scholarly journals Multiple sclerosis patients need and want information on exercise promotion from healthcare providers: a qualitative study

2016 ◽  
Vol 20 (4) ◽  
pp. 574-583 ◽  
Author(s):  
Yvonne C. Learmonth ◽  
Brynn C. Adamson ◽  
Julia M. Balto ◽  
Chung-yi Chiu ◽  
Isabel Molina-Guzman ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Healthcare Providers ◽  
Multiple Sclerosis Patients ◽  
Exercise Promotion

USE IT to Create Patient-Relation Management for Multiple Sclerosis Patients

2008 ◽  
pp. 1909-1924
Author(s):  
Margreet B. Michel-Verkerke ◽  
Roel W. Schuring ◽  
Ton A.M. Spil
Keyword(s):  
Multiple Sclerosis ◽  
Healthcare Providers ◽  
Care Process ◽  
Care Providers ◽  
Web Based ◽  
Information And Communication ◽  
A Chain ◽  
Multiple Sclerosis Patients ◽  
Professional Guidelines ◽  
Technological Area

Patients with multiple sclerosis (MS) visit various healthcare providers during the course of their disease. It was suggested that information and communication technology might help to orchestrate their care provision. We have applied the USE IT tool to get insight in the relevant problems, solutions, and constraints of MS care both in the organizational and the information-technological area. There is hardly a chain of healthcare, but rather, a network in which informal communication plays an important role. This informal network worked reasonably effective, but it was inefficient and slow. The MS patient count is small for most care providers. Patients thought that a lack of experience caused their major problems: insufficient and inadequate care. To improve care, we proposed a solution that combines an MS protocol, the introduction of a central coordinator of care and a patient-relation management (PRM) system. This is a simple Web-based application based on an agreement by the caregivers that supports routing, tracking, and tracing for an MS patient and supplies the caregivers with professional guidelines. It is likely that we would have suggested a far more complicated ICT solution if we had only analyzed the MS care process as such without specific consideration of the dimensions in the USE IT tool.

Investigating the needs and wants of healthcare providers for promoting exercise in persons with multiple sclerosis: a qualitative study

2017 ◽  
Vol 40 (18) ◽  
pp. 2172-2180 ◽  
Author(s):  
Yvonne C. Learmonth ◽  
Brynn C. Adamson ◽  
Julia M. Balto ◽  
Chung-Yi Chiu ◽  
Isabel M. Molina-Guzman ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Healthcare Providers

scholarly journals Recomendações Sobre a Abordagem da Esclerose Múltipla na Gravidez, Parto e Pós-Parto: Posição de Consenso do Grupo de Estudos de Esclerose Múltipla e da Sociedade Portuguesa de Obstetrícia e Medicina Materno-Fetal

2018 ◽  
Vol 31 (12) ◽  
pp. 785
Author(s):  
Sónia Batista ◽  
Ana Martins da Silva ◽  
Maria José Sá ◽  
Lívia Sousa ◽  
João De Sá ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Young Women ◽  
Postpartum Period ◽  
State Of The Art ◽  
Healthcare Providers ◽  
Reproductive Age ◽  
Women Of Reproductive Age ◽  
Disease Modifying Therapies ◽  
Multiple Sclerosis Patients

Multiple sclerosis typically affects young women of reproductive age. Therefore, all healthcare providers involved in the follow-up of multiple sclerosis patients must be prepared to discuss pregnancy and breastfeeding issues, and provide the best possible counselling. However, there are still many doubts and heterogeneous clinical approaches partly due to the lack of consensus and guidelines. Concerning the handling of disease modifying therapies during pregnancy and the postpartum period, uncertainties have been complicated by the increase in recent years of the number of available treatments. This article aims to present the state-of-the-art and provide guidance based on the best level of available evidence and expert opinion regarding the management of multiple sclerosis patients at different stages: pregnancy planning, pregnancy, partum, and the postpartum period.

Multiple Sclerosis Patients Talking with Healthcare Providers About Emotions

2007 ◽  
Vol 39 (2) ◽  
pp. 89-101 ◽  
Author(s):  
Mark White ◽  
Carmel Parker White ◽  
Candyce S. Russell
Keyword(s):  
Multiple Sclerosis ◽  
Healthcare Providers ◽  
Multiple Sclerosis Patients

scholarly journals The Experiences of Multiple Sclerosis Patients’ Family Caregivers at the First Hospitalization of Their Patients: A Qualitative Study

2020 ◽  
Vol Volume 14 ◽  
pp. 1159-1172
Author(s):  
Banafsheh Tehranineshat ◽  
Shahrzad Yektatalab ◽  
Marzieh Momennasab ◽  
Mostafa Bijani ◽  
Fateme Mohammadi
Keyword(s):  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Multiple Sclerosis Patients

scholarly journals Psychological Status in Multiple Sclerosis Patients: A Qualitative Study

2020 ◽  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Psychological Status ◽  
Psychological State ◽  
Analysis Approach ◽  
Data Saturation ◽  
Multiple Sclerosis Patients

Background: Multiple Sclerosis (MS) is a chronic and progressive disease and getting along with the social activities ages have a significant impact on the quality of life and psychological status of these patients. Because the psychological state of patients is an effective factor in the treatment process and life in chronic conditions, The aim of this study was to identify the psychological status of these patients from the viewpoint of patients and experts. Methods: The current qualitative study was conducted in thematic analysis approach. In this study, participated 24 MS patients with maximum diversity in gender, age, illness duration and illness severity, and 8 experts in Neurology, Psychiatry, Psychology and Nursing from Guilan province. Participants were selected by purposive sampling method and Then, the data were gathered through unstructured interviews up to data saturation. Data analysis was done using thematic analysis approach by Attride-Stirling method. Findings: From the total information, three global themes (individual problems, interactive problems, and disease-related problems) were identified. Interactive problems included (interpersonal sensitivity, aggression, sexual, social, and dependence) and disease-related problems (disease reaction). Conclusion: The results of this study showed that MS patients are involved in several psychological problems in the domains include; individual, interactive, and disease-related, Accordingly, it is necessary to develop psychological interventions based on these problems and present for improving the mental status, quality of life and their compatibility.

USE IT to Create Patient Relation Management for Multiple Sclerosis Patients

2007 ◽  
pp. 285-305 ◽  
Author(s):  
Margreet B. Michel-Verke ◽  
Roel W. Schuring ◽  
Ton A.M. Spil
Keyword(s):  
Multiple Sclerosis ◽  
Healthcare Providers ◽  
Care Process ◽  
Care Providers ◽  
Web Based ◽  
Information And Communication ◽  
A Chain ◽  
Multiple Sclerosis Patients ◽  
Professional Guidelines ◽  
Technological Area

Patients with Multiple Sclerosis (MS) visit various healthcare providers during the course of their disease. It was suggested that Information and Communication Technology (ICT) might help to orchestrate their care provision. We have applied the USE IT-tool to get insight in the relevant problems, solutions and constraints of the MS-care both in the organizational and the information technological area. There is hardly a chain of healthcare, but rather, a network in which informal communication plays an important role. This informal network worked reasonably effective, but inefficient and slow. MS patients-count is only small for most care providers. Patients thought that lack of experience caused their major problems: insufficient and inadequate care. To improve care, we proposed a solution that combines an “MS-protocol”, the introduction of a central coordinator of care and a Patient Relation Management (PRM) system. This is a simple web-based application based on agreement by the caregivers that supports routing, tracking and tracing for an MS patient and supplies the caregivers with professional guidelines. It is likely that we would have suggested a far more complicated ICT-solution if we had only analyzed the MS-care process as such, without specific consideration of the dimensions in the USE IT-tool.

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