Toward a Model of Caregiver Grief: Nurses' Experiences of Treating Dying Children

2000 ◽  
Vol 41 (3) ◽  
pp. 187-206 ◽  
Author(s):  
Lisa Jill Kaplan

This study explored the emotional experiences of fifteen American nurses who work with terminally ill children. Structured interviews were conducted which considered the relationships and the emotional experiences of one who works with dying children. Specific questions that addressed attitudes and reactions to the dying process were asked, and the notion of a grief reaction was explored. Results from this study indicate that participants experience a form of “emotional tension” in their struggle to balance the intense emotional feelings that exist when treating dying children with their desire and need to be competent care providers. Their emotional experiences are influenced by the relationship that is established with their patient and by the child's dying process. It was concluded that when caregivers recognize the need to grieve and express their feelings while acknowledging that this is a natural, normal, and appropriate manner in which to respond to the death of a patient, they then become better able to take care of themselves, and thus their patients. A proposed model of caregivers' grief is presented.

2016 ◽  
Vol 9 (2) ◽  
pp. 183-188 ◽  
Author(s):  
Hiroyuki Otani ◽  
Miwa Ozawa ◽  
Tatsuya Morita ◽  
Ayako Kawami ◽  
Sahana Sharma ◽  
...  

BackgroundFew studies have been conducted on the experiences of children of terminally ill patients or hospital-based medical professionals supporting such children.AimThis study explored distress among individuals whose parents died of cancer in childhood and among hospital-based medical professionals supporting such children.DesignA qualitative study.Setting/participantsThe sample was 12 adults whose parents had died of cancer in childhood and 20 hospital-based medical professionals supporting children of patients’ with terminal cancer. In-depth interviews were conducted, focusing on the distress experienced by the participants. The data were analysed thematically.ResultsAmong adults whose parents died of cancer in childhood, we identified themes related to the period before death (eg, concealing the parent's illness), the time of death (eg, alienation due to isolation from the parent), soon after death (eg, fear and shock evoked by the bizarre circumstances, regrets regarding the relationship with the deceased parent before death), several years thereafter (ie, distinctive reflection during adolescence, prompted by the parent's absence) and the present time (ie, unresolved feelings regarding losing the parent). We identified seven themes among the medical professionals (eg, lack of knowledge/experience with children, the family's attempts to shield the child from the reality of death, estrangement from the family once they leave the hospital).ConclusionsAn important finding of the study is that the participants’ grief reaction to their parents’ deaths during childhood was prolonged. Moreover, hospital medical professionals may find it difficult to directly support affected children. Comprehensive support involving organisations (eg, local communities) may be necessary for children who have lost a parent.


Author(s):  
Jasenko Ljubica ◽  
Margaret Shaffer ◽  
Sabrina Tin ◽  
Kevin McKouen

Purpose The purpose of this paper is to develop a nomological model of the dark side of expatriate–host country national (HCN) relationships by identifying and explaining the development and the types of expatriate–HCN disruptive relationship behaviors (DRBs), their antecedents and consequences. Design/methodology/approach The authors conducted semi-structured interviews (n=27) with both expatriates and HCNs, focusing on DRBs that they exhibit toward each other, the factors preceding them (antecedents) and the mechanisms through which they affect the relationship between expatriates and HCNs, as well as the outcomes of such behaviors. Findings The findings show that relational dysfunction emanates from multilevel differences between expatriates and HCNs, and these differences induce workplace conflicts. These conflicts increase relational (emotional, social, instrumental and opportunity) costs that render both dyadic members to evaluate their relationship and socially categorize each other negatively, thus, detaching from the relationship. This detachment then leads to disruptive relational behaviors that amplify the conflicts and detachment dynamics and worsen interpersonal and intergroup dynamics, ultimately resulting in relational breakdown. Research limitations/implications This study possesses methodological (e.g. relatively small number of interviewees) and conceptual (e.g. high degree of comprehensiveness) limitations. However, these offer implications for further research as they open a multitude of promising research avenues that could enhance the proposed model. Originality/value This is the first study the authors are aware of that focuses on discovering and explaining the nomological network of the dark side of expatriate–HCN relationships. The use of interdependence theory to understand cross-cultural relationships is novel. As such, it delivers theoretical and empirical contributions and fosters further research efforts.


2010 ◽  
Vol 15 (2) ◽  
pp. 142-151 ◽  
Author(s):  
Wondimu Ahmed ◽  
Greetje van der Werf ◽  
Alexander Minnaert

In this article, we report on a multimethod qualitative study designed to explore the emotional experiences of students in the classroom setting. The purpose of the study was threefold: (1) to explore the correspondence among nonverbal expressions, subjective feelings, and physiological reactivity (heart rate changes) of students’ emotions in the classroom; (2) to examine the relationship between students’ emotions and their competence and value appraisals; and (3) to determine whether task difficulty matters in emotional experiences. We used multiple methods (nonverbal coding scheme, video stimulated recall interview, and heart rate monitoring) to acquire data on emotional experiences of six grade 7 students. Concurrent correspondence analyses of the emotional indices revealed that coherence between emotional response systems, although apparent, is not conclusive. The relationship between appraisals and emotions was evident, but the effect of task difficulty appears to be minimal.


2010 ◽  
Vol 15 (2) ◽  
pp. 121-131 ◽  
Author(s):  
Remus Ilies ◽  
Timothy A. Judge ◽  
David T. Wagner

This paper focuses on explaining how individuals set goals on multiple performance episodes, in the context of performance feedback comparing their performance on each episode with their respective goal. The proposed model was tested through a longitudinal study of 493 university students’ actual goals and performance on business school exams. Results of a structural equation model supported the proposed conceptual model in which self-efficacy and emotional reactions to feedback mediate the relationship between feedback and subsequent goals. In addition, as expected, participants’ standing on a dispositional measure of behavioral inhibition influenced the strength of their emotional reactions to negative feedback.


Author(s):  
Amanda Cabral ◽  
Carolin Lusby ◽  
Ricardo Uvinha

Sports Tourism as a segment is growing exponentially in Brazil. The sports mega-events that occurred in the period from 2007 to 2016 helped strengthen this sector significantly. This article examined tourism mobility during the Summer Olympic Games Rio 2016, hosted by the city of Rio de Janeiro, Brazil. This study expands the understanding of the relationship between tourism and city infrastructure, therefore being relevant to academics, professionals of the area and to the whole society due to its multidisciplinary field. The existence of a relationship between means of transportation and the Olympic regions as well as tourist attractions for a possible legacy was observed. Data were collected from official sources, field research and through participant-observation and semi structured interviews. Data were coded and analyzed. The results indicate that the city was overall successful in its execution of sufficient mobility. New means of transportation were added and others updated. BRT's (Bus Rapid Transit) were the main use of mass transport to Olympic sites. However, a lack of public transport access was observed for the touristic sites.


2021 ◽  
Vol 31 (3) ◽  
pp. 472-483
Author(s):  
Ana Cristina Lindsay ◽  
Madelyne J. Valdez ◽  
Denisse Delgado ◽  
Emily Restrepo ◽  
Yessica M. Guzmán ◽  
...  

This descriptive qualitative study explored Latinx mothers’ acceptance of the human papillomavirus (HPV) vaccine for their adolescent children. Data were collected through individual, semi-structured interviews and analyzed using a hybrid method of thematic analysis that incorporated deductive and inductive approaches. Twenty-two ( n = 22), mostly foreign-born, Latinx mothers of male and female adolescents participated in the study. Three main themes and nine subthemes emerged from the analyses. Findings identified the need for increased efforts to raise awareness and knowledge among Latinx mothers of the direct benefits of the HPV vaccine for sons, including stressing prevention of HPV-associated cancers in males. Findings also underscore the need for improved health care providers’ communication and recommendation of the HPV vaccine for Latinx adolescent males. Future research should intervene upon the study’s findings to address barriers that remain and affect Latinx mothers’ acceptance and uptake of the HPV vaccine for their children, in particular their sons.


Sociology ◽  
2021 ◽  
pp. 003803852199401
Author(s):  
Rory Magrath

The relationship between English football and homosexuality has changed significantly in recent years. However, research examining this area of study has predominantly focused on the attitudes of ostensibly heterosexual men. By drawing on semi-structured interviews with 35 ‘out’ gay male fans, this article is the first to focus explicitly on LGBT fans’ sense of place in English football. Contrary to previous research, these gay male fans represent ‘authentic’ notions of fandom through their passion for football and respective clubs. The recent emergence of LGBT Fan Groups has provided sexual minority fans increased visibility, and a sense of belonging and community. Finally, despite ongoing concerns about football stadia’s hypermasculine and heteronormative environment, these fans believe that they have become an increasingly inclusive space. Accordingly, this article demonstrates that sexual minority fans are central to English football and argues that future research must acknowledge their increased prevalence.


2021 ◽  
Vol 8 ◽  
pp. 233339362110281
Author(s):  
Renee Fiolet ◽  
Cynthia Brown ◽  
Molly Wellington ◽  
Karen Bentley ◽  
Kelsey Hegarty

Technology-facilitated abuse can be a serious form of domestic violence. Little is known about the relationship between technology-facilitated abuse and other types of domestic violence, or the impact technology-facilitated abuse has on survivors. The aim of this interpretative descriptive study is to understand domestic violence specialist service providers’ perspectives on the impact of technology-facilitated abuse, and the link between technology-facilitated abuse and other forms of domestic violence. A qualitative approach using 15 semi-structured interviews were undertaken with Australian domestic violence specialist practitioners, and three themes were identified through data coding using inductive thematic analysis. Another form of control describes technology-facilitated abuse behaviors as enacting controlling behaviors using new mediums. Amplifies level of fear characterizes the impact of technology-facilitated abuse. A powerful tool to engage others describes opportunities technology offers perpetrators to abuse through engaging others. Findings highlight technology-facilitated abuse’s complexity and integral role in domestic violence and can assist clinicians to understand the impact and harm that can result from technology-facilitated abuse.


Sexualities ◽  
2021 ◽  
pp. 136346072110193
Author(s):  
Henning Kaiser Klatran

This article examines the relationship between queer citizenship, state violence and the exclusion of racialized, homophobic ‘others’. Drawing on semi-structured interviews with LGBT people in Oslo, Norway, I investigate the presence of racialization in narratives of homophobic hate crime. The findings suggest that racialization structures narratives of risk assessment among several of the participants. However, in these narratives, racialization often operates through place-specific references, rather than racial and ethnic markers of identity. The narrative work thus displays ambivalence and a disassociation from racism. I argue that these narratives feed on an already established conflation of space, ethnicity, religion and homophobia, to which both mainstream media and part of the LGBT community contribute.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Hannah Maria Jennings ◽  
Joanna Morrison ◽  
Kohenour Akter ◽  
Hassan Haghparast-Bidgoli ◽  
Carina King ◽  
...  

Abstract Background Type 2 diabetes mellitus poses a major health challenge worldwide and in low-income countries such as Bangladesh, however little is known about the care-seeking of people with diabetes. We sought to understand the factors that affect care-seeking and diabetes management in rural Bangladesh in order to make recommendations as to how care could be better delivered. Methods Survey data from a community-based random sample of 12,047 adults aged 30 years and above identified 292 individuals with a self-reported prior diagnosis of diabetes. Data on health seeking practices regarding testing, medical advice, medication and use of non-allopathic medicine were gathered from these 292 individuals. Qualitative semi-structured interviews and focus group discussions with people with diabetes and semi-structured interviews with health workers explored care-seeking behaviour, management of diabetes and perceptions on quality of care. We explore quality of care using the WHO model with the following domains: safe, effective, patient-centred, timely, equitable and efficient. Results People with diabetes who are aware of their diabetic status do seek care but access, particularly to specialist diabetes services, is hindered by costs, time, crowded conditions and distance. Locally available services, while more accessible, lack infrastructure and expertise. Women are less likely to be diagnosed with diabetes and attend specialist services. Furthermore costs of care and dissatisfaction with health care providers affect medication adherence. Conclusion People with diabetes often make a trade-off between seeking locally available accessible care and specialised care which is more difficult to access. It is vital that health services respond to the needs of patients by building the capacity of local health providers and consider practical ways of supporting diabetes care. Trial registration ISRCTN41083256. Registered on 30/03/2016.


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