Understanding the Roles of Romantic Partners and Parents in the Management of Type 1 Diabetes in Emerging Adults

Although theoretical and empirical writings on habits and routines are a promising body of science to guide interventions, little is known about such interventions among emerging adults with type 1 diabetes. Thus, an integrative review was conducted to describe interventions in relation to habits and routines, their influence on outcomes, and users’ perspectives. A medical librarian conducted a search. Teams screened titles, abstracts, and articles based upon predefined criteria. Evidence from the final 11 articles was synthesized. A minority of investigators explicitly articulated habits and routines theoretical underpinnings as part of the interventions. However, text messaging or feedback via technology used in other interventions could be implicitly linked to habits and routines. For the most part, these interventions positively influenced diabetes self-management-related behaviors and health outcomes. In general, the interventions were perceived positively by users. Future research is advocated using habit and routine theoretical underpinnings to guide interventions.

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927-P: Risk of Substance Use Disorders among Adolescents and Emerging Adults with Type 1 Diabetes: A Population-Based Cohort Study

Diabetes ◽

10.2337/db21-927-p ◽

2021 ◽

Vol 70 (Supplement 1) ◽

pp. 927-P

Author(s):

ANA CREO ◽

SWETHA SRIRAM ◽

LISA VAUGHAN ◽

AMY WEAVER ◽

SEEMA KUMAR

Keyword(s):

Substance Use ◽

Type 1 Diabetes ◽

Cohort Study ◽

Emerging Adults ◽

Substance Use Disorders ◽

Population Based

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Friendship and Romantic Relationships Among Emerging Adults With and Without Type 1 Diabetes

Journal of Pediatric Psychology ◽

10.1093/jpepsy/jsu069 ◽

2014 ◽

Vol 40 (3) ◽

pp. 359-372 ◽

Cited By ~ 20

Author(s):

V. S. Helgeson ◽

K. Mascatelli ◽

K. A. Reynolds ◽

D. Becker ◽

O. Escobar ◽

...

Keyword(s):

Type 1 Diabetes ◽

Romantic Relationships ◽

Emerging Adults

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Telemedicine Services for Emerging Adults with Type 1 Diabetes

US Endocrinology ◽

10.17925/use.2018.14.2.73 ◽

2018 ◽

Vol 14 (2) ◽

pp. 73

Author(s):

Neesha Ramchandani ◽

Keyword(s):

Type 1 Diabetes ◽

Emerging Adults ◽

Health Information ◽

Research Needs ◽

Diverse Populations ◽

Developmental Needs ◽

The Many ◽

Competing Priorities ◽

Age Range

Emerging adults with type 1 diabetes (T1D) often find it challenging to manage their diabetes well due to the many competing priorities they are juggling during this time. The majority of emerging adults (72%) are already looking for health information online, so telemedicine may be an avenue to explore with them. Telemedicine services for individuals with T1D are becoming increasingly popular and have been found to be beneficial for those who use them. However, there are very few multi-component telemedicine services available for individuals with T1D, and none of them provide a comprehensive technology-based system. Additionally, while these multi-component T1D telemedicine systems often included emerging adults in the group under study, the average age of the study subjects was usually above the age range of emerging adulthood. This suggests that specific developmental needs of emerging adults are not being addressed by these telemedicine systems, nor are the issues faced by diverse populations. More research needs to be done to address which telemedicine services, if any, would be beneficial for this especially vulnerable population.

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Adherence decision making in the everyday lives of emerging adults with type 1 diabetes

Patient Preference and Adherence ◽

10.2147/ppa.s47577 ◽

2013 ◽

pp. 709 ◽

Cited By ~ 27

Author(s):

Beth Pyatak ◽

Daniella Florindez ◽

Weigensberg

Keyword(s):

Decision Making ◽

Type 1 Diabetes ◽

Emerging Adults ◽

Everyday Lives ◽

The Everyday

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Who Needs Diabetes Education? A Qualitative Analysis of Emerging Adults With Type 1 Diabetes

The Science of Diabetes Self-Management and Care ◽

10.1177/26350106211051297 ◽

2021 ◽

Vol 47 (6) ◽

pp. 436-446

Author(s):

Margot E. Porter ◽

Michelle L. Litchman ◽

Ernest G. Grigorian ◽

Julia E. Blanchette ◽

Nancy A. Allen

Keyword(s):

Type 1 Diabetes ◽

Emerging Adults ◽

Online Community ◽

Diabetes Management ◽

Diabetes Education ◽

Further Education ◽

Transitional Period ◽

Primary Care Clinics ◽

Glycemic Management

Background The purpose of this study is to explore the diabetes self-management education (DSME) needs of emerging adults with type 1 diabetes mellitus (T1DM) because addressing these needs may facilitate optimal glycemic management during this challenging transitional period. Methods A hybrid qualitative design was utilized. Emerging adults and parents of emerging adults were recruited from endocrinology and primary care clinics and through a Utah-specific T1DM online community. Interviews were conducted to asses needs to achieve target A1C. Data were interpreted thematically. Results Emerging adults with T1DM (N = 33) and parents of emerging adults with T1DM (N = 17) were interviewed. Three main themes emerged: (1) mixed desire for personal DSME; (2) I don’t need the education, others do; and (3) health care provider (HCP) attributes that make a difference. Associated subthemes were reported. Conclusions Emerging adults reported that further education for themselves was not needed, although newly diagnosed individuals would benefit from increased training in diabetes management. Although many emerging adults had a supportive social network, they endorsed the need for greater public education to avoid diabetes misinformation. Emerging adults felt more connected with HCPs that had diabetes-specific training (ie, endocrinologist) or those who personally live with T1DM.

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Experiences and perspectives of the parents of emerging adults living with type 1 diabetes

BMJ Open Diabetes Research & Care ◽

10.1136/bmjdrc-2019-001125 ◽

2020 ◽

Vol 8 (1) ◽

pp. e001125

Author(s):

Cheryl Pritlove ◽

Benjamin Markowitz ◽

Geetha Mukerji ◽

Andrew Advani ◽

Janet A Parsons

Keyword(s):

Type 1 Diabetes ◽

Emerging Adulthood ◽

Emerging Adults ◽

Diabetes Management ◽

Self Management ◽

Comparative Approach ◽

Transition To Adult Care ◽

Adult Care ◽

Difficult Time

IntroductionWhereas it is widely recognized that emerging adulthood can be a difficult time in the life of an individual living with type 1 diabetes, relatively little is known about the experiences of their parents or guardians. These individuals once shouldered much of the burden for their child’s diabetes ‘self’-management, yet their contribution is often overlooked by the adult healthcare system. Here, we set out to gain an understanding of the perspectives of parents of emerging adults living with type 1 diabetes.Research design and methodsSemi-structured interviews were performed with a purposeful sample of parents of emerging adults with type 1 diabetes recruited from two urban young adult diabetes clinics and through a national diabetes charity. Thematic coding was derived using a constant comparative approach.ResultsAnalysis of interviews with 16 parents of emerging adults with type 1 diabetes identified three themes: parental experiences of the transition to adult care; negotiating parent–child roles, responsibilities and relationships; and new and evolving fears. Parents spoke in detail about the time surrounding their child’s diagnosis of type 1 diabetes to emphasize the complexity of diabetes care and the need to establish a ‘new normal’ for the family. In turn, adolescence and emerging adulthood required a renegotiation of roles and responsibilities, with many parents continuing to play a role in high-level diabetes management. Several parents of emerging adults with type 1 diabetes (particularly those of young men) vocalized worries about their child’s readiness to assume responsibility for their self-care, and some expressed frustration with the apparent dichotomy in the role expectations of parents between the pediatric and adult care settings.ConclusionsAdult healthcare providers should recognize both the ongoing involvement of parents in the ‘self’-management of emerging adults with type 1 diabetes and the unique aspects of the caregiver burden that they experience.

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