In India, Nepal, and Sri Lanka, Quality of Life Weighs Heavily

1986 ◽  
Vol 16 (4) ◽  
pp. 20 ◽  
Author(s):  
K. N. Siva Subramanian
Keyword(s):  
Author(s):  
Dilka Rukshani ◽  
Pabasara Kahandawala ◽  
Kasun Jayawardana ◽  
Dilan Karunarathne ◽  
Lahiru S. Galgamuwa ◽  
...  

Background: Quality of life (QOL) is individuals’ perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns. It is an effective modern method of early identification of chronic incurable disease patients. This study was designed to determine the level and the possible contributory factors of quality of life in heterogeneous groups of cancer patients in Sri Lanka.Methods: This study was conducted at National Cancer Institute of Sri Lanka. WHOQOL-BREF questionnaire was used to assess QOL of cancer patients. Multivariate linear regression model was used to evaluate the associations of demographic variables, clinical characteristics, and social support status with the quality of life measures.Results: 167 of cancer patients were participated. The mean overall QOL score was 53.07±SD 12.68. Higher QOL was associated with patients who were married, higher educated, employed, had good family support and longer duration of illness. Significantly lower QOL was found in those who involved on radiotherapy treatments and feeling alone. Marital status, education status, comorbidity, family support and feeling alone were identified as predictors for QOL among the study group.Conclusions: The overall QOL score was considerably low in our study. Continuous family support and good education may significantly improve the QOL of cancer patients. Psychosocial and awareness programs to the family members and neighbours should be implemented to enhance the quality of life of cancer patients. 


Author(s):  
Nishantha Kumarasinghe

Background: The significant increase in the burden of chronic kidney disease of unknown etiology (CKDu) of Sri Lanka has led to evaluate the factors related to physical, social and mental aspects of health-related quality of life (HRQOL) in CKDu patients. Methods: The quality of life of 84 CKDu patients (stages 1-5) were assessed by means of the Kidney Disease Quality of Life Short-Form survey (KDQOL™-36) Version 1.3 along with biomarkers and patient demographics. The estimated glomerular filtration rate (eGFR) was calculated using the Modification of Diet in Renal Disease (MDRD) formula. Results: KDQOL™-36 scores impaired substantially across all stages of CKDu and comparatively lower scores were present in later stages of the disease than the initial stages. The mental composite summary (MCS) scores were more impaired when compared to physical composite summary (PCS) scores during the early stage of the disease. Poor KDQOL™-36 scores were present in males than in females with a significant difference in MCS and social support scales. Biochemical parameters showed a significant correlation with the majority of KDQOL™-36 dimensions while urine albumin to creatinine ratio did not. Conclusion: CKDu patients in any stage of the disease despite their age and gender have a significant physical and mental health burden. Thereby, early assessment of health-related quality of life will help to identify high-risk patients, and modifying these factors may provide a better active and healthy lifestyle.


Author(s):  
Hansani Madushika Abeywickrama ◽  
Swarna Wimalasiri ◽  
Yu Koyama ◽  
Mieko Uchiyama ◽  
Utako Shimizu ◽  
...  

Symptom burden and health-related quality of life (HRQOL) are important predictors of how a disease affects patients’ lives, especially for endemic health problems such as chronic kidney disease of uncertain etiology (CKDu). Our study describes symptom burden, HRQOL, and associated demographic and clinical variables in CKDu patients in the Girandurukotte area, Sri Lanka. A cross-sectional study included 120 CKDu patients attending the renal clinic in the endemic area. The instruments applied were the Kidney Disease Quality of Life—Short Form (KDQOL-SFTM) version 1.3 and CKD Symptom Index—Sri Lanka. Socio-demographic, disease-related, and anthropometric variables were also investigated. The mean age of patients was 61.87 (SD 11.31), while 69.2% were male. The mean glomerular filtration rate was 28.17 (SD 14.03) mL/min/1.73 min2, and 70.8% were anemic. Bone/joint pain was the most experienced symptom while the median number of symptoms reported by patients was 5 (IQR 3–7). The mean symptom burden, physical component summary, mental component summary, and kidney-disease-specific component scores were 12.71 (SD 10.45), 68.63 (SD 19.58), 78.53 (SD 18.78), and 81.57 (SD 5.86), respectively. Age was found to be a significant predictor of HRQOL, while hemoglobin level and being a farmer were significant predictors of symptom burden. Our data indicate that CKDu patients in all stages experience at least one symptom affecting all aspects of HRQOL.


2020 ◽  
Vol 2 (12) ◽  
pp. 2778-2786
Author(s):  
Shilanthi Seneviratne ◽  
Samitha Ginige ◽  
Sanjeewa Kularatna ◽  
Nalika Gunawardena

PLoS ONE ◽  
2014 ◽  
Vol 9 (11) ◽  
pp. e108434 ◽  
Author(s):  
Sanjeewa Kularatna ◽  
Jennifer A. Whitty ◽  
Newell W. Johnson ◽  
Ruwan Jayasinghe ◽  
Paul A. Scuffham

2022 ◽  
Author(s):  
Eranthi Weeratunga ◽  
Chandanie Senadheera ◽  
Manjula Hettiarachchi ◽  
Bilesha Perera

Abstract Background: Religious and spiritual support (RSS) is considered a vital method of coping among patients with cancer and cancer survivors. Measuring religion and spiritual support received by cancer patients has very little evidence in Sri Lanka compared to the western countries. It would be affected on cancer care management and speedy recovery process of cancer patients; could be benefited to reduce long-term suffering of patients with cancer. This study aimed to develop and validate a tool to measure religion and spiritual support in patients with cancer. Methods: WHO guidelines were incorporated into the cross-cultural adaptation of the newly developed religious and spiritual support scale (RSSS). Internal consistency for the overall RSSS was investigated using Cronbach’s alpha. Intra-class correlation coefficient (ICC) was used to examine the test-retest reliability of the RSSS for the same sample. Validity was checked using convergent and divergent validity. Principal component analysis (PCA) was performed to test factorial/construct validity.Results: The Sinhalese version of RSSS showed a high internal consistency (Cronbach’s alpha-0.883). The scale revealed favourable test-retest reliability (ICC = 0.981). The overall RSSS score correlated negatively and positively with depressive symptoms (r= - 0.338, p<0.05) and quality of life scores; overall (r=0.421, p<0.001), physical (r=0.340, p<0.05), psychological (r=0.279, p=0.08), social (r=0.373, p<0.05) and environmental quality of life (r=0.429, p<0.001) confirming satisfactory divergent and convergent validity of the Sinhalese version of the RSSS. Factor analysis with PCA extracted two factors explaining 74.47% of the variance.Conclusions: The Sinhalese version of RSSS is a reliable and valid scale to assess the religious and spiritual support of patients with cancer in Sri Lanka.


OUSL Journal ◽  
2019 ◽  
Vol 14 (2) ◽  
pp. 31
Author(s):  
M. A. S. S. Premadasa ◽  
H. G. I. M. Hulangamuwa ◽  
W. A. D. H. Wijesooriya ◽  
T. D. Amarasekara

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