and want information on exercise promotion from healthcare providers: a qualitative study

2016 ◽  
Vol 20 (4) ◽  
pp. 574-583 ◽  
Author(s):  
Yvonne C. Learmonth ◽  
Brynn C. Adamson ◽  
Julia M. Balto ◽  
Chung-yi Chiu ◽  
Isabel Molina-Guzman ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Healthcare Providers ◽  
Multiple Sclerosis Patients ◽  
Exercise Promotion

scholarly journals The effect of implementing self-management plan on selfconcept of family caregivers of multiple sclerosis patients

2020 ◽  
Vol 22 (2) ◽  
pp. 74-81
Author(s):  
Soheila Banitalebi ◽  
Shahram Etemadifar ◽  
Soleiman Kheiri ◽  
Reza Masoudi
Keyword(s):  
Multiple Sclerosis ◽  
Family Caregivers ◽  
Intervention Group ◽  
Management Program ◽  
Self Concept ◽  
Self Management ◽  
Significant Difference ◽  
The Mean ◽  
Multiple Sclerosis Patients ◽  
And Control

Background and aims: Caring for patients with multiple sclerosis causes family caregivers many problems and challenges. Self-management interventions can facilitate the caring process and increase the quality of patient care. Therefore, the aim of this study was to investigate the effect of a self-management program on Self-concept of the family caregivers of multiple sclerosis patients. Methods: This quasi-experimental study was conducted in 2018 at the MS Treatment Center of Shahrekord. The samples were selected through convenience sampling method. First, participants were assigned to two groups of men and women by stratified random sampling, and then men and women were assigned randomly to intervention (n=35) and control (n=35) groups. For the intervention group, the selfmanagement program was implemented twice a week in 8 sessions. Data collection was performed using the Coopersmith self-concept Inventory in two groups before, immediately after, and three months after the intervention. Data were analyzed by SPSS version 16.0. Results: The mean scores of self-concept in the intervention and control groups before the intervention were 72.6±9.1 and 72±10.6, respectively. There was no significant difference between the mean score of self-concept between the intervention and control groups before the intervention (P>0.05). The mean scores of self-concept immediately after the intervention in the two groups were 86.4±9.2 and 73±10.6, and three months after the intervention, they were 103±7.4 and 73.9±10.5, respectively. A significant increase in the scores of self-concept in the intervention group (P<0.001) was observed. Moreover, the independent t test showed a significant difference in the two groups immediately after and three months after the intervention (P<0.001). Conclusion: Self-management program increased the self-concept of multiple sclerosis (MS) patients’ caregivers. Therefore, selfmanagement can play a critical role in improving the quality of life of family caregivers and coping with the physical and psychological stress related to their caring role.

scholarly journals Expectations of Multiple Sclerosis Patients and Their Families: A Qualitative Study in Iran

2015 ◽  
Vol 17 (2) ◽  
Author(s):  
Shahla Abolhassani ◽  
Ahmadreza Yazdannik ◽  
Fariba Taleghani ◽  
Ahmadreza Zamani
Keyword(s):  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Multiple Sclerosis Patients
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