scholarly journals Effect of Palliative Care Program on Quality of Life for Hepatocellular Carcinoma of Elderly Patients

2021 ◽  
Vol 12 (1) ◽  
pp. 722-734
Author(s):  
Raefa Refaat Alam ◽  
Nadia Mohamed Hassan Saleh ◽  
Eman Hassan Mounir Radwan
Keyword(s):  
Quality Of Life ◽  
Hepatocellular Carcinoma ◽  
Palliative Care ◽  
Elderly Patients ◽  
Care Program ◽  
Palliative Care Program

Development a Palliative Care Program for Colorectal Cancer Patients: A Mixed Methods Protocol study (Preprint)

2021 ◽  
Author(s):  
Masoumeh Masoumy ◽  
Masoud Bahrami ◽  
Alireza sadeghi ◽  
Rohallah Mosavizadeh
Keyword(s):  
Quality Of Life ◽  
Colorectal Cancer ◽  
Palliative Care ◽  
Cancer Patients ◽  
Cultural Context ◽  
Care Program ◽  
Future Research ◽  
Palliative Care Program ◽  
Colorectal Cancer Patients

BACKGROUND Introduction: Colorectal cancer (CRC) is the third most common cancer in Iranian men and the second in Iranian women and it is a serious health problem in the Iran health system. OBJECTIVE Objective: The purpose is to develop a holistic palliative care program in order to improve the health and quality of life of colorectal cancer patients. METHODS Methods: This is an exploratory mixed methods study which will be conducted using a sequential qualitative-quantitative design (QUAL quan) consists of four sequential steps using the approach proposed by Ewles & Sminett to develop the program. In the first step, a qualitative study (semi-structured interview), the researcher discovers the needs of colorectal cancer patients from the perspective of patients, family members and care providers. In the second step, the literature review will be performed with the aim of confirming and completing the discovering new needs. In the third step, a initial draft of the palliative care program will be developed based on data extracted from qualitative study and literature review, experts’ panel opinions. In the fourth step, according to the opinions of the panel of experts, the part of the developed program will be implemented as quasi-experimental intervention and the effect of intervention on quality of life will be evaluated. RESULTS This study can will provide a better understanding of the demands and problems of colorectal cancer patients and their families through providing a holistic care and improve their quality of life in the socio-cultural context of Iran. This program can be useful in providing care, education, policy making, future research and colorectal cancer patients' health promotion. CONCLUSIONS This study can will provide a better understanding of the demands and problems of colorectal cancer patients and their families through providing a holistic care and improve their quality of life in the socio-cultural context of Iran. This program can be useful in providing care, education, policy making, future research and colorectal cancer patients' health promotion.

A model of early integration of palliative care into oncology care for patients with metastatic colorectal cancer.

2016 ◽  
Vol 34 (26_suppl) ◽  
pp. 142-142
Author(s):  
Carling Jade Ursem ◽  
Laura Cantino ◽  
Ingrid Maravilla ◽  
Nicole Thompson ◽  
Chloe Evelyn Atreya ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Colorectal Cancer ◽  
Palliative Care ◽  
Care Program ◽  
Palliative Care Program ◽  
Care Needs ◽  
Control Phase ◽  
Psychosocial Concerns ◽  
Palliative Care Needs

142 Background: Current NCCN guidelines recommend that “institutions should develop processes for integrating palliative care into cancer care.” However, it is not clear what the best method is for implementing this integrated care. Palliative care needs specific to patients with metastatic colorectal cancer (mCRC) and best practices for integration of outpatient palliative and oncologic care in mCRC are not well understood. Methods: We conducted a pre-post prospective cohort study to evaluate the palliative care needs of mCRC patients and the implementation of an integrated palliative care program. In both the control and implementation phase, we enrolled patients with mCRC within 90 days of diagnosis or establishing care for mCRC at UCSF. Patients were surveyed regarding their symptoms, quality of life, psychosocial concerns, functional status and understanding of prognosis. During the control phase, patients received usual oncologic care. Based on survey results from the control phase, we designed a palliative care program to target the needs identified. In the intervention phase, patients are receiving longitudinal palliative care integrated into their usual cancer care. Results: The 30 patients in the control phase reported anorexia, fatigue and poor quality of life as their most common symptoms. Common psychosocial challenges were transportation, insurance/financial and difficulty with treatment decisions. Patients also had unrealistic expectations of their prognosis. In order to improve these identified issues, we designed and implemented an integrated palliative care program that includes weekly multidisciplinary meetings with oncology and palliative care providers and proactive palliative care visits from the time of diagnosis, which occur within the oncology clinic at a time that coincides with oncology visits. Conclusions: Physical symptoms, psychosocial concerns and poor prognostic awareness are common among patients with mCRC. We have implemented an integrated palliative care program to address these needs. Evaluation of the effectiveness of this intervention is ongoing.

Health Status and Health-Related Quality of Life in a Pediatric Palliative Care Program

2012 ◽  
Vol 15 (7) ◽  
pp. 790-797 ◽  
Author(s):  
Caprice Knapp ◽  
Vanessa Madden ◽  
Dennis Revicki ◽  
David Feeny ◽  
Hua Wang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Health Status ◽  
Care Program ◽  
Pediatric Palliative Care ◽  
Palliative Care Program ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Impact of a combined integrative oncology and palliative care program on quality of life of patients with advanced cancer

2021 ◽  
Vol 38 (8) ◽  
Author(s):  
Eran Ben-Arye ◽  
Yonatan Yakubov ◽  
Noah Samuels ◽  
Orit Gressel ◽  
Alexander Yosipovich ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Advanced Cancer ◽  
Care Program ◽  
Palliative Care Program ◽  
Integrative Oncology

scholarly journals Validation of the Spanish Version of the Quality of Dying and Death Questionnaire (QODD-ESP) in a Home-Based Cancer Palliative Care Program and Development of the QODD-ESP-12

2017 ◽  
Vol 53 (6) ◽  
pp. 1042-1049.e3 ◽  
Author(s):  
Pedro E. Pérez-Cruz ◽  
Oslando Padilla Pérez ◽  
Pilar Bonati ◽  
Oliva Thomsen Parisi ◽  
Laura Tupper Satt ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Program ◽  
Spanish Version ◽  
Palliative Care Program ◽  
Quality Of Dying ◽  
Home Based

scholarly journals Summary of the Key Concepts on How to Develop a Perinatal Palliative Care Program

2020 ◽  
Vol 8 ◽  
Author(s):  
Paola Lago ◽  
Maria Elena Cavicchiolo ◽  
Francesca Rusalen ◽  
Franca Benini
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Health Care Providers ◽  
Cultural Beliefs ◽  
Newborn Care ◽  
Care Program ◽  
Spiritual Support ◽  
Care Providers ◽  
Perinatal Palliative Care

Purpose of review: The aim of this study is to assess the most significant Perinatal Palliative Care (PnPC) development projects in the literature and summarize the shared key principles.Recent findings: PnPC is a new concept in neonatal intensive care approach. Advancements in perinatal diagnostics and medical technology have changed the landscape of the perinatal world. The threshold of viability continues to decrease, and diagnostic information is available earlier in pregnancy and more rapidly at the bedside; overall outcomes continue to improve. This rapid technological improvement brings ethical debates on the quality of life of patients with life-limiting and life-threatening conditions and the need to involve the family in the decision-making process, according to their wishes and cultural beliefs. Although the Perinatal Hospice concept was developed in the 1980s in the US, the first recommendations on how to develop a PnPC pathway were published in the early 2000s. We considered the most relevant position statements or guidelines on PnPC published in the last two decades. Some of them were more pertinent to pediatrics but still useful for the fundamental concepts and PnPC project's development.Summary: Health care providers and institutions are encouraged to develop PnPC programs, which have the goal of maximizing the quality of life of infants with non-curable conditions. These may generally include the following: a formal prenatal consultation; development of a coordinated birth plan between obstetrician, newborn care, and family; access to other neonatal and pediatric specialties, as needed; comfort palliative care during the prenatal, birth, and postnatal periods; and psychosocial and spiritual support for families, siblings, and staff.

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